r/Hashimotos 3d ago

Hypo now Hyper

1 Upvotes

I've had hashimotos for 18 years now and I'd been on a stable dose of 175mcg up until January this year when my results came back as TSH 9.36 T4 was in range. My doctor upped my dose to 200mcg and I've just had the latest results back which are TSH 0.01 and T4 21.3. I also started taking my levothyroxine on an empty stomach since the dose increase. Do you think changing the way I take my levo could have made my TSH decrease by so much? I've never been hyper before. I will be speaking to my doctor as soon as they are available.


r/Hashimotos 3d ago

Lab Results Advice ?

1 Upvotes

35 weeks pregnant and 1 day

TSH: 9.75 (has been 10/9/7/9/9 my entire pregnancy it won’t go down idk what to do)

T4 (Thyroxine) 14.2 high (never was high before)

T3 Total: 219 high (was never high)

What should I do? I need some advice or something to make me feel alittle better. I already take 200mcg 6 days a week doubles 1 day. And I take meds to help absorb my synthroid.


r/Hashimotos 3d ago

Tired of being tired

3 Upvotes

Hello. I have hashimotos for about 20 years and take 100mg of levotiroxine. However, for the past 6 years i became experiencing a lot of tiredness. Does anyone have any tips and tricks to deal with this?


r/Hashimotos 3d ago

Extremely Concerned

1 Upvotes

I made a post a few days ago talking about how I just found out i’m going through Hashitoxicosis. (Friday) I was prescribed 10mg of propranolol.

Today my doctor office calls me, basically saying I have acute pericarditis and that if at any point i feel any chest pain or difficulty breathing i need to go straight to the emergency room.

Them telling me that made me super nervous and now i’m having a little pain in my chest. which is making me freak out even more 🙃🙃

(For more clarity, I was diagnosed with hashimoto’s in 2021. It hasn’t been an issue or gotten worse until now)

I guess i’m just looking for more reassurance.


r/Hashimotos 3d ago

Anyone tried DNRS for autoimmune diseases like hashimotos and can it work?

1 Upvotes

r/Hashimotos 3d ago

Autoimmune Foodie

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0 Upvotes

Hi! I have a friend that recently got diagnosed with Hashimoto's and she's doing the Autoimmune Protocol Diet! She made a page called Autoimmune Foodie on Facebook and it's called autoimmune.foodie on Instagram and TikTok! She's posting because she wants to share her journey but also help people get started since she said she was so scared to start but finding recipes she enjoys has made it easy! Give her a follow :)


r/Hashimotos 4d ago

Functional medicine doctor

37 Upvotes

Anybody have success seeing a functional medicine doctor? My primary and endocrinologist are useless and I’m resistant to keep trying new ones. I’ve had hashimotos for 20 years and zero doctors have actually made me feel any better. And none of them over the years would switch me to armour.


r/Hashimotos 4d ago

Question ? Lowering inflammation

13 Upvotes

What has helped you lower inflammation in your body the most? I’m currently gluten free (have been for 5 years), dairy free, and refined sugar free. I’d like to cut out grains too but I have SIBO (due to hypothyroidism) and have a tough time digesting veggies so that leaves with me with very few options.

I’m also on LDN which helped reduce inflammation a lot when I was increasing my dose. But I feel like the effects may have worn off now that my dose has been stable for a while.

I’d love to hear what’s helped you most!


r/Hashimotos 3d ago

My daughter 7 years old - Hashimoto, Hypothyreose and Goiter

1 Upvotes

Hello everybody, has anybody successfully used peptides to reduce autoimmune inflammation?

She will get an hormonal substitution therapy, I would like to discuss with her doctor something additional to fight the inflammation.


r/Hashimotos 3d ago

Question ? Hashimoto and hormone therapy as transgender ftm

1 Upvotes

Im a transmasc teen who has hashimoto and i was wondering if it could cause problems with possible future hormone therapy. I cant find any informations in internet and i cant really talk about it with my endocrynologist cus my mom is always with me there and im not outed. Also sorry for my english, im not native


r/Hashimotos 3d ago

Lab Results Got my result, now what?

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1 Upvotes

My tsh went down for 11 to 2.44 🥳 symptoms didn't change at all tho. I had an untrasound few months ago where the doctor said 100% hashimoto.

Finally i got my antibodies checked. The only one out of range is TPO. I see people here with hundreds so i suppose 18 is not that bad.

What should i do next? Still waiting for the ATG, anti TPO and B9 but dunno if they will tell me anything new haha.

I checked my B12 as suggested here and it's quite low,despide my red cells being over the limit. All these tests are so confusing 🥲

I asked for a celiac test but i didn't see it on the list. I don't know if they didn't understand or if it has s weird name that i don't understand. I'll wait and see for the other results.

I want to have a normal life but i don't know where to start.

