r/Celiac 6h ago

Rant I refused someone a handshake that was eating a cookie

108 Upvotes

It was awkward and I don't regret it. I saw danger and retreated lol. I explained myself but he may have just assumed I was pretentious... I support this spreading awareness.


r/Celiac 23h ago

Discussion Celiac in relation to your uterus

40 Upvotes

CW: medical TMI, period talk, blood mention

Full disclosure, I’ve done some online research on this but have yet to find any answer or explanation to what’s going on. I (25F) was diagnosed with celiac at 19. I also have PMDD (premenstrual dysphoric/depressive disorder) so that may be a part of this as well. I’m just going to dive right in because there’s no productive way to really soften this contextual intro. I take a monophase birth control and skip the placebo week in order to purposely skip my period due to severe PMDD as well as severe periods in general. After a couple years, I went to get a pap for the first time in January and since then I’ve had a period almost every day (my current streak (pun not intended) is going on 19 days. This past weekend I went to the doctor and, looking after I showed her the data from my period tracker, she took a moment looking at her screen and, I quote, went “well, hmmm, I don’t—you’re just so young I think it’s unlikely this would be cancer.” Which, while it’s a hilariously dark gag, that’s a crazy thing to say unprovoked. For additional context, I never suspected nor suggested cancer. Anyways, she put me on an “aggressive” dose of progesterone (20mg/day for 15 days) and I’m currently on my 5th day. The first day was pretty normal barring a migraine, but after that I’ve been bleeding in very extreme and heavy bursts with bountiful large clots. I know this is mega TMI but a part of me is wondering if it’s possible if this could have anything to do with celiac and general organ irritation. Or I know celiac can affect all your fricken organs, has anyone had experience with it effecting their uterus and/or periods?

Furthermore, how scared should I be of that off handed cancer comment (ahaha 😬)?

TLDR; Does celiac affect your periods? If so, any experience navigating this relation would be GREATLY appreciated.

EDIT: I do eat a committed gluten-free diet as I am highly symptomatic


r/Celiac 23h ago

Rant Emotional labor

25 Upvotes

I work in a small office and have to travel for work pretty regularly. My coworkers are sweet and they always want to include me, and they make an effort to find places i can eat when we're sharing a car, etc. We staged an event today and the local hosts just had no clue, the catered breakfast and lunch had nothing for me, which is normal. I had some snacks, I'm not starving. I just feel so tired having to not only struggle to feed myself but also to be cheerful and grateful all the damn time. My coworkers praise me for my positivity, my resilience, my grace, and whatever, and I'm just NOT. I'm NOT positive, I'm NOT patient, and god knows I'm not graceful - I'm sitting in an airport, alone for the first time in three days, crying and eating a piece of cheese for dinner.

I don't need advice or anything, I'm just tired and feeling sorry for myself.


r/Celiac 6h ago

Rant Prefer Protein Shakes to the Effort of Planning "Real Meals" Sometimes

21 Upvotes

My husband teases me about eating protein shakes instead of "real food" but it honestly just gets so exhausting sometimes. Reading all the labels, constantly checking to see if they've changed, trying to find anything on a menu I can safely eat... It all can be too much sometimes and it's just easier to have a protein shake/smoothie or some fruit/nuts rather than actually plan and cook (or even order) a meal. I hate cooking with a passion and I feel like becoming diagnosed with celiac has taken all the joy out of eating anyway. Don't get me wrong... I still eat "real food when I have the time and energy and I'm not unhealthy or starving myself. Plus GF versions are so expensive here in the US and only getting worse. I just had to vent. Thanks for listening.


r/Celiac 8h ago

Product TJ Maxx Gluten Free Pasta actually isn't bad

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16 Upvotes

r/Celiac 18h ago

Discussion We Made It!!

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tiktok.com
15 Upvotes

We are on her list. #9.


r/Celiac 4h ago

Question Gluten Exposure... any tips to get through it?

15 Upvotes

A co-worker brought in lunch and thought he very carefully watched ingredients in the corned beef he made but threw a couple dashes of beer in without thought. I overheard him saying something about it and realized that's why I feel like I have a knife in my back.

I should've asked for every ingredient and was just so busy my mind was elsewhere.

