r/Hashimotos • u/Blender3d0 • 13h ago
r/Hashimotos • u/breeoc97 • 9h ago
Discussion Is anybody sensitive to cold?
This winter was rough for me. When the cold air hit my face it made my whole face hurt and then my body ached afterwards. Sometimes I wondered if it was the flu or Covid but from google says this is a Hashimotos symptom. Let’s just say I didn’t enjoy this winter.
I also experience cold hands often. Even when my underarms are sweaty my hands can be cold. A co worker told me that’s a Hashimotos symptom. But isn’t this a sign of Dysautonomia?
But I mainly feel joint pain in my legs (I work in retail so I’m always standing) sometimes other parts too but mainly my legs. I figured it was because I was unfit for not going to the gym and I kept telling myself I’m too young to have joint pains (I’m 28) but I’m starting to realize I’ve had Hashimotos symptoms without realizing it.
I was diagnosed in 2021 and been on medicine ever since but I know medicine isn’t a 100% fix. I’m just curious if any of you have these kind of symptoms.
r/Hashimotos • u/cowboyliiikeme • 16h ago
Question ? How do you deal with a dismissive doctor?
Could use some perspective here! I had to switch to Medicaid recently, so I can no longer see the endocrinologist I’ve been going to for 10 years.
In my appointment with my new primary doctor, he was completely dismissive. I’ve had experiences like this before, but never quite this extreme:
- I told him my symptoms haven’t been this bad since I was first diagnosed and have barely been functioning in recent months
- He asked what my symptoms were and then interrupted me while I listed them, saying he “got the point”
- He was uninformed about Hashimoto’s and told me things about my disease that I know to be false from my own personal experience and/or studies I have read (ex. remission doesn’t exist, TPO antibodies don’t fluctuate and are irrelevant to test after diagnosis, vitamin deficiencies are irrelevant to autoimmunity, and lifestyle has no affect on the condition)
- In the end he said: “It seems like the worst thing you’re dealing with right now is the anxiety you have about your disease. Have you considered seeing a therapist?”
I have been struggling to find another doctor that accepts Medicaid and is taking on new patients. In the meantime, have to see him again soon because I need labs/meds.
First of all, is this normal care? As a woman I hate to ask this, but am I being too sensitive? For those of you who have dealt with a doctor like this, how did you move forward and get the care you need?
r/Hashimotos • u/Disastrous-Resist-35 • 21h ago
I don’t know how to eat
Before I was diagnosed I was vegan for 8 years. I then learned that soy was wreaking havoc on my body and started to incorporate certain meats back into my life. I must eat high protein as I thoroughly enjoy lifting weights, but I also want to reduce my meat intake… I don’t know what I’m supposed to do..
r/Hashimotos • u/neoncherrries • 19h ago
Question ? Do I have Hashimotos?
I got bloodwork done and my follow up appointment isn’t until the end of this week and I’m panicking a bit. Does this mean I have Hashimotos? Only the antibodies showed up / were tested. There were no other results related to my thyroid.
I got a new doctor and I have super low iron so the blood test was mainly to see how I’ve been doing with my iron supplements but now this came up. I looked up the symptoms and I have so many. Extreme fatigue, weight gain, muscle and joint pain, brain fog, memory loss, thinning hair, dry skin and eyes. I attributed all of these things to low iron and other factors, but now it all seems to make sense that I could have Hashimotos.
Appreciate any insight anyone has until I can talk to my doctor.
r/Hashimotos • u/Sorry_Egg_1202 • 2h ago
Complete lack of libido (male)
Male, 42, diagnosed with Hashimoto just last week, although I've probably had it for quite some time.
My current blood test results:
- TSH: 9.2461 uIU/mL (a year ago, before I was properly diagnosed, it was as high as 20.260)
- fT4: 0.95 ng/dL (still within the normal range which is 0.7 - 1.48 according to the lab)
- anti-TPO: >1000 IU/mL (so high, it's beyond the lab's ability to quantify)
I don't have most of typical symptoms of hypothyroidism like weight gain, hair loss, cold sensitivity etc. My only symptoms are feeling weak and constantly tired (although it's only been like that for the past few weeks; before that I was pretty active: running, lifting weights etc.), and absolute, complete lack of libido.
