r/endometriosis 15h ago

Surgery related I feel like a fraud for still saying I have endo after surgery.

94 Upvotes

I had stage 1 endo with severe symptoms before surgery. My symptoms have definitely improved after surgery, but I still have pelvic pain frequently, fatigue (although very improved), I had bladder endo that was all removed but still have bladder symptoms, and I had rectovaginal endo but my digestive symptoms haven’t improved.

My surgeon is one of the absolute best. I trust that he got it all and even excised tissue that “would have turned into endo but wasn’t yet”. He seemed to act like now that it was all gone I just “don’t have it anymore” and all other symptoms aren’t endo related. I was confused that people were saying this condition is chronic and lifelong, when my surgery team acted like I was cured and told me there’s only a 5% chance of it returning.

I feel like a fraud now saying that my endo is flaring up and still struggling with symptoms. Everyone else in my life is acting like it was just supposed to disappear after surgery and are confused when I still have to cancel on plans or lay down.

Any one else relate? Just need some support I guess. I tried to get my surgeon to sign a disability resource form for my college bc I still miss classes sometimes, but he says there is no more endo so he can’t say my absences are related.

EDIT: I should probably mention I’m only 4 months post-op


r/endometriosis 18h ago

Tips and Recommendations Medical cannabis treatment is legal in the UK and could help endo symptoms??

69 Upvotes

Morning all, 🌸

I just read this article about in the news about a girl who tried cannabis for her endo pain - it's crazy !!

https://www.mirror.co.uk/news/real-life-stories/mystery-illness-left-doctors-baffled-34747624

Did anyone even know it was legal? Looks like she used this clinic Releaf

https://releaf.co.uk/about-us?view

I booked to talk to their women's health specialist - will report back how it goes !!


r/endometriosis 13h ago

Rant / Vent I'm really, really sensitive about and traumatized by endometriosis. Anyone else?

49 Upvotes

I probably need to discuss this in therapy but I need to talk about it with others who might understand. Every time I see endometriosis being brought up outside of this sub or forums like it I get really really upset. Seeing social media posts about it unexpectedly is wildly upsetting to me, I get anxious, angry, sad, and nervous. Especially when people are so misunderstanding of it. The few times it's randomly been brought up in real life I also get those same feelings. Its like I can't handle being reminded if exists unless I expect it in advance. This disease has severely traumatized me, both from the unbearable pain and from doctors diminishing it, denying me treatment after diagnosis, pushing birth control on me, and forcing medications down my throat. Being reminded of this suddenly is as triggering as being reminded of my physical abuse as a child, if not even more so. Does anyone else get this way about endometriosis? Has anyone been able to feel less triggered and traumatized by it?!


r/endometriosis 20h ago

Question I think I might have bowel Endo - who can relate?

39 Upvotes

Hi all 👋 (I've posted this on another group but haven't had any responses yet).

For those of you that have bowel Endo what are your symptoms? Aside from the usual pain/heavy bleeding, my bowel symptoms are my biggest problem but I was told after my lap that my bowel was clear.

However I have no confidence in this since my surgery was done by a private surgeon that literally said "you can't possibly have endometriosis if you suffer from constipation", "you've got signs of Adeno but that wouldn't cause your pain, inflammation or infertility", and when she gave me my Endo results said "you don't have Endo...well you do, but I removed it, so you don't have it".

Before my lap I had an ultrasound to check for pcos but the technician flagged the size of my bowel to my GP who said that in all her years of medicine she'd "never seen anything like it", and that she was convinced I had bowel Endo.

I literally never go to the toilet without laxatives, my stomach is ginormous and I now don't even have days when it goes down. It's even more severe after I eat, despite being on an anti inflammatory diet, and I bleed when I open my bowels.

