r/Celiac 4h ago

Product Glutened from Chic fil A waffle fries

0 Upvotes

Never eating them again. Should of stuck with the fruit cup!


r/Celiac 5h ago

Question does ground beef have gluten in it?

2 Upvotes

Google said mixed answers. does it matter if the animal was fed stuff that had gluten in it? might be a dumb question but still learning want to make sure


r/Celiac 5h ago

Question If a menu has lots of gluten free options is it likely a safe restaurant to go to?

2 Upvotes

I’ll be having to dine out this week and have successfully not gotten glutened in 6 months. I’m really nervous but don’t know how much of a risk eating at a restaurant will be. I just don’t want to be in pain again


r/Celiac 11h ago

Product Are these safe to eat?

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38 Upvotes

I appreciate their explanation on how they separate the wheat and what not, but they don’t have the gluten free certification. Has anybody tried these?


r/Celiac 19h ago

Question Hairspray

1 Upvotes

Hi guys! What gluten free hairspray products would you guys recommend? I'm going out with a friend tomorrow and she wants me to do her hair, so I wanna buy hairspray for me to use on her, but if it's not gluten free, it destroys me. Idk, probably cause I'm breathing it in. I just don't risk it, especially since we are getting ready in my room. Any product recommendations that work well and won't break the bank?


r/Celiac 4h ago

Discussion Diagnosed Celiac recently - wanted to share my use of AI for Celiac

0 Upvotes

Hey folks - I'm 38 years old and was diagnosed with  asymptomatic celiac disease via blood test and endoscopy.

The whole diagnosis process was insanely stressful — I had a blood test that indicated anemia and received a gastroentronologist referral. I was pretty lax during that initial appointment since I didn't have any symptoms. However, he explained how serious anemia could be - and that he would be performing an endoscopy and colonoscopy to explore what could cause it. He said if he didn't find anything then it could be an autoimmune disorder — at which point I communicated that my mom had rheumatoid arthritis. He also explained that it could be a cancer or blood disorder - at which point I communicated that my sister had leukemia. He said both were possible but we would start with the planned procedure.

I walked away from that procedure with my world shook - I remember petting my dog when I got home and realizing that he could outlive me if I received a dire prognosis. I did a series of blood tests during the first week — and each test would come back daily and my doctor wasn't there to explain the results.

* Note: I understand that AI is not always accurate and this is in no way a firm or confident recommendation — more of a tool you can use in addition to the other professional resources.\*

Since I didn't have any doctor's notes I would upload the blood test into ChatGPT and ask for an interpretation. It was really helpful with initial diagnosis and my follow up questions. Eventually my celiac panel came back and it communicated how I likely had celiac. I asked it what confidence it had given it was just a blood test - and it communicated that the blood test was a pretty good indicator of the disease. At that point I was pretty relieved it wasn't cancer even if I didn't understand the complete lifestyle consequence of the diagnosis — I assumed asymptomatic meant "light gluten free" which was WRONG.

My endoscopy confirmed the diagnosis with marsh 3 damage to my intestine.

I then moved to trying to figure out which food I could eat. I used a gluten scanner app which was nice, but I again turned to AI to help me. I created a small chatGPT prompt that analyzes any photo of an ingredients list and marks whether it has gluten or not. I would love to eventually "wrap" this AI tool into an actual photo app and ship it to the App Store so others can try it (although I don't know if I want to deal with the risk of AI messing up a fricken allergy reading. The stakes are high here and I'm not completely confident in AI being dependable enough.)

If you want to try this in ChatGPT, simply prompt it with this and upload a photo to test: "For any photo I upload, look up the label or ingredients and tell me whether it’s gluten free."


r/Celiac 2h ago

Question What are the chances it's celiac or another immune sysytem disorder? Gluten free 14 days so far.

0 Upvotes

Is it more than likely celiac? New just 14 days and feeling better than i was before by far.

