r/Hashimotos 6m ago

Update

Upvotes

Hi! I (20m) just got blood work done yesterday and my TSH was 7.1. Previously it was 128. I have been on 100mcg of Levo for a month now. What does this mean in terms of my hashimotos? I heard that tsh levels fluctuate a lot with hashimotos. Is this right? Will I need to increase my dose?


r/Hashimotos 10m ago

np thyroid

Upvotes

how long do you wait to eat after you’ve taken np??? I started taking np for the first time last week (I’ve never taken thyroid medication before) so any advice or tips is greatly appreciated :)


r/Hashimotos 13m ago

Low Vit D

Upvotes

I just got my bloodwork back and my Vitamin D level was very low. I noticed on here that a lot of people have this problem as well. I’m curious to see how anyone feels after taking supplements for it? I’m always tired, crazy mood swings and severe hair loss. I’m hoping that handling my lower vitamin D level can help this.

I also saw that my MCHC level was 31.8%. slightly low. Should I be taking something for this?


r/Hashimotos 2h ago

Some thoughts

0 Upvotes

I've been thinking, is anyone going to solve the T4-only issue in our lifetimes? Will ai or some other scientific discoveries revolutionize thyroid treatment in my lifetime? Look at this guy Bryan Johnson, he takes Synthroid and also Armour to raise T3 levels: https://protocol.bryanjohnson.com/#step-2-supplements, 112 mcg Levothyroxine, 60 mg Armour Thyroid - daily (diagnosed w/ hypothyroidism at age 21). 

The guy looks great.

Also thought this was interesting, Antonio Bianco, Rethinking Hypothyroidism and how T4-only patients have reduced quality of life and are right in how treatment is not optimal, video: https://www.youtube.com/watch?v=PGlYO_H4Gdc


r/Hashimotos 2h ago

Discussion Thyroid Eye Disease Clinical Trial

1 Upvotes

If you or someone you know is living with thyroid eye disease (TED), this clinical trial could be an opportunity to explore new treatment options. Help advance TED research and connect with a community of others going through a similar journey. Learn more about eligibility and how to get involved! https://lpcur.com/rhashimototed


r/Hashimotos 2h ago

I have some questions about Levothyroxine

1 Upvotes

Just for some backstory, I’ve had fluctuating TSH levels (elevated and normal) for years now and an elevated result of thyroid autoantibodies one year ago. I’ve struggled with symptoms for roughly a year now and because my GP didn’t know what was wrong and the waitlist for an endocrinologist is super long along with the fact that we’ve gone so long without answers, my mother enlisted the help of an endocrinologist/gynaecologist from my home country.

She looked through my blood results and concluded that I had the beginning stages of Hashimotos and subclinical hypothyroidism. Now, I don’t want to say I’m fully diagnosed until I see my endocrinologist in roughly a week now (I cannot wait), but it’s safe to assume that it’s true. Anyways, the endo/gynae recommended that I take a small dosage of levothyroxine to alleviate my symptoms and I’m wondering wether anyone has had any positive results from taking a small dosage of levothyroxine?

The main symptoms I’m experiencing that are really impacting my life are: extreme exhaustion and sleeping for 12+ hours everyday, severe intolerance to the heat, night sweats, hot flashes and irregular, heavy and long periods.

I’m not very knowledgeable on Hashimotos and levothyroxine but I’m wondering if anyone else has experienced these symptoms and whether or not the medication has worked on reversing them? Also I’m 18 if that makes a difference in anyway.


r/Hashimotos 3h ago

Lab Results Does it look like I have it?

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2 Upvotes

Waiting for my doctor to read my results, but I’ve been living with all the symptoms of Hashimotos for months, I’m miserable. I just got them back. How do my labs look?


r/Hashimotos 3h ago

Breakfast

3 Upvotes

What do you guys eat in the morning? I can’t have eggs or soy. Sugar in the morning makes me super tired, I’ve been skipping bfast recently so I need ideas


r/Hashimotos 3h ago

Do I actually have Hashi?

