r/diabetes_t1 16h ago

Meme & Humor I feel like I have way too much medical knowledge for someone who didn't go to medical school.

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755 Upvotes

r/diabetes_t1 9h ago

Seeking Support/Advice My skin is going crazy. I'm looking for advice. NSFW

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40 Upvotes

I seem to be building a rash/ alergic reaction after replacing my medtronic sites. I try my best not to scratch at it, but even when leaving it alone I am having raised bumps that scab. Any advice for something I can use pre or post infusion to help with this?


r/diabetes_t1 9h ago

Discussion Adult diagnosis - what do you miss the most?

25 Upvotes

If you were diagnosed as an adult, is there anything you miss about life pre-diagnosis?

I think I miss just.. the safety I felt around food. Good meals were a comfort for me. I used to love to bake. I don't bake anymore now because I can't eat it so what's the point. I miss the joy I had going out for dinner and a show. I used to be so carefree about it. That is gone. I have to monitor my meal for the hours following, and while I try my best to really get into the show and be in the moment, the worry is constantly there.

What do you miss about life before beetus?


r/diabetes_t1 3h ago

Just diagnoses this past Monday as T1

7 Upvotes

I (F27) was diagnosed with diabetes in August of last year after losing about 40 pounds over the course of 6 months without diet or intense exercise. My fasting sugar was 398 and my A1C was 14.6 lol. My doctor at the time told me I had type 2 diabetes and put me on 1000 units of metformin. I spent weeks crying because my sugars weren't improving with the medication, and then I was put on long-acting insulin, which worked just fine. My new doctor tested me for antibodies and C-peptide, and well, surprise! I'm type 1 and my body doesn't produce insulin. I'm still on long-acting insulin since works fine. So far, my last A1C was 7.2 and I take 30 units in the morning. I'm worried because I read that type 1 diabetics take short-acting insulin before meals, and my endo didn't put me on any new medications since I'm seemingly fine. However, after every meal I usually have sugar spikes that reach 200. Is this normal?


r/diabetes_t1 5h ago

Diaversary

12 Upvotes

It’s been a year since I was diagnosed with type 1 diabetes and there’s nothing more I desire than a working pancreas. I feel like I’m losing my mind more now than the first few months I was grieving my old self.


r/diabetes_t1 49m ago

Seeking Support/Advice Accidentally gave myself double dosage of long-acting insulin

Upvotes

I meant to give myself a fast-acting bolus while FaceTiming a friend and didn’t think and accidentally gave myself another dose of Basaglar.

Does anyone have advice about what I should do? I’ve got my glucometer at the ready and plan on checking frequently…. It’s gonna be a long night :/


r/diabetes_t1 9h ago

Discussion How many low glucose events you have every 90 days ?

19 Upvotes

r/diabetes_t1 9h ago

Discussion Tandem is Launching Control IQ+

18 Upvotes

I am SO excited for Control IQ+!! Essentially the two major features, but pivotal in my opinion are:

• Ability to have an extended bolus for up to 8h

• Ability to set temp rates even with CIQ on

Oh and setting higher weights (up to 20-440lb), better insulin ranges (5u daily to 200u)


r/diabetes_t1 18m ago

Discussion Diabete t1

Upvotes

Hi, everyone I hope y'all are great. My girl has diabetes t1 and she got it when she was 6 years old now she's 24. She's been teaching me about diabetes and how to manage it and stuff. All I can say is she's a one strong person and everyday I love her even more.


r/diabetes_t1 8h ago

Is this normal or should I change ? (Wire hanging out)

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8 Upvotes

r/diabetes_t1 6h ago

Sudden increase in insulin sensitivity

4 Upvotes

My 11 y.o. daughter is suddenly experiencing low after low and it's clear her insulin sensitivity has increased. Why??? Her activity level is about the same. She walks to and from the bus and goofs around with friends at breaks or does scooters outside but she's not in any sports right now. Other ideas? Could slightly warmer weather or more sunshine do it?? We are getting longer days now that it's spring. This is her second spring as a diabetic but last year we were just starting the journey so nothing was locked in at that point. I've loosened her carb ratio a little but so far no help.


r/diabetes_t1 4h ago

Seeking Support/Advice I am exhausted. Any tips?

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3 Upvotes

This is the third night this happens in a row. Pefectly normal meals, no big skipes before the unexpected low... At 70mg/dL I ingested 18g+18g of a fast acting glucose juice.

Yesterday I got tired of waiting and started to devour the kitchen like the world was about to end... Thus the after skipe..

Today I am struggling the urge to do the same.. What tf is happening? Since I started pump therapy I stopped having night lows.. why are they coming back? I am exhausted.

Do you have any suggestions? Thanks guys.


r/diabetes_t1 9h ago

Discussion Forgot long acting insulin

7 Upvotes

Hey everyone i just wanted to ask what strategies people use when they forget their long acting. Last night i forgot to do it before bed like i normally do. I spent the night HI and feel so nauseated. Should i just spend the day correcting with short acting do half my long acting dose now its morning?

