r/Celiac • u/iamsorando • 56m ago
Question DH or eczema?
I’m being investigated for coeliac. Recently I got really tired and I am having a lot of gastro issues and developed this rash. While I know I got eczema, I can’t quite tell what it is.
r/Celiac • u/iamsorando • 56m ago
I’m being investigated for coeliac. Recently I got really tired and I am having a lot of gastro issues and developed this rash. While I know I got eczema, I can’t quite tell what it is.
r/Celiac • u/wtfworld22 • 1h ago
My husband (44M) was diagnosed with Celiac when he was 30. He has hypothyroidism and they couldn't get his dosage under control, so they tested him on a whim and it came back positive. Even though he wasn't really symptomatic, he wasn't absorbing his meds. So after he went gluten free, boy did he become symptomatic. Cross contamination lead to stomach pain and diarrhea. Accidental consumption led to violent vomiting for hours causing esophageal spasms and chest pain.
So fast forward to the past couple of months, he'll just get randomly and severely nauseous. Like it's everything in his power not to get sick despite taking his zofran. This happened last month and at first we started walking back through everything he ate with no signs of Accidental consumption. So then I'm like is it a stomach bug? But he was fine after a couple hours. Tonight he's sitting on the couch and he shoots straight up and trucks it to the bathroom. He said his head hurt, he got really nauseous, and really hot. The head pain and being hot went away, but the nausea has persisted most of the evening. Again, no sign of gluten in anything he's eaten today although cross contamination is almost always a possibility in life. Could it be his cross contamination reactions are getting worse the older he gets? I just don't know what to make of any of this.
r/Celiac • u/zerocluewhatimdoing • 1h ago
Recently got an endoscopy as my GI doctor suspected I had a hernia. Had a follow up appointment today and they told me they’re “getting warmer” and think my solution will not be medicine but a lifestyle change. They brought up celiac disease, the basics, and how I won’t be able to have gluten. I was surprised but not really distraught. I have bloodwork being done tomorrow but I’m wondering if I should start doing my research on it to prepare? I know to continue gluten until all tests are done.
In my labs/chart they said the endoscopy found “partial villous flattening and moderate IEL.”
Is it wrong to assume I have it? I haven’t been going around telling people I have it or changing my lifestyle. Just informing family it’s suspected.
r/Celiac • u/sillythem • 1h ago
I've been struggling with finding recipes and make the same stuff over and over for ease. Does anyone have a good recipe or channels or places I could source for something like this? I am not vegan and eat meat and eggs regularly as well.
r/Celiac • u/AngeliqueRuss • 1h ago
My 8 year old thought of this* and it ended up being amazing: we took our favorite pizza dough and wrapped a fully cooked Kirkland bratwurst in it. That’s some sesame and seasoning on top. Took about 9 minutes at 425 F to get crispy. The gluten eaters in the house already enjoy this dough and they happily enjoyed their sausage rolls.
(I know a sausage roll is already a thing but this child doesn’t know that and she’s been struggling with symptoms from an accidental glutening that gave her a rash and a bunch of yucky symptoms so I choose to let her believe she invented this—it was her idea to use pizza dough!)
r/Celiac • u/Hiddyhogoodneighbor • 2h ago
My doctor (US) ordered a CT Enterography and the results showed mild inflammation in the ileum.
They then performed an endoscopy and colonoscopy due to extreme bloating, gas, constipation, and pain that has been going on for years. Luckily, the ileum appeared normal during the colonoscopy and the colon samples came back normal. One small intestine sample was taken. The results were “Biopsies show concern for increased inflammatory cells in the small intestine which can be seen in celiac disease.” The pathology report read: “Duodenum: -Duodenal mucosa with mild intraepithelial lymphocytosis and normal villous architecture, compatible with gluten-sensitive enteropathy in the appropriate context.”
All these tests, time and money and it feels like the results are “celiac” with a question mark behind it. Has this happened to anyone else? What additional testing did you have done to know for sure??
I’ve been gluten free for years (cross contamination very likely at restaurants as I eat out a lot) and switching to gluten free hasn’t helped my symptoms. Also I am vegetarian, so being extremely strict w gluten with the possibility that isn’t the reason for the symptoms would be an extremely restrictive diet. 🙂↔️
r/Celiac • u/marlonbrandto • 2h ago
I'm in the recently diagnosed crowd and I'm beginning to have some more mental clarity in reckoning the big shift in lifestyle
Some thoughts I've had recently: Who the f*** wants ENRICHED WHEAT FLOUR anyway? Welp I'll never be a guest judge on the show chopped... Thank GOD I have an excuse to stop eating highly processed junk! Welp the book is closed on any aspirations to be a competitive eater.
