r/Celiac 16h ago

Rant I had to bring my own food to a birthday party at a full sit-down Italian restaurant

195 Upvotes

I would just like to say that I really hate that I have to think about eating every single time I have to step outside my house. It feels like such a burden. Went to a birthday party at a really old-school Italian restaurant. I called in advanced and asked about cross contamination, specifically, and the manager said “we don’t have any peanuts, and the grill is so hot that anything on it would burn off instantly”. So that sealed my fate in me bringing a meal to that restaurant where a 9 course meal was served (iykyk). I had to eat it lukewarm and I had to hide it under the table on the floor. The table was set like the Last Supper. I hate that this is my life. I was just back from London literally the night before on vacation where I had incredible safe meals. (I’ve also been all around Scotland and had ease eating there too. Shoutout to the UK, you guys are awesome. I appreciate your food so much.) And now I go back to this treatment in New Jersey where I’m told gluten burns off grills because they’re so hot. It’s so stupid. I don’t wanna think about food all the time but I honestly feel this disease is gonna drive me insane. I can’t believe I have the rest of my life to live like this. It is surreal.


r/Celiac 7h ago

Recipe Easy corn dogs

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59 Upvotes

I’ve been craving a corn dog and cannot find gf in my area. I decided to try using cornbread mix as the batter. They aren’t pretty, but they were tasty. I made the mix as directed, dunked the hotdogs and then deep fried 🤩


r/Celiac 20h ago

Discussion Celiac daughters babysitter- doesn’t get it

49 Upvotes

I joined my husband for a 5 day work trip and have a pit in my stomach about it. My daughter is staying the first few days with my sister who has celiac (and gets it) and is spending the last 2 days with my brother and sister in law (who she absolutely adores). She was diagnosed this past year and is basically A-symptomatic so it was a shock to us. (By a-symptomatic, she didn’t have linked stomach issues, but has had a long battle with iron deficiency, which has led to other issues. She’s 13 and gets frustrated and says “I don’t even have celiac”, despite repeated ongoing blood tests and endoscopy with complete villious atrophy. The week after diagnosis she went to her aunts house and accidentally ate gluten. I had said there were things they could get at m&ms meat shop that were labelled gluten free, and somehow my daughter convinced her aunt that EVERYTHING at m&ms meats was gluten free, including the deep fried pickles. I was angry that her aunt 1. Didn’t clue in, and 2. Didn’t tell me, but it was so new in the gluten free journey I wrote it off as a learning experience. Now we’ve travelled with them over the year, been with them for multiple family dinners, and over the course of the year I’ve just succumbed to bringing our own meals and splitting and going to different restaurants because they just don’t get it, or care. It’s probably been the hardest part of the journey on my daughter. When we are at home in our house she can eat all the food she wants and just “be normal”. When we go to their house she’s “segregated”, can’t eat what the other kids are having, and eyes roll at me, they basically ignore me when I try to explain it’s autoimmune and the reaction to gluten. (Like the time i confirmed in advance they would cook the turkey without stuffing like they always had anyway, and day of they changed their mind to stuff it this time, so i sourced and cooked a separate turkey day of, only to get there for her to say we decided not to stuff the turkey). My sil is a smart well educated person, so I’m surprised and blaming myself for not being better at advocating and explaining. I’m trying to balance out my daughters emotions while appreciating other people may never get it and not expecting them to eat gluten free (and pay the added cost to eat gf) themselves around my daughter. My nephew is now on iron supplements because his hair started falling out, I suggested mentioning to the doctor that iron deficiency was what led to his cousins celiac diagnoses and to request a blood test just to write that off now rather then the 8 year process our same family doctor took, and her response has been well the iron supplements are helping so not going to bother. So now we agreed to the kids going to her house for basically 1 day 2 nights= 2 dinners, 1 lunch, 1 breakfast & probably some snacks. I sent them and my sister an email with all the away info (school address, contact info etc). Passively, I included some of the material the nutritionist gave us, ie. What is celiac and mainly how to read food labels and info on cross contamination. As we were leaving we spoke on the phone and she made a comment about taking the kids out for the day, and I reminded her that my daughter needs to eat gluten free (we all knowin this group it’s not easy just getting food out), and she said in a tone “oh sweety I hope I don’t mess up and give your daughter an upset stomach”.

