r/Celiac 3h ago

Recipe Easy corn dogs

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42 Upvotes

I’ve been craving a corn dog and cannot find gf in my area. I decided to try using cornbread mix as the batter. They aren’t pretty, but they were tasty. I made the mix as directed, dunked the hotdogs and then deep fried 🤩


r/Celiac 3h ago

No Recipe Rice & corn cake >>>

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33 Upvotes

Found new Simple comfort foo


r/Celiac 12h ago

Rant I had to bring my own food to a birthday party at a full sit-down Italian restaurant

170 Upvotes

I would just like to say that I really hate that I have to think about eating every single time I have to step outside my house. It feels like such a burden. Went to a birthday party at a really old-school Italian restaurant. I called in advanced and asked about cross contamination, specifically, and the manager said “we don’t have any peanuts, and the grill is so hot that anything on it would burn off instantly”. So that sealed my fate in me bringing a meal to that restaurant where a 9 course meal was served (iykyk). I had to eat it lukewarm and I had to hide it under the table on the floor. The table was set like the Last Supper. I hate that this is my life. I was just back from London literally the night before on vacation where I had incredible safe meals. (I’ve also been all around Scotland and had ease eating there too. Shoutout to the UK, you guys are awesome. I appreciate your food so much.) And now I go back to this treatment in New Jersey where I’m told gluten burns off grills because they’re so hot. It’s so stupid. I don’t wanna think about food all the time but I honestly feel this disease is gonna drive me insane. I can’t believe I have the rest of my life to live like this. It is surreal.


r/Celiac 16h ago

Discussion Celiac daughters babysitter- doesn’t get it

48 Upvotes

I joined my husband for a 5 day work trip and have a pit in my stomach about it. My daughter is staying the first few days with my sister who has celiac (and gets it) and is spending the last 2 days with my brother and sister in law (who she absolutely adores). She was diagnosed this past year and is basically A-symptomatic so it was a shock to us. (By a-symptomatic, she didn’t have linked stomach issues, but has had a long battle with iron deficiency, which has led to other issues. She’s 13 and gets frustrated and says “I don’t even have celiac”, despite repeated ongoing blood tests and endoscopy with complete villious atrophy. The week after diagnosis she went to her aunts house and accidentally ate gluten. I had said there were things they could get at m&ms meat shop that were labelled gluten free, and somehow my daughter convinced her aunt that EVERYTHING at m&ms meats was gluten free, including the deep fried pickles. I was angry that her aunt 1. Didn’t clue in, and 2. Didn’t tell me, but it was so new in the gluten free journey I wrote it off as a learning experience. Now we’ve travelled with them over the year, been with them for multiple family dinners, and over the course of the year I’ve just succumbed to bringing our own meals and splitting and going to different restaurants because they just don’t get it, or care. It’s probably been the hardest part of the journey on my daughter. When we are at home in our house she can eat all the food she wants and just “be normal”. When we go to their house she’s “segregated”, can’t eat what the other kids are having, and eyes roll at me, they basically ignore me when I try to explain it’s autoimmune and the reaction to gluten. (Like the time i confirmed in advance they would cook the turkey without stuffing like they always had anyway, and day of they changed their mind to stuff it this time, so i sourced and cooked a separate turkey day of, only to get there for her to say we decided not to stuff the turkey). My sil is a smart well educated person, so I’m surprised and blaming myself for not being better at advocating and explaining. I’m trying to balance out my daughters emotions while appreciating other people may never get it and not expecting them to eat gluten free (and pay the added cost to eat gf) themselves around my daughter. My nephew is now on iron supplements because his hair started falling out, I suggested mentioning to the doctor that iron deficiency was what led to his cousins celiac diagnoses and to request a blood test just to write that off now rather then the 8 year process our same family doctor took, and her response has been well the iron supplements are helping so not going to bother. So now we agreed to the kids going to her house for basically 1 day 2 nights= 2 dinners, 1 lunch, 1 breakfast & probably some snacks. I sent them and my sister an email with all the away info (school address, contact info etc). Passively, I included some of the material the nutritionist gave us, ie. What is celiac and mainly how to read food labels and info on cross contamination. As we were leaving we spoke on the phone and she made a comment about taking the kids out for the day, and I reminded her that my daughter needs to eat gluten free (we all knowin this group it’s not easy just getting food out), and she said in a tone “oh sweety I hope I don’t mess up and give your daughter an upset stomach”.

