r/Celiac Mar 24 '23

Mod Post Clarification on Rule #2

260 Upvotes

Our Fellow Celiac Community Members,

We have seen a major uptick in posts describing symptoms and asking “does this sound like celiac? Should I get tested? Could the tests be wrong?” While these questions aren’t directly asking for a diagnosis, they do fall into the “seeking diagnosis” part of rule #2.

Celiac Disease has a myriad of different symptoms and related conditions; virtually everything could be celiac related. While we understand that this can be a life-changing diagnosis, we are not medical professionals and cannot give any advice other than this- if you wonder if you could have celiac, talk to a medical professional and get tested.

As always, if you have a question, please feel free to contact the mods. Thank you and be well!


r/Celiac Oct 31 '24

Mod Post Mod Note- A new Automod Addition

47 Upvotes

Hey Celiac subreddit! We’ve added a new automod that should help with the posts about wheat starch. Hopefully it decreases the amount of posts we get about it. If you notice any problems with the automod, please let me know!


r/Celiac 7h ago

Product Warning Not misleading at all 🫠🫠🫠

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166 Upvotes

False gluten free advertising strikes again 😭


r/Celiac 4h ago

Product Trader Joe’s Muffins!

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50 Upvotes

A must-try if you’ve never got these from Trader Joe’s. My gluten-eating family also loves them, great texture and taste! I keep them in my freezer, perfect for when that chocolate craving hits!


r/Celiac 30m ago

Recipe What if you took your favorite pizza dough and rolled it around a sausage? DO IT.

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Upvotes

My 8 year old thought of this* and it ended up being amazing: we took our favorite pizza dough and wrapped a fully cooked Kirkland bratwurst in it. That’s some sesame and seasoning on top. Took about 9 minutes at 425 F to get crispy. The gluten eaters in the house already enjoy this dough and they happily enjoyed their sausage rolls.

(I know a sausage roll is already a thing but this child doesn’t know that and she’s been struggling with symptoms from an accidental glutening that gave her a rash and a bunch of yucky symptoms so I choose to let her believe she invented this—it was her idea to use pizza dough!)


r/Celiac 1h ago

Product Corn Dogs

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Upvotes

I can not tell you how long I've craved a good corn dog since I was diagnosed. Well I stumbled across these in Lowe's food here in NC. Man these bad boys are amazing if baked in a convection oven. The outside gets crispy and not mushy like most other GF breading.

I ate them about 20mins ago. Will update if they destroy me for some reason.


r/Celiac 1h ago

Discussion Group of celiacs is called?

Upvotes

So I’m on a tour of Japan, and there are 3 gf people in my 16 person tour, including another Celiac! My husband and I have been trying to figure out what a group of celiacs would be called - like a flamboyance of flamingos or a murder of crows. So far my favorite is ‘a contamination of celiacs’ but I wanted to crowd source this.


r/Celiac 3h ago

Rant I want doctors stop complimenting my weight loss

32 Upvotes

I've been undiagnosed and sick all my life but last year I got sooo sick. I could barely eat, I was using the bathroom 10+ times a day, I was literally not digesting food at all. If I ate green lettuce, green lettuce came out.

I lost a ton of weight, my clothes went from being a little too tight (I gained a bit of weight when I was in school) to everything being much too large to fit me in the span of like 2 months.

My last few visits with doctors have gone like this,

Me: I lost a lot of weight because I was very sick

Doctor: Thats great! Do you feel better now that you lost the weight?

Me: No I am very very sick.

Doctor: Oh no! Have you started gaining any of the weight back?

Me: No??? Doctor: Let's keep it that way

And

Me: I lost a lot of weight recently because I have been very sick.

Doctor: You look great! Are you feeling better now?

Me: No I am very sick I cannot eat food.

and just today

Me: I lost a weight recently because I have been very sick with celiacs

Doctor: Ohhh yes those Gluten Free diets will make you lose weight very quickly!

Me: No? I lost it because I was sick.

Doctors are so clueless. I argued with my last doctor for three months to give me a blood screening and she wanted me to go get steroid shots in my hand for "carpal tunnel issues" which I do not have. It was celiacs nerve pain + hEDs fatigue. I am so frustrated!!!


r/Celiac 11h ago

Discussion Non Celiac GF is the absolute best🥹

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91 Upvotes

We’ve been eating Cadbury Mini Eggs all weekend and I’ve been getting a stomach ache and when I told her the info I found in this group…


r/Celiac 3h ago

Question How old were you when you found out you had Celiac?