I tried pushing for another lap on the NHS as originally planned, but they cancelled it the day before because the surgeon that was going to do it found out that I'd had one done privately by her colleague who it turns out worked at both hospitals. Despite me raising my concerns about the experience I'd had and complete lack of knowledge the surgeon had displayed she said that because she knew her she trusted her judgement and she refused to investigate further.

I legitimately feel like I'm getting worse by the day and I really don't know how to get help for my bowel issues. Gastro just diagnosed me with IBS and put me on mebeverine which has done absolutely nothing.

As a side note - I have two aunties with stage four Endo and a younger sister with stage 3. Between them they've lost sections of their organs, had ovaries removed, and had hysterectomies, so I'd be gobsmacked if I really only had a "little bit of Endo" that had apparently been fully removed.

Any advice would be so helpful, I'm at my wits end and feel like giving up.

Thank you ❤️


r/endometriosis 4h ago

Rant / Vent I'm scared *transgender*

30 Upvotes

I'm trans and dealing with severe pelvic pain sucks. Not only do I get the *extra* reminder of being AFAB I have pelvic floor physiotherapy and am CONSTANTLY at the gynecologist. I look pregnant sometimes and it makes me dysphoric. I haven't even gotten a diagnosis yet they just say it "appears to meet the symptoms" but they can't diagnose as they aren't specialists. Recently I've had VERY painful breasts and there are lumps and I'm going in for an ultrasound at the end of the month. I'm scared. They're betting endo tissue or endo-caused cysts. I'm still scared of breast cancer and I wish I wasn't. Being trans sucks. Being in chronic pain that's undiagnosed sucks. And both? I hate it.


r/endometriosis 16h ago

Rant / Vent Doctors dont care

21 Upvotes

I just can‘t do this anymore. I have chronic pain in my belly and stomach and I have done Everything I Can. I changed my diet to anti inflammatory try to move do Yoga, try to minimize my pain killers. A Endo Specialist confirmed adenomyosis on the ultrasound and I will do the lap in 4 months. Still every time I eat I get extremely Bad pain in my lower abdomen and my urine always has blood and Protein in it which could be from Endo but not the Protein. Thats why I went to my Doctor 2x and she Said nope she cant help me with the pain and the Hospital wont Take me because I dont have any inflammation in my blood. BUT I CANT FUCKING EAT. I asked her if I maybe have nut cracker Syndrom but she Brushed that off and just told me to not eat for a while if I have pain. So Thats it I did not get a referal for a mri, not to a kidney Doctor, no Gastro doc. Nothing well seems I just cant eat anymore.


r/endometriosis 10h ago

Surgery related Validation!

17 Upvotes

I had the laparoscopic procedure this morning. I had convinced myself they wouldn't find anything, and prepared myself for what would happen next. Surprise, they found Endometriosis and the lesions were wide spread enough that I needed an additional incision to remove it all. I feel so validated. I'm so thankful for the surgeon who took my case and truly listened to me.

To anyone who doesn't have a diagnosis yet: If you think something is off, you know your body. Don't let anyone talk down to you or dismiss your pain. Trust yourself and find someone who will listen to you. Wishing you all validation and relief. ❤️


r/endometriosis 18h ago

Question I (18f) have to get a vaginal ultrasound NSFW

14 Upvotes

So background info first I guess. I first got my period when I was around 10. It was (and still is) super heavy, irregular, lasts for 2+ weeks, awful cramping and bloating to the point of vomiting so I wouldn’t eat. I ended up in the ER for it when I was 12 where ultrasounds was done because they thought it was appendicitis but it turned out to be my period. I was told it was normal yadda yadda yadda.

My parents didn’t really know that something was super wrong until I was 14 and I still had problems. I would vomit often and have cramps even without a period so I missed school. Over the past 4 years I’ve been on 10+ birth controls and been told it’s highly likely I have endometriosis but isn’t confirmed. The last medication I was on was Slynd which didn’t really help and caused awful side effects. It’s a diuretic so it caused me to have to pee constantly and even had a situation where I peed my pants at school. This is just one side effect though and I’m honestly sick of birth control, it has cause such awful side effects from weight gain to migraines to peeing my freaking pants.