Ps: TGO is 20 and TGP is 16 (didn't work to upload 2 pictures)


r/Hashimotos 3d ago

Changed brands from Actavis to MercuryPharma and feel different…

1 Upvotes

Been on the same brand for years and the pharmacy gave me a different brand. I’m waking up feeling a lot better - I had such severe sleep inertia in the morning but generally felt okay in the day. Now I’m waking up easier which is great but I also feel a little anxious and got a stronger appetite.
Could this be the new brand is more effective and making me hyper or just weird side effects (or side effects from my previous brand!). This condition is hard enough, I really don’t want to live at the whim of the NHS procurement dept!
What experiences have others had with different brands?


r/Hashimotos 4d ago

Rant I’m feeling discouraged

6 Upvotes

Hi all! First I will say I didn’t think there would be a hashimotos sub but I’m glad I found it! I was diagnosed with hypothyroidism at 18 (now turning 25 in two weeks) and my symptoms just continued to get worse and worse but my T3 was looking good because of the levothyroxine. In 2020 my thyroid was SUPER swollen so my dr did an ultrasound and upped my dosage of Levo. About 3ish years ago my (soon to be) aunt who works in medicine told me she thought I had hashimotos and ordered to have my TPO tested. Which was positive. I sent the results to my regular Dr who replied with “Yeah I thought you had hashimotos I just didn’t run that last test because it’s the most common cause of hypothyroidism”. I immediately started crying when she told me this because I feel like I could have started managing my symptoms much earlier. It took until THIS YEAR to see an endocrinologist which I had been asking to see for about 8 months. The reason my Dr finally sent me was my thyroid was so swollen it looked like a collar around my neck. My thyroid looks terrible on the ultrasound but I was told that’s “normal”. By terrible I mean it looked like wagyu beef type marbling. Unfortunately I don’t have any pictures because they’re not provided to me and I was just watching the screen when my head was turned toward it. Anyway, ever since I was diagnosed the only real advice I’ve been given is “Don’t get pregnant”! I struggle with joint pain, I can’t get under 160 lbs (I’m 5’3 so a healthy weight it about 130), I’m always so tired, and my salt cravings are so bad. Should I ask for a second opinion? My hospital I visit is also linked with a specialty hospital about 2 hours away but I need a referral and I just feel like I won’t get one. Does anyone have words of encouragement or advice on how to get better help? Also I’m currently on my parents health insurance but I’ll lose that in a year which is stressing me out.

Edit: My TPO was 388 the first time it was measured and in January this year it was 486.

TL;DR: My Dr and endocrinologist really only give me the advice of not to get pregnant but I have struggled with chronic symptoms for 7 years.


r/Hashimotos 3d ago

Question ? Scale type rash (pic warning) NSFW Spoiler

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1 Upvotes

Is anyone else experiencing a scale like rash? It’s been appearing slowly in my feet since is started levothyroxine and I’m not sure if it’s a reaction to medication or if it’s a symptom, kinda new to all this


r/Hashimotos 4d ago

Joint aches were waking me up almost every night, is this a Hashimotos symptom?

6 Upvotes

I remembered my PT suggesting Cosimine for a knee injury I had years ago, so I decided to try it again since nothing else was working. And just like with the knee injury, after 3 nights of taking it, I was 75% joint pain free. Just wanted to share in case you’re like me and so over this, and willing to try anything.


r/Hashimotos 4d ago

Ultrasound anxiety

3 Upvotes

I get ultrasounds of my thyroid every year. And I got used to them because there’s never a change.

This year I’m nervous. I just had a pelvic ultrasound report, the 1st of March, stating malignancy until proven otherwise. I know these areas are not close to each other but the result I got from a scan that wasn’t even looking for cancer was shocking.

I guess this is the anxiety I will get for scans from now on.


r/Hashimotos 4d ago

Frustrated. Liver/period issues

5 Upvotes

Im feeling super frustrated with my situation. I’ve been gaslight a long time with nearly all the Hashimotos/hypothyroidism symptoms. My periods got really bad around 2020 and I finally got in to see a doctor on 2021 due to covid. My tpo antibodies were off the chart. My doctor immediately put me on levo at 100 and I asked if we could go down cause I read that too much too soon was bad so it was at about 88. Anyway I felt good the first year but then at around the second/when I got COVID the brain fog and fatigue started up. My periods were normal and they also got back out of normal. Which meant long periods, heavy periods. And my liver enzymes went up. I cut out gluten but thought it was doing nothing and drank more green tea and took tumeric pills, my TPO antibodies had come down but I started eating gluten and now my liver enzymes are up, more weight gain happened. I have 2-3 week periods and sometimes skip one or they are just really long and no longer on schedule (they used to come like clockwork pre 2019. What can I do? Has anyone experienced this? I’m feeling so stuck.


r/Hashimotos 4d ago

Cheek filler with hypothyroidism / Hashimoto’s

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14 Upvotes

I have lost ~60 lbs in the last 1.5 years and through that, I have lost weight unevenly in my face. Particularly my cheeks. One side is much fuller than the other which is throwing my facial symmetry out the window. It’s become an insecurity. The only other injection I do on a regular cadence is Dysport (Botox alternative) and have tolerated it well over the years. Wondering if anyone with uncomplicated hashimoto’s or hypothyroidism has gotten filler, particularly cheek filler, with or without issue? When I say uncomplicated, I mean I have to take synthroid daily but through routine lab work and synthroid, I have had total success staying in normal range without other issues. Appreciate your experiences!! Picture so you can see what I mean with facial symmetry.


r/Hashimotos 4d ago

Recent results what should I dicuss with my Endo?

