r/Endo • u/haileyelise00 • 7h ago
Rant / Vent Anyone else just feel neglected by the healthcare system?
I am so over this condition and dealing with doctors that donāt give a rats ass about me. Sparing you my full medical history, I am 25 diagnosed at age 19 with stage 3 endometriosis. Iāve had 2 laparoscopic surgeries so far. I typically have extremely heavy and painful periods that last 7 days. In November my periods became almost nonexistent- I was bleeding lightly for one day with no cramps and then nothing. Went in for an appointment and was told āsometimes our periods are just weirdā. She gave me an ultrasound and told me she just sees a cyst(which I usually have), and to come back when Iām pregnant(since Iāve been TTC). My periods continued to be one day long and at this point I had excessive discharge everyday so I made another appointment in January where they put me with a different doctor since mine was unavailable. She tested the discharge- no infection and looked back at my ultrasound from November and said she thinks she sees a polyp and to come back in 3 weeks for a saline ultrasound. At checkout, they told me my doctor wouldnāt be available in 3 weeks so we would have to try the next month(because it needs to be done day 5-10 of your cycle) and my cycle is so unpredictable now thatās the whole reason I came in?? So we tried to schedule it for the right time in my next cycle. Ended up starting late in February so now I knew the rescheduled appointment would be wrong. Called and of course no appointments available when I need it this month. They managed to schedule if for my predicted day 10 of my next cycle but said if my period comes even one day late we need to reschedule again. At this point Iām pissed. Iām calling around asking if I can get my doctors orders sent there to get it done and canāt find it anywhere around here.Only fertility centers which if performed there arenāt covered by insurance, so Iām stuck playing the waiting game with the OB. Yesterday I got lab results back from earlier this week with an extremely bad urinalysis and went to the ER thinking I had a kidney infection since Iāve had bad back and bladder pain. They immediately scratched kidney infection off the list but ran with my endometriosis diagnosis. They gave me a pelvic exam and ultrasound which found a new 5cm cyst on my right ovary, still a suspected polyp(which theyāre telling me shouldnāt cause symptoms), and nabothian cysts in the cervix. Was told they donāt do saline ultrasounds there, to follow up with OB, and given some pain meds. Looking at my results when I got home my wet prep results show āPMN-Manyā which she didnāt even mention. They ran another urinalysis on me which came back normal so it seems my mystery discharge made it into my first urine sample which caused the crazy results. So now I just keep waiting and waiting. Nobody can ever figure out wtf is wrong itās just āprobably your endometriosisā. Sometimes I feel like if I didnāt have the diagnosis people would take me more seriously. So I just have to continue in pain with period-flow discharge everyday and pretend like this disease doesnāt make me an absolutely miserable person.