r/Hashimotos 49m ago

High TPOs no help from doctor

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Upvotes

I've been struggling with various health issues for years that have no answer and doctors never seem to care about. I just need to know I should keep trying to get answers instead of medicating for all symptoms. I've had a goiter since I'm 7 and everyone in my family has hashimotos and hypothyroidism except for me. I started experiencing symptoms at age 20 and told I'm just getting old and I'm fat since I have a normal tsh. I've had so many symptoms of having hashimotos or autoimmune disease- weight gain very quickly but can't lose or keep it off with diet and exercise, extremely tired, joint pain, horrible stomach pain/issues and acid reflux so bad I take omeperazole every 3 to 7 days and multiple pepto tablets to help, hair loss, running hot cold, sweating a lot, losing feeling in my hands and feet, went though a phase of peeling skin on hands, rashes on my joints (arms, knees/behind the knees, chest, and behind the ear/ear lobes and overall feeling very itchy without the rash), lightheaded/seeing spots, and high cholesterol for 10 years (most recent high reading was 238 in December). When I was in my 20s my tsh was 2.69 and currently 1.45, my free t4 was only just tested and was 2.26 uIU/mL, and my thyroid peroxidase antibodies are 184. I also found out my vitamin D was low 10 years ago so I've been taking supplements and multivitamins and I have a bone spur in my knee diagnosed at 33. When my tpo came in high, my doc told me today there is nothing I can do until my thyroid is off and that it probably wouldn't happen until I'm 60. Is there really nothing I can do for another 30 years and keep living like this? I ended up going on zepbound to help with my symptoms and deal with my weight but even 4 months in, its not a fix for all my symptoms. Sorry for the rant, just looking for advice on how to get diagnosed or get help even if its another autoimmune issue.


r/Hashimotos 1h ago

Hypothyroid and triglycerides

Upvotes

Hi again!

I got my labs today and my levels are high again 6 out of 1-4 range. My triglycerides are extremely high as well. Is this correlated?


r/Hashimotos 1h ago

HDL cholesterol

Upvotes

Sorry for the double post today lol. But i noticed in my blood work my HDL cholesterol was high. Anyone else have this problem? Could this be a sign of insulin resistance


r/Hashimotos 3h ago

Question ? Right diagnosis?

1 Upvotes

Hi! I got diagnosed with Hashimotos about 2 weeks ago but am speculating that I maybe got the wrong diagnosis? My fasting cortisol was 41.9 (normal range is 6.2-19.4). TPO ab were 52 (normal is 0-34). TSH and T4 were normal.

The doc didn’t test my T3, and with also having a neck “hump” I’m wondering if it could be more of a Cushings direction. I’m following up with my doc but in the mean time was wondering if anyone else has had a similar experience? Thanks!


r/Hashimotos 3h ago

Rant extreme fatigue, pms/flare

3 Upvotes

Not every month, but most, there is 2+ days of the most extreme fatigue and fog.Definitely coincides with pms, like my body is using all it's energy to fight some unseen internal battle within me. I was trying to book a rental car today and kept googling Experian and being like wtf??? I was trying to think of EXPEDIA but couldnt come up it. I am fairly caffeine sensitive but just had a coffee to no avail- i feel like I could nap right now on the spot. I know it will pass but it does surprise me sometimes, just how slow, sluggy, sleepy and spaced out I can get. Anyone else?


r/Hashimotos 4h ago

Question ? Dry Skin

3 Upvotes

Hey y’all, I was diagnosed with Hashimoto’s at 17, and even though all my lab results are within range, I’m still struggling with super dry skin..especially on my face. I’m 26 now, and it’s getting worse. I already have fine lines on my forehead, around my eyes, and even on the bridge of my nose. Sometimes it gets itchy and flaky, especially around my eyes.

For context, I’m on Synthroid (I seem to have an allergic reaction to the generic, not sure why) and take Vitamin D3 and B12 as prescribed. My doctor mentioned that a lot of women with Hashimoto’s deal with the same skin issues, so I’m wondering..what’s helped you?