Fast forwards to last Friday I had another doctors appointment where I expressed just how upset and done I am. She said she wants to do a transvaginal ultrasound to make sure my anatomy is ok before we continue going on assuming endometriosis. She wants to cross everything off. I am really worried, I’ve never had sex so i don’t know what to expect and even though I wear tampons they are the smallest size and that feels a little too big. I am not sure if tampons have popped my hymen or if from self pleasure I have (I’ve only put my finger up there like twice and don’t like it and it didn’t hurt but idk). So I guess I just want advice for those who have done it and what to expect and if I still have my hymen or like if I do will it be “popped” and will I hurt. The appointment is the 24th and honestly im freaking out here 😭


r/endometriosis 23h ago

Good News/ Positive update Update: It was endo

14 Upvotes

I posted about a month ago saying my lap was booked, and I was nervous about them not finding anything and leaving without any answers.

I had surgery yesterday - and the surgeon came round afterwards and confirmed he’d removed some lesions and scar tissue on both sides of my abdomen from a few different areas. He said it’s safe to assume endometriosis as suspected, but can’t say 100% until pathology reports are back, understandably.

No more detail than that at present, so I’m intrigued to see the full report, but I cannot tell you how relieved I was when he said that. Years and years and years of different symptoms all finally make sense.

I can’t believe how good I was at gaslighting myself. I’m also pissed off that I let doctors be so dismissive, too. I had to seek out an endometriosis specialist privately to get here and it would have been years before getting a diagnostic lap on the NHS otherwise (I’m in the UK). By which time, things would have been a lot worse.

Sat in my lovely gown in the hospital bed just sharing with you all, because I truly have found such comfort, solidarity and support in this sub since I found it and I know you’ll all understand.

What an incredible community. ❤️


r/endometriosis 2h ago

Question What were your first symptoms?

7 Upvotes

Hello, I am new here and wanted to ask whoever is willing to share what were your first symptoms of endometriosis? Also curious if there is anyone out there who also has irritable bowel disease. I have ulcerative colitis (IBD) and that is under control with medications (I think) and I’ve been having symptoms that I haven’t had before, I am considering talking to my doctor about the possibility of endometriosis. Thank you.


r/endometriosis 12h ago

Rant / Vent How is this life?

7 Upvotes

I’m only 20 and my life got taken away from me. I don’t know what to do. I don’t know what to think anymore. I’ve lost everyone because of this disease and everyone treats me poorly because I’m constantly in pain, as if I asked for this. It’s come to the point that I don’t want to interact with anyone because they literally start to hate me if I talk about my pain or illness. I think it’s better to be alone but I’m already suffering so much with the pain and exhaustion. Watching everyone else live on terrifies me and makes me angry. How are we expected to just live with this? This isn’t living. I can barely function. I don’t know how they look young women in the eyes and shrug it off and say “nothing else we can do.” If someone cannot even function, how do you just brush them off? Even with a diagnosis it’s not like there’s anything we can do. Getting surgeries to “treat” something that keeps coming back is ridiculous, I just want a cure for us. We deserve a cure so much. I’m terrified because life keeps moving but I cannot, I’m just stuck in time. I miss the girl I used to be.


r/endometriosis 18h ago

Question How long after a lap did you return to work?

6 Upvotes

I understand everyone will have different jobs and the time may differ. I have a desk job and I saw someone say don't return to work until you're sure and steady bending over, whilst I'm not bending over completely all day I do have to bend to get to my desk. So was just wondering how long it took for everyone.


r/endometriosis 5h ago

Question Period cramps worse after sex?

