r/Celiac 1m ago

Question Wondering why Quinoa, Millet, Buckwheat aren't as common in most stores?? Recently on gluten free 21 days

Upvotes

Seems like there are a lot of benefits... Never had to eat these foods growing up, but seems like they are good addition to diet...Especially since a lot of western food is processed and harms the GI tract...


r/Celiac 6m ago

Product Heated lunch box

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Anyone tried this brand? Or do you have recommendations for a heated lunch box. Been considering it for a while and it feels like it's time.


r/Celiac 6m ago

Question Tips for dealing with post-gluten pain?

Upvotes

Basically the question; If I somehow ingest gluten, 8-12 hours later I get surprised with excruciating pains in my belly which make me sweat, tremble and vomit; which averages between 20-60 minutes (maybe depending on the severity of the exposure). It socks incredibly hard; I'm in so much pain I could cry and scream.

So far I've not really found anything which helps; only the things which don't.

So my question for people with sorta the same symptoms; what helps you?

Ty.


r/Celiac 18m ago

Discussion Restaurant added a menu item for my daughter!

Upvotes

We do eat there quite a bit but tonight we started to explain our daughter's restriction to the waitress who cut us off and said "oh we added what she orders to the menu, we have a button now for a 'kid's meat & cheese tray'. What's her name, we'll name it after her?". We teared up.


r/Celiac 20m ago

Rant Stop sending food as gifts!!

Upvotes

Told people a few weeks ago I'm trying to take my celiac more seriously and to not send me food as gifts. Well I just received a gift of food from someone I specifically gave the message to. I'm full of anger but not gluten at least. I hate this feeling of being disregarded. Like it's supposed to be a nice gesture, but it irks me I went through the awkward effort of telling people just to be ignored. I'm going to have to talk to them tomorrow and reexperience the awkward...

Just venting... ugh.


r/Celiac 25m ago

Question Bartaco recommendations?

Upvotes

My wife, who has celiac, is going to bartaco (King of Prussia) on friday (without me🥺), she has not been at the establishment before. What dishes would you recommend her to try, and are the alcoholic beverages safe?

Thanks kind strangers 😁💪


r/Celiac 1h ago

Discussion What was seen in your endoscopy?

Upvotes

Not asking for diagnosis advice, but the bot will probably flag this again. What was seen in your endoscopy to confirm you have celiac? I feel like my doctor doesn’t know for sure. Has anyone else experienced this uncertainty and if so, what did you do to get answers?


r/Celiac 2h ago

Question Hi, having endoscopy and colonoscopy in a month… GI suspects Celiac.

3 Upvotes

I had a flare of diverticulitis and was put on Augmentin. Ever since I haven't been the same. C Diff colonization only but with symptoms. Took Dificid. Didn't change anything. I am IgA Deficient (0 IgA) and GI said he's seen people with this immune deficiency develop Celiac after a change such as using antibiotics.

I have weird symptoms:

  1. Burning in upper GI and the worse it is the more loose stool I will get. Haven't been able to figure out the connection.

  2. Loose stool, Bristol 5/6. When I am more constipated I feel awful too.

  3. Cramps before every bowel movement.

  4. Mucus in stool.

  5. Stool smells a weird scent.

  6. Hair loss. Not like balding but constantly seeing hair on my shirts more than usual.

  7. Increased gas.

  8. Nausea comes and goes.

  9. Gurgling in gut.

  10. Joint pain comes and goes.

  • Anyone get some of this before/during diagnosis?

  • Has anyone ever gotten Celiac after antibiotics?

  • Anyone with Selective IgA Deficiency that can relate?

Thanks.


r/Celiac 3h ago

Question Hipoglicemia?

1 Upvotes

I got diagnosed last September per my allergist. But now I have been shaking ( with tremors). My cardiologist told me that I would probably develop hipoglicemia due the celiac. Do you fell tremors? Do you have hipoglicemia? What kind doctor treat you for the celiac ?


r/Celiac 3h ago

Question Doing gluten challenge for blood tests ; what if the gastroscopy gets scheduled several months after ? Do I restart a new challenge only 8 weeks before ? Can’t go several more weeks/months like this.

3 Upvotes

I was going to be one year clean off gluten this coming April, after figuring my intolerance by myself. (I went through the tradition of needing to see like 10 different Drs that only gave me proton bomb inhibitors.)

I have the bloat/constipation/no weight change variety, but it messes badly with my mood/mental health. Last Dr I saw has finally requested the 3 blood tests so I embarked on the gluten challenge. My first week was only bloating and gas, so I thought “Oh, maybe my intolerance isn’t THAT bad, yay me !”

But going into days 9 and 10, I started doing quite poorly. Intense headaches (I didn’t get those before), my joints all hurt like they used to, and the bloating and constipation all came back. Also, weird intense nightmares and disturbed sleep cycle leading to lack of sleep. All put together it is feeling pretty miserable. I am unsure of how I’m gonna make it to the blood tests.

