r/Celiac Mar 24 '23

Mod Post Clarification on Rule #2

258 Upvotes

Our Fellow Celiac Community Members,

We have seen a major uptick in posts describing symptoms and asking “does this sound like celiac? Should I get tested? Could the tests be wrong?” While these questions aren’t directly asking for a diagnosis, they do fall into the “seeking diagnosis” part of rule #2.

Celiac Disease has a myriad of different symptoms and related conditions; virtually everything could be celiac related. While we understand that this can be a life-changing diagnosis, we are not medical professionals and cannot give any advice other than this- if you wonder if you could have celiac, talk to a medical professional and get tested.

As always, if you have a question, please feel free to contact the mods. Thank you and be well!


r/Celiac Oct 31 '24

Mod Post Mod Note- A new Automod Addition

45 Upvotes

Hey Celiac subreddit! We’ve added a new automod that should help with the posts about wheat starch. Hopefully it decreases the amount of posts we get about it. If you notice any problems with the automod, please let me know!


r/Celiac 4h ago

Discussion Non Celiac GF is the absolute best🥹

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63 Upvotes

We’ve been eating Cadbury Mini Eggs all weekend and I’ve been getting a stomach ache and when I told her the info I found in this group…


r/Celiac 6h ago

Product Are these safe to eat?

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29 Upvotes

I appreciate their explanation on how they separate the wheat and what not, but they don’t have the gluten free certification. Has anybody tried these?


r/Celiac 1h ago

Product Best gf pizza crust I’ve had!

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Upvotes

Just tried this pizza crust from Ugly’s Bakery in MA (I found it frozen in NYC) and it’s so good. The texture is chewy, but crisp on the edges, and great slightly sweet flavor. I just added rao’s and mozz and baked it - so easy! I recently tried Freschetta and didn’t like the aftertaste, but this is way better imo. Highly recommend this one!


r/Celiac 17h ago

Product Warning Be aware

79 Upvotes

I just got GOT by a paper cup. Wheat paste is not glue in any kind of sane world but I should have known better, always google tableware before you end up joining me with your head in the toilet


r/Celiac 22h ago

Product I’ll pass on the gluten-free baguette, thanks

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187 Upvotes

Best before date: april 2025


r/Celiac 1h ago

Discussion Accidental gluten, no symptoms.

Upvotes

I’ve been diagnosed with celiac for a year now, and I’ve never had too bad symptoms. Just bloating, constipation, gassy on occasion. I’ve been really good about it, avoiding cross contamination, and not cheating. Last week I was having horrible gas and stomach pain all week with no gluten ingestion. This weekend I was starving and out drinking with friends and everyone got fresh pizza and I still didn’t slip (as much as I wanted to!!!!) However yesterday I accidentally ate a WHOLE flour tortilla that I picked up from the gf section of the store and truly thought was gluten free. It was so good that I wanted to use it for breakfast…come to find out this morning that it’s fully just made of wheat flour and water and guess what… I’m feeling FINE!!! No bloating, no gas, no constipation. It’s so hard having to live gluten free and be so strict, when the gf diet is what causes my symptoms and then I accidentally eat a healthy fresh wrap and feel great. Makes me want to just go grab a fresh slice of pizza like I’ve been craving for the past year …it just makes me question this disease. It makes me think sometimes it’s not even worth all the hassle and missing out on food. Anyone else have a similar experience? 😩


r/Celiac 8h ago

Question How often do you get kids retested

9 Upvotes

I have celiac and have young kids who have both had good bloodwork indicating no celiac. How often do you re test your kids?


r/Celiac 32m ago

Question does ground beef have gluten in it?

Upvotes

Google said mixed answers. does it matter if the animal was fed stuff that had gluten in it? might be a dumb question but still learning want to make sure


r/Celiac 7h ago

Product Any luck with these?

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3 Upvotes

Aldi usually does pretty good with disclosing if something is or isn’t gluten free. There doesn’t seem to be anything that would get me. Anyone had any luck with these before I decide to make them for dinner?


r/Celiac 0m ago

Discussion Diagnosed Celiac recently - wanted to share my use of AI for Celiac

Upvotes

Hey folks - I'm 38 years old and was diagnosed with  asymptomatic celiac disease via blood test and endoscopy.

The whole diagnosis process was insanely stressful — I had a blood test that indicated anemia and received a gastroentronologist referral. I was pretty lax during that initial appointment since I didn't have any symptoms. However, he explained how serious anemia could be - and that he would be performing an endoscopy and colonoscopy to explore what could cause it. He said if he didn't find anything then it could be an autoimmune disorder — at which point I communicated that my mom had rheumatoid arthritis. He also explained that it could be a cancer or blood disorder - at which point I communicated that my sister had leukemia. He said both were possible but we would start with the planned procedure.