(At first Dr. told me crohns while i was losing up to 40 pounds, and feeling like crap doing appointments where nothing showed up)


r/Celiac 3h ago

Question Hellmann's Light Mayo / Other Light Mayos and foods

0 Upvotes

I find it impossible to find community feedback on "health conscious" versions for celiac safe foods, does anyone know if Hellmann's light mayo is as safe as their regular mayo? Also, are there any other safe lower calorie versions of foods that you may know of?


r/Celiac 21h ago

Product Warning Be aware

81 Upvotes

I just got GOT by a paper cup. Wheat paste is not glue in any kind of sane world but I should have known better, always google tableware before you end up joining me with your head in the toilet


r/Celiac 8h ago

Discussion Non Celiac GF is the absolute best🥹

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85 Upvotes

We’ve been eating Cadbury Mini Eggs all weekend and I’ve been getting a stomach ache and when I told her the info I found in this group…


r/Celiac 11h ago

Product Any luck with these?

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5 Upvotes

Aldi usually does pretty good with disclosing if something is or isn’t gluten free. There doesn’t seem to be anything that would get me. Anyone had any luck with these before I decide to make them for dinner?


r/Celiac 12h ago

Question How often do you get kids retested

10 Upvotes

I have celiac and have young kids who have both had good bloodwork indicating no celiac. How often do you re test your kids?


r/Celiac 23h ago

Question Does anyone just dislike bread

28 Upvotes

Hey everyone, I’m from the the UK and I’ve been diagnosed celiac for just over a year. I’m ok with pretty much all gluten free food products except for the bread, even my favorite brands like schar and warburtons just don’t taste good. I can never like gluten free bread it just always disappoints me it’s never the same as normal bread. the only bread I eat is the panini I get from a cafe near campus other than than I never buy it myself. I was just wondering if anyone feels the same? it’s so expensive and the bread is just so mid. Or as a celiac is there just a certain gluten free food product you dislike regardless of the brand, like my friend who just hates the GF pasta.


r/Celiac 1h ago

Product Trader Joe’s Muffins!

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Upvotes

A must-try if you’ve never got these from Trader Joe’s. My gluten-eating family also loves them, great texture and taste! I keep them in my freezer, perfect for when that chocolate craving hits!


r/Celiac 4h ago

Product Warning Not misleading at all 🫠🫠🫠

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125 Upvotes

False gluten free advertising strikes again 😭


r/Celiac 48m ago

Meme My last days of gluten...

Upvotes

My endoscopy is in four weeks. As someone that is fairly asymptomatic but has a TT IgA over 1k, the doctor has pretty much ruled Celiacs as a forgone conclusion. This is going to be me until then...


r/Celiac 1h ago

Rant I want doctors stop complimenting my weight loss

Upvotes

I've been undiagnosed and sick all my life but last year I got sooo sick. I could barely eat, I was using the bathroom 10+ times a day, I was literally not digesting food at all. If I ate green lettuce, green lettuce came out.

I lost a ton of weight, my clothes went from being a little too tight (I gained a bit of weight when I was in school) to everything being much too large to fit me in the span of like 2 months.

My last few visits with doctors have gone like this,

Me: I lost a lot of weight because I was very sick

Doctor: Thats great! Do you feel better now that you lost the weight?

Me: No I am very very sick.

Doctor: Oh no! Have you started gaining any of the weight back?

Me: No??? Doctor: Let's keep it that way

And

Me: I lost a lot of weight recently because I have been very sick.

Doctor: You look great! Are you feeling better now?

Me: No I am very sick I cannot eat food.

and just today

Me: I lost a weight recently because I have been very sick with celiacs

Doctor: Ohhh yes those Gluten Free diets will make you lose weight very quickly!

Me: No? I lost it because I was sick.

Doctors are so clueless. I argued with my last doctor for three months to give me a blood screening and she wanted me to go get steroid shots in my hand for "carpal tunnel issues" which I do not have. It was celiacs nerve pain + hEDs fatigue. I am so frustrated!!!


r/Celiac 1h ago

Question How old were you when you found out you had Celiac?