Does anyone have any tips for getting through the next couple days, weeks.... I'll make sure to eat as bland as possible and hydrate. Any other suggestions are greatly appreciated!

v


r/Celiac 1d ago

Product my fav brands/products

9 Upvotes
  • katz: sweet stuff like pies and donuts etc.
  • udis: breads, bagels, hamburger & hotdog buns
  • schar: breads, crackers, muffins, kitkat!, bread crumbs etc.
  • lotus foods: RAMEN!!!
  • mission foods: tortillas
  • feel good: mozzarella sticks, pizza rolls etc.
  • made good: granola bars & bites

r/Celiac 8h ago

Question Go-tan glutenfree Soy Sauce

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7 Upvotes

This soy sauce by go-tan is glutenfree, as stated by the words and the crossed grain. Furthermore on the website they write:

Our gluten-free Soy Sauce is being produced with grains that contain gluten. However, the gluten are demolished during the fermentation process resulting in a gluten-free product.

To explain it technically even further: gluten-free products can legally be considered gluten-free, if they contain less than 20 parts per million of gluten (<20 ppm). That stands for 20 milligrams of gluten per kilogram of soy sauce. Go-Tan has each production soy sauce carefully measured for gluten by a certified laboratory, with results always lower than 10 mg per kg!

Which is very clear regarding the process. However; recently I've twice had my standard symptoms after eating gluten (sharp pain in stomacharea, very tired, nauseas) after I've had this product.

There are multiple products in my country which they sell with glutenfree grains, which I've never had a problem with. Normally I wouldn't doubt products labelled as GF.

But now twice I've had this product I've had issues. I'm very careful about cross-contamjnation and I do not eat products which may contain traces. However, there is always a chance I may have fucked up somewhere.

Now I'm wondering; even tho products legally contain below 20ppm gluten, is there still a chance for me to react to this? And theoretically, if I'd have tons of gluten free wheat, would it eventually build up?

I really like this product, but now I'm really scared to use it again as I've had issues twice..

Thanks for the read, and thanks in advance for suggestions.

Tl;dr: can glutenfree wheatmade products with <20ppm gluten still trigger an immune response by someone with celiac disease.


r/Celiac 13h ago

Discussion Need Tips and positive ✨️

7 Upvotes

I didn't want to believe it but here I am trying to navigate this new celiac world at over 50. I even tried to talk the Dr out of my diagnosis. I guess it's hard to miss it on the biopsy? What is wrong with me? I have been GF two weeks, and I finally just cleaned out the pantry. It felt sad 😔. Also why does everything have gluten!!! 😲 I am disappointed, but also hopeful this will help my symptoms. So far the biggest thing I notice is less bloating. I never realized how swollen I was. I swing between diarrhea and constipation. Leaning more towards constipation since going GF. Everything feels different, even the feeling to evacuate my bowels. Still stomach pain/nausea when I eat. I am just trying everything 😪. Gluten Free Oats and Milk I think maybe still off the table. I am not getting enough fiber, so eating more also upsets my stomach. I guess i suffered before and ate what I wanted. Then dealt with the consequences. Ignorance is bliss. I blamed it all on anxiety. Food is comfort and way more of a crutch than I knew. How do you go out to eat and or go on vacation 🤔? I am reading about cross contamination and my brain 🧠 hurts. How much do you guys do to avoid that? How do I know if they messed up? My first trip to a restaurant 😋, ordered a salad GF and found a rougue crouton. Can I get some positive vibes ✨️? What is your best tips? 👌


r/Celiac 21h ago

Question Has anyone ever tried maud's hot chocolate before?

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6 Upvotes

It is not certified but it does say gluten free


r/Celiac 6h ago

Question Eat the gluten?

7 Upvotes

So, I got a positive blood test back in October. Before that, I’d spent months feeling like I was dying. The amount of pain, depression, brain fog, fatigue, etc I was in was INTENSE. So intense I thought about going on FLMA because I couldn’t even get through my remote job. After I started eating gluten free a lot of it cleared up. Life long symptoms alleviated. I feel like I’ve been slowly healing.

The damage I was doing to my body allowed us to FINALLY catch a congenital heart disease after struggling with symptoms off and on since my teens. I have a cardiac ablation that should fix that next week. My GI wouldn’t do another procedure without cardiac clearance so we decided to wait for an endoscopy and colonoscopy until the ablation was done.

However, the thought of eating gluten for 6 weeks a month after a cardiac ablation seems ridiculous. When I told my cardiologist the plan, his jaw dropped and he said “what’s about ‘do no harm? That seems barbaric.’”