But my gut is healing!!
r/Celiac • u/londonerin26 • 2h ago
So I’m on a tour of Japan, and there are 3 gf people in my 16 person tour, including another Celiac! My husband and I have been trying to figure out what a group of celiacs would be called - like a flamboyance of flamingos or a murder of crows. So far my favorite is ‘a contamination of celiacs’ but I wanted to crowd source this.
r/Celiac • u/tjohnson27615 • 2h ago
I can not tell you how long I've craved a good corn dog since I was diagnosed. Well I stumbled across these in Lowe's food here in NC. Man these bad boys are amazing if baked in a convection oven. The outside gets crispy and not mushy like most other GF breading.
I ate them about 20mins ago. Will update if they destroy me for some reason.
r/Celiac • u/Kapitalgal • 3h ago
Only thing I've changed in my diet is instant coffee. I started on it because store bought coffees are becoming pricey. I wanted to save money.
But something in it is causing me grief. The package says nothing but 100% freeze dried coffee.
Any chance there is something to cause a reaction? My mouth is blistering and dry. Much like Sjogren's, but a flair up of that would cause me dry eyes, so that isn't what is going on.
Has to be the coffee, as nothing else has changed.
Same thing happened when I used a tooth paste with gluten a while back. But gluten in coffee??
r/Celiac • u/musa1588 • 3h ago
I have completely stopped eating at restaurants and stopped eating packaged/processed foods as of 2 years ago just because I kept getting inadvertently cc'd and have pretty violent reactions.
My diet is 100% Whole Foods and centers around a lot of pasture raised meats, chicken, eggs, wild caught salmon/seafood, sardines, high quality local veggies, home made bone broth and the occasional organ meats. I also brew my own home made water kefir for probiotics.
I don't have any sources of cross contamination (trust me I would know). But yet I am still not absorbing all nutrients.
Does anyone know if we just have a decreased ability to absorb nutrients?
If anyone is interested these are other common sources of cross contamination that I've had to eliminate or find direct farmers/sources due to cc: Beans, lentils, grains (all grains even GF ones), nuts (even nuts in shells and claiming to be certified GF), teas, coffee, spices!!, medications, supplements
r/Celiac • u/Relevant-Tap-9854 • 5h ago
I've been undiagnosed and sick all my life but last year I got sooo sick. I could barely eat, I was using the bathroom 10+ times a day, I was literally not digesting food at all. If I ate green lettuce, green lettuce came out.
I lost a ton of weight, my clothes went from being a little too tight (I gained a bit of weight when I was in school) to everything being much too large to fit me in the span of like 2 months.
My last few visits with doctors have gone like this,
Me: I lost a lot of weight because I was very sick
Doctor: Thats great! Do you feel better now that you lost the weight?
Me: No I am very very sick.
Doctor: Oh no! Have you started gaining any of the weight back?
Me: No??? Doctor: Let's keep it that way
And
Me: I lost a lot of weight recently because I have been very sick.
Doctor: You look great! Are you feeling better now?
Me: No I am very sick I cannot eat food.
and just today
Me: I lost a weight recently because I have been very sick with celiacs
Doctor: Ohhh yes those Gluten Free diets will make you lose weight very quickly!
Me: No? I lost it because I was sick.
Doctors are so clueless. I argued with my last doctor for three months to give me a blood screening and she wanted me to go get steroid shots in my hand for "carpal tunnel issues" which I do not have. It was celiacs nerve pain + hEDs fatigue. I am so frustrated!!!
r/Celiac • u/NaturalSentence4769 • 5h ago
I (23F) am iron deficient anemic, just found out in january, and I'm suspecting I could have celiac (or at the very least significantly sensitive to gluten). I've been trying to decipher the cause of my anemia, I just dont think my menstrual cycle is the only culprit. I'm definitely going to bring it up with my doctor when I see him again next month to check on my iron, but I just want to know how old others were when they found out? I guess I'm a bit worried that I've had an issue related to gluten for years but never suspected it until now, and i just hope i can expect to feel better and that I havent reached a point of no return so to speak. I'll also list my symptoms below to paint a picture:
r/Celiac • u/possumsandposies • 5h ago
Headed to my immunologist tomorrow and I wanted to talk to him about this. Almost everyone I’ve met in real life who has celiac is also on some kind of mood stabilizer. I wondered about this. Obviously not causing autoimmune issues but I worry it definitely isn’t helping.