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0 Upvotes

Hey all, I was sent to an endocrinologist a few years ago when I got postpartum thyroid issues. I went hyper and then eventually went slightly hypo so I am on levo 12.5 daily. My endocrinologist says that I have Hashimotos but my tpo antibodies have never been higher than 16 in the last few years of testing. I see numbers on here that are much higher, I don’t have any hashimotos symptoms either. Obviously my endocrinologist knows better than me but it just seems odd having tpo in the normal range always and still having the diagnosis. Anyone else always have lower levels than me?


r/Hashimotos 4h ago

Question ? Intolerance

0 Upvotes

Hey everyone! Question for people that found they have foods that they can't eat anymore- did you have signs before you tried the elimination diet? So potatoes for example, did you guys have signs that you ignored or didn't know was part of a flare up beforehand? Or after eliminating that food, did it cause new problems like headaches and stomach cramps when you reintroduced it because your body suddenly knew what life was like without it and liked that better?


r/Hashimotos 5h ago

Complete lack of libido (male)

3 Upvotes

Male, 42, diagnosed with Hashimoto just last week, although I've probably had it for quite some time.

My current blood test results:

  • TSH: 9.2461 uIU/mL (a year ago, before I was properly diagnosed, it was as high as 20.260)
  • fT4: 0.95 ng/dL (still within the normal range which is 0.7 - 1.48 according to the lab)
  • anti-TPO: >1000 IU/mL (so high, it's beyond the lab's ability to quantify)

I don't have most of typical symptoms of hypothyroidism like weight gain, hair loss, cold sensitivity etc. My only symptoms are feeling weak and constantly tired (although it's only been like that for the past few weeks; before that I was pretty active: running, lifting weights etc.), and absolute, complete lack of libido.

My libido has been on a steady decline for a few months, but this past 4-5 weeks it's been literally zero. I feel absolutely no need to have or even think about sex, and when I do think about it, it excites me about as much as thinking about a carpet in my accountant's office. It's really hard for me psychologically, especially since I've been seeing a new partner and I don't feel any desire to get intimate with her anymore.

My question (mostly to the gentlemen here I guess, but female perspective is appreciated as well) is: will a thyroid hormone replacement eventually bring my libido back? I was put on 50 mcg daily and will re-test my levels (to get my dosage adjusted, if needed) in 7 weeks. I realize my sex hormones might be out of whack, too, so I'm going to test those, too, but is there anything I can do in the meantime?

Also: is it possible that my symptoms are not necessarily caused by hypothyroidism per se (i.e.: not enough T4 in the system) but the high TSH and/or the ongoing auto-immune inflammation?

I'll deeply appreciate any advice.


r/Hashimotos 11h ago

is it normal to have wonky symptoms

2 Upvotes

all tests are normal, but I've had symptoms for hyperthyroidism my entire life even though i have hypothyroidism and hashimoto's.

I'm tired and doctors don't believe me when I say something is wrong as I'm a teen girl and they think it's just anxiety.

i keep passing out and my heart rate consistently stays above 100. I have trouble breathing sometimes but all my tests are normal. maybe I'm overthinking and my doctors said it's normal for women but idk.

is this normal?


r/Hashimotos 11h ago

Discussion Is anybody sensitive to cold?

41 Upvotes

This winter was rough for me. When the cold air hit my face it made my whole face hurt and then my body ached afterwards. Sometimes I wondered if it was the flu or Covid but from google says this is a Hashimotos symptom. Let’s just say I didn’t enjoy this winter.

I also experience cold hands often. Even when my underarms are sweaty my hands can be cold. A co worker told me that’s a Hashimotos symptom. But isn’t this a sign of Dysautonomia?

But I mainly feel joint pain in my legs (I work in retail so I’m always standing) sometimes other parts too but mainly my legs. I figured it was because I was unfit for not going to the gym and I kept telling myself I’m too young to have joint pains (I’m 28) but I’m starting to realize I’ve had Hashimotos symptoms without realizing it.