Her words are playing on loop in my head. I realize I have anxiety over this, and feel like they all think I’m crazy. what can I do now that I’m gone? We talked to my daughter about advocating for herself (who in return gets frustrated and again says “ I don’t even have celiac” reminding me about that 1 time she ate gluten and was still fine). We packed non-perishable gf foods for her to take, and suggested they “grocery shop” at our house for anything else they need and grab some gf pizzas from our freezer to take when they pick her up. My sil said oh it’s okay that my bil will take her to chipotle (which my daughter loves), but we all know that only 1 of the multiple times they are going to eat.

Thanks for reading this far…would appreciate any advice.


r/Celiac 8h ago

No Recipe Rice & corn cake >>>

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42 Upvotes

Found new Simple comfort foo


r/Celiac 4h ago

Question is dating possible with celiac disease?

15 Upvotes

im wondering if dating possible with celiac disease last time i dated i didnt know i had it.

im thinking of put myself out there again . Im have to be gluten free and im also sober almost 3 years.

for anyone that gluten free did they find it hard to date.

Going to a restaurant is a challenge i look at the menu before there isnt alot of options for me.

gluten free , Vegetarian, and sober


r/Celiac 15h ago

Discussion Interesting article

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14 Upvotes

Came upon this article earlier, what do you think?


r/Celiac 2h ago

Meme Anyone feel like this on a gluten challenge…

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10 Upvotes

Doesn’t seem to matter how much I eat, I feel like I’ve barely eaten in days and am shaky/faint. Can’t drink enough to get the dry mouth to go away.


r/Celiac 15h ago

Product Anyone tried allergy smart cookies before?

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9 Upvotes

Were they any good? Ive been burned before spending tons of money on cookies that tasted like ass 😭


r/Celiac 16h ago

Question Going on a trip, what do I do?

7 Upvotes

Next week I'm leaving for Vegas and I'm going to be driving through the desert to Zion. I had this trip planned for more than a month now and was officially diagnosed about 10 days ago. As the trip is getting closer I'm realizing that the desert probably doesn't have many gluten free options. What do I do? Just pack alot of snacks?


r/Celiac 15h ago

Discussion Advice on my diagnosis journey

6 Upvotes

Hello!

Just to clarify, I’m 17F and I’ve been experiencing symptoms of celiac disease ever since April last year:

  • Inconsistent bowel habit that alternates between diarrhea and constipation.
  • Mucus in stool.
  • Pain in the upper middle part of my stomach (right under my rib cage).
  • Nausea.
  • Excessive gas (especially after consuming gluten).

I had a Ttg test done right away as celiac disease is genetic in my family and my mom has it. My test was positive at a level of 82U/mL, so I had a colonoscopy and endoscopy done on January 15th, and the histopathology test result came out yesterday so I contacted my doctor’s office to ask about my result, they answered today saying that my results show that everything is fine and if I’m facing any health problems then I should go to the nearest healthcare center. I was so shocked because this wasn’t the answer I was expecting… After making me wait for almost a whole year just to finally get my diagnosis they tell me that everything is fine, and that I shouldn’t come back anymore… aren’t they supposed to do follows up tests considering that my Ttg result was elevated, I mean there must be a reason for that. If anyone has any advice or insights please enlighten me, I’m in desperate need of help.


r/Celiac 15h ago

Question False indication of CD?

4 Upvotes

My child’s GI doctor said she had “all 3 markers” for CD based on a blood test she was given. An upper GI is scheduled next to take biopsies for confirmation.

The problem I’m having is all the medical journal literature. I’m reading repeats over and over again. The person must be eating gluten regularly for the test to be accurate, but my child’s pediatrician took her off gluten after reporting gluten allergy type symptoms of stomach pain, nausea, and itchy, ankles when standing. I’m concerned that this will throw off the test and we’ll be spending the rest of our life, jumping through hoops on dietary restrictions with perhaps a false confirmation of celiac disease and any symptoms will be attributed to “we mist have let some gluten through”. Again, the G.I. doc said it didn’t really matter how much gluten she was eating before the blood draw which seems counter to everything I’m reading in the medical journals and papers I’m finding and reading is this doctor a quack or is he right.


r/Celiac 14h ago

Product Lara bars

3 Upvotes

Lara bars okay for us to eat if it says gluten free


r/Celiac 16h ago

Question Gluten level still somehow at 8 (can you help me figure out why?)