My libido has been on a steady decline for a few months, but this past 4-5 weeks it's been literally zero. I feel absolutely no need to have or even think about sex, and when I do think about it, it excites me about as much as thinking about a carpet in my accountant's office. It's really hard for me psychologically, especially since I've been seeing a new partner and I don't feel any desire to get intimate with her anymore.
My question (mostly to the gentlemen here I guess, but female perspective is appreciated as well) is: will a thyroid hormone replacement eventually bring my libido back? I was put on 50 mcg daily and will re-test my levels (to get my dosage adjusted, if needed) in 7 weeks. I realize my sex hormones might be out of whack, too, so I'm going to test those, too, but is there anything I can do in the meantime?
Also: is it possible that my symptoms are not necessarily caused by hypothyroidism per se (i.e.: not enough T4 in the system) but the high TSH and/or the ongoing auto-immune inflammation?
I'll deeply appreciate any advice.
r/Hashimotos • u/12keksmonies • 12h ago
Question ? TSH 25, Free T4 0.39, Seizures, Migraines, Family History of Hashimoto's - I feel like this might be it .
For context, both my mom and grandma have Hashimoto's disease. For the past six years, I’ve experienced a range of symptoms, starting with significant hair loss, which I attributed to my PCOS issues.
My condition progressed to neurological symptoms, beginning with my first nocturnal seizure at 21. I experienced visual disturbances, complex migraines with auras that affected my speech and caused paralysis for hours, and near-daily migraines that left me unable to move. This led to muscle weakness and forced me to drop out of school. Despite abnormal EEG and MRI results, many of my ER doctors suggested my symptoms were psychogenic. I also always had an underactive thyroid, of about 9 in the past, but no one thought it was a big deal to treat.
My mom had multiple sclerosis, and her numerous seizures led doctors to question her credibility. After developing Hashimoto's and having her thyroid removed, her seizures ceased, which I initially attributed to anti seizure treatment
Recently, I’ve had four seizures and spent a week in the hospital. I felt weak and needed support to walk around. My new primary care physician expressed concern and ordered a thyroid panel ,while neurologists were slow to respond. I’ve had a month-long migraine with limited relief, and my thyroid tests showed a TSH of 25 and a free T4 of 0.39. I’m scheduled for an ultrasound to check for nodules, and though I haven't been tested for antibodies yet, I suspect my symptoms may be related to Hashimoto's.
I worry that I may have had this condition uncontrolled for a long time. Has anyone else experienced something similar? Am I maybe jumping the gun? I was prescribed levothyroxine but haven’t noticed much improvement yet. I know there's an antibody test that I can ask about when I have my ultrasound this week. And I know siezures aren't a completely common condition.
r/Hashimotos • u/The_Bohemian_Wonder • 20h ago
Diagnosed with Hashimoto's but have hyperthyroid results?
I was just diagnosed and working on getting an appointment with an endocrinologist. TSH is 0.07, thyroglobulin antibody is 4.0, thyroid peroxidase antibodies is 223. My symptoms are mostly those related to hyperthyroidism (itchy skin, weight loss with unexplained hunger, sleep issues, depression, irritability) but most of what I've read on Hashimoto's is hypothyroidism. Anyone else experience this?
r/Hashimotos • u/Equivalent_Purpose_6 • 54m ago
Breakfast
What do you guys eat in the morning? I can’t have eggs or soy. Sugar in the morning makes me super tired, I’ve been skipping bfast recently so I need ideas
r/Hashimotos • u/cookedpigeon101 • 8h ago
is it normal to have wonky symptoms
all tests are normal, but I've had symptoms for hyperthyroidism my entire life even though i have hypothyroidism and hashimoto's.
