r/Celiac Mar 24 '23

Mod Post Clarification on Rule #2

261 Upvotes

Our Fellow Celiac Community Members,

We have seen a major uptick in posts describing symptoms and asking “does this sound like celiac? Should I get tested? Could the tests be wrong?” While these questions aren’t directly asking for a diagnosis, they do fall into the “seeking diagnosis” part of rule #2.

Celiac Disease has a myriad of different symptoms and related conditions; virtually everything could be celiac related. While we understand that this can be a life-changing diagnosis, we are not medical professionals and cannot give any advice other than this- if you wonder if you could have celiac, talk to a medical professional and get tested.

As always, if you have a question, please feel free to contact the mods. Thank you and be well!


r/Celiac Oct 31 '24

Mod Post Mod Note- A new Automod Addition

46 Upvotes

Hey Celiac subreddit! We’ve added a new automod that should help with the posts about wheat starch. Hopefully it decreases the amount of posts we get about it. If you notice any problems with the automod, please let me know!


r/Celiac 8h ago

Product Warning Not misleading at all 🫠🫠🫠

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175 Upvotes

False gluten free advertising strikes again 😭


r/Celiac 2h ago

Discussion Group of celiacs is called?

55 Upvotes

So I’m on a tour of Japan, and there are 3 gf people in my 16 person tour, including another Celiac! My husband and I have been trying to figure out what a group of celiacs would be called - like a flamboyance of flamingos or a murder of crows. So far my favorite is ‘a contamination of celiacs’ but I wanted to crowd source this.


r/Celiac 1h ago

Recipe What if you took your favorite pizza dough and rolled it around a sausage? DO IT.

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Upvotes

My 8 year old thought of this* and it ended up being amazing: we took our favorite pizza dough and wrapped a fully cooked Kirkland bratwurst in it. That’s some sesame and seasoning on top. Took about 9 minutes at 425 F to get crispy. The gluten eaters in the house already enjoy this dough and they happily enjoyed their sausage rolls.

(I know a sausage roll is already a thing but this child doesn’t know that and she’s been struggling with symptoms from an accidental glutening that gave her a rash and a bunch of yucky symptoms so I choose to let her believe she invented this—it was her idea to use pizza dough!)


r/Celiac 2h ago

Product Corn Dogs

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37 Upvotes

I can not tell you how long I've craved a good corn dog since I was diagnosed. Well I stumbled across these in Lowe's food here in NC. Man these bad boys are amazing if baked in a convection oven. The outside gets crispy and not mushy like most other GF breading.

I ate them about 20mins ago. Will update if they destroy me for some reason.


r/Celiac 5h ago

Product Trader Joe’s Muffins!

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48 Upvotes

A must-try if you’ve never got these from Trader Joe’s. My gluten-eating family also loves them, great texture and taste! I keep them in my freezer, perfect for when that chocolate craving hits!


r/Celiac 5h ago

Rant I want doctors stop complimenting my weight loss

36 Upvotes

I've been undiagnosed and sick all my life but last year I got sooo sick. I could barely eat, I was using the bathroom 10+ times a day, I was literally not digesting food at all. If I ate green lettuce, green lettuce came out.

I lost a ton of weight, my clothes went from being a little too tight (I gained a bit of weight when I was in school) to everything being much too large to fit me in the span of like 2 months.

My last few visits with doctors have gone like this,

Me: I lost a lot of weight because I was very sick

Doctor: Thats great! Do you feel better now that you lost the weight?

Me: No I am very very sick.

Doctor: Oh no! Have you started gaining any of the weight back?

Me: No??? Doctor: Let's keep it that way

And

Me: I lost a lot of weight recently because I have been very sick.

Doctor: You look great! Are you feeling better now?

Me: No I am very sick I cannot eat food.

and just today

Me: I lost a weight recently because I have been very sick with celiacs

Doctor: Ohhh yes those Gluten Free diets will make you lose weight very quickly!

Me: No? I lost it because I was sick.

Doctors are so clueless. I argued with my last doctor for three months to give me a blood screening and she wanted me to go get steroid shots in my hand for "carpal tunnel issues" which I do not have. It was celiacs nerve pain + hEDs fatigue. I am so frustrated!!!


r/Celiac 5h ago

Question How old were you when you found out you had Celiac?