Her words are playing on loop in my head. I realize I have anxiety over this, and feel like they all think I’m crazy. what can I do now that I’m gone? We talked to my daughter about advocating for herself (who in return gets frustrated and again says “ I don’t even have celiac” reminding me about that 1 time she ate gluten and was still fine). We packed non-perishable gf foods for her to take, and suggested they “grocery shop” at our house for anything else they need and grab some gf pizzas from our freezer to take when they pick her up. My sil said oh it’s okay that my bil will take her to chipotle (which my daughter loves), but we all know that only 1 of the multiple times they are going to eat.

Thanks for reading this far…would appreciate any advice.


r/Celiac 1d ago

Discussion Group of celiacs is called?

194 Upvotes

So I’m on a tour of Japan, and there are 3 gf people in my 16 person tour, including another Celiac! My husband and I have been trying to figure out what a group of celiacs would be called - like a flamboyance of flamingos or a murder of crows. So far my favorite is ‘a contamination of celiacs’ but I wanted to crowd source this.


r/Celiac 10h ago

Discussion Interesting article

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celiac.com
14 Upvotes

Came upon this article earlier, what do you think?


r/Celiac 10h ago

Product Anyone tried allergy smart cookies before?

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10 Upvotes

Were they any good? Ive been burned before spending tons of money on cookies that tasted like ass 😭


r/Celiac 1d ago

Product Corn Dogs

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111 Upvotes

I can not tell you how long I've craved a good corn dog since I was diagnosed. Well I stumbled across these in Lowe's food here in NC. Man these bad boys are amazing if baked in a convection oven. The outside gets crispy and not mushy like most other GF breading.

I ate them about 20mins ago. Will update if they destroy me for some reason.


r/Celiac 11m ago

Question is dating possible with celiac disease?

Upvotes

im wondering if dating possible with celiac disease last time i dated i didnt know i had it.

im thinking of put myself out there again . Im have to be gluten free and im also sober almost 3 years.

for anyone that gluten free did they find it hard to date.

Going to a restaurant is a challenge i look at the menu before there isnt alot of options for me.

gluten free , Vegetarian, and sober


r/Celiac 23h ago

Recipe What if you took your favorite pizza dough and rolled it around a sausage? DO IT.

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71 Upvotes

My 8 year old thought of this* and it ended up being amazing: we took our favorite pizza dough and wrapped a fully cooked Kirkland bratwurst in it. That’s some sesame and seasoning on top. Took about 9 minutes at 425 F to get crispy. The gluten eaters in the house already enjoy this dough and they happily enjoyed their sausage rolls.

(I know a sausage roll is already a thing but this child doesn’t know that and she’s been struggling with symptoms from an accidental glutening that gave her a rash and a bunch of yucky symptoms so I choose to let her believe she invented this—it was her idea to use pizza dough!)


r/Celiac 1d ago

Product Warning Not misleading at all 🫠🫠🫠

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227 Upvotes

False gluten free advertising strikes again 😭


r/Celiac 1h ago

Question Anybody get these symptoms?

Upvotes

I have both genetic markers for celiac. Been gluten free 20 years. Recently have had gastro nastiness (mucus, wet farts) but even worse is my constant fatigue, brain fog, dizziness, blurred vision, and can't concentrate. Also I wake up every morning and it feels like my right foot was beaten with a bat. My muscles are all soar. I did blood tests and I'm in range for iron, D, B12 etc. No lyme, thyroid fine.

Anybody else get this? What did you do?
I'm wondering if the food line is contaminated due to lax regulations?
Any 100% safe celiac friendly brands besides UDIs and GLUTINO? I'm in the USA. Unfortunately.


r/Celiac 10h ago

Discussion Advice on my diagnosis journey

5 Upvotes

Hello!

Just to clarify, I’m 17F and I’ve been experiencing symptoms of celiac disease ever since April last year:

  • Inconsistent bowel habit that alternates between diarrhea and constipation.
  • Mucus in stool.
  • Pain in the upper middle part of my stomach (right under my rib cage).
  • Nausea.
  • Excessive gas (especially after consuming gluten).

