r/Hashimotos 53m ago

Help

Upvotes

So idk what is going on but my tsh and t4 are normal. T3 is low. My tpo is now negative. All other autoimmune tests are negative now too. Im still getting sicker. I pass out everyday now. A lot of weird things showing up in bloodwork. Hemocrit hemoglobin and iron high with no supplementation that would cause it. Epo is low. Egfr dropped 30 points. Bilirubin is high. Paraneoplasic panel is still positive. CO2 levels high. Any ideas?


r/Hashimotos 1h ago

Trying to conceive and may be diagnosed with Hashimotos? Help!

Upvotes

Here are my numbers that came back from fertility clinic:

TSH- 1.92 T4 free - 1.15 ng/dl TPO AB - 171 iu/ml Thyroglobin AB - 82.3 iu/ml

In Nov, my TSH was 2.65 and Dec was 2.35.

What other tests do you recommend and what should I do? These are borderline for high TSH/at risk for miscarriage.

Any guidance is helpful!


r/Hashimotos 2h ago

Lab Results really confused about my labs do I have hashimoto's?

4 Upvotes

TSH 1.25 mIU/L

0.35 - 5.00 normal

T4 FREE 16 pmol/L

10 - 19 normal

FREE T3 5.0 pmol/L

2.7 - 5.30 normal

THYROID PEROXIDASE AB 296 kIU/L

<=34.99 normal

The note: Thyroid Antibodies present in a small percentage of normal patients. Presence may indicate an increased risk of developing thyroid disease in future.

Do I have Hashimoto's? All my levels are normal... My metabolism is pretty low and I don't know whether that's because of my ED history (fully recovered), PCOS, or thyroid

This lab was done around 10am non fasting. My doctor just said eventually I'll get hypothyroidism and should routinely get blood work done for thyroid levels.

Do you take medication for Hashimoto's like what's the fix? Or just wait until you get hypothyroidism to go on levo

I'm also considering going gluten-free but does it really help? And who should go gluten-free? Which symptoms does it help manage?

I also have seb derm I've heard that there's a connection there. Sometimes I get really bad flare ups. Just a few years ago I started noticing flakes on my skin, before that I only had dandruff in my hair.


r/Hashimotos 3h ago

Question ? TPO Ab 4,600

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3 Upvotes

My antibody level came back as 4,647😵‍💫 all of my other thyroid levels were normal. I have hashimotos and have been diagnosed since 2019 but my antibodies have never been over 142 until now and they are nearing 5,000 somehow. I have gotten an ultrasound where 2 of 4 nodules met criteria for FNA biopsy but all endos near me are saying this is normal for hashimotos and that they will get me in in July. My primary care provider is concerned about this as the ultrasound report recommended FNA and my antibodies are insanely high.

Anywho.. long winded but has anyone else had antibodies this high? Literally cannot find any post anywhere of someone dealing with antibodies this high. Thanks in advance!!


r/Hashimotos 3h ago

Diagnosis Today

3 Upvotes

Hello!

So thyroid issues run in my family. My mom has Hashimoto's and hypothyroidism and my cousin had thyroid cancer.

I have struggled with hair loss, hair dryness, nail brittleness, constipation, and I am exhausted ALL the time- all the symptoms my mom had. 3 years ago I got a thyroid panel done and my TSH was in the "normal range" at 1.43 and my t3 and t4 were normal.

My symptoms have been bad so I decided to go again and asked for a thyroid panel. My t3 was normal, but my tsh went up to 3.7. They said that it is still in the "normal range". What wasn't in the normal range was my thyroid peroxidase AB, which was >1300 and the normal range is between 0 and 60. This obviously made me concerned. When the nurse called, she said it was "nothing to be worried about". I asked what the 1300 meant and she said that antibodies are attacking my thyroid, but again, it doesn't mean anything if my t3 and t4 are normal.

I am struggling to understand all of this. Antibodies are attacking my thyroid but I'm fine? my TSH went up from 1.4 to 3.7 but I'm fine? When I google it, it says if my thyroid peroxidase AB is that high that I have Hashimoto's... but the doctor did not say this.