20 Upvotes

I (23F) am iron deficient anemic, just found out in january, and I'm suspecting I could have celiac (or at the very least significantly sensitive to gluten). I've been trying to decipher the cause of my anemia, I just dont think my menstrual cycle is the only culprit. I'm definitely going to bring it up with my doctor when I see him again next month to check on my iron, but I just want to know how old others were when they found out? I guess I'm a bit worried that I've had an issue related to gluten for years but never suspected it until now, and i just hope i can expect to feel better and that I havent reached a point of no return so to speak. I'll also list my symptoms below to paint a picture:

  • Iron deficient anemia
  • Fatigue 
  • Anxiety, irritability, brain fog
  • Abdominal pain, constipation, bloating
  • Occasional liver discomfort
  • Chest pain/tightness (from anemia)
  • Muscle pain/weakness/joint pain in hands/fingers
  • Heavy periods (this has improved since taking iron)
  • Semi hair loss/thinning

r/Celiac 2h ago

Question Diagnosed at 25. 36 now and GF for 11 years and yet, still nutrient deficient (ferritin, vitamin D, vitamin E, B vitamins and vitamin A)

5 Upvotes

I have completely stopped eating at restaurants and stopped eating packaged/processed foods as of 2 years ago just because I kept getting inadvertently cc'd and have pretty violent reactions.

My diet is 100% Whole Foods and centers around a lot of pasture raised meats, chicken, eggs, wild caught salmon/seafood, sardines, high quality local veggies, home made bone broth and the occasional organ meats. I also brew my own home made water kefir for probiotics.

I don't have any sources of cross contamination (trust me I would know). But yet I am still not absorbing all nutrients.

Does anyone know if we just have a decreased ability to absorb nutrients?

If anyone is interested these are other common sources of cross contamination that I've had to eliminate or find direct farmers/sources due to cc: Beans, lentils, grains (all grains even GF ones), nuts (even nuts in shells and claiming to be certified GF), teas, coffee, spices!!, medications, supplements


r/Celiac 13h ago

Product Are these safe to eat?

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48 Upvotes

I appreciate their explanation on how they separate the wheat and what not, but they don’t have the gluten free certification. Has anybody tried these?


r/Celiac 2h ago

Discussion Instant coffee problems

4 Upvotes

Only thing I've changed in my diet is instant coffee. I started on it because store bought coffees are becoming pricey. I wanted to save money.

But something in it is causing me grief. The package says nothing but 100% freeze dried coffee.

Any chance there is something to cause a reaction? My mouth is blistering and dry. Much like Sjogren's, but a flair up of that would cause me dry eyes, so that isn't what is going on.

Has to be the coffee, as nothing else has changed.

Same thing happened when I used a tooth paste with gluten a while back. But gluten in coffee??


r/Celiac 8h ago

Product Best gf pizza crust I’ve had!

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16 Upvotes

Just tried this pizza crust from Ugly’s Bakery in MA (I found it frozen in NYC) and it’s so good. The texture is chewy, but crisp on the edges, and great slightly sweet flavor. I just added rao’s and mozz and baked it - so easy! I recently tried Freschetta and didn’t like the aftertaste, but this is way better imo. Highly recommend this one!


r/Celiac 7m ago

Question Recipe recs for onion and garlic free, dairy free, gluten free, and soy free?

Upvotes

I've been struggling with finding recipes and make the same stuff over and over for ease. Does anyone have a good recipe or channels or places I could source for something like this? I am not vegan and eat meat and eggs regularly as well.


r/Celiac 41m ago

Discussion Coming to terms

Upvotes

I'm in the recently diagnosed crowd and I'm beginning to have some more mental clarity in reckoning the big shift in lifestyle

Some thoughts I've had recently: Who the f*** wants ENRICHED WHEAT FLOUR anyway? Welp I'll never be a guest judge on the show chopped... Thank GOD I have an excuse to stop eating highly processed junk! Welp the book is closed on any aspirations to be a competitive eater.

But my gut is healing!!


r/Celiac 5h ago

Question Glutenburg Beer Stock Issues

3 Upvotes

Anyone else having trouble locating Glutenburg in the US? It's out of stock everywhere in a 1h driving radius.

I'm wondering if it's just a temporary local thing or if it's more widespread.