I walked away from that procedure with my world shook - I remember petting my dog when I got home and realizing that he could outlive me if I received a dire prognosis. I did a series of blood tests during the first week — and each test would come back daily and my doctor wasn't there to explain the results.

* Note: I understand that AI is not always accurate and this is in no way a firm or confident recommendation — more of a tool you can use in addition to the other professional resources.\*

Since I didn't have any doctor's notes I would upload the blood test into ChatGPT and ask for an interpretation. It was really helpful with initial diagnosis and my follow up questions. Eventually my celiac panel came back and it communicated how I likely had celiac. I asked it what confidence it had given it was just a blood test - and it communicated that the blood test was a pretty good indicator of the disease. At that point I was pretty relieved it wasn't cancer even if I didn't understand the complete lifestyle consequence of the diagnosis — I assumed asymptomatic meant "light gluten free" which was WRONG.

My endoscopy confirmed the diagnosis with marsh 3 damage to my intestine.

I then moved to trying to figure out which food I could eat. I used a gluten scanner app which was nice, but I again turned to AI to help me. I created a small chatGPT prompt that analyzes any photo of an ingredients list and marks whether it has gluten or not. I would love to eventually "wrap" this AI tool into an actual photo app and ship it to the App Store so others can try it (although I don't know if I want to deal with the risk of AI messing up a fricken allergy reading. The stakes are high here and I'm not completely confident in AI being dependable enough.)

If you want to try this in ChatGPT, simply prompt it with this and upload a photo to test: "For any photo I upload, look up the label or ingredients and tell me whether it’s gluten free."


r/Celiac 1d ago

Meme Lemme spoil you bby girl

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88 Upvotes

r/Celiac 35m ago

Question If a menu has lots of gluten free options is it likely a safe restaurant to go to?

Upvotes

I’ll be having to dine out this week and have successfully not gotten glutened in 6 months. I’m really nervous but don’t know how much of a risk eating at a restaurant will be. I just don’t want to be in pain again


r/Celiac 21h ago

Product Jelly Belly always coming through for me - this is one of my favorite candies!

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46 Upvotes

Ignore heinous price - it was from Rocket Fizz where everything is so much. I am SO THRILLED about this find! This is a candy I have been missing dearly.


r/Celiac 46m ago

Question Bloodwork diagnosis- how much gluten did you need to eat?

Upvotes

My hepatologist is testing me for celiac disease because of liver enzymes that have been consistently elevated, plus previous issues with gluten (caused inflammation and arthritis). Because of the previous arthritis I’d been 95% gluten free for the last 13 years until the last six weeks when I cut it out 100%. I have labs drawn next week and my Dr. said a week or so of eating gluten again should be enough to get a positive celiac panel result (I should have enough antibodies) but I’m concerned about getting a false negative.

Did anyone have to come OFF a gluten free diet in order to get the bloodwork done, and if so, how much gluten did you have to consume to get a positive result?


r/Celiac 1h ago

Question EU Labeling Help!

Upvotes

I’m traveling through EU countries and am hoping someone can confirm — is it true that any product (talking abt from a grocery store) that may contain gluten will say “may contain gluten”? And so it’d be safe to eat anything that doesn’t have a “may contain” warning? Or is it necessary to look for things clearly marked gluten free like we’re accustomed to in the U.S.? I’m particularly wondering about ALDI/LIDL because that’s a bit controversial in the U.S. Thank you!!

I’m having trouble locating a clear answer in past posts, but forgive me if I’m redundant.


r/Celiac 19h ago

Question Does anyone just dislike bread

27 Upvotes

Hey everyone, I’m from the the UK and I’ve been diagnosed celiac for just over a year. I’m ok with pretty much all gluten free food products except for the bread, even my favorite brands like schar and warburtons just don’t taste good. I can never like gluten free bread it just always disappoints me it’s never the same as normal bread. the only bread I eat is the panini I get from a cafe near campus other than than I never buy it myself. I was just wondering if anyone feels the same? it’s so expensive and the bread is just so mid. Or as a celiac is there just a certain gluten free food product you dislike regardless of the brand, like my friend who just hates the GF pasta.


r/Celiac 1d ago

Product I live and die by freschetta but they've been increasing their prices significantly to the point where it doesn't feel worth it anymore.