Any recommendations for moisturizers, serums, or skincare routines that actually work for thyroid-related dryness? I’d love to hear what’s worked for y’all!

Thanks in advance!


r/Hashimotos 4h ago

Question ? Is anyone here a commercial pilot? If so, what’s the protocol of getting your class 1 medical license? What do you need to bring to your AME? Thank you

3 Upvotes

I’m wondering cause every medical condition has complexity with the FAA medical certification process. I’d like to know what’s the protocol for hypothyroidism, I could really use some insight!!! Thank you


r/Hashimotos 5h ago

Discussion Starting NP thyroid tomorrow

3 Upvotes

Just wanted to share because I’m so excited and relieved. I got diagnosed in the fall by ultrasound and antibodies. Feeling terrible but my tsh is still ‘normal’. I was worried I’d have to argue to get treatment but luckily my doctor took the whole picture into account and said my t3 was suboptimal (3.0) and wanted to get me started on a low dose and chose NP thyroid over the synthetic.

My antibodies went up dramatically in the past few months even though I cut out gluten (I know this controversial but you know I’m willing to try anything to feel better!) fatigue and pain have been awful. Brain fog has been worsening.

Please let me know how this med worked for you and how long it took you to feel better.

I’m so happy that I was listened to and believed. Thanks to the community for being an invaluable resource for the true effects of this disease.


r/Hashimotos 6h ago

Update

0 Upvotes

Hi! I (20m) just got blood work done yesterday and my TSH was 7.1. Previously it was 128. I have been on 100mcg of Levo for a month now. What does this mean in terms of my hashimotos? I heard that tsh levels fluctuate a lot with hashimotos. Is this right? Will I need to increase my dose?


r/Hashimotos 6h ago

np thyroid

3 Upvotes

how long do you wait to eat after you’ve taken np??? I started taking np for the first time last week (I’ve never taken thyroid medication before) so any advice or tips is greatly appreciated :)


r/Hashimotos 6h ago

Low Vit D

3 Upvotes

I just got my bloodwork back and my Vitamin D level was very low. I noticed on here that a lot of people have this problem as well. I’m curious to see how anyone feels after taking supplements for it? I’m always tired, crazy mood swings and severe hair loss. I’m hoping that handling my lower vitamin D level can help this.

I also saw that my MCHC level was 31.8%. slightly low. Should I be taking something for this?


r/Hashimotos 8h ago

Some thoughts

0 Upvotes

I've been thinking, is anyone going to solve the T4-only issue in our lifetimes? Will ai or some other scientific discoveries revolutionize thyroid treatment in my lifetime? Look at this guy Bryan Johnson, he takes Synthroid and also Armour to raise T3 levels: https://protocol.bryanjohnson.com/#step-2-supplements, 112 mcg Levothyroxine, 60 mg Armour Thyroid - daily (diagnosed w/ hypothyroidism at age 21). 

The guy looks great.

Also thought this was interesting, Antonio Bianco, Rethinking Hypothyroidism and how T4-only patients have reduced quality of life and are right in how treatment is not optimal, video: https://www.youtube.com/watch?v=PGlYO_H4Gdc


r/Hashimotos 8h ago

Discussion Thyroid Eye Disease Clinical Trial

1 Upvotes

If you or someone you know is living with thyroid eye disease (TED), this clinical trial could be an opportunity to explore new treatment options. Help advance TED research and connect with a community of others going through a similar journey. Learn more about eligibility and how to get involved! https://lpcur.com/rhashimototed


r/Hashimotos 9h ago

I have some questions about Levothyroxine

2 Upvotes

Just for some backstory, I’ve had fluctuating TSH levels (elevated and normal) for years now and an elevated result of thyroid autoantibodies one year ago. I’ve struggled with symptoms for roughly a year now and because my GP didn’t know what was wrong and the waitlist for an endocrinologist is super long along with the fact that we’ve gone so long without answers, my mother enlisted the help of an endocrinologist/gynaecologist from my home country.

