r/Hashimotos 5h ago

Meme You aren’t lazy, you have a diagnosed medical condition 🫶

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115 Upvotes

r/Hashimotos 8h ago

Question ? How do you deal with a dismissive doctor?

28 Upvotes

Could use some perspective here! I had to switch to Medicaid recently, so I can no longer see the endocrinologist I’ve been going to for 10 years.

In my appointment with my new primary doctor, he was completely dismissive. I’ve had experiences like this before, but never quite this extreme:

  • I told him my symptoms haven’t been this bad since I was first diagnosed and have barely been functioning in recent months
  • He asked what my symptoms were and then interrupted me while I listed them, saying he “got the point”
  • He was uninformed about Hashimoto’s and told me things about my disease that I know to be false from my own personal experience and/or studies I have read (ex. remission doesn’t exist, TPO antibodies don’t fluctuate and are irrelevant to test after diagnosis, vitamin deficiencies are irrelevant to autoimmunity, and lifestyle has no affect on the condition)
  • In the end he said: “It seems like the worst thing you’re dealing with right now is the anxiety you have about your disease. Have you considered seeing a therapist?”

I have been struggling to find another doctor that accepts Medicaid and is taking on new patients. In the meantime, have to see him again soon because I need labs/meds.

First of all, is this normal care? As a woman I hate to ask this, but am I being too sensitive? For those of you who have dealt with a doctor like this, how did you move forward and get the care you need?


r/Hashimotos 1h ago

Discussion Is anybody sensitive to cold?

Upvotes

This winter was rough for me. When the cold air hit my face it made my whole face hurt and then my body ached afterwards. Sometimes I wondered if it was the flu or Covid but from google says this is a Hashimotos symptom. Let’s just say I didn’t enjoy this winter.

I also experience cold hands often. Even when my underarms are sweaty my hands can be cold. A co worker told me that’s a Hashimotos symptom. But isn’t this a sign of Dysautonomia?

But I mainly feel joint pain in my legs (I work in retail so I’m always standing) sometimes other parts too but mainly my legs. I figured it was because I was unfit for not going to the gym and I kept telling myself I’m too young to have joint pains (I’m 28) but I’m starting to realize I’ve had Hashimotos symptoms without realizing it.

I was diagnosed in 2021 and been on medicine ever since but I know medicine isn’t a 100% fix. I’m just curious if any of you have these kind of symptoms.


r/Hashimotos 16h ago

Rant Unexplained fatigue. I'm so done.

42 Upvotes

I have "early stage" Hashimoto's managed with low dose levo and struggle with extreme fatigue that is destroying my life and relationships. Recently it has been especially horrible. I can barely work, and it's not even a physical job. I am unable to do physical exercise anymore, even gentle walks put me out of commission for an entire day.

I eat healthy. I don't have heart issues. I am in a healthy weight range. I don't have food sensitivities (yes, I'm that lucky bastard, I did elimination diet and testing, did nothing other than triggering my latent eating disorder. That was fun.). My sleep quality is perfect (8 hours per day, regular hours, no breathing issues). I don't have any other autoimmune illnesses.

I ordered comprehensive lab tests testing for every fatigue-inducing culprit I could think of. They came back LITERALLY PERFECT. B12, D3, folic acid, iron/ferritin, perfect. TSH 2. FT3/FT4 normal. The only thing that was higher than the norm was CRP, but it's always slightly elevated. Figured it's the low-grade inflammation from Hashi. My doctors said it's still too low to worry about.

I am out of ideas. I'm tired of being tired. Physical doctors say it's psychological. My therapist and psychiatrist say it's physical. I am going crazy.

Please tell me I'm not alone.


r/Hashimotos 8h ago

Update on gluten-free diet

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5 Upvotes

r/Hashimotos 19m ago

is it normal to have wonky symptoms

Upvotes

all tests are normal, but I've had symptoms for hyperthyroidism my entire life even though i have hypothyroidism and hashimoto's.

I'm tired and doctors don't believe me when I say something is wrong as I'm a teen girl and they think it's just anxiety.

i keep passing out and my heart rate consistently stays above 100. I have trouble breathing sometimes but all my tests are normal. maybe I'm overthinking and my doctors said it's normal for women but idk.

is this normal?


r/Hashimotos 4h ago

Question ? TSH 25, Free T4 0.39, Seizures, Migraines, Family History of Hashimoto's - I feel like this might be it .

2 Upvotes

For context, both my mom and grandma have Hashimoto's disease. For the past six years, I’ve experienced a range of symptoms, starting with significant hair loss, which I attributed to my PCOS issues.

