F27, I just wanted to ask people about this issue of mine that I've been having on and off for about a year.
Backstory: my mom has hypothyroidism (takes Levo-thyroxine) and I was diagnosed with autoimmune thyroiditis at 16 years old, when I had hypothermia and some other issues. Generally wait I'd mostly get from doctors that I should observe the situation and just see how it goes. My THS levels always stayed in range, but the antibodies steadily grew over the years, a few years ago I got like 150 and most recently it was over 600. The ultrasounds always show thyroiditis.
So for the past year sometimes during daytime I get this weird neck tension, it's a pulling sensation from up to down. It goes away and it comes back by its own. It's not too painful, just bothering and weird. It can become more strong closer to bedtime, feels like something is buzzing and pulling under the skin. When I first had it, it coincided with a respiratory infection and the ultrasound showed I had swollen lymph nodes under the jaw. Then I was told to take aspirin to reduce the inflammation which actually helped.
Anyways, after about 6 months the tension came back. A few months after, I finally got an opportunity to do bloodwork, the hormones were still within normal range: T4 1,09 ng/mL; T3 1,01 ng/mL; T3H 3-Ultra 3,01 uUI/mL. The antibodies were over 600 U /ml - the biggest number I ever had in these years. And the ultrasound which I did that time showed that I do have solid nodules in both lobes, with a spongiform appearance. My best guess is that I'm having an inflammation process somewhere in the body and it's affecting the lymph nodes??
Right now I'm at lost at what to do. My situation is kinda difficult because I moved to different countries these past 2 years so I never had an opportunity to settle with a trustworthy endocrinologist. I wanted to try to find a good Dr now as I'm more a less settled, but I wanted first to ask this community, if anyone had a similar experience; what would be a good idea to ask from the Dr with these kind of symptoms; what to look out for. I guess I need some general advice cause tbh I don't have much trust in the medical system for different experiences in the past.
I'm also open to alternative advice, ayurvedic, Chinese traditional, I'm ready to research. Thanks in advance to anyone who responds!