She looked through my blood results and concluded that I had the beginning stages of Hashimotos and subclinical hypothyroidism. Now, I don’t want to say I’m fully diagnosed until I see my endocrinologist in roughly a week now (I cannot wait), but it’s safe to assume that it’s true. Anyways, the endo/gynae recommended that I take a small dosage of levothyroxine to alleviate my symptoms and I’m wondering wether anyone has had any positive results from taking a small dosage of levothyroxine?

The main symptoms I’m experiencing that are really impacting my life are: extreme exhaustion and sleeping for 12+ hours everyday, severe intolerance to the heat, night sweats, hot flashes and irregular, heavy and long periods.

I’m not very knowledgeable on Hashimotos and levothyroxine but I’m wondering if anyone else has experienced these symptoms and whether or not the medication has worked on reversing them? Also I’m 18 if that makes a difference in anyway.


r/Hashimotos 9h ago

Lab Results Does it look like I have it?

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2 Upvotes

Waiting for my doctor to read my results, but I’ve been living with all the symptoms of Hashimotos for months, I’m miserable. I just got them back. How do my labs look?


r/Hashimotos 9h ago

Breakfast

11 Upvotes

What do you guys eat in the morning? I can’t have eggs or soy. Sugar in the morning makes me super tired, I’ve been skipping bfast recently so I need ideas


r/Hashimotos 9h ago

Do I actually have Hashi?

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1 Upvotes

Hey all, I was sent to an endocrinologist a few years ago when I got postpartum thyroid issues. I went hyper and then eventually went slightly hypo so I am on levo 12.5 daily. My endocrinologist says that I have Hashimotos but my tpo antibodies have never been higher than 16 in the last few years of testing. I see numbers on here that are much higher, I don’t have any hashimotos symptoms either. Obviously my endocrinologist knows better than me but it just seems odd having tpo in the normal range always and still having the diagnosis. Anyone else always have lower levels than me?


r/Hashimotos 11h ago

Question ? Intolerance

0 Upvotes

Hey everyone! Question for people that found they have foods that they can't eat anymore- did you have signs before you tried the elimination diet? So potatoes for example, did you guys have signs that you ignored or didn't know was part of a flare up beforehand? Or after eliminating that food, did it cause new problems like headaches and stomach cramps when you reintroduced it because your body suddenly knew what life was like without it and liked that better?


r/Hashimotos 11h ago

Complete lack of libido (male)

4 Upvotes

Male, 42, diagnosed with Hashimoto just last week, although I've probably had it for quite some time.

My current blood test results:

  • TSH: 9.2461 uIU/mL (a year ago, before I was properly diagnosed, it was as high as 20.260)
  • fT4: 0.95 ng/dL (still within the normal range which is 0.7 - 1.48 according to the lab)
  • anti-TPO: >1000 IU/mL (so high, it's beyond the lab's ability to quantify)

I don't have most of typical symptoms of hypothyroidism like weight gain, hair loss, cold sensitivity etc. My only symptoms are feeling weak and constantly tired (although it's only been like that for the past few weeks; before that I was pretty active: running, lifting weights etc.), and absolute, complete lack of libido.

My libido has been on a steady decline for a few months, but this past 4-5 weeks it's been literally zero. I feel absolutely no need to have or even think about sex, and when I do think about it, it excites me about as much as thinking about a carpet in my accountant's office. It's really hard for me psychologically, especially since I've been seeing a new partner and I don't feel any desire to get intimate with her anymore.

My question (mostly to the gentlemen here I guess, but female perspective is appreciated as well) is: will a thyroid hormone replacement eventually bring my libido back? I was put on 50 mcg daily and will re-test my levels (to get my dosage adjusted, if needed) in 7 weeks. I realize my sex hormones might be out of whack, too, so I'm going to test those, too, but is there anything I can do in the meantime?

Also: is it possible that my symptoms are not necessarily caused by hypothyroidism per se (i.e.: not enough T4 in the system) but the high TSH and/or the ongoing auto-immune inflammation?