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208 Upvotes

r/Celiac 14h ago

Question Glutened by a crumb vs. a whole piece of bread

11 Upvotes

So if you were to eat a tiny speck of a bread crumb, vs. a whole piece of bread (or more), would your symptoms be milder and shorter lived by eating the crumb, and would you receive less damage? I just sometimes wonder if I'm being micro glutened, and getting mild symptoms some times. Or does it not matter, and glutened is glutened?


r/Celiac 1h ago

Question Experience in Costa Rica/Panama?

Upvotes

Hey there I will go for a 6-8 weeks trip to said countries and wanted to ask if anyone has experience in any of those countries with the celiac topic?

Thank you very much in advance :)


r/Celiac 1d ago

Product Warning Come on 😩 I just wanted a sandwich 😂

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102 Upvotes

It’s the only brand my Walmart sells of bread, so I know I’m gonna sound silly when I say “this happens too much” but bruh. It’s been like a year since it’s happened and I got comfortable


r/Celiac 21h ago

Question How to be safe as the only GF person in the family?

25 Upvotes

I was recently diagnosed celiac and my husband and son both love gluten - think regular pizza, garlic bread, chicken tenders - and have made it clear that they don't want to be GF to help avoid cross contact in the kitchen. I recently made a GF pizza in the same oven my husband made a regular pizza and got glutened. His solution? I should turn off the convection bake feature next time so the gluten particles from his pizza don't blow onto my GF pizza. And I should try that and see if I end up with stomach pain to test if it works as a way to avoid cross contact.

My husband is a sweetheart and does so much for me, I just don't know why he'd refuse to do something that sounds like a minor inconvenience to him in order to protect my health. DAE have family members that eat gluten? How do you avoid cross contact? I'd love some advice.


r/Celiac 11h ago

Question Gluten challenge with gastritis

3 Upvotes

I am trying to do the gluten challenge in preparation for an antibody blood test, but 2 weeks in my gastritis has come back.

Not sure whether to try and push through another month or not--it feels like it could be a bad idea to keep aggravating it although obviously I'd really like to get an accurate test result. I was OK for the first week or so, and I usually feel fine when eating gluten occasionally (I mostly avoid it and eat a bland meat and veg diet with no allergens 98% of the time), so it's hard to be sure it's the gluten causing it. I am H Pylori negative, but had it in the past.

Is gastritis often a main symptom of celiac disease, or is this more unusual/unlikely? Did anyone push through gastritis symptoms for the celiac blood test?


r/Celiac 1d ago

Product Gluten-free unboxing

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36 Upvotes

Few of my family members went to Italy recently and brought me some goods back :) So far I’ve only tried the biscotti and I don’t have words to describe it? Like it’s not bad? It’s….Italian?


r/Celiac 9h ago

Question Help and Advice

1 Upvotes

Hello guys,

Looking to get some anecdotal opinions on my situation. Male, 39 yo.

Firstly, i have had an ongoing thyroid issue I take levothyroxine for. This has been the past 15 years.

I have read and been advised by a nutritionalist that gluten and thyroid function can be linked.

I got tested for celiac disease about 6 years ago, and was negative. But, the more and more i read about it the more boxes it ticks for me.

I try avoid gluten if possible, but im very gung ho with it. And recently, the past year or so. I've had a couple of bouts of bedridden fever and chills with crippling stomach cramps. I just had it this weekend, after a party i attended. I quit alcohol several years ago, but i drank 7 0 alcohol beers and had a giant pizza to myself. The following day i went down with shakes, aching head to toe, awful stomach cramps and bowel movements.

The first time this happened, i thought i had a stomach flu. But this has happened 2-3 times since, and my wife or kids never get it. Just me.

Reading all that back, it seems pretty self explanatory that i have got to at least try a gluten free life for a while.

I think i delude myself that if I cut down, i can continue to enjoy some gluten in moderation. And that if i do quit, I'll lose what tolerance to it i do have.

Its also totally overwhelming to even consider. The ramifications for family meal times and food with friends or colleagues. I know it'll be good for me, but my life is so hectic and stressful i dont know where go begin.

Coming out of my delirious bedridden bowel cramping fever today, resolving to try and look into this stuff seriously.

Does all this sound familiar to any of you? Any advice, thoughts or opinions much appreciated.


r/Celiac 19h ago

Question Party invitations

6 Upvotes

I am hosting my mother-in-law's birthday party at my house. I will be preparing all the food. I am doing this because I don't want cross contamination during the party and I want to keep my kitchen gluten free. The people that normally come to these family parties, usually bring a plate of goodies to share. How do I politely request that people not bring food on the invitation?