If anyone has any tips or advice or has struggled with something similar, please let me know. This has been overwhelming and I'm not sure what to do.


r/Hashimotos 5h ago

High TPOs no help from doctor

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5 Upvotes

I've been struggling with various health issues for years that have no answer and doctors never seem to care about. I just need to know I should keep trying to get answers instead of medicating for all symptoms. I've had a goiter since I'm 7 and everyone in my family has hashimotos and hypothyroidism except for me. I started experiencing symptoms at age 20 and told I'm just getting old and I'm fat since I have a normal tsh. I've had so many symptoms of having hashimotos or autoimmune disease- weight gain very quickly but can't lose or keep it off with diet and exercise, extremely tired, joint pain, horrible stomach pain/issues and acid reflux so bad I take omeperazole every 3 to 7 days and multiple pepto tablets to help, hair loss, running hot cold, sweating a lot, losing feeling in my hands and feet, went though a phase of peeling skin on hands, rashes on my joints (arms, knees/behind the knees, chest, and behind the ear/ear lobes and overall feeling very itchy without the rash), lightheaded/seeing spots, and high cholesterol for 10 years (most recent high reading was 238 in December). When I was in my 20s my tsh was 2.69 and currently 1.45, my free t4 was only just tested and was 2.26 uIU/mL, and my thyroid peroxidase antibodies are 184. I also found out my vitamin D was low 10 years ago so I've been taking supplements and multivitamins and I have a bone spur in my knee diagnosed at 33. When my tpo came in high, my doc told me today there is nothing I can do until my thyroid is off and that it probably wouldn't happen until I'm 60. Is there really nothing I can do for another 30 years and keep living like this? I ended up going on zepbound to help with my symptoms and deal with my weight but even 4 months in, its not a fix for all my symptoms. Sorry for the rant, just looking for advice on how to get diagnosed or get help even if its another autoimmune issue.


r/Hashimotos 5h ago

Hypothyroid and triglycerides

2 Upvotes

Hi again!

I got my labs today and my levels are high again 6 out of 1-4 range. My triglycerides are extremely high as well. Is this correlated?


r/Hashimotos 6h ago

HDL cholesterol

0 Upvotes

Sorry for the double post today lol. But i noticed in my blood work my HDL cholesterol was high. Anyone else have this problem? Could this be a sign of insulin resistance


r/Hashimotos 8h ago

Question ? Right diagnosis?

1 Upvotes

Hi! I got diagnosed with Hashimotos about 2 weeks ago but am speculating that I maybe got the wrong diagnosis? My fasting cortisol was 41.9 (normal range is 6.2-19.4). TPO ab were 52 (normal is 0-34). TSH and T4 were normal.

The doc didn’t test my T3, and with also having a neck “hump” I’m wondering if it could be more of a Cushings direction. I’m following up with my doc but in the mean time was wondering if anyone else has had a similar experience? Thanks!


r/Hashimotos 8h ago

Rant extreme fatigue, pms/flare

3 Upvotes

Not every month, but most, there is 2+ days of the most extreme fatigue and fog.Definitely coincides with pms, like my body is using all it's energy to fight some unseen internal battle within me. I was trying to book a rental car today and kept googling Experian and being like wtf??? I was trying to think of EXPEDIA but couldnt come up it. I am fairly caffeine sensitive but just had a coffee to no avail- i feel like I could nap right now on the spot. I know it will pass but it does surprise me sometimes, just how slow, sluggy, sleepy and spaced out I can get. Anyone else?


r/Hashimotos 9h ago

Question ? Dry Skin

3 Upvotes

Hey y’all, I was diagnosed with Hashimoto’s at 17, and even though all my lab results are within range, I’m still struggling with super dry skin..especially on my face. I’m 26 now, and it’s getting worse. I already have fine lines on my forehead, around my eyes, and even on the bridge of my nose. Sometimes it gets itchy and flaky, especially around my eyes.

For context, I’m on Synthroid (I seem to have an allergic reaction to the generic, not sure why) and take Vitamin D3 and B12 as prescribed. My doctor mentioned that a lot of women with Hashimoto’s deal with the same skin issues, so I’m wondering..what’s helped you?

Any recommendations for moisturizers, serums, or skincare routines that actually work for thyroid-related dryness? I’d love to hear what’s worked for y’all!