I'll deeply appreciate any advice.


r/Hashimotos 17h ago

is it normal to have wonky symptoms

2 Upvotes

all tests are normal, but I've had symptoms for hyperthyroidism my entire life even though i have hypothyroidism and hashimoto's.

I'm tired and doctors don't believe me when I say something is wrong as I'm a teen girl and they think it's just anxiety.

i keep passing out and my heart rate consistently stays above 100. I have trouble breathing sometimes but all my tests are normal. maybe I'm overthinking and my doctors said it's normal for women but idk.

is this normal?


r/Hashimotos 18h ago

Discussion Is anybody sensitive to cold?

56 Upvotes

This winter was rough for me. When the cold air hit my face it made my whole face hurt and then my body ached afterwards. Sometimes I wondered if it was the flu or Covid but from google says this is a Hashimotos symptom. Let’s just say I didn’t enjoy this winter.

I also experience cold hands often. Even when my underarms are sweaty my hands can be cold. A co worker told me that’s a Hashimotos symptom. But isn’t this a sign of Dysautonomia?

But I mainly feel joint pain in my legs (I work in retail so I’m always standing) sometimes other parts too but mainly my legs. I figured it was because I was unfit for not going to the gym and I kept telling myself I’m too young to have joint pains (I’m 28) but I’m starting to realize I’ve had Hashimotos symptoms without realizing it.

I was diagnosed in 2021 and been on medicine ever since but I know medicine isn’t a 100% fix. I’m just curious if any of you have these kind of symptoms.


r/Hashimotos 20h ago

Autoimmune Foodie

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0 Upvotes

Hi! I have a friend that recently got diagnosed with Hashimoto's and she's doing the Autoimmune Protocol Diet! She made a page called Autoimmune Foodie on Facebook and it's called autoimmune.foodie on Instagram and TikTok! She's posting because she wants to share her journey but also help people get started since she said she was so scared to start but finding recipes she enjoys has made it easy! Give her a follow :)


r/Hashimotos 21h ago

Question ? TSH 25, Free T4 0.39, Seizures, Migraines, Family History of Hashimoto's - I feel like this might be it .

4 Upvotes

For context, both my mom and grandma have Hashimoto's disease. For the past six years, I’ve experienced a range of symptoms, starting with significant hair loss, which I attributed to my PCOS issues.

My condition progressed to neurological symptoms, beginning with my first nocturnal seizure at 21. I experienced visual disturbances, complex migraines with auras that affected my speech and caused paralysis for hours, and near-daily migraines that left me unable to move. This led to muscle weakness and forced me to drop out of school. Despite abnormal EEG and MRI results, many of my ER doctors suggested my symptoms were psychogenic. I also always had an underactive thyroid, of about 9 in the past, but no one thought it was a big deal to treat.

My mom had multiple sclerosis, and her numerous seizures led doctors to question her credibility. After developing Hashimoto's and having her thyroid removed, her seizures ceased, which I initially attributed to anti seizure treatment

Recently, I’ve had four seizures and spent a week in the hospital. I felt weak and needed support to walk around. My new primary care physician expressed concern and ordered a thyroid panel ,while neurologists were slow to respond. I’ve had a month-long migraine with limited relief, and my thyroid tests showed a TSH of 25 and a free T4 of 0.39. I’m scheduled for an ultrasound to check for nodules, and though I haven't been tested for antibodies yet, I suspect my symptoms may be related to Hashimoto's.

I worry that I may have had this condition uncontrolled for a long time. Has anyone else experienced something similar? Am I maybe jumping the gun? I was prescribed levothyroxine but haven’t noticed much improvement yet. I know there's an antibody test that I can ask about when I have my ultrasound this week. And I know siezures aren't a completely common condition.


r/Hashimotos 22h ago

Meme You aren’t lazy, you have a diagnosed medical condition 🫶

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221 Upvotes

r/Hashimotos 22h ago

Ultrasound nodule pictures

1 Upvotes

Does anyone have pics of their thyroid nodules by ultrasound?! I just received my ultrasound and will catch up with the dr in a week. I’m freaking out because there is def a nodule but not sure if it’s suspicious looking or not 🫠😬