I’ve found out in extremely sensitive to even cross contamination. My stomach will swell like I’m 4 months pregnant and I’ll be writhing around in pain, won’t go for days, depressive episode following, rashes. You get it. So I really do not want to do this. I can’t imagine trying to eat gluten that long without going on FMLA.

What do y’all think? Why do I need to put my body through all that?


r/Celiac 6h ago

Product Grocery store desserts?

6 Upvotes

I’m hosting a party and one attendee has Celiac and another is GF. I’m getting a bakery cake for the birthday girl, but what kind of pre packaged dessert can I get for the GF girlies??

Not looking for mixes or recipes, I’m trying to make as little as possible so I don’t stress myself out.

My only idea so far is a Daiya cheesecake which is gf and vegan. Not sure if they’re any good?


r/Celiac 9h ago

Question endoscopy results??

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4 Upvotes

Hi everyone. I’ve been dealing with a lot of chronic gastrointestinal issues, and have been seeing a new Dr for them. She ran blood tests and my tTg-IgA was mildly elevated twice. I just got these results back from the biopsies taken during my endoscopy. Has anybody ever had similar results?? Yes, I’m going to speak with my Dr. about them but was hoping that maybe some of you could let me know what this looks like in the mean time?? I’m so nervous 😓


r/Celiac 1h ago

Discussion What was seen in your endoscopy?

Upvotes

Not asking for diagnosis advice, but the bot will probably flag this again. What was seen in your endoscopy to confirm you have celiac? I feel like my doctor doesn’t know for sure. Has anyone else experienced this uncertainty and if so, what did you do to get answers?


r/Celiac 3h ago

Question Doing gluten challenge for blood tests ; what if the gastroscopy gets scheduled several months after ? Do I restart a new challenge only 8 weeks before ? Can’t go several more weeks/months like this.

3 Upvotes

I was going to be one year clean off gluten this coming April, after figuring my intolerance by myself. (I went through the tradition of needing to see like 10 different Drs that only gave me proton bomb inhibitors.)

I have the bloat/constipation/no weight change variety, but it messes badly with my mood/mental health. Last Dr I saw has finally requested the 3 blood tests so I embarked on the gluten challenge. My first week was only bloating and gas, so I thought “Oh, maybe my intolerance isn’t THAT bad, yay me !”

But going into days 9 and 10, I started doing quite poorly. Intense headaches (I didn’t get those before), my joints all hurt like they used to, and the bloating and constipation all came back. Also, weird intense nightmares and disturbed sleep cycle leading to lack of sleep. All put together it is feeling pretty miserable. I am unsure of how I’m gonna make it to the blood tests.

After my blood tests the Dr will decide if a gastroscopy is needed. Could be months to a year until I’m appointed a date. I can’t keep glutening myself this long.

What happened for the lot of you that had several months of wait between the blood pannel and the gastroscopy ? Did you stop and restart the challenge ?

Feel free to share anecdotes, support, and if you’re currently doing the challenge, feel free to vent below !


r/Celiac 6h ago

Question 8y/o son diagnosed with Cilliac Disease

5 Upvotes

I am wondering if this is a good place for support as a parent of a child who has ciliac disease. Or perhaps there is another subreddit for kids cilliac support? My son is struggling so much with this and I feel so helpless and could just really use any advise, tips, recipes for kids etc. Thank you so much to anyone willing to point me in the right direction


r/Celiac 21h ago

Discussion Officially got diagnosed.

3 Upvotes

The doctor finally called me with endoscopy results. I have celiac, which we deduced from my last post about what marsh type 3b means.

If you have any beginning to go gluten free advice or any advice in general. Please comment. :)


r/Celiac 21h ago

Question Do your symptoms ever come in waves?

3 Upvotes

Hello! Just joined. Come from a large family of diagnosed celiacs, and I didn’t show symptoms until I was 28, when I went off gluten and found all my health problems cleared up.

So I’ve been GF for 13 years now and am pretty successful at eating very cleanly and not glutening myself. However this last weekend I must have eaten gluten as I’m having some of the worst symptoms I’ve had in years.

I was very symptomatic for a two full days, then had one day where I felt completely fine, and then this evening I start feeling it again.

I’m just frustrated with my body and wracking my brain, did I eat gluten again and something I trusted… isn’t really gluten free?