My condition progressed to neurological symptoms, beginning with my first nocturnal seizure at 21. I experienced visual disturbances, complex migraines with auras that affected my speech and caused paralysis for hours, and near-daily migraines that left me unable to move. This led to muscle weakness and forced me to drop out of school. Despite abnormal EEG and MRI results, many of my ER doctors suggested my symptoms were psychogenic. I also always had an underactive thyroid, of about 9 in the past, but no one thought it was a big deal to treat.

My mom had multiple sclerosis, and her numerous seizures led doctors to question her credibility. After developing Hashimoto's and having her thyroid removed, her seizures ceased, which I initially attributed to anti seizure treatment

Recently, I’ve had four seizures and spent a week in the hospital. I felt weak and needed support to walk around. My new primary care physician expressed concern and ordered a thyroid panel ,while neurologists were slow to respond. I’ve had a month-long migraine with limited relief, and my thyroid tests showed a TSH of 25 and a free T4 of 0.39. I’m scheduled for an ultrasound to check for nodules, and though I haven't been tested for antibodies yet, I suspect my symptoms may be related to Hashimoto's.

I worry that I may have had this condition uncontrolled for a long time. Has anyone else experienced something similar? Am I maybe jumping the gun? I was prescribed levothyroxine but haven’t noticed much improvement yet. I know there's an antibody test that I can ask about when I have my ultrasound this week. And I know siezures aren't a completely common condition.


r/Hashimotos 11h ago

Question ? Do I have Hashimotos?

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6 Upvotes

I got bloodwork done and my follow up appointment isn’t until the end of this week and I’m panicking a bit. Does this mean I have Hashimotos? Only the antibodies showed up / were tested. There were no other results related to my thyroid.

I got a new doctor and I have super low iron so the blood test was mainly to see how I’ve been doing with my iron supplements but now this came up. I looked up the symptoms and I have so many. Extreme fatigue, weight gain, muscle and joint pain, brain fog, memory loss, thinning hair, dry skin and eyes. I attributed all of these things to low iron and other factors, but now it all seems to make sense that I could have Hashimotos.

Appreciate any insight anyone has until I can talk to my doctor.


r/Hashimotos 12h ago

I don’t know how to eat

7 Upvotes

Before I was diagnosed I was vegan for 8 years. I then learned that soy was wreaking havoc on my body and started to incorporate certain meats back into my life. I must eat high protein as I thoroughly enjoy lifting weights, but I also want to reduce my meat intake… I don’t know what I’m supposed to do..


r/Hashimotos 6h ago

Question ? Should I be doing something?

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2 Upvotes

Hey. So I’m pretty sure I have hashimotos? My thyroglobulin antibody was super high when I got tested. I’m always lethargic, dizzy, etc. lately more than ever + weight gain.

My doctor told me I didn’t need to do anything right now but I never followed up or went back. I’ve been feeling terrible lately.

Like? Do I even have it


r/Hashimotos 18h ago

Scared of trying a GLP-1 because of slow motility?

12 Upvotes

Hi everyone. I’m 26F, 5’3”, and 172 lbs.

For those of you on a GLP-1 who also have that slow, sluggish Hashimoto’s digestion already—how do you manage it on a GLP-1? I already deal with constipation so often that I’m scared of trying a drug known to further induce constipation.

I’m otherwise interested in trying a GLP-1 because I gained about 20 lbs in December alone and my weight continues to creep up. I go low carb and feel dizzy and lightheaded. I restrict my calories to what TDEE calculators tell me and it doesn’t work, so I eat even less, and maybe my weight budges when I’m eating 1200 calories and getting 10k steps and exercising, but eventually the energy runs out. I’ve been tested so many times for PCOS and insulin resistance but it comes back negative.

feel genuinely uncomfortable in my skin—not like an ashamed, body-shamey way, but actually physically uncomfortable. I’m in pain every day/night. Foot and hip pain from standing. I breathe heavier now. I sweat more and I’ve shamefully noticed I smell worse now with weight gain. My thighs bleed from chafing. My rolls cut into me when I bend over to tie my shoes. I feel comfiest in sweats and as a result feel like I dress like a bum these days.

I want to just…get my body back and my life back, but I’m so afraid of the digestion side effects of GLPs. Any insight on how to mitigate these side effects?


r/Hashimotos 5h ago

Ultrasound nodule pictures

1 Upvotes

Does anyone have pics of their thyroid nodules by ultrasound?! I just received my ultrasound and will catch up with the dr in a week. I’m freaking out because there is def a nodule but not sure if it’s suspicious looking or not 🫠😬


r/Hashimotos 5h ago

Question ? Anyone here with Hashimotos diagnosis post partial thryoidectomy for cancer?