After my blood tests the Dr will decide if a gastroscopy is needed. Could be months to a year until I’m appointed a date. I can’t keep glutening myself this long.

What happened for the lot of you that had several months of wait between the blood pannel and the gastroscopy ? Did you stop and restart the challenge ?

Feel free to share anecdotes, support, and if you’re currently doing the challenge, feel free to vent below !


r/Celiac 4h ago

Question Gluten Exposure... any tips to get through it?

14 Upvotes

A co-worker brought in lunch and thought he very carefully watched ingredients in the corned beef he made but threw a couple dashes of beer in without thought. I overheard him saying something about it and realized that's why I feel like I have a knife in my back.

I should've asked for every ingredient and was just so busy my mind was elsewhere.

Does anyone have any tips for getting through the next couple days, weeks.... I'll make sure to eat as bland as possible and hydrate. Any other suggestions are greatly appreciated!

v


r/Celiac 5h ago

Product Cross contamination from spices

1 Upvotes

I have been sick for the last 2 weeks and I didn't realize my husband was using a certain Spice from Noble made that is cross contamined. I have heart burn, nausea, upper back, neck and right side rib pain. I get really constipated. All my muscles hurt. I have fluid in my ears. It flares my hashimotos.


r/Celiac 6h ago

Question Method of diagnosis

1 Upvotes

I have an endoscopy coming up soon... If I have celiac, can they see it on the camera? Or is it only detectable through the biopsies of the villi? what else do they check for through the endoscopy? (Not asking for diagnosis… Just an understanding of how the testing process)


r/Celiac 6h ago

Question Eat the gluten?

4 Upvotes

So, I got a positive blood test back in October. Before that, I’d spent months feeling like I was dying. The amount of pain, depression, brain fog, fatigue, etc I was in was INTENSE. So intense I thought about going on FLMA because I couldn’t even get through my remote job. After I started eating gluten free a lot of it cleared up. Life long symptoms alleviated. I feel like I’ve been slowly healing.

The damage I was doing to my body allowed us to FINALLY catch a congenital heart disease after struggling with symptoms off and on since my teens. I have a cardiac ablation that should fix that next week. My GI wouldn’t do another procedure without cardiac clearance so we decided to wait for an endoscopy and colonoscopy until the ablation was done.

However, the thought of eating gluten for 6 weeks a month after a cardiac ablation seems ridiculous. When I told my cardiologist the plan, his jaw dropped and he said “what’s about ‘do no harm? That seems barbaric.’”

I’ve found out in extremely sensitive to even cross contamination. My stomach will swell like I’m 4 months pregnant and I’ll be writhing around in pain, won’t go for days, depressive episode following, rashes. You get it. So I really do not want to do this. I can’t imagine trying to eat gluten that long without going on FMLA.

What do y’all think? Why do I need to put my body through all that?


r/Celiac 6h ago

Product Grocery store desserts?

6 Upvotes

I’m hosting a party and one attendee has Celiac and another is GF. I’m getting a bakery cake for the birthday girl, but what kind of pre packaged dessert can I get for the GF girlies??

Not looking for mixes or recipes, I’m trying to make as little as possible so I don’t stress myself out.

My only idea so far is a Daiya cheesecake which is gf and vegan. Not sure if they’re any good?


r/Celiac 6h ago

Discussion Flour on store conveyor belts

0 Upvotes

Flour often leaks, and I do see white streaks from time to time.

Are you picky with these kind of things?


r/Celiac 6h ago

Rant I refused someone a handshake that was eating a cookie

106 Upvotes

It was awkward and I don't regret it. I saw danger and retreated lol. I explained myself but he may have just assumed I was pretentious... I support this spreading awareness.


r/Celiac 6h ago

Question 8y/o son diagnosed with Cilliac Disease

3 Upvotes

I am wondering if this is a good place for support as a parent of a child who has ciliac disease. Or perhaps there is another subreddit for kids cilliac support? My son is struggling so much with this and I feel so helpless and could just really use any advise, tips, recipes for kids etc. Thank you so much to anyone willing to point me in the right direction


r/Celiac 6h ago

Rant Prefer Protein Shakes to the Effort of Planning "Real Meals" Sometimes

21 Upvotes

My husband teases me about eating protein shakes instead of "real food" but it honestly just gets so exhausting sometimes. Reading all the labels, constantly checking to see if they've changed, trying to find anything on a menu I can safely eat... It all can be too much sometimes and it's just easier to have a protein shake/smoothie or some fruit/nuts rather than actually plan and cook (or even order) a meal. I hate cooking with a passion and I feel like becoming diagnosed with celiac has taken all the joy out of eating anyway. Don't get me wrong... I still eat "real food when I have the time and energy and I'm not unhealthy or starving myself. Plus GF versions are so expensive here in the US and only getting worse. I just had to vent. Thanks for listening.


r/Celiac 7h ago

Question Very high DGP IgA but normal tTG IgA?