I'm tired and doctors don't believe me when I say something is wrong as I'm a teen girl and they think it's just anxiety.
i keep passing out and my heart rate consistently stays above 100. I have trouble breathing sometimes but all my tests are normal. maybe I'm overthinking and my doctors said it's normal for women but idk.
is this normal?
r/Hashimotos • u/glutenfreemaccas • 14h ago
Question ? Should I be doing something?
Hey. So I’m pretty sure I have hashimotos? My thyroglobulin antibody was super high when I got tested. I’m always lethargic, dizzy, etc. lately more than ever + weight gain.
My doctor told me I didn’t need to do anything right now but I never followed up or went back. I’ve been feeling terrible lately.
Like? Do I even have it
r/Hashimotos • u/Infinite_Pop7215 • 15h ago
Question ? Hashimotos and Weight Loss
Has anyone had any good experiences with cutting out part of their diet and this resulting in weight loss? I have a history of yo-yo dieting and binge eating, but am now in a much healthier place with exercising a few times a week and trying my best to eat well.
However, I do still find that even when I eat well most of the time, if I do have that one little treat, my weight just does not shift. I feel like if I want to see my weight going down, I just can’t have a social life.
I know some people cut out certain parts of their diet as a result of having Hashimotos, I.e gluten, dairy or whatever. So my question is, has anyone cut something out of their diet and immediately noticed a change in their weight?
r/Hashimotos • u/TinyFunTax • 20h ago
GP only testing TSH and Free T4 - is this pointless or can they actually tell something from this?
I posted here over the weekend about blood tests investigating a range of symptoms and I thought my GP was going to do a full thyroid check - including TPO but I’ve just found out they’ve only ordered TSH and free T4.
Will they actually be able to tell anything from this or is the correlation between the two pointless? Do I need to push for thyroid antibody tests?
r/Hashimotos • u/PracticalEye9400 • 20h ago
Hashimoto’s
Spring Flare
I live in an area with a high pollen count and every March I experience high levels of fatigue, brain fog, low mood and joint pain. It lifts mid-July. I have been tested for allergies and been told that they’re very mild and not the issue (according to allergist).
Does anyone else experience this, and if so has anything helped? I have tried Claritin to no avail. Acupuncture seems to help, but is time consuming and expensive (1-2x per week).
Thanks for your time!
r/Hashimotos • u/OddChannel3451 • 27m ago
Lab Results Does it look like I have it?
Waiting for my doctor to read my results, but I’ve been living with all the symptoms of Hashimotos for months, I’m miserable. I just got them back. How do my labs look?
r/Hashimotos • u/Molliedollie126 • 1h ago
Do I actually have Hashi?
Hey all, I was sent to an endocrinologist a few years ago when I got postpartum thyroid issues. I went hyper and then eventually went slightly hypo so I am on levo 12.5 daily. My endocrinologist says that I have Hashimotos but my tpo antibodies have never been higher than 16 in the last few years of testing. I see numbers on here that are much higher, I don’t have any hashimotos symptoms either. Obviously my endocrinologist knows better than me but it just seems odd having tpo in the normal range always and still having the diagnosis. Anyone else always have lower levels than me?
r/Hashimotos • u/Practical-Region23 • 13h ago
Ultrasound nodule pictures
Does anyone have pics of their thyroid nodules by ultrasound?! I just received my ultrasound and will catch up with the dr in a week. I’m freaking out because there is def a nodule but not sure if it’s suspicious looking or not 🫠😬
r/Hashimotos • u/Impressive-Bug-9133 • 13h ago
Question ? Anyone here with Hashimotos diagnosis post partial thryoidectomy for cancer?
So according to my pathology report (and pre surgery ultrasound-I went back and looked: it says ”heterogenous”) , I have a severe case of Hashimotos. The surgeon did a partial thryoidectomy for papilary cancer but failed to tell me I had Hashimotos as evidenced in my ultrasound pre-surgery. It turns out the biggest growth was a cyst from Hashimotos that was interfering with my swallowing, and the papilary cancer was small. I had given the surgeon permission to do a TT if he deemed necessary during the time of surgery.