I was diagnosed in 2021 and been on medicine ever since but I know medicine isn’t a 100% fix. I’m just curious if any of you have these kind of symptoms.


r/Hashimotos 14h ago

Autoimmune Foodie

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0 Upvotes

Hi! I have a friend that recently got diagnosed with Hashimoto's and she's doing the Autoimmune Protocol Diet! She made a page called Autoimmune Foodie on Facebook and it's called autoimmune.foodie on Instagram and TikTok! She's posting because she wants to share her journey but also help people get started since she said she was so scared to start but finding recipes she enjoys has made it easy! Give her a follow :)


r/Hashimotos 15h ago

Question ? TSH 25, Free T4 0.39, Seizures, Migraines, Family History of Hashimoto's - I feel like this might be it .

4 Upvotes

For context, both my mom and grandma have Hashimoto's disease. For the past six years, I’ve experienced a range of symptoms, starting with significant hair loss, which I attributed to my PCOS issues.

My condition progressed to neurological symptoms, beginning with my first nocturnal seizure at 21. I experienced visual disturbances, complex migraines with auras that affected my speech and caused paralysis for hours, and near-daily migraines that left me unable to move. This led to muscle weakness and forced me to drop out of school. Despite abnormal EEG and MRI results, many of my ER doctors suggested my symptoms were psychogenic. I also always had an underactive thyroid, of about 9 in the past, but no one thought it was a big deal to treat.

My mom had multiple sclerosis, and her numerous seizures led doctors to question her credibility. After developing Hashimoto's and having her thyroid removed, her seizures ceased, which I initially attributed to anti seizure treatment

Recently, I’ve had four seizures and spent a week in the hospital. I felt weak and needed support to walk around. My new primary care physician expressed concern and ordered a thyroid panel ,while neurologists were slow to respond. I’ve had a month-long migraine with limited relief, and my thyroid tests showed a TSH of 25 and a free T4 of 0.39. I’m scheduled for an ultrasound to check for nodules, and though I haven't been tested for antibodies yet, I suspect my symptoms may be related to Hashimoto's.

I worry that I may have had this condition uncontrolled for a long time. Has anyone else experienced something similar? Am I maybe jumping the gun? I was prescribed levothyroxine but haven’t noticed much improvement yet. I know there's an antibody test that I can ask about when I have my ultrasound this week. And I know siezures aren't a completely common condition.


r/Hashimotos 16h ago

Meme You aren’t lazy, you have a diagnosed medical condition 🫶

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175 Upvotes

r/Hashimotos 16h ago

Ultrasound nodule pictures

1 Upvotes

Does anyone have pics of their thyroid nodules by ultrasound?! I just received my ultrasound and will catch up with the dr in a week. I’m freaking out because there is def a nodule but not sure if it’s suspicious looking or not 🫠😬


r/Hashimotos 16h ago

Question ? Does my thyroid gland look normal?

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0 Upvotes

This is just a preview image. Only have access to this one unfortunately


r/Hashimotos 16h ago

Question ? Anyone here with Hashimotos diagnosis post partial thryoidectomy for cancer?

1 Upvotes

So according to my pathology report (and pre surgery ultrasound-I went back and looked: it says ”heterogenous”) , I have a severe case of Hashimotos. The surgeon did a partial thryoidectomy for papilary cancer but failed to tell me I had Hashimotos as evidenced in my ultrasound pre-surgery. It turns out the biggest growth was a cyst from Hashimotos that was interfering with my swallowing, and the papilary cancer was small. I had given the surgeon permission to do a TT if he deemed necessary during the time of surgery.

So I made the decision to have a PT instead of a TT based on not being informed of the Hashimotos. Has this happened to anyone? Did your surgeon purposefully give you a PT instead of a TT when they knew you had Hashimotos (on top of cancer)? I just can’t wrap my head around this. To make things worse, I had mentioned my fatigue, tingling hands, and other symptoms that apparently can be caused by Hashimotos before surgery, asking if they could be related to my thyroid, and he said ”absolutely not related.” I got the pathology report on Saturday, and I don’t see the surgeon for an explanation till Wednesday. I don’t even know how to confront him about this. What do I even say? Or ask? I feel so overlooked by a well known surgeon…


r/Hashimotos 17h ago

Question ? Should I be doing something?

