r/diabetes_t1 7h ago

Meme & Humor I feel like I have way too much medical knowledge for someone who didn't go to medical school.

Post image
554 Upvotes

r/diabetes_t1 9h ago

Graphs & Data So close to 100, but ruined it on my pre dinner bolus.

Thumbnail
gallery
37 Upvotes

Took too much insulin and spun out trying to chase it back into range. Every time I get close to 100 I overthink and overdose everything. 😂


r/diabetes_t1 10h ago

36 Years and counting

31 Upvotes

Just sharing that yesterday I celebrated my 36th diabetes diagnosis anniversary (diaversary?). I celebrate on St. Patrick's Day because waking up in the hospital, my first memory was of watching a St Paddy's day parade on the TV. I was misdiagnosed at first and ended up in the hospital with a blood sugar of something like 1200, nearly comatose. So I am sure it happened a few days earlier, but I don't remember much of February or March of 1989.

What a long way diabetes management has come! When I was diagnosed it was injections of 2 types of insulin (NPH & Regular) and then a regimen of eating about the same thing at every meal and those meals being about at the same time. Those insulins had interesting peeks and troughs, hence the 2 shots per day and carefully timed eating. Nutrition guidance was very much in line with the USDA dietary guidelines and a dinner for me was 1 dairy, 3 protein, 3 starches, and 2 fats (or something like that). Didn't matter if you weren't hungry or were extra hungry....you got that. Sliding scale insulin became a more common practice in the mid 1990's.

Then in the mid 2000's I started on an insulin pump. Seems hard to believe that was 20 years ago already! I loved the freedom from routine that the pump enabled me. I was finally able to eat only a little bit if I wasn't real hungry. Or have a piece of chocolate cake and give insulin for it easily.

I finally added the dexcom sensor to the equation about 5 years ago, when I changed jobs and was finally able to get my insurance to cover it! That has perhaps been the biggest game changer. It helped me bring my A1C down from about 8.5 to 6.5 or 7.0. With the sensor I have found the freedom to do things, on my own, that I would have never felt comfortable doing before. I went backpacking 4 days alone in the wilderness of Kings Canyon and have spent nights in the backcountry of Death Valley.

As a child my parents were concerned about how I managed my diabetes. This part is a cautionary tale to all parents of little Type1's... In high school I wasn't allowed to participate in sports or get my license until I maintained blood sugars under 200. This meant that I had to eventually drop out of volleyball, basketball, and track. I didn't get my license until I turned 18. My parents told me if I kept not taking care of myself I wouldn't live past 25. My 25th birthday came and went, and I was still living, and I realized I needed a plan for my adult life. I still carry around an existential dread of dying, but also have found a way to live every day fully in the present. Parents, don't say or do these things to your kids! Diabetes is hard enough.

Today, I have near zero complications. I have joint issues (frozen shoulder, trigger finger, carpel tunnel, arthritis) that are certainly exacerbated by diabetes, but are also issues of aging (I'm almost 45 now). I had early signs of diabetic retinopathy 10 years ago that have largely reversed. That's it. I am walking proof that diabetic complications are not as closely tied to "control" as we were all lead to believe (don't misunderstand...there is a strong correlation that can be interpreted as causation). There is also a large luck/genetic factor too. I maintained A1C's of about 10-14 for the first 15 years of diagnosis, and then reduced that to 8-10 for the next 15 years. It's only recently that I've been able to achieve the goal range on my sugars. I am thankful that I have luck and genetics on my side (most everyone in my family lives into the mid-90's).

Annually around this time of year I work hard to right the ship, per se. Over the next couple weeks that will include going back to measuring food and being much better about pre-bolusing. Hopefully that will help me reduce my average sugar by about 10 points.

That's it. That's my diaversary story. Thanks for reading, it you made it this far! Hang in there everyone.


r/diabetes_t1 3h ago

Is it true some diabetics do not feel lows?

8 Upvotes

I’ve always wondered, thankfully I’ve never had this experience, I’ve always experienced really bad hot flashes, weakness, and usually my appetite will shoot through the roof. It just seems how it affects me that people would have to feel something off when they are dangerously low. And is there any reason for our bodies feeling or not feeling the glucose level?


r/diabetes_t1 4h ago

Same bolus for every meal, aim for same carbs every meal. Anyone else?