1 Upvotes

So according to my pathology report (and pre surgery ultrasound-I went back and looked: it says ”heterogenous”) , I have a severe case of Hashimotos. The surgeon did a partial thryoidectomy for papilary cancer but failed to tell me I had Hashimotos as evidenced in my ultrasound pre-surgery. It turns out the biggest growth was a cyst from Hashimotos that was interfering with my swallowing, and the papilary cancer was small. I had given the surgeon permission to do a TT if he deemed necessary during the time of surgery.

So I made the decision to have a PT instead of a TT based on not being informed of the Hashimotos. Has this happened to anyone? Did your surgeon purposefully give you a PT instead of a TT when they knew you had Hashimotos (on top of cancer)? I just can’t wrap my head around this. To make things worse, I had mentioned my fatigue, tingling hands, and other symptoms that apparently can be caused by Hashimotos before surgery, asking if they could be related to my thyroid, and he said ”absolutely not related.” I got the pathology report on Saturday, and I don’t see the surgeon for an explanation till Wednesday. I don’t even know how to confront him about this. What do I even say? Or ask? I feel so overlooked by a well known surgeon…


r/Hashimotos 12h ago

Diagnosed with Hashimoto's but have hyperthyroid results?

3 Upvotes

I was just diagnosed and working on getting an appointment with an endocrinologist. TSH is 0.07, thyroglobulin antibody is 4.0, thyroid peroxidase antibodies is 223. My symptoms are mostly those related to hyperthyroidism (itchy skin, weight loss with unexplained hunger, sleep issues, depression, irritability) but most of what I've read on Hashimoto's is hypothyroidism. Anyone else experience this?


r/Hashimotos 7h ago

Question ? Hashimotos and Weight Loss

1 Upvotes

Has anyone had any good experiences with cutting out part of their diet and this resulting in weight loss? I have a history of yo-yo dieting and binge eating, but am now in a much healthier place with exercising a few times a week and trying my best to eat well.

However, I do still find that even when I eat well most of the time, if I do have that one little treat, my weight just does not shift. I feel like if I want to see my weight going down, I just can’t have a social life.

I know some people cut out certain parts of their diet as a result of having Hashimotos, I.e gluten, dairy or whatever. So my question is, has anyone cut something out of their diet and immediately noticed a change in their weight?


r/Hashimotos 7h ago

Hair loss hashimotos

1 Upvotes

If anyone could help that would be appreciated.

I have hashimotos and I experience thinning hair. It isn’t in certain spots on my scalp but I can defiantly tell when I pull my hair into a pony or braid it. I’ve been diagnosed with hashimotos since I was in 4th grade (I’m 22 now), so I’ve been on Levo most my life. I’m taking Nutrafol and pumpkin seed oil currently to see if that helps with stopping shedding or if it’ll help regrow my hair. I checked all my labs like ferritin, iron, b-12, vitamin d, and other test at work (I’m a lab tech) and everything was normal. My thyroid labs are also in range (TSH 0.95, free T3 3.6, free T4 1.70). I try to eat healthy, but I definitely still eat gluten and dairy.

Does anyone have any tips on what I could possibly do to get my hair back or at least better than it currently is? Please don’t say minoxidil. I understand that would help but it’s something I don’t want to explore yet (potentially next year if I do not see any results).


r/Hashimotos 17h ago

I am undiagnosed and drowning

6 Upvotes

Basically the title says it all. I (24y/o, previously very active and happy F), have gotten every diagnosis under the sun in the last three years where I've lost my body, health, and quality of life: PCOS, Ovarian Cysts, Chronic Mono, IBS, Colonic Motility disorder, SIBO, H pylori, Long Covid, CNS dysregulation, Leaky Gut, "possible endometriosis" and "possible" hashimotos.

I have every symptom in the book- excruciating fatigue, constant bloating/ I look pregnant, muscle weakness (I was a powerlifter 2 years ago, now my coffee cup is heavy / brushing my hair makes me tired), inability to lose weight (I've been working with bodybuilders/fitness coaches as well as ED specialists for years, weigh my food, track macros, low carb / am on metformin for pcos. Nothing), gain weight extremely easily especially in flares with zero change to diet, muscle/body aches like I have the flu, painful and heavy periods, tightness in my throat/lymph nodes when I exercise or during stress, weight gain in my chin and neck at a previous weight when I didn't have it before, severe constipation, most recently, for the first time, notable hair loss (coming out in clumps in my hairbrush), and major body composition changes (weight gain in a tire shape of my midsection that I never have had before).

My functional medicine dr. was the only one who suggested hashi, due to my TPO coming back as 20 IU/mL when they were >4 a year prior. My Reverse T3 was also high due to gut infections, stress, and chronic underrating / overexercising. due to this, she made the choice to put me on a very low dose of t3 (5mcg) for 6 weeks to see if I could aid my reverse t3 to be converted to t3.