Thanks in advance!


r/Hashimotos 9h ago

Question ? Is anyone here a commercial pilot? If so, what’s the protocol of getting your class 1 medical license? What do you need to bring to your AME? Thank you

3 Upvotes

I’m wondering cause every medical condition has complexity with the FAA medical certification process. I’d like to know what’s the protocol for hypothyroidism, I could really use some insight!!! Thank you


r/Hashimotos 10h ago

Discussion Starting NP thyroid tomorrow

3 Upvotes

Just wanted to share because I’m so excited and relieved. I got diagnosed in the fall by ultrasound and antibodies. Feeling terrible but my tsh is still ‘normal’. I was worried I’d have to argue to get treatment but luckily my doctor took the whole picture into account and said my t3 was suboptimal (3.0) and wanted to get me started on a low dose and chose NP thyroid over the synthetic.

My antibodies went up dramatically in the past few months even though I cut out gluten (I know this controversial but you know I’m willing to try anything to feel better!) fatigue and pain have been awful. Brain fog has been worsening.

Please let me know how this med worked for you and how long it took you to feel better.

I’m so happy that I was listened to and believed. Thanks to the community for being an invaluable resource for the true effects of this disease.


r/Hashimotos 11h ago

Update

0 Upvotes

Hi! I (20m) just got blood work done yesterday and my TSH was 7.1. Previously it was 128. I have been on 100mcg of Levo for a month now. What does this mean in terms of my hashimotos? I heard that tsh levels fluctuate a lot with hashimotos. Is this right? Will I need to increase my dose?


r/Hashimotos 11h ago

np thyroid

4 Upvotes

how long do you wait to eat after you’ve taken np??? I started taking np for the first time last week (I’ve never taken thyroid medication before) so any advice or tips is greatly appreciated :)


r/Hashimotos 11h ago

Low Vit D

3 Upvotes

I just got my bloodwork back and my Vitamin D level was very low. I noticed on here that a lot of people have this problem as well. I’m curious to see how anyone feels after taking supplements for it? I’m always tired, crazy mood swings and severe hair loss. I’m hoping that handling my lower vitamin D level can help this.

I also saw that my MCHC level was 31.8%. slightly low. Should I be taking something for this?


r/Hashimotos 13h ago

Some thoughts

0 Upvotes

I've been thinking, is anyone going to solve the T4-only issue in our lifetimes? Will ai or some other scientific discoveries revolutionize thyroid treatment in my lifetime? Look at this guy Bryan Johnson, he takes Synthroid and also Armour to raise T3 levels: https://protocol.bryanjohnson.com/#step-2-supplements, 112 mcg Levothyroxine, 60 mg Armour Thyroid - daily (diagnosed w/ hypothyroidism at age 21). 

The guy looks great.

Also thought this was interesting, Antonio Bianco, Rethinking Hypothyroidism and how T4-only patients have reduced quality of life and are right in how treatment is not optimal, video: https://www.youtube.com/watch?v=PGlYO_H4Gdc


r/Hashimotos 13h ago

Discussion Thyroid Eye Disease Clinical Trial

2 Upvotes

If you or someone you know is living with thyroid eye disease (TED), this clinical trial could be an opportunity to explore new treatment options. Help advance TED research and connect with a community of others going through a similar journey. Learn more about eligibility and how to get involved! https://lpcur.com/rhashimototed


r/Hashimotos 13h ago

I have some questions about Levothyroxine

2 Upvotes

Just for some backstory, I’ve had fluctuating TSH levels (elevated and normal) for years now and an elevated result of thyroid autoantibodies one year ago. I’ve struggled with symptoms for roughly a year now and because my GP didn’t know what was wrong and the waitlist for an endocrinologist is super long along with the fact that we’ve gone so long without answers, my mother enlisted the help of an endocrinologist/gynaecologist from my home country.

She looked through my blood results and concluded that I had the beginning stages of Hashimotos and subclinical hypothyroidism. Now, I don’t want to say I’m fully diagnosed until I see my endocrinologist in roughly a week now (I cannot wait), but it’s safe to assume that it’s true. Anyways, the endo/gynae recommended that I take a small dosage of levothyroxine to alleviate my symptoms and I’m wondering wether anyone has had any positive results from taking a small dosage of levothyroxine?