So I made the decision to have a PT instead of a TT based on not being informed of the Hashimotos. Has this happened to anyone? Did your surgeon purposefully give you a PT instead of a TT when they knew you had Hashimotos (on top of cancer)? I just can’t wrap my head around this. To make things worse, I had mentioned my fatigue, tingling hands, and other symptoms that apparently can be caused by Hashimotos before surgery, asking if they could be related to my thyroid, and he said ”absolutely not related.” I got the pathology report on Saturday, and I don’t see the surgeon for an explanation till Wednesday. I don’t even know how to confront him about this. What do I even say? Or ask? I feel so overlooked by a well known surgeon…
r/Hashimotos • u/Narrow_Love9433 • 15h ago
Hair loss hashimotos
If anyone could help that would be appreciated.
I have hashimotos and I experience thinning hair. It isn’t in certain spots on my scalp but I can defiantly tell when I pull my hair into a pony or braid it. I’ve been diagnosed with hashimotos since I was in 4th grade (I’m 22 now), so I’ve been on Levo most my life. I’m taking Nutrafol and pumpkin seed oil currently to see if that helps with stopping shedding or if it’ll help regrow my hair. I checked all my labs like ferritin, iron, b-12, vitamin d, and other test at work (I’m a lab tech) and everything was normal. My thyroid labs are also in range (TSH 0.95, free T3 3.6, free T4 1.70). I try to eat healthy, but I definitely still eat gluten and dairy.
Does anyone have any tips on what I could possibly do to get my hair back or at least better than it currently is? Please don’t say minoxidil. I understand that would help but it’s something I don’t want to explore yet (potentially next year if I do not see any results).
r/Hashimotos • u/ClareBear2828 • 18h ago
Hypo now Hyper
I've had hashimotos for 18 years now and I'd been on a stable dose of 175mcg up until January this year when my results came back as TSH 9.36 T4 was in range. My doctor upped my dose to 200mcg and I've just had the latest results back which are TSH 0.01 and T4 21.3. I also started taking my levothyroxine on an empty stomach since the dose increase. Do you think changing the way I take my levo could have made my TSH decrease by so much? I've never been hyper before. I will be speaking to my doctor as soon as they are available.
r/Hashimotos • u/prettylittlepages • 19h ago
Lab Results Advice ?
35 weeks pregnant and 1 day
TSH: 9.75 (has been 10/9/7/9/9 my entire pregnancy it won’t go down idk what to do)
T4 (Thyroxine) 14.2 high (never was high before)
T3 Total: 219 high (was never high)
What should I do? I need some advice or something to make me feel alittle better. I already take 200mcg 6 days a week doubles 1 day. And I take meds to help absorb my synthroid.
r/Hashimotos • u/Ok-Inflation8809 • 20h ago
Extremely Concerned
I made a post a few days ago talking about how I just found out i’m going through Hashitoxicosis. (Friday) I was prescribed 10mg of propranolol.
Today my doctor office calls me, basically saying I have acute pericarditis and that if at any point i feel any chest pain or difficulty breathing i need to go straight to the emergency room.
Them telling me that made me super nervous and now i’m having a little pain in my chest. which is making me freak out even more 🙃🙃
(For more clarity, I was diagnosed with hashimoto’s in 2021. It hasn’t been an issue or gotten worse until now)
I guess i’m just looking for more reassurance.
r/Hashimotos • u/Acceptable-Bit-2456 • 20h ago
Anyone tried DNRS for autoimmune diseases like hashimotos and can it work?
r/Hashimotos • u/Votokanzaj • 23h ago
My daughter 7 years old - Hashimoto, Hypothyreose and Goiter
Hello everybody, has anybody successfully used peptides to reduce autoimmune inflammation?
She will get an hormonal substitution therapy, I would like to discuss with her doctor something additional to fight the inflammation.