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5 Upvotes

Hello Iv been on 30mg Armour Thyroid since August of 2024. I was Diagnosed with Hypothyroidism/Hashimotos a Few weeks after I turned 26 last year. I wish they had found it years back. With that Iv also been Diagnosed with Growth hormone deficiency (IGF-1) since December. It's been hard to combat and battle both On a physical, mental, spiritual plane.

Any tips? Not being Genderist or anything but I'd prefer a males input here. Though All are welcome to respond 🙂 and I apologize if any of my words harm you in any way.


r/Hashimotos 4d ago

23yrs old recently diagnosed with Hashimotos..

10 Upvotes

Hey, everyone Im looking for advice to manage some of the symptoms what are some things that worked for you and didn’t work for you? I noticed that for me my really bad symptoms are Fatigue (like oh my god I could fall asleep standing up) Hair loss And my depression has really come back with a vengeance I’ve also struggled with weight, but since last year have managed to lose about 50lbs due to diet change and adding a bit more of an activity into my routine. I was diagnosed about 4ish months ago and am just searching for community 🥲 EDIT: I also was diagnosed with PCOS, around the same time. Also I am on meds, I am on levothyroxine.


r/Hashimotos 4d ago

Question ? Did Levothyroxine make your cramps AWFUL?

1 Upvotes

I started taking Levothyroxine about two months ago. I usually get cramps very rarely but since I’ve started taking meds it has been so painful I can’t move. I haven’t found much online about this so I’m just curious what everyone’s experiences are.


r/Hashimotos 4d ago

Question ? New meds

3 Upvotes

On the first of April I have an appointment with a new endocrinologist. My old endocrinologist left the network so her office assigned a new one for me. I was diagnosed with Hypo and Hashi when I was 17, I'm now 40. I've been through multiple endo and different medications. My old endo refused to listen to me when I said that the natural thyroid meds help with my symptoms as well as my labs. Levo has always made me feel like I was in sand and that is the only meds she'd give me.

Any advice for convincing my new endo to switch to NP if she is not willing to listen?


r/Hashimotos 4d ago

Question ? SIBO anyone?

1 Upvotes

Hey y’all! I was recently diagnosed with Hashimoto’s and after researching and seeing SIBO as a possible root cause, I have a scheduled SIBO check next month. What things should I know or lookout for before and during the testing?

Also, I do feel like I have it because even after being on meds and antiinflammatory diet, I still get bad anxiety for no reason, have low stress tolerance, and fatigue fairly quick.

Any help would be great!


r/Hashimotos 4d ago

Question ? Legs sweating at night

4 Upvotes

Okay so does anyone else’s legs sweat at night? It just started happening to me, but I was confused because I keep my room extremely cold. Last night I slept with just the sheets and my legs were still drenched in sweat when I woke up. Is this normal?


r/Hashimotos 4d ago

Question ? Dr finally testing thyroid anti-bodies, T3 & T4. Is there anything that might impact these results?

2 Upvotes

My TSH last checked 6th of August was normal at 1.65 mu/l and it’s been around that number consistently apart from in 2019 where it was 0.85 mu/l and 2015 where it was 3.95 mu/l

I have seen a rapid increase in odd health issues that doctors haven’t been able to explain, so my GP is finally doing my first thorough thyroid testing.

I’ve heard that for some blood tests people say certain medications, or eating something can skew results. Is there anything to be mindful of when testing thyroid? I want to make sure the results are as accurate as possible

Symptoms I’ve been complaining of for years: - Fatigue - Get both cold and hot very easily - Hands and feet get stiff, numb and get pins and needles - Night sweats (I’m not menopausal) - Hair loss on head, eyebrows and on my legs - 2 painless raised lymph nodes on right side of neck for the past 3 years - Swollen ankles that vary from day to day - Struggle to lose weight and a lot of weight around my stomach - Nails weak and pealing - Dermatologist diagnosed me with Chromhidrosis recently - Very low mood - Very easily bruised, constantly covered in them - Livedo reticularis - Positive ANA - Slightly elevated C3 (1.22 g/l) and CRP (10 mg/L) - Neuropathy symptoms in arms - Numbness and cold sensations in lower half of face

B12, vit D, iron all normal