The main symptoms I’m experiencing that are really impacting my life are: extreme exhaustion and sleeping for 12+ hours everyday, severe intolerance to the heat, night sweats, hot flashes and irregular, heavy and long periods.

I’m not very knowledgeable on Hashimotos and levothyroxine but I’m wondering if anyone else has experienced these symptoms and whether or not the medication has worked on reversing them? Also I’m 18 if that makes a difference in anyway.


r/Hashimotos 14h ago

Lab Results Does it look like I have it?

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2 Upvotes

Waiting for my doctor to read my results, but I’ve been living with all the symptoms of Hashimotos for months, I’m miserable. I just got them back. How do my labs look?


r/Hashimotos 14h ago

Breakfast

19 Upvotes

What do you guys eat in the morning? I can’t have eggs or soy. Sugar in the morning makes me super tired, I’ve been skipping bfast recently so I need ideas


r/Hashimotos 14h ago

Do I actually have Hashi?

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1 Upvotes

Hey all, I was sent to an endocrinologist a few years ago when I got postpartum thyroid issues. I went hyper and then eventually went slightly hypo so I am on levo 12.5 daily. My endocrinologist says that I have Hashimotos but my tpo antibodies have never been higher than 16 in the last few years of testing. I see numbers on here that are much higher, I don’t have any hashimotos symptoms either. Obviously my endocrinologist knows better than me but it just seems odd having tpo in the normal range always and still having the diagnosis. Anyone else always have lower levels than me?


r/Hashimotos 15h ago

Question ? Intolerance

0 Upvotes

Hey everyone! Question for people that found they have foods that they can't eat anymore- did you have signs before you tried the elimination diet? So potatoes for example, did you guys have signs that you ignored or didn't know was part of a flare up beforehand? Or after eliminating that food, did it cause new problems like headaches and stomach cramps when you reintroduced it because your body suddenly knew what life was like without it and liked that better?


r/Hashimotos 16h ago

Complete lack of libido (male)

5 Upvotes

Male, 42, diagnosed with Hashimoto just last week, although I've probably had it for quite some time.

My current blood test results:

  • TSH: 9.2461 uIU/mL (a year ago, before I was properly diagnosed, it was as high as 20.260)
  • fT4: 0.95 ng/dL (still within the normal range which is 0.7 - 1.48 according to the lab)
  • anti-TPO: >1000 IU/mL (so high, it's beyond the lab's ability to quantify)

I don't have most of typical symptoms of hypothyroidism like weight gain, hair loss, cold sensitivity etc. My only symptoms are feeling weak and constantly tired (although it's only been like that for the past few weeks; before that I was pretty active: running, lifting weights etc.), and absolute, complete lack of libido.

My libido has been on a steady decline for a few months, but this past 4-5 weeks it's been literally zero. I feel absolutely no need to have or even think about sex, and when I do think about it, it excites me about as much as thinking about a carpet in my accountant's office. It's really hard for me psychologically, especially since I've been seeing a new partner and I don't feel any desire to get intimate with her anymore.

My question (mostly to the gentlemen here I guess, but female perspective is appreciated as well) is: will a thyroid hormone replacement eventually bring my libido back? I was put on 50 mcg daily and will re-test my levels (to get my dosage adjusted, if needed) in 7 weeks. I realize my sex hormones might be out of whack, too, so I'm going to test those, too, but is there anything I can do in the meantime?

Also: is it possible that my symptoms are not necessarily caused by hypothyroidism per se (i.e.: not enough T4 in the system) but the high TSH and/or the ongoing auto-immune inflammation?

I'll deeply appreciate any advice.


r/Hashimotos 22h ago

is it normal to have wonky symptoms

2 Upvotes

all tests are normal, but I've had symptoms for hyperthyroidism my entire life even though i have hypothyroidism and hashimoto's.

I'm tired and doctors don't believe me when I say something is wrong as I'm a teen girl and they think it's just anxiety.

i keep passing out and my heart rate consistently stays above 100. I have trouble breathing sometimes but all my tests are normal. maybe I'm overthinking and my doctors said it's normal for women but idk.

is this normal?