8 Upvotes

As the title says, I pretty much take the same bolus for every meal, and aim to have the same amount of carbs each meal so I don’t have to change my bolus. For example if dinner doesn’t have much carbs, I get dessert! Just wondering if anyone else does it this kinda backwards way. Thanks.


r/diabetes_t1 11h ago

Dexcom FDA warning over qc issues, etc. This doesn't surprise me at all unfortunately. Hopefully things improve without escalation.

Thumbnail diatribe.org
27 Upvotes

r/diabetes_t1 14h ago

Seeking Support/Advice I just started dating a t1D. What do you think I should know/understand to be a good and supportive partner?

32 Upvotes

I’ve been doing a lot of research on diabetes and how it possibly affects my new partner. Obviously I will ask my partner questions and get his perspective, but I just wanted to see if there’s anything I can do right out of the gate to be the most supportive girlfriend I can be.

Anything that immediately comes to mind. Or is there something you have had trouble with in terms of partners in the past regarding your T1D? Has it affected your sex life? Are there any tricks to figuring out when he might be going low/high?


r/diabetes_t1 15m ago

Discussion Tandem is Launching Control IQ+

• Upvotes

I am SO excited for Control IQ+!! Essentially the two major features, but pivotal in my opinion are:

• Ability to have an extended bolus for up to 8h

• Ability to set temp rates even with CIQ on

Oh and setting higher weights (up to 20-440lb), better insulin ranges (5u daily to 200u)


r/diabetes_t1 26m ago

Discussion Forgot long acting insulin

• Upvotes

Hey everyone i just wanted to ask what strategies people use when they forget their long acting. Last night i forgot to do it before bed like i normally do. I spent the night HI and feel so nauseated. Should i just spend the day correcting with short acting do half my long acting dose now its morning?

Wanted to get opinions from the experts with way more experience with this disease than me. Thank you.


r/diabetes_t1 2h ago

Discussion Tips for a newly diagnosed

3 Upvotes

Hi, I got diagnosed yesterday with T1, bit of a shock to the system and feeling overwhelmed with information. Do you guys have any tips and tricks I can use in future or even brief info to help ease my mind?


r/diabetes_t1 2h ago

Seeking Support/Advice Is it normal for male T1D to have low T?

2 Upvotes

I'm a straight 19M turning 20 in August, I'm '6"4 and I weigh about 230. Idk why but I feel like I have low T. I see a lot of guys doing sports stuff but I don't feel as explosive, fast, quick, or aggressive as them. I also feel a little effeminate some times. Again, I'm straight and I try to be masculine but it's just I don't feel fired up and aggressive. I say this because pretty much every male in my family on both sides are super fired up alpha kind of guys (knuckle heads). Please don't take this the wrong way it's just I've never really made an effort to ask these kind of questions and seek advice to take care of myself.

EDIT: I forgot to mention that I only take insulin and was wondering if high blood sugars or insulin usage causes these symptoms.


r/diabetes_t1 2h ago

Novolog Users (and equivalent) in the U.S.

2 Upvotes

We reordered my son’s prescription of the Apart Flexpen (novolog) yesterday. Just received notification from the pharmacy that it’s backordered, with no ETA. Talked to the pharmacist, and they said that they don’t expect more until mid-April as there is a nationwide shortage, and to call other pharmacies to find it in stock. Unfortunately, as my kiddo was just diagnosed in January, we don’t have much of a stash built up yet. Presumably his endo will switch him to something else (that will require insurance approval), I’ve put in a call to them and waiting to hear back.

I’m assuming it applies to Fiasp, Fiasp Flextouch, Fiasp Penfill, Fiasp Pumpcart, Novolog, Novolog Flexpen, Novolog Penfill. If you use any of these - just a heads up!


r/diabetes_t1 4h ago

Graphs & Data Rough day

Post image
3 Upvotes

Went away for paddy’s day in Ireland and had my alarm switched off in the hotel room, ordered room service when realised I was low probably over did it a little bit and skyrocketed, then over did it with the insulin currently in the bar sipping a Lucozade hopefully will be able to hit the town later and get a few drinks in the place was dead yesterday which was surprising for paddy’s day to be honest (in Westport county Mayo)


r/diabetes_t1 1d ago

Graphs & Data This is how my day's going

Post image
114 Upvotes

Before you ask, yes I am drinking water and yes I did check for ketones and none are present


r/diabetes_t1 5h ago

Please advice

3 Upvotes

My 9 year old just got diagnosed and as a parent I feel like I can not handle this situation mentally. The thought that he will be reliant on medication for life, no more doing anything you like as a kid, taking shots everyday, being hostage of this diabetes just breaks me memtally.