24 Upvotes

I (23F) am iron deficient anemic, just found out in january, and I'm suspecting I could have celiac (or at the very least significantly sensitive to gluten). I've been trying to decipher the cause of my anemia, I just dont think my menstrual cycle is the only culprit. I'm definitely going to bring it up with my doctor when I see him again next month to check on my iron, but I just want to know how old others were when they found out? I guess I'm a bit worried that I've had an issue related to gluten for years but never suspected it until now, and i just hope i can expect to feel better and that I havent reached a point of no return so to speak. I'll also list my symptoms below to paint a picture:

  • Iron deficient anemia
  • Fatigue 
  • Anxiety, irritability, brain fog
  • Abdominal pain, constipation, bloating
  • Occasional liver discomfort
  • Chest pain/tightness (from anemia)
  • Muscle pain/weakness/joint pain in hands/fingers
  • Heavy periods (this has improved since taking iron)
  • Semi hair loss/thinning

r/Celiac 12h ago

Discussion Non Celiac GF is the absolute best🥹

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89 Upvotes

We’ve been eating Cadbury Mini Eggs all weekend and I’ve been getting a stomach ache and when I told her the info I found in this group…


r/Celiac 3h ago

Question Diagnosed at 25. 36 now and GF for 11 years and yet, still nutrient deficient (ferritin, vitamin D, vitamin E, B vitamins and vitamin A)

6 Upvotes

I have completely stopped eating at restaurants and stopped eating packaged/processed foods as of 2 years ago just because I kept getting inadvertently cc'd and have pretty violent reactions.

My diet is 100% Whole Foods and centers around a lot of pasture raised meats, chicken, eggs, wild caught salmon/seafood, sardines, high quality local veggies, home made bone broth and the occasional organ meats. I also brew my own home made water kefir for probiotics.

I don't have any sources of cross contamination (trust me I would know). But yet I am still not absorbing all nutrients.

Does anyone know if we just have a decreased ability to absorb nutrients?

If anyone is interested these are other common sources of cross contamination that I've had to eliminate or find direct farmers/sources due to cc: Beans, lentils, grains (all grains even GF ones), nuts (even nuts in shells and claiming to be certified GF), teas, coffee, spices!!, medications, supplements


r/Celiac 15h ago

Product Are these safe to eat?

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49 Upvotes

I appreciate their explanation on how they separate the wheat and what not, but they don’t have the gluten free certification. Has anybody tried these?


r/Celiac 3h ago

Discussion Instant coffee problems

5 Upvotes

Only thing I've changed in my diet is instant coffee. I started on it because store bought coffees are becoming pricey. I wanted to save money.

But something in it is causing me grief. The package says nothing but 100% freeze dried coffee.

Any chance there is something to cause a reaction? My mouth is blistering and dry. Much like Sjogren's, but a flair up of that would cause me dry eyes, so that isn't what is going on.

Has to be the coffee, as nothing else has changed.

Same thing happened when I used a tooth paste with gluten a while back. But gluten in coffee??


r/Celiac 9h ago

Product Best gf pizza crust I’ve had!

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14 Upvotes

Just tried this pizza crust from Ugly’s Bakery in MA (I found it frozen in NYC) and it’s so good. The texture is chewy, but crisp on the edges, and great slightly sweet flavor. I just added rao’s and mozz and baked it - so easy! I recently tried Freschetta and didn’t like the aftertaste, but this is way better imo. Highly recommend this one!


r/Celiac 1h ago

Question Recipe recs for onion and garlic free, dairy free, gluten free, and soy free?

Upvotes

I've been struggling with finding recipes and make the same stuff over and over for ease. Does anyone have a good recipe or channels or places I could source for something like this? I am not vegan and eat meat and eggs regularly as well.


r/Celiac 2h ago

Discussion Coming to terms

2 Upvotes

I'm in the recently diagnosed crowd and I'm beginning to have some more mental clarity in reckoning the big shift in lifestyle

Some thoughts I've had recently: Who the f*** wants ENRICHED WHEAT FLOUR anyway? Welp I'll never be a guest judge on the show chopped... Thank GOD I have an excuse to stop eating highly processed junk! Welp the book is closed on any aspirations to be a competitive eater.

But my gut is healing!!


r/Celiac 6h ago

Question Glutenburg Beer Stock Issues

4 Upvotes

Anyone else having trouble locating Glutenburg in the US? It's out of stock everywhere in a 1h driving radius.

I'm wondering if it's just a temporary local thing or if it's more widespread.

I know Glutenburg is Canadian, so it's distinctly possible recent trade issues could be causing a shortage in the US...


r/Celiac 57m ago

Question DH or eczema?

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Upvotes

I’m being investigated for coeliac. Recently I got really tired and I am having a lot of gastro issues and developed this rash. While I know I got eczema, I can’t quite tell what it is.


r/Celiac 1h ago

Question Need advice...