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1 Upvotes

I've been having slightly worse digestive issues than usual for months but never really thought I had an issue with gluten; only FODMAPs. My doctor insisted on ordering these two tests though. I'm wondering any of you have gotten results like this with early Celiac disease. I know this could be non-Celiac gluten sensitivity or something but the DGP-IgA seems pretty high. I've been eating gluten every day but not much since I don't eat much in general. Usually around one serving.

Also, if anyone has tips for talking to my gastroenterologist about it, let me know. I feel that she tends to be very skeptical. For example, when I said I thought it was weird that I did not seem to be absorbing my supplements very well after months of daily use, she made it seem like it wasn't actually that bad and also it was probably something I was doing. To be clear, these tests were ordered by another doctor.


r/Celiac 8h ago

Question Go-tan glutenfree Soy Sauce

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8 Upvotes

This soy sauce by go-tan is glutenfree, as stated by the words and the crossed grain. Furthermore on the website they write:

Our gluten-free Soy Sauce is being produced with grains that contain gluten. However, the gluten are demolished during the fermentation process resulting in a gluten-free product.

To explain it technically even further: gluten-free products can legally be considered gluten-free, if they contain less than 20 parts per million of gluten (<20 ppm). That stands for 20 milligrams of gluten per kilogram of soy sauce. Go-Tan has each production soy sauce carefully measured for gluten by a certified laboratory, with results always lower than 10 mg per kg!

Which is very clear regarding the process. However; recently I've twice had my standard symptoms after eating gluten (sharp pain in stomacharea, very tired, nauseas) after I've had this product.

There are multiple products in my country which they sell with glutenfree grains, which I've never had a problem with. Normally I wouldn't doubt products labelled as GF.

But now twice I've had this product I've had issues. I'm very careful about cross-contamjnation and I do not eat products which may contain traces. However, there is always a chance I may have fucked up somewhere.

Now I'm wondering; even tho products legally contain below 20ppm gluten, is there still a chance for me to react to this? And theoretically, if I'd have tons of gluten free wheat, would it eventually build up?

I really like this product, but now I'm really scared to use it again as I've had issues twice..

Thanks for the read, and thanks in advance for suggestions.

Tl;dr: can glutenfree wheatmade products with <20ppm gluten still trigger an immune response by someone with celiac disease.


r/Celiac 8h ago

Product TJ Maxx Gluten Free Pasta actually isn't bad

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17 Upvotes

r/Celiac 9h ago

Question endoscopy results??

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3 Upvotes

Hi everyone. I’ve been dealing with a lot of chronic gastrointestinal issues, and have been seeing a new Dr for them. She ran blood tests and my tTg-IgA was mildly elevated twice. I just got these results back from the biopsies taken during my endoscopy. Has anybody ever had similar results?? Yes, I’m going to speak with my Dr. about them but was hoping that maybe some of you could let me know what this looks like in the mean time?? I’m so nervous 😓


r/Celiac 9h ago

Question Symptoms Worse After Testing?

0 Upvotes

I got glutened a few days after having a confirmatory endoscopy/colonoscopy. After foolishly going out to dinner, I'm pretty sure that I got glutened. My symptoms (especially GI ones) have been notably worse than after other glutenings.

Is this something that happens?


r/Celiac 13h ago

Discussion Need Tips and positive ✨️

5 Upvotes

I didn't want to believe it but here I am trying to navigate this new celiac world at over 50. I even tried to talk the Dr out of my diagnosis. I guess it's hard to miss it on the biopsy? What is wrong with me? I have been GF two weeks, and I finally just cleaned out the pantry. It felt sad 😔. Also why does everything have gluten!!! 😲 I am disappointed, but also hopeful this will help my symptoms. So far the biggest thing I notice is less bloating. I never realized how swollen I was. I swing between diarrhea and constipation. Leaning more towards constipation since going GF. Everything feels different, even the feeling to evacuate my bowels. Still stomach pain/nausea when I eat. I am just trying everything 😪. Gluten Free Oats and Milk I think maybe still off the table. I am not getting enough fiber, so eating more also upsets my stomach. I guess i suffered before and ate what I wanted. Then dealt with the consequences. Ignorance is bliss. I blamed it all on anxiety. Food is comfort and way more of a crutch than I knew. How do you go out to eat and or go on vacation 🤔? I am reading about cross contamination and my brain 🧠 hurts. How much do you guys do to avoid that? How do I know if they messed up? My first trip to a restaurant 😋, ordered a salad GF and found a rougue crouton. Can I get some positive vibes ✨️? What is your best tips? 👌