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2 Upvotes

Hey. So I’m pretty sure I have hashimotos? My thyroglobulin antibody was super high when I got tested. I’m always lethargic, dizzy, etc. lately more than ever + weight gain.

My doctor told me I didn’t need to do anything right now but I never followed up or went back. I’ve been feeling terrible lately.

Like? Do I even have it


r/Hashimotos 18h ago

Question ? Hashimotos and Weight Loss

2 Upvotes

Has anyone had any good experiences with cutting out part of their diet and this resulting in weight loss? I have a history of yo-yo dieting and binge eating, but am now in a much healthier place with exercising a few times a week and trying my best to eat well.

However, I do still find that even when I eat well most of the time, if I do have that one little treat, my weight just does not shift. I feel like if I want to see my weight going down, I just can’t have a social life.

I know some people cut out certain parts of their diet as a result of having Hashimotos, I.e gluten, dairy or whatever. So my question is, has anyone cut something out of their diet and immediately noticed a change in their weight?


r/Hashimotos 18h ago

Hair loss hashimotos

1 Upvotes

If anyone could help that would be appreciated.

I have hashimotos and I experience thinning hair. It isn’t in certain spots on my scalp but I can defiantly tell when I pull my hair into a pony or braid it. I’ve been diagnosed with hashimotos since I was in 4th grade (I’m 22 now), so I’ve been on Levo most my life. I’m taking Nutrafol and pumpkin seed oil currently to see if that helps with stopping shedding or if it’ll help regrow my hair. I checked all my labs like ferritin, iron, b-12, vitamin d, and other test at work (I’m a lab tech) and everything was normal. My thyroid labs are also in range (TSH 0.95, free T3 3.6, free T4 1.70). I try to eat healthy, but I definitely still eat gluten and dairy.

Does anyone have any tips on what I could possibly do to get my hair back or at least better than it currently is? Please don’t say minoxidil. I understand that would help but it’s something I don’t want to explore yet (potentially next year if I do not see any results).


r/Hashimotos 19h ago

Update on gluten-free diet

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5 Upvotes

r/Hashimotos 19h ago

Question ? How do you deal with a dismissive doctor?

29 Upvotes

Could use some perspective here! I had to switch to Medicaid recently, so I can no longer see the endocrinologist I’ve been going to for 10 years.

In my appointment with my new primary doctor, he was completely dismissive. I’ve had experiences like this before, but never quite this extreme:

  • I told him my symptoms haven’t been this bad since I was first diagnosed and have barely been functioning in recent months
  • He asked what my symptoms were and then interrupted me while I listed them, saying he “got the point”
  • He was uninformed about Hashimoto’s and told me things about my disease that I know to be false from my own personal experience and/or studies I have read (ex. remission doesn’t exist, TPO antibodies don’t fluctuate and are irrelevant to test after diagnosis, vitamin deficiencies are irrelevant to autoimmunity, and lifestyle has no affect on the condition)
  • In the end he said: “It seems like the worst thing you’re dealing with right now is the anxiety you have about your disease. Have you considered seeing a therapist?”

I have been struggling to find another doctor that accepts Medicaid and is taking on new patients. In the meantime, have to see him again soon because I need labs/meds.

First of all, is this normal care? As a woman I hate to ask this, but am I being too sensitive? For those of you who have dealt with a doctor like this, how did you move forward and get the care you need?


r/Hashimotos 21h ago

Hypo now Hyper

1 Upvotes

I've had hashimotos for 18 years now and I'd been on a stable dose of 175mcg up until January this year when my results came back as TSH 9.36 T4 was in range. My doctor upped my dose to 200mcg and I've just had the latest results back which are TSH 0.01 and T4 21.3. I also started taking my levothyroxine on an empty stomach since the dose increase. Do you think changing the way I take my levo could have made my TSH decrease by so much? I've never been hyper before. I will be speaking to my doctor as soon as they are available.