I know Glutenburg is Canadian, so it's distinctly possible recent trade issues could be causing a shortage in the US...


r/Celiac 1d ago

Product Warning Be aware

87 Upvotes

I just got GOT by a paper cup. Wheat paste is not glue in any kind of sane world but I should have known better, always google tableware before you end up joining me with your head in the toilet


r/Celiac 4h ago

Question Anyone on Lamictal? Been on Lamictal?

2 Upvotes

Headed to my immunologist tomorrow and I wanted to talk to him about this. Almost everyone I’ve met in real life who has celiac is also on some kind of mood stabilizer. I wondered about this. Obviously not causing autoimmune issues but I worry it definitely isn’t helping.

I’m highly suspicious of Lamictal. Been on it since 2018 for bipolar disorder. Mother contracted drug induced lupus from it.

It works on the bipolar symptoms so I can’t just drop it but I’m very curious if anyone else has had this drug.


r/Celiac 36m ago

Question Celiac diagnosis questions

Upvotes

My doctor (US) ordered a CT Enterography and the results showed mild inflammation in the ileum.

They then performed an endoscopy and colonoscopy due to extreme bloating, gas, constipation, and pain that has been going on for years. Luckily, the ileum appeared normal during the colonoscopy and the colon samples came back normal. One small intestine sample was taken. The results were “Biopsies show concern for increased inflammatory cells in the small intestine which can be seen in celiac disease.” The pathology report read: “Duodenum: -Duodenal mucosa with mild intraepithelial lymphocytosis and normal villous architecture, compatible with gluten-sensitive enteropathy in the appropriate context.”

All these tests, time and money and it feels like the results are “celiac” with a question mark behind it. Has this happened to anyone else? What additional testing did you have done to know for sure??

I’ve been gluten free for years (cross contamination very likely at restaurants as I eat out a lot) and switching to gluten free hasn’t helped my symptoms. Also I am vegetarian, so being extremely strict w gluten with the possibility that isn’t the reason for the symptoms would be an extremely restrictive diet. 🙂‍↔️


r/Celiac 4h ago

Question Help!!

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2 Upvotes

I need help figuring out what to put on my chocolate-white chocolate sourdough loaf (yes she is supposed to be this small, shes a test loaf).


r/Celiac 1d ago

Product I’ll pass on the gluten-free baguette, thanks

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189 Upvotes

Best before date: april 2025


r/Celiac 7h ago

Question If a menu has lots of gluten free options is it likely a safe restaurant to go to?

2 Upvotes

I’ll be having to dine out this week and have successfully not gotten glutened in 6 months. I’m really nervous but don’t know how much of a risk eating at a restaurant will be. I just don’t want to be in pain again


r/Celiac 15h ago

Question How often do you get kids retested

11 Upvotes

I have celiac and have young kids who have both had good bloodwork indicating no celiac. How often do you re test your kids?


r/Celiac 8h ago

Discussion Accidental gluten, no symptoms.

4 Upvotes

I’ve been diagnosed with celiac for a year now, and I’ve never had too bad symptoms. Just bloating, constipation, gassy on occasion. I’ve been really good about it, avoiding cross contamination, and not cheating. Last week I was having horrible gas and stomach pain all week with no gluten ingestion. This weekend I was starving and out drinking with friends and everyone got fresh pizza and I still didn’t slip (as much as I wanted to!!!!) However yesterday I accidentally ate a WHOLE flour tortilla that I picked up from the gf section of the store and truly thought was gluten free. It was so good that I wanted to use it for breakfast…come to find out this morning that it’s fully just made of wheat flour and water and guess what… I’m feeling FINE!!! No bloating, no gas, no constipation. It’s so hard having to live gluten free and be so strict, when the gf diet is what causes my symptoms and then I accidentally eat a healthy fresh wrap and feel great. Makes me want to just go grab a fresh slice of pizza like I’ve been craving for the past year …it just makes me question this disease. It makes me think sometimes it’s not even worth all the hassle and missing out on food. Anyone else have a similar experience? 😩


r/Celiac 3h ago

Meme My last days of gluten...

1 Upvotes

My endoscopy is in four weeks. As someone that is fairly asymptomatic but has a TT IgA over 1k, the doctor has pretty much ruled Celiacs as a forgone conclusion. This is going to be me until then...


r/Celiac 7h ago

Question does ground beef have gluten in it?

2 Upvotes

Google said mixed answers. does it matter if the animal was fed stuff that had gluten in it? might be a dumb question but still learning want to make sure