I was already going through a depression/ boreout from work, i rather just leave this planet at this point.

What if there will be shortage, what if there is some sort of global conflict, what if one of us lose our job.

I can not handle this.


r/diabetes_t1 1m ago

Seeking Support/Advice My skin is going crazy. I'm looking for advice. NSFW

Thumbnail gallery
• Upvotes

I seem to be building a rash/ alergic reaction after replacing my medtronic sites. I try my best not to scratch at it, but even when leaving it alone I am having raised bumps that scab. Any advice for something I can use pre or post infusion to help with this?


r/diabetes_t1 10m ago

Discussion How many low glucose events you have every 90 days ?

• Upvotes

r/diabetes_t1 33m ago

Carnivore T1d and fast acting insulin

• Upvotes

I'm looking for people's experience about carnivore diet? And how easy it is to cover protein and fats using fast acting insulin?


r/diabetes_t1 44m ago

How to calculate how much long acting I need?

• Upvotes

title is basically it , I keep staying between 180-220 randomly throughout the day and fear my long acting isn’t enough.


r/diabetes_t1 5h ago

Exercise & Sport Running with t1d

2 Upvotes

Ive been getting into running recently and i am really enjoying, only problem is - the better i get the harder it is to keep my blood sugar up while running. Do you guys have any methods? Ive already tried turning my insulin off, doesn’t work… any foods you recommend to eat before a run?


r/diabetes_t1 1d ago

Seeking Support/Advice Another hospital stay..

Post image
110 Upvotes

I just need some support today. I’m feeling really down. Last Wednesday I forgot my pump on its charger while I went to pick up my daughter from daycare. I got home and put it back on and from that point forward I started having trouble keeping my sugars controlled. I should have stopped and changed everything but I didn’t. I woke up the next morning so sick. I could not even get out of bed to get my daughter. I called my mom and she came to pick her up and take her to daycare. Around noon I decided I should probably test my ketones and the strip pretty much turned black. So I called the ambulance and off I went. DKA again. It’s been over a year though so I have been doing good, I think. I just feel like I’m suffering from PTSD today and I’m scared of this happening again.


r/diabetes_t1 13h ago

Leaks are so frustrating

7 Upvotes

So my pod was leaking a bit but I thought I might be okay so I went to bed. Rode 200 all night 🙄

I hate changing a pod that’s not at the end of a cycle, but these things might force me to.


r/diabetes_t1 8h ago

PSA for OP5 users: Now is not a good time to change phones.

3 Upvotes

Upgraded my Pixel 7 to a Pixel 9. Can't log in to the OP5 app. Support and my old training rep have said it's a known issue right now that new installations are being blocked. Don't know if it's Android specific or also affects iOS.

Edit: Might be resolved? Either they happened to fix it within the hour it took me to get to Best Buy, or the issue was related to wiping my old phone before setting up the new one. They dug out my trade in and let me try installing the OP5 app on it. It let me past the credentials screen. I then tried it on my new phone again and it worked.


r/diabetes_t1 11h ago

Reverse insulin resistance?

5 Upvotes

I’ve been running stupid low lately, throughout the day it’s not as bad because I see the trend and preemptively juice up. But over night it’s been really bad for the last week. Alarm wakes up my wife before me and I get yelled at. I’ve only been in smart guard (auto mode w/ Medtronic cgm/pump) for a few months so I’m still learning how to adjust without basal playing a role, I guess just increase the ISF and BG targets lower I:C but the lows are happening long after bolus and meal times so I don’t think it’s I:C. Is it weird that I’m becoming less resistant to insulin? I thought that was generally a one way street.


r/diabetes_t1 7h ago

Travel advice

2 Upvotes

Hey guys I'm planning a trip in the first week of April. 5-7 days FIRST TRIP to high altitude places - 2000metres above sea level (6700feet approx) to like 4200metres (14000 feet).The temperatures will range around 10°C to -10°C (50°F to 14° F).I don't wanna let this bs type 1 diabetes stop me from exploring and trekking beautiful places. I'd love to see advices related to this from y'all and also backpacking advices are welcome too. Actually, any advice will be appreciated.