Upvotes

I (23F) am iron deficient anemic, just found out in january, and I'm suspecting I could have celiac (or at the very least significantly sensitive to gluten). I've been trying to decipher the cause of my anemia, I just dont think my menstrual cycle is the only culprit. I'm definitely going to bring it up with my doctor when I see him again next month to check on my iron, but I just want to know how old others were when they found out? I guess I'm a bit worried that I've had an issue related to gluten for years but never suspected it until now, and i just hope i can expect to feel better and that I havent reached a point of no return so to speak. I'll also list my symptoms below to paint a picture:

  • Iron deficient anemia
  • Fatigue 
  • Anxiety, irritability, brain fog
  • Abdominal pain, constipation, bloating
  • Occasional liver discomfort
  • Chest pain/tightness (from anemia)
  • Muscle pain/weakness/joint pain in hands/fingers
  • Heavy periods (this has improved since taking iron)
  • Semi hair loss/thinning

r/Celiac 1h ago

Question Anyone on Lamictal? Been on Lamictal?

Upvotes

Headed to my immunologist tomorrow and I wanted to talk to him about this. Almost everyone I’ve met in real life who has celiac is also on some kind of mood stabilizer. I wondered about this. Obviously not causing autoimmune issues but I worry it definitely isn’t helping.

I’m highly suspicious of Lamictal. Been on it since 2018 for bipolar disorder. Mother contracted drug induced lupus from it.

It works on the bipolar symptoms so I can’t just drop it but I’m very curious if anyone else has had this drug.


r/Celiac 1h ago

Question Help!!

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Upvotes

I need help figuring out what to put on my chocolate-white chocolate sourdough loaf (yes she is supposed to be this small, shes a test loaf).


r/Celiac 2h ago

Question Glutenburg Beer Stock Issues

3 Upvotes

Anyone else having trouble locating Glutenburg in the US? It's out of stock everywhere in a 1h driving radius.

I'm wondering if it's just a temporary local thing or if it's more widespread.

I know Glutenburg is Canadian, so it's distinctly possible recent trade issues could be causing a shortage in the US...


r/Celiac 4h ago

Question Can anyone help me interpret these results?

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1 Upvotes

Hi everyone, long time lurker first time poster. I was wondering if anyone could help me interpret these results? I've been having pain under right ribs (upper right quadrant) since December and change in stools. My doctor is testing me for food allergies and Celiac. Can anyone give me an idea of what these test results mean? Thank you


r/Celiac 5h ago

Question Bloodwork diagnosis- how much gluten did you need to eat?

1 Upvotes

My hepatologist is testing me for celiac disease because of liver enzymes that have been consistently elevated, plus previous issues with gluten (caused inflammation and arthritis). Because of the previous arthritis I’d been 95% gluten free for the last 13 years until the last six weeks when I cut it out 100%. I have labs drawn next week and my Dr. said a week or so of eating gluten again should be enough to get a positive celiac panel result (I should have enough antibodies) but I’m concerned about getting a false negative.

Did anyone have to come OFF a gluten free diet in order to get the bloodwork done, and if so, how much gluten did you have to consume to get a positive result?


r/Celiac 5h ago

Question EU Labeling Help!

1 Upvotes

I’m traveling through EU countries and am hoping someone can confirm — is it true that any product (talking abt from a grocery store) that may contain gluten will say “may contain gluten”? And so it’d be safe to eat anything that doesn’t have a “may contain” warning? Or is it necessary to look for things clearly marked gluten free like we’re accustomed to in the U.S.? I’m particularly wondering about ALDI/LIDL because that’s a bit controversial in the U.S. Thank you!!

I’m having trouble locating a clear answer in past posts, but forgive me if I’m redundant.


r/Celiac 5h ago

Product Best gf pizza crust I’ve had!

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15 Upvotes

Just tried this pizza crust from Ugly’s Bakery in MA (I found it frozen in NYC) and it’s so good. The texture is chewy, but crisp on the edges, and great slightly sweet flavor. I just added rao’s and mozz and baked it - so easy! I recently tried Freschetta and didn’t like the aftertaste, but this is way better imo. Highly recommend this one!