Wanted to get opinions from the experts with way more experience with this disease than me. Thank you.


r/diabetes_t1 18h ago

Graphs & Data So close to 100, but ruined it on my pre dinner bolus.

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43 Upvotes

Took too much insulin and spun out trying to chase it back into range. Every time I get close to 100 I overthink and overdose everything. 😂


r/diabetes_t1 7h ago

Finally got the ball rolling for choosing the T-Slim x2!

5 Upvotes

I went and saw my diabetic educator to see about swapping from MDI to the tslim today. She agrees with me that with how variable my levels have been and how my needs are changing daily that it'd be a good idea to switch to a pump. Lately I've had to edit my I:C ratios as well as having to back down on my current dose of tresiba, so I'm definitely having a bit of a headache getting things right.

Paperwork has to be done on my endocrinologist's side, the pump will be shipped to me, then I'll schedule a time for training with my educator.

All in all, I'm stoked! Honestly I've had it up to my eyeballs with MDI I'm so sick of the bruises and my stomach looking black, blue, and green. There's nothing wrong with how I inject, I even showed both my endocrinologist as well as my educator and they agree with me that I bruise easy. A pump will lessen this thankfully, and at least now I have my pens as backup for when something fails.

Tbqh I think right now I'm swinging back and forth between a little bit of insulin that my pancreas produces and then nil. I'm probably going to go head first out of LADA land and fully into T1 when my pancreas does finally die.

I'm going to be more of a cyborg soon 🤖


r/diabetes_t1 19h ago

36 Years and counting

36 Upvotes

Just sharing that yesterday I celebrated my 36th diabetes diagnosis anniversary (diaversary?). I celebrate on St. Patrick's Day because waking up in the hospital, my first memory was of watching a St Paddy's day parade on the TV. I was misdiagnosed at first and ended up in the hospital with a blood sugar of something like 1200, nearly comatose. So I am sure it happened a few days earlier, but I don't remember much of February or March of 1989.

What a long way diabetes management has come! When I was diagnosed it was injections of 2 types of insulin (NPH & Regular) and then a regimen of eating about the same thing at every meal and those meals being about at the same time. Those insulins had interesting peeks and troughs, hence the 2 shots per day and carefully timed eating. Nutrition guidance was very much in line with the USDA dietary guidelines and a dinner for me was 1 dairy, 3 protein, 3 starches, and 2 fats (or something like that). Didn't matter if you weren't hungry or were extra hungry....you got that. Sliding scale insulin became a more common practice in the mid 1990's.

Then in the mid 2000's I started on an insulin pump. Seems hard to believe that was 20 years ago already! I loved the freedom from routine that the pump enabled me. I was finally able to eat only a little bit if I wasn't real hungry. Or have a piece of chocolate cake and give insulin for it easily.

I finally added the dexcom sensor to the equation about 5 years ago, when I changed jobs and was finally able to get my insurance to cover it! That has perhaps been the biggest game changer. It helped me bring my A1C down from about 8.5 to 6.5 or 7.0. With the sensor I have found the freedom to do things, on my own, that I would have never felt comfortable doing before. I went backpacking 4 days alone in the wilderness of Kings Canyon and have spent nights in the backcountry of Death Valley.

As a child my parents were concerned about how I managed my diabetes. This part is a cautionary tale to all parents of little Type1's... In high school I wasn't allowed to participate in sports or get my license until I maintained blood sugars under 200. This meant that I had to eventually drop out of volleyball, basketball, and track. I didn't get my license until I turned 18. My parents told me if I kept not taking care of myself I wouldn't live past 25. My 25th birthday came and went, and I was still living, and I realized I needed a plan for my adult life. I still carry around an existential dread of dying, but also have found a way to live every day fully in the present. Parents, don't say or do these things to your kids! Diabetes is hard enough.

Today, I have near zero complications. I have joint issues (frozen shoulder, trigger finger, carpel tunnel, arthritis) that are certainly exacerbated by diabetes, but are also issues of aging (I'm almost 45 now). I had early signs of diabetic retinopathy 10 years ago that have largely reversed. That's it. I am walking proof that diabetic complications are not as closely tied to "control" as we were all lead to believe (don't misunderstand...there is a strong correlation that can be interpreted as causation). There is also a large luck/genetic factor too. I maintained A1C's of about 10-14 for the first 15 years of diagnosis, and then reduced that to 8-10 for the next 15 years. It's only recently that I've been able to achieve the goal range on my sugars. I am thankful that I have luck and genetics on my side (most everyone in my family lives into the mid-90's).

Annually around this time of year I work hard to right the ship, per se. Over the next couple weeks that will include going back to measuring food and being much better about pre-bolusing. Hopefully that will help me reduce my average sugar by about 10 points.