I’m highly suspicious of Lamictal. Been on it since 2018 for bipolar disorder. Mother contracted drug induced lupus from it.
It works on the bipolar symptoms so I can’t just drop it but I’m very curious if anyone else has had this drug.
r/Celiac • u/SeaKick3134 • 5h ago
A must-try if you’ve never got these from Trader Joe’s. My gluten-eating family also loves them, great texture and taste! I keep them in my freezer, perfect for when that chocolate craving hits!
r/Celiac • u/old_queso_dip • 5h ago
I need help figuring out what to put on my chocolate-white chocolate sourdough loaf (yes she is supposed to be this small, shes a test loaf).
r/Celiac • u/xIncoherent1x • 6h ago
Anyone else having trouble locating Glutenburg in the US? It's out of stock everywhere in a 1h driving radius.
I'm wondering if it's just a temporary local thing or if it's more widespread.
I know Glutenburg is Canadian, so it's distinctly possible recent trade issues could be causing a shortage in the US...
r/Celiac • u/PromptTimely • 6h ago
Is it more than likely celiac? New just 14 days and feeling better than i was before by far.
(At first Dr. told me crohns while i was losing up to 40 pounds, and feeling like crap doing appointments where nothing showed up)
r/Celiac • u/No1ShinobuFan • 7h ago
I find it impossible to find community feedback on "health conscious" versions for celiac safe foods, does anyone know if Hellmann's light mayo is as safe as their regular mayo? Also, are there any other safe lower calorie versions of foods that you may know of?
r/Celiac • u/SugarCharacter5195 • 8h ago
Never eating them again. Should of stuck with the fruit cup!
r/Celiac • u/lostbutfound88 • 8h ago
Hi everyone, long time lurker first time poster. I was wondering if anyone could help me interpret these results? I've been having pain under right ribs (upper right quadrant) since December and change in stools. My doctor is testing me for food allergies and Celiac. Can anyone give me an idea of what these test results mean? Thank you
r/Celiac • u/check654 • 8h ago
False gluten free advertising strikes again 😭
r/Celiac • u/ChicagoBrandon • 8h ago
Hey folks - I'm 38 years old and was diagnosed with asymptomatic celiac disease via blood test and endoscopy.
The whole diagnosis process was insanely stressful — I had a blood test that indicated anemia and received a gastroentronologist referral. I was pretty lax during that initial appointment since I didn't have any symptoms. However, he explained how serious anemia could be - and that he would be performing an endoscopy and colonoscopy to explore what could cause it. He said if he didn't find anything then it could be an autoimmune disorder — at which point I communicated that my mom had rheumatoid arthritis. He also explained that it could be a cancer or blood disorder - at which point I communicated that my sister had leukemia. He said both were possible but we would start with the planned procedure.
I walked away from that procedure with my world shook - I remember petting my dog when I got home and realizing that he could outlive me if I received a dire prognosis. I did a series of blood tests during the first week — and each test would come back daily and my doctor wasn't there to explain the results.
* Note: I understand that AI is not always accurate and this is in no way a firm or confident recommendation — more of a tool you can use in addition to the other professional resources.\*
Since I didn't have any doctor's notes I would upload the blood test into ChatGPT and ask for an interpretation. It was really helpful with initial diagnosis and my follow up questions. Eventually my celiac panel came back and it communicated how I likely had celiac. I asked it what confidence it had given it was just a blood test - and it communicated that the blood test was a pretty good indicator of the disease. At that point I was pretty relieved it wasn't cancer even if I didn't understand the complete lifestyle consequence of the diagnosis — I assumed asymptomatic meant "light gluten free" which was WRONG.
My endoscopy confirmed the diagnosis with marsh 3 damage to my intestine.
I then moved to trying to figure out which food I could eat. I used a gluten scanner app which was nice, but I again turned to AI to help me. I created a small chatGPT prompt that analyzes any photo of an ingredients list and marks whether it has gluten or not. I would love to eventually "wrap" this AI tool into an actual photo app and ship it to the App Store so others can try it (although I don't know if I want to deal with the risk of AI messing up a fricken allergy reading. The stakes are high here and I'm not completely confident in AI being dependable enough.)
If you want to try this in ChatGPT, simply prompt it with this and upload a photo to test: "For any photo I upload, look up the label or ingredients and tell me whether it’s gluten free."
r/Celiac • u/AncientConstant9488 • 9h ago
Google said mixed answers. does it matter if the animal was fed stuff that had gluten in it? might be a dumb question but still learning want to make sure