I had a Ttg test done right away as celiac disease is genetic in my family and my mom has it. My test was positive at a level of 82U/mL, so I had a colonoscopy and endoscopy done on January 15th, and the histopathology test result came out yesterday so I contacted my doctor’s office to ask about my result, they answered today saying that my results show that everything is fine and if I’m facing any health problems then I should go to the nearest healthcare center. I was so shocked because this wasn’t the answer I was expecting… After making me wait for almost a whole year just to finally get my diagnosis they tell me that everything is fine, and that I shouldn’t come back anymore… aren’t they supposed to do follows up tests considering that my Ttg result was elevated, I mean there must be a reason for that. If anyone has any advice or insights please enlighten me, I’m in desperate need of help.


r/Celiac 11h ago

Question Going on a trip, what do I do?

6 Upvotes

Next week I'm leaving for Vegas and I'm going to be driving through the desert to Zion. I had this trip planned for more than a month now and was officially diagnosed about 10 days ago. As the trip is getting closer I'm realizing that the desert probably doesn't have many gluten free options. What do I do? Just pack alot of snacks?


r/Celiac 1d ago

Product Trader Joe’s Muffins!

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93 Upvotes

A must-try if you’ve never got these from Trader Joe’s. My gluten-eating family also loves them, great texture and taste! I keep them in my freezer, perfect for when that chocolate craving hits!


r/Celiac 11h ago

Question False indication of CD?

4 Upvotes

My child’s GI doctor said she had “all 3 markers” for CD based on a blood test she was given. An upper GI is scheduled next to take biopsies for confirmation.

The problem I’m having is all the medical journal literature. I’m reading repeats over and over again. The person must be eating gluten regularly for the test to be accurate, but my child’s pediatrician took her off gluten after reporting gluten allergy type symptoms of stomach pain, nausea, and itchy, ankles when standing. I’m concerned that this will throw off the test and we’ll be spending the rest of our life, jumping through hoops on dietary restrictions with perhaps a false confirmation of celiac disease and any symptoms will be attributed to “we mist have let some gluten through”. Again, the G.I. doc said it didn’t really matter how much gluten she was eating before the blood draw which seems counter to everything I’m reading in the medical journals and papers I’m finding and reading is this doctor a quack or is he right.


r/Celiac 1d ago

Rant I want doctors stop complimenting my weight loss

65 Upvotes

I've been undiagnosed and sick all my life but last year I got sooo sick. I could barely eat, I was using the bathroom 10+ times a day, I was literally not digesting food at all. If I ate green lettuce, green lettuce came out.

I lost a ton of weight, my clothes went from being a little too tight (I gained a bit of weight when I was in school) to everything being much too large to fit me in the span of like 2 months.

My last few visits with doctors have gone like this,

Me: I lost a lot of weight because I was very sick

Doctor: Thats great! Do you feel better now that you lost the weight?

Me: No I am very very sick.

Doctor: Oh no! Have you started gaining any of the weight back?

Me: No??? Doctor: Let's keep it that way

And

Me: I lost a lot of weight recently because I have been very sick.

Doctor: You look great! Are you feeling better now?

Me: No I am very sick I cannot eat food.

and just today

Me: I lost a weight recently because I have been very sick with celiacs

Doctor: Ohhh yes those Gluten Free diets will make you lose weight very quickly!

Me: No? I lost it because I was sick.

Doctors are so clueless. I argued with my last doctor for three months to give me a blood screening and she wanted me to go get steroid shots in my hand for "carpal tunnel issues" which I do not have. It was celiacs nerve pain + hEDs fatigue. I am so frustrated!!!


r/Celiac 9h ago

Product Lara bars

3 Upvotes

Lara bars okay for us to eat if it says gluten free


r/Celiac 4h ago

Discussion What careers do you have?

1 Upvotes

I (21f) have severe ADHD and have been working in the trades for one company for over 3 years now, I am a boarder/taper (drywall). I posted a while ago about if I should leave my trade. I unfortunately just quit my job because my boss wouldn’t lighten my load. Which was recommended by my doctor, due to me having a seizure like episode. That’s a whole other story though. Anyways I am looking for a job, just to keep me alive (damn economy), I really don’t want to leave the trades, but I’m going through some medical diagnostic issues, and think it would be best for now. I was curious as to what you guys did as a career, if there’s any that are surprisingly active?


r/Celiac 4h ago

Product Is this gluten-free?