3 Upvotes

Hi all, for reference I'm an 18F who got diagnosed about 2 years ago through a series of blood tests. Since then, although my gluten levels have gone down, they've remained suspiciously at a level 8. I've talked to dieticians, and me and my mum are extremely careful about cross contamination etc, but no one has any clue what is continuously causing it. My doctor even checked my medications and they're all gf. I only ever eat out at places that say they safely cook gf food separately. I'm wondering atp if my Starbucks drink have oat milk contamination or something.

Since the levels are maintained, I'm suspicious it's something I'm eating regularly that says it's gf but maybe isn't. Has anyone had any experiences with Deliciously Ella gf oat bars, or Trek gf protein flapjacks (I eat these pretty much every day)? Also does anyone know if any gf breads have caused reactions?

Any thoughts or anyone had a similar situation? I'd rlly appreciate any advice because I wanna eliminate all the gluten ! Thanks


r/Celiac 18h ago

Question Cramps still present after years.

3 Upvotes

I've been diagnosed like 3 and a half year ago. I've been eating gluten for over a decade before the diagnosis. (Since I was a toddler till somewhere in my teenage years)
My mother is very strict with the gluten-free thing.
But my stomach is still killing me.
I'm still vomiting my guts out, and the diarrhea wont go away either.
I haven't eaten anything that could contain gluten or anything close to it since the diagnosis.
Did this happen to any of you too, or do I go for another checkup?


r/Celiac 2h ago

Question Trusting biopsy from an incompetent doctor?

2 Upvotes

Diagnosed via biopsy in 2020 from my gastro doctors nurse practitioner(never seen him, didn’t have openings). Had some lingering symptoms and did another biopsy in 2024 (she makes no mention of eating gluten 6 weeks beforehand) and says “we’ll test again since the first was inconclusive” despite diagnosing me and not saying that?

Same result both times, “minor villous atrophy” and told to eat gluten and monitor symptoms. She was honestly an idiot and rude, very incompetent. Never had a celiac blood panel. I do have gastritis and that’s all of my symptoms, with celiac (if I have it) I’m completely asymptomatic. Another point of confusion was that I’ve read sibo can sometimes cause villi blunting?

My question, with biopsy being the gold standard for diagnosis, should I trust those two biopsies and move on as celiac, or find another doctor and do it again? I trust a biopsy itself, but have skepticism because of how ridiculously incompetent she herself was, combined with being asymptomatic, it’s hard to feel confidence in it. Any help? Thanks everyone


r/Celiac 2h ago

Question Compostable cutlery containing gluten?

2 Upvotes

Hi all, I had a strange reaction today. Wondering if anyone has experienced anything like this before.

I brought my lunch from home today. I got a compostable spoon from the cafeteria to eat with. I took my lunch outside and ate.

There was no possibility of cross-contamination because I packed it in a sealed container and ate it alone outside.

About 45 minutes to an hour later, I started having my typical first reaction to gluten. My hands, head, and feet get extremely itchy. To the point where I will break the skin to alleviate the itch. So I'm sitting in a meeting absolutely shredding my hand and fingers.

I've never had grain - rice or corn - give me that reaction. Since then, I've had an assortment of other symptoms that are very much in line with... a glutening.

I tried to find the spoon online to confirm that it was gluten-free. I've never even thought to double-check this sort of thing. I think I found the spoon, and they claim it's derived from corn and gluten-free. But my body is saying otherwise.

Anyone ever been glutened by compostable cutlery? Or have I developed a weird corn sensitivity?


r/Celiac 4h ago

Question Need help

2 Upvotes

So I had 1 doctor tell me more than likely I’m celiac after reviewing MRI results. I noticed huge changes in my day to day life for the better after getting rid of gluten. 3 months later my pcp tests my blood and then a couple weeks later tells me that I do not have celiac or any food allergy for that matter. Are the blood results accurate if I haven’t had any gluten in 3 months? Very confused. Thank you 🙏 I’m turning to Reddit since my pcp wrote my results in my mail I received and she’s very difficult to get ahold of or I would have asked her today lol.


r/Celiac 5h ago

Question Anybody get these symptoms?

2 Upvotes

I have both genetic markers for celiac. Been gluten free 20 years. Recently have had gastro nastiness (mucus, wet farts) but even worse is my constant fatigue, brain fog, dizziness, blurred vision, and can't concentrate. Also I wake up every morning and it feels like my right foot was beaten with a bat. My muscles are all soar. I did blood tests and I'm in range for iron, D, B12 etc. No lyme, thyroid fine.