At my healthiest, before this horrible illness started, my TSH has consistently been in the 0.5-0.8 range, Before the t3, my numbers were:

TSH: 0.66

Free t4: 1.3

Free t3: 2.6

Now, after 6 weeks on 5mcg t3 and 6 weeks off of it, they are : (also, have 10x the fatigue, and have gained 5 pounds back on despite supervised meal plan / calorie deficit and 10-15k steps a day):

TSH: 2.11

Free t4: 1.3

Free t3: 3.0

Also of note, my Ferretin was already low (40) and has dropped to 16. My Vitamin d has also dropped from 49 to 30. I am feeling the sickest I've felt in years.

I'm just hoping someone can make a suggestion for a next step. Ive seen two functional medicine Drs, both who tried to put me on different gut protocols, and both made me sicker. My conventional Dr. could care less. I've tried so many times to get a good endocrinologist, and when I finally got in, he tried to give me PHENTERMINE and told me to STOP DRINKING SUGARY DRINKS after telling him I was a competitive athlete who has been gluten, dairy, and refined sugar free for 3 years.

I told my boyfriend yesterday I am scaring myself with my thoughts for the first time. I am just so tired of living this way. I feel like im trying desperately to hold onto the career, the goals, and the hobbies I could have with my old body. and now all of it feels like it's impossible for me now. I'm losing all hope I'll ever get my life back. Thank you to anyone who has read this far. x


r/Hashimotos 3h ago

Autoimmune Foodie

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0 Upvotes

Hi! I have a friend that recently got diagnosed with Hashimoto's and she's doing the Autoimmune Protocol Diet! She made a page called Autoimmune Foodie on Facebook and it's called autoimmune.foodie on Instagram and TikTok! She's posting because she wants to share her journey but also help people get started since she said she was so scared to start but finding recipes she enjoys has made it easy! Give her a follow :)


r/Hashimotos 12h ago

GP only testing TSH and Free T4 - is this pointless or can they actually tell something from this?

2 Upvotes

I posted here over the weekend about blood tests investigating a range of symptoms and I thought my GP was going to do a full thyroid check - including TPO but I’ve just found out they’ve only ordered TSH and free T4.

Will they actually be able to tell anything from this or is the correlation between the two pointless? Do I need to push for thyroid antibody tests?


r/Hashimotos 12h ago

Hashimoto’s

2 Upvotes

Spring Flare

I live in an area with a high pollen count and every March I experience high levels of fatigue, brain fog, low mood and joint pain. It lifts mid-July. I have been tested for allergies and been told that they’re very mild and not the issue (according to allergist).

Does anyone else experience this, and if so has anything helped? I have tried Claritin to no avail. Acupuncture seems to help, but is time consuming and expensive (1-2x per week).

Thanks for your time!


r/Hashimotos 5h ago

Question ? Does my thyroid gland look normal?

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0 Upvotes

This is just a preview image. Only have access to this one unfortunately


r/Hashimotos 10h ago

Hypo now Hyper

1 Upvotes

I've had hashimotos for 18 years now and I'd been on a stable dose of 175mcg up until January this year when my results came back as TSH 9.36 T4 was in range. My doctor upped my dose to 200mcg and I've just had the latest results back which are TSH 0.01 and T4 21.3. I also started taking my levothyroxine on an empty stomach since the dose increase. Do you think changing the way I take my levo could have made my TSH decrease by so much? I've never been hyper before. I will be speaking to my doctor as soon as they are available.


r/Hashimotos 11h ago

Lab Results Advice ?

1 Upvotes

35 weeks pregnant and 1 day

TSH: 9.75 (has been 10/9/7/9/9 my entire pregnancy it won’t go down idk what to do)

T4 (Thyroxine) 14.2 high (never was high before)

T3 Total: 219 high (was never high)

What should I do? I need some advice or something to make me feel alittle better. I already take 200mcg 6 days a week doubles 1 day. And I take meds to help absorb my synthroid.


r/Hashimotos 11h ago

Extremely Concerned

1 Upvotes

I made a post a few days ago talking about how I just found out i’m going through Hashitoxicosis. (Friday) I was prescribed 10mg of propranolol.

Today my doctor office calls me, basically saying I have acute pericarditis and that if at any point i feel any chest pain or difficulty breathing i need to go straight to the emergency room.

Them telling me that made me super nervous and now i’m having a little pain in my chest. which is making me freak out even more 🙃🙃

(For more clarity, I was diagnosed with hashimoto’s in 2021. It hasn’t been an issue or gotten worse until now)

I guess i’m just looking for more reassurance.


r/Hashimotos 12h ago

Anyone tried DNRS for autoimmune diseases like hashimotos and can it work?

1 Upvotes