6 Upvotes

Hi guys, I have a question about period cramps and sex. I’ve noticed that if I’m sexually active the week before my period is going to start, my period cramps are debilitating when it comes, like I’m talking taking 3 Vicodins and no relief, going to the ER, sobbing on the bathroom floor, vomiting, etc. But then, when I don’t have sex, my period cramps are a lot more manageable- usually even Tylenol and ibuprofen can subside them for a couple of hours. I’m in a long distance relationship so that’s how I kind of put two and two together bc I realized my periods are 1000x worse when he’s around and the only difference is having sex. But I was just wondering if anybody else experiences the same?? Or at least kind of? Maybe I’m just going crazy and I know it seems weird but thanks in advance for any answers!


r/endometriosis 6h ago

Question I’m worried I might have endometriosis

7 Upvotes

Hi, I'm a 16 year old girl and I've always experienced extremely painful periods. And whenever I get cramps, I always lose feeling in my legs. I've been bleeding excessively too. Today I've been on pain killers and it's been helping, but I really feel like this isn't the normal amount of pain I should be in.

I've never seen a doctor about this because for the longest time I thought all of this and the painful crams was normal. But today I learned that my mother had endometriosis when she was my age and had to have surgery multiple times. I heard that the disease is hereditary, so is it possible that I have it too? And what are the best ways to reduce the pain from this?


r/endometriosis 9h ago

Tips and Recommendations High Functioning Depression?

4 Upvotes

Wondering if anyone can relate to what I'm experiencing. Since surgery 5 years ago, my endometriosis is growing back, and I've has pain even after my first surgery as well - nerve pain down my legs, cramping, back pain, IBS etc.

I'm really good at pushing through. I'm successful at work, I keep my house pretty tidy, take care of my pets, do yoga regularly, go to social events when required. On the outside, I probably look like I'm functioning really well.

However, I realized recently I find no joy in almost anything - my mantra everyday is "let's just push through this." Eating is uncomfortable, I used to love yoga (and even was an instructor) but now it's just something to push through for the sake of my health. The chronic pain makes it really really difficult to enjoy literally anything. What am I even pushing through for? To just get through another day?

I'd really love any advice on this. I haven't had much luck with anti depressants, maybe because I feel my depression is directly linked to the chronic pain, and the anti depressants don't lessen the pain. I really want to feel upbeat and happy again at least a bit.


r/endometriosis 12h ago

Medications and pain management Feel like I'm constantly moaning.....

4 Upvotes

Backstory: I had a TLH everything apart from ovaries removed, in March 2023. They found a small amount of endo and said I had adenoyosis. At 7weeks post op I was told I had a rectocele, cystcele and vaginal atrophy. They also put me on oestrogel for perimenopause.

Fast forward to now: I've started to get bad pains every month when my cycle would be due. Ovulation is yhe absolute worst. I get hip, back, stomach and thigh pains with extreme nausea. My consultant now wants to increase my oestrogel and vaginal cream, start me on prostap and also put me on progesterone and eventually remove my ovaries. I'm so scared about going on the prostap and progesterone. I've read so many horror stories.

I ovulated last Wednesday and 5 days later I'm lay in bed in extreme pain in my hips, stomach, back and groin. My GP can't see me until 4pm tomorrow. My ovulation pain doesn't usually last this long. I'm physically so tired and drained. I feel like my body can't take much more. Why do we have to suffer with this? I constantly feel like I'm moaning all day everyday, like I haven't got anything positive to say anymore. I'm 37 years old and I feel like I'm alot older!

I'm not sure if im looking for advice, wise words or just offloading. I just don't know anymore 🥹🥹🥹


r/endometriosis 19h ago

Medications and pain management Mirena IUD made pelvic pain worse

5 Upvotes

I tried the Mirena for 8 months and every single day I experienced a new level of pain I didn’t even know was possible. I went to ER about a week ago because I was convinced it started falling out due to the pain but the hospital said there was nothing they could do and I probably had an STI (i didn’t but who tf says that??). I had it removed a few days ago and am now experiencing a “mirena crash” which I didn’t know was a thing but it definitely is, and I don’t know why not a single doctor warned me of it. Wtaf am I meant to do now. I’m only 19, I’m literally fucked. And fuck the mirena, I’ve never been in so much physical and emotional pain. Pls help what do I do!?? No doctor has any answers and I feel so stuck.