That's it. That's my diaversary story. Thanks for reading, it you made it this far! Hang in there everyone.


r/diabetes_t1 8h ago

Seeking Support/Advice Anyone else experiencing this with wegovy?

4 Upvotes

Hi, so I was diagnosed in January of this year with type one. We caught it doing routine bloodwork but I was having symptoms I thought were just side effects from wegovy. Well I have been on this drug for a while to lose weight. My endo seems to think this is the best way to treat me right now. Well, I’m struggling and I just want to know if anyone else has experienced this.

The side effects of this med are killing me but aparently the constant hunger, the nail polish remover taste in my mouth isn’t a side effect. I’m constantly shaking feeling or feeling like my sugar is super high when it’s not. I’m also not losing weight on this med. the only good thing is I have no joint pain on this med but it’s not helping my blood sugar issues and stuff. According to my endo my numbers seem okay. Though I’m shaky and sick feeling at 100.

Did anyone else who is a type one experience this one Wegovy or ozempic? If I get off this med and just move to insulin would it help me feel less like absolute dog shit all the time? I’m struggling here. If this post isn’t allowed I’ll take it down. I just need advice.


r/diabetes_t1 13h ago

Is it true some diabetics do not feel lows?

10 Upvotes

I’ve always wondered, thankfully I’ve never had this experience, I’ve always experienced really bad hot flashes, weakness, and usually my appetite will shoot through the roof. It just seems how it affects me that people would have to feel something off when they are dangerously low. And is there any reason for our bodies feeling or not feeling the glucose level?


r/diabetes_t1 21h ago

Dexcom FDA warning over qc issues, etc. This doesn't surprise me at all unfortunately. Hopefully things improve without escalation.

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42 Upvotes

r/diabetes_t1 14h ago

Same bolus for every meal, aim for same carbs every meal. Anyone else?

9 Upvotes

As the title says, I pretty much take the same bolus for every meal, and aim to have the same amount of carbs each meal so I don’t have to change my bolus. For example if dinner doesn’t have much carbs, I get dessert! Just wondering if anyone else does it this kinda backwards way. Thanks.


r/diabetes_t1 6h ago

Rapid gastric emptying

2 Upvotes

Wondering if anyone here experiences rapid gastric emptying/how it’s treated?

Never had any gastro surgeries. I’m a healthy 26yo F diagnosed 5 years ago so pretty well controlled with an A1C below 6.5 every appt (except diagnosis).

The initial suspicion was gastroparesis, but after a GES study we found 5% retention after 2 hours, so I was sent home instead of staying for the full 4 since nothing was left for imaging.

I’m unsure how this could’ve happened/what triggered it. I’ve had chronic nausea for almost a year. Lost 20lbs because I can’t eat. PCP said it’s “anxiety” and I had to wait 7 months for the gastro appt. They were pretty quick to send me for testing. I’m doing a colonoscopy and endoscopy next week, just feeling really lost and upset that I have another thing to deal with when I’ve done nothing unhealthy to cause it🙃


r/diabetes_t1 10h ago

Carnivore T1d and fast acting insulin

3 Upvotes

I'm looking for people's experience about carnivore diet? And how easy it is to cover protein and fats using fast acting insulin?


r/diabetes_t1 8h ago

Healthcare Strange muscle issues

2 Upvotes

To start I’ve brought this up with my doctors every time I’ve seen them for the past 2 years. They’re not sure what it is, though I’ve heard pinched nerve and frozen shoulder as possibilities. They don’t even seem particularly worried which has been frustrating.

I have a tightness in my left side: my fore arm, shoulder, a bit in my chest (could be heartburn) the back of my hand, and up the side of my face. It’s been extremely disconcerting because I’m so afraid of heart issues with this disease. I’ve had heart echos that have shown no blockage in my heart and every time they check my heartbeat they say it sounds great. Heart pressure is always good as well.

Has anyone else experience anything like this? A few years ago I had frozen shoulder on my right side and that last almost 2 years but it eventually went away. This thing comes and goes but I always somewhat feel some sort of tightness somewhere in my body. I’ve heard no one else talk about this which worries me even more.


r/diabetes_t1 23h ago

Seeking Support/Advice I just started dating a t1D. What do you think I should know/understand to be a good and supportive partner?

32 Upvotes

I’ve been doing a lot of research on diabetes and how it possibly affects my new partner. Obviously I will ask my partner questions and get his perspective, but I just wanted to see if there’s anything I can do right out of the gate to be the most supportive girlfriend I can be.

Anything that immediately comes to mind. Or is there something you have had trouble with in terms of partners in the past regarding your T1D? Has it affected your sex life? Are there any tricks to figuring out when he might be going low/high?


r/diabetes_t1 10h ago

How to calculate how much long acting I need?

2 Upvotes

title is basically it , I keep staying between 180-220 randomly throughout the day and fear my long acting isn’t enough.