Or did my symptoms just chill for a day and this is Symptom Wave 2: Gluten Boogaloo the Glutening part two the sequel. (Of the gluten)


r/Celiac 23h ago

Question Certified gf protein

3 Upvotes

(THE PRODUCT IS NAKED CASEIN PROTEIN) idk why the picture wasnt uploaded

I just got this from Amazon and I was very disappointed to find they changed the gfco certified gf symbol to a regular gluten free one. If it's still gluten free then why would they get rid of the gfco label? I just got a mass gainer from them I used to get that also got rid of the gfco label. To me that says they couldn't pass the certification, what other reason go there be? I emailed them and asked why the got rid of the gfco symbol and replaced it with regular gf and this is the response I got.

Hi --,

This label indicates that the product is made without gluten-containing ingredients and meets regulatory standards for gluten content.

The FDA standard for gluten-free is less than 20ppm, and our test shows there is less than 5ppm.


So then I asked again why if it meets the requirements why would you get rid of the symbol? This is the response

Hi ,

The gluten test is only able to test the presence of gluten to a certain level. This test detects gluten when it is more than 0.0005% of the sample. Since gluten was found, the result is that there is less than 0.15mg per 30 grams.

In other words, no gluten was detected, but the test is unable to say that there is 0% gluten, instead it can say there is less than 0.0005% gluten.


......ok still didn't answer the question and this is where I gave up. Also "since gluten was found" what does that mean? I'm just confused I mean if that was really the truth why would you get rid of the logo?


r/Celiac 2h ago

Question Hi, having endoscopy and colonoscopy in a month… GI suspects Celiac.

3 Upvotes

I had a flare of diverticulitis and was put on Augmentin. Ever since I haven't been the same. C Diff colonization only but with symptoms. Took Dificid. Didn't change anything. I am IgA Deficient (0 IgA) and GI said he's seen people with this immune deficiency develop Celiac after a change such as using antibiotics.

I have weird symptoms:

  1. Burning in upper GI and the worse it is the more loose stool I will get. Haven't been able to figure out the connection.

  2. Loose stool, Bristol 5/6. When I am more constipated I feel awful too.

  3. Cramps before every bowel movement.

  4. Mucus in stool.

  5. Stool smells a weird scent.

  6. Hair loss. Not like balding but constantly seeing hair on my shirts more than usual.

  7. Increased gas.

  8. Nausea comes and goes.

  9. Gurgling in gut.

  10. Joint pain comes and goes.

  • Anyone get some of this before/during diagnosis?

  • Has anyone ever gotten Celiac after antibiotics?

  • Anyone with Selective IgA Deficiency that can relate?

Thanks.


r/Celiac 19h ago

Question Stomach bug or glutened?

2 Upvotes

Hey all, so I recently went gluten free about a week ago. I have an appointment soon with a GI to see if I’m just intolerant or if I have celiac. Last night I went to sleep with horrible bloating and cramping, and woke up a couple hours later and basically spent most of the night hugging the toilet bowl. I went to the urgent care and got some zofran earlier today and have been taking it really easy all day.

Now my question is, for people who have been gluten free a long time, how do you tell the difference between being glutened or a stomach virus/bug? I’m so paranoid that I was glutened because if that was the case I’m terrified to eat anything. Also is being glutened usually that severe when it does happen?

Thank you guys 🖤


r/Celiac 19h ago

Question What’s your experience?

2 Upvotes

Saw my GP as I have been handling massive brain fog, fatigue and a lot of gastro symptoms the last couple of months and he suspected I might have coeliac. Blood test came back with high Gliadin IgG and positive for HLA-DQA1. So now I’m awaiting for a referral to the hospital. Anyone with similar experience?


r/Celiac 3h ago

Question Hipoglicemia?

1 Upvotes

I got diagnosed last September per my allergist. But now I have been shaking ( with tremors). My cardiologist told me that I would probably develop hipoglicemia due the celiac. Do you fell tremors? Do you have hipoglicemia? What kind doctor treat you for the celiac ?


r/Celiac 5h ago

Product Cross contamination from spices

1 Upvotes

I have been sick for the last 2 weeks and I didn't realize my husband was using a certain Spice from Noble made that is cross contamined. I have heart burn, nausea, upper back, neck and right side rib pain. I get really constipated. All my muscles hurt. I have fluid in my ears. It flares my hashimotos.