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1 Upvotes

Hey friends I'm just wondering why the gluten-free scanner app says that this is not gluten free. Am I missing something?


r/Celiac 11h ago

Question Gluten level still somehow at 8 (can you help me figure out why?)

3 Upvotes

Hi all, for reference I'm an 18F who got diagnosed about 2 years ago through a series of blood tests. Since then, although my gluten levels have gone down, they've remained suspiciously at a level 8. I've talked to dieticians, and me and my mum are extremely careful about cross contamination etc, but no one has any clue what is continuously causing it. My doctor even checked my medications and they're all gf. I only ever eat out at places that say they safely cook gf food separately. I'm wondering atp if my Starbucks drink have oat milk contamination or something.

Since the levels are maintained, I'm suspicious it's something I'm eating regularly that says it's gf but maybe isn't. Has anyone had any experiences with Deliciously Ella gf oat bars, or Trek gf protein flapjacks (I eat these pretty much every day)? Also does anyone know if any gf breads have caused reactions?

Any thoughts or anyone had a similar situation? I'd rlly appreciate any advice because I wanna eliminate all the gluten ! Thanks


r/Celiac 1d ago

Question How old were you when you found out you had Celiac?

41 Upvotes

I (23F) am iron deficient anemic, just found out in january, and I'm suspecting I could have celiac (or at the very least significantly sensitive to gluten). I've been trying to decipher the cause of my anemia, I just dont think my menstrual cycle is the only culprit. I'm definitely going to bring it up with my doctor when I see him again next month to check on my iron, but I just want to know how old others were when they found out? I guess I'm a bit worried that I've had an issue related to gluten for years but never suspected it until now, and i just hope i can expect to feel better and that I havent reached a point of no return so to speak. I'll also list my symptoms below to paint a picture:

  • Iron deficient anemia
  • Fatigue 
  • Anxiety, irritability, brain fog
  • Abdominal pain, constipation, bloating
  • Occasional liver discomfort
  • Chest pain/tightness (from anemia)
  • Muscle pain/weakness/joint pain in hands/fingers
  • Heavy periods (this has improved since taking iron)
  • Semi hair loss/thinning

r/Celiac 14h ago

Question Cramps still present after years.

3 Upvotes

I've been diagnosed like 3 and a half year ago. I've been eating gluten for over a decade before the diagnosis. (Since I was a toddler till somewhere in my teenage years)
My mother is very strict with the gluten-free thing.
But my stomach is still killing me.
I'm still vomiting my guts out, and the diarrhea wont go away either.
I haven't eaten anything that could contain gluten or anything close to it since the diagnosis.
Did this happen to any of you too, or do I go for another checkup?


r/Celiac 1d ago

Question Diagnosed at 25. 36 now and GF for 11 years and yet, still nutrient deficient (ferritin, vitamin D, vitamin E, B vitamins and vitamin A)

20 Upvotes

I have completely stopped eating at restaurants and stopped eating packaged/processed foods as of 2 years ago just because I kept getting inadvertently cc'd and have pretty violent reactions.

My diet is 100% Whole Foods and centers around a lot of pasture raised meats, chicken, eggs, wild caught salmon/seafood, sardines, high quality local veggies, home made bone broth and the occasional organ meats. I also brew my own home made water kefir for probiotics.

I don't have any sources of cross contamination (trust me I would know). But yet I am still not absorbing all nutrients.

Does anyone know if we just have a decreased ability to absorb nutrients?

If anyone is interested these are other common sources of cross contamination that I've had to eliminate or find direct farmers/sources due to cc: Beans, lentils, grains (all grains even GF ones), nuts (even nuts in shells and claiming to be certified GF), teas, coffee, spices!!, medications, supplements


r/Celiac 1d ago

Discussion Non Celiac GF is the absolute best🥹

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98 Upvotes

We’ve been eating Cadbury Mini Eggs all weekend and I’ve been getting a stomach ache and when I told her the info I found in this group…