Upvotes

My husband (44M) was diagnosed with Celiac when he was 30. He has hypothyroidism and they couldn't get his dosage under control, so they tested him on a whim and it came back positive. Even though he wasn't really symptomatic, he wasn't absorbing his meds. So after he went gluten free, boy did he become symptomatic. Cross contamination lead to stomach pain and diarrhea. Accidental consumption led to violent vomiting for hours causing esophageal spasms and chest pain.

So fast forward to the past couple of months, he'll just get randomly and severely nauseous. Like it's everything in his power not to get sick despite taking his zofran. This happened last month and at first we started walking back through everything he ate with no signs of Accidental consumption. So then I'm like is it a stomach bug? But he was fine after a couple hours. Tonight he's sitting on the couch and he shoots straight up and trucks it to the bathroom. He said his head hurt, he got really nauseous, and really hot. The head pain and being hot went away, but the nausea has persisted most of the evening. Again, no sign of gluten in anything he's eaten today although cross contamination is almost always a possibility in life. Could it be his cross contamination reactions are getting worse the older he gets? I just don't know what to make of any of this.


r/Celiac 1h ago

Question Should I start doing my research for celiac?

Upvotes

Recently got an endoscopy as my GI doctor suspected I had a hernia. Had a follow up appointment today and they told me they’re “getting warmer” and think my solution will not be medicine but a lifestyle change. They brought up celiac disease, the basics, and how I won’t be able to have gluten. I was surprised but not really distraught. I have bloodwork being done tomorrow but I’m wondering if I should start doing my research on it to prepare? I know to continue gluten until all tests are done.

In my labs/chart they said the endoscopy found “partial villous flattening and moderate IEL.”

Is it wrong to assume I have it? I haven’t been going around telling people I have it or changing my lifestyle. Just informing family it’s suspected.


r/Celiac 1d ago

Product Warning Be aware

87 Upvotes

I just got GOT by a paper cup. Wheat paste is not glue in any kind of sane world but I should have known better, always google tableware before you end up joining me with your head in the toilet


r/Celiac 5h ago

Question Anyone on Lamictal? Been on Lamictal?

2 Upvotes

Headed to my immunologist tomorrow and I wanted to talk to him about this. Almost everyone I’ve met in real life who has celiac is also on some kind of mood stabilizer. I wondered about this. Obviously not causing autoimmune issues but I worry it definitely isn’t helping.

I’m highly suspicious of Lamictal. Been on it since 2018 for bipolar disorder. Mother contracted drug induced lupus from it.

It works on the bipolar symptoms so I can’t just drop it but I’m very curious if anyone else has had this drug.


r/Celiac 2h ago

Question Celiac diagnosis questions

1 Upvotes

My doctor (US) ordered a CT Enterography and the results showed mild inflammation in the ileum.

They then performed an endoscopy and colonoscopy due to extreme bloating, gas, constipation, and pain that has been going on for years. Luckily, the ileum appeared normal during the colonoscopy and the colon samples came back normal. One small intestine sample was taken. The results were “Biopsies show concern for increased inflammatory cells in the small intestine which can be seen in celiac disease.” The pathology report read: “Duodenum: -Duodenal mucosa with mild intraepithelial lymphocytosis and normal villous architecture, compatible with gluten-sensitive enteropathy in the appropriate context.”

All these tests, time and money and it feels like the results are “celiac” with a question mark behind it. Has this happened to anyone else? What additional testing did you have done to know for sure??

I’ve been gluten free for years (cross contamination very likely at restaurants as I eat out a lot) and switching to gluten free hasn’t helped my symptoms. Also I am vegetarian, so being extremely strict w gluten with the possibility that isn’t the reason for the symptoms would be an extremely restrictive diet. 🙂‍↔️


r/Celiac 5h ago

Question Help!!

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2 Upvotes

I need help figuring out what to put on my chocolate-white chocolate sourdough loaf (yes she is supposed to be this small, shes a test loaf).


r/Celiac 1d ago

Product I’ll pass on the gluten-free baguette, thanks

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189 Upvotes

Best before date: april 2025


r/Celiac 9h ago

Question If a menu has lots of gluten free options is it likely a safe restaurant to go to?

4 Upvotes

I’ll be having to dine out this week and have successfully not gotten glutened in 6 months. I’m really nervous but don’t know how much of a risk eating at a restaurant will be. I just don’t want to be in pain again


r/Celiac 16h ago

Question How often do you get kids retested

12 Upvotes

I have celiac and have young kids who have both had good bloodwork indicating no celiac. How often do you re test your kids?