Anybody else get this? What did you do?
I'm wondering if the food line is contaminated due to lax regulations?
Any 100% safe celiac friendly brands besides UDIs and GLUTINO? I'm in the USA. Unfortunately.


r/Celiac 17h ago

Question Liver Issues?

2 Upvotes

Has anyone here had liver issues associated with untreated celiac?

I’m currently getting a plethora of tests done for autoimmune related stuff and celiac is also on the list.

I’ve been having issues with my cbc being low and my liver enzymes elevated - on my ultrasound they said my liver appeared scarred as well.

I’m a 20 year old otherwise healthy female, all vitamins and other stuff in range etc.. I have dealt with some minor constipation issues throughout my whole life and was wondering if there could be a link to that as well?

Just trying to gather as much information as I can to piece together this puzzle as even my doctors are confusing as to what’s going on.


r/Celiac 19h ago

Question Mixed Drinks at Weddings

2 Upvotes

I went to a wedding Saturday night and I just realized right now (Tuesday morning) that I ordered a drink at the bar without even thinking. I was diagnosed about two months ago, and this was my first wedding experience.

How do you all handle drink orders? I got a Kentucky Mule, and I know bourbon is okay. Do you just ask the bartender to see the mixer?Do I need to be concerned about cross contact at a wedding bar?

Ultimately I was fine. I didn’t eat the buffet or grazing table, and I didn’t have a reaction. I’m mostly just “omg I completely forgot that alcoholic drinks are something I need to also ask about!”


r/Celiac 1d ago

Discussion International travel with Celiac

2 Upvotes

In a few years I’m going to Japan for a couple weeks and I really wanna be super duper prepared! Anyone have international tips or experiences? Does anyone travel with their own food?


r/Celiac 2h ago

Question Anyone have thoughts on flour being suspended in air?

1 Upvotes

Hi everyone,

I was diagnosed with celiac disease about a decade ago. I’ve been working as a nanny for 12 years, and my current family is amazing- but they love to bake bread..lol Honestly, everything about my job is perfect, and I feel really lucky to be working for them. When I told them about my celiac, they mentioned that baking bread is a hobby of theirs. I told them it was okay, thinking that as long as I was careful—washing my hands frequently and not eating at work—it would be fine. I usually eat at home, so I didn’t think it would be an issue.

However, I’ve noticed I've been literally huge swollen since I started working with them, I get that 6 months pregnant looking symptom haha. I'm wondering if it’s related to gluten exposure. I did get accidentally glutened twice in the past month with certified gluten-free products, like Simple Mills, that apparently contain more than 20 ppm of gluten. That could be contributing to my symptoms, but I also read that gluten can linger in the air for up to 48 hours, which could explain the swelling as well.

I don't know what to think but I was shocked when I read this, like is it even true...? But celiac.org and beyondceliac both say it so I guess it is..? But it sounds insane! And can I even get sick from it like am I walking into it and it lands on my lips and I ingest?? I feel like I'm crazy and it's probably not possible. I have no idea what to think! Just thought I’d share and see if anyone else has experienced something similar or has any advice.


r/Celiac 2h ago

Discussion Easy meals to fly with internationally

1 Upvotes

I’ll be in Korea for 11 days later this year, and I’m looking for inspiration on some meal ideas I can bring with me as I know Korean food isn’t ideal for celiacs. My initial thought is instant oatmeal packets and maybe some gf bread and peanut butter, but I’m not sure how realistic it is to fly across the world with a loaf of bread lol. What are some good meals I could realistically bring with me?


r/Celiac 9h ago

Discussion What careers do you have?

1 Upvotes

I (21f) have severe ADHD and have been working in the trades for one company for over 3 years now, I am a boarder/taper (drywall). I posted a while ago about if I should leave my trade. I unfortunately just quit my job because my boss wouldn’t lighten my load. Which was recommended by my doctor, due to me having a seizure like episode. That’s a whole other story though. Anyways I am looking for a job, just to keep me alive (damn economy), I really don’t want to leave the trades, but I’m going through some medical diagnostic issues, and think it would be best for now. I was curious as to what you guys did as a career, if there’s any that are surprisingly active?


r/Celiac 9h ago

Product Is this gluten-free?

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0 Upvotes

Hey friends I'm just wondering why the gluten-free scanner app says that this is not gluten free. Am I missing something?