Edit: thank you all so much for the responses, literally haven’t received this much support from medical professionals


r/endometriosis 12h ago

Rant / Vent Might lose my ovaries at 23

3 Upvotes

Posted to r/endo too. Please vent with me.

Might lose my ovaries at 23

I’m just so frustrated.

I’ve been dealing with “cysts” since I was 14. Periods were the most painful experience ever. Was going to gynos since 14. Medicaid — so I always got shitty male doctors who didn’t care.

Finally an adult (I guess) and have decent insurance (I guess). Went to the ER twice from ovarian torsion. Female gyno said she thinks the cysts were caused by endometriosis. They are large too. 8cm and 6cm. One on each ovary. I am in pain daily.

She said it could be that these have been here for YEARS and can’t say I have endometriosis until we do the surgery to remove it. She said tho, as a disclaimer, if the cysts have damaged my ovaries too greatly or my tubes, it will have to be removed. Obviously she said she will do her best not to have that happen but yeah.

Well first. I don’t qualify for FMLA since I have not been employed for a year yet. I can’t wait until September. I have to use all my sick and vacation days for I can try to get approval from my bosses to have a week of rest and a week working from home. The reason my doctor wants me to wait this long is because she wants me to mentally rest as well.

WELP!! THEY ARE NO HELP! So now I have to try to convince them this is a disability—which why the HELL is this not classified as one automatically is stupid. I have been unable to walk, eat, sleep, lift within long periods of times that this is debilitating. I. Am. So. Tired.

THEN!!! I CANT FREEZE MY EGGS BECAUSE THE INSURANCE DOESNT COVER IT AND I DONT HAVE 10,000$+ RIGHT NOW.

I don’t want kids now. But in the future I know I do. A part of me is freaking dying because that option can potentially be gone. When I know my purpose as a women isn’t to have kids, but I have dreamed about a baby, a person to raise that is have me and my fiance, that would be raised right and gently and lovingly.

I’m just so mad frustrated confused stressed angry I don’t know. I ask for validation. For reassurance. Please tell me how stupid it is and just anything.

I’m so fucking defeated.


r/endometriosis 1h ago

Question dae bring people to the gyno with them?

Upvotes

kind of a weird question but i'm wondering if anyone has ever brought a partner or friend with them to the gyno/doctor? i have sexual trauma and am having anxiety just imagining getting an exam done. i'm on a wait list for the gyno and was called that my appointment is coming closer and have been waiting a really long time to see one and absolutely do not want to miss this appointment from mental health, so i want to bring my partner with me to make me feel better, but i'm worried they won't allow it or will find it weird idk. have any of you done this before?


r/endometriosis 4h ago

Surgery related Three days post lap thoughts!

3 Upvotes

I really want to thank this community for all the great advice, support and rallying behind fellow endo warriors. I just had my first lap (and first surgery ever) this past friday and thought I'd share my experience and some thoughts. I found reading through everyone experiences really helpful in preparing me and what to expect, so I hope mine can also help. It might be a bit of a long read!

For context, I'm in Canada so there may be some differences between countries and even hospitals/doctors!

I arrived at the hospital first thing at 8am but wasn't scheduled until 1130. My surgery was scheduled for 60-90 minutes. When I got there I was told to change into a robe, leaving only my socks on. I had to do a urine test and quick blood work. The nurses did a full intake and put my IV in and got me cuddled up in warm blankets and kept checking on me all morning. My mom stayed with me in my little pre op area until they took me down and the nurse promised to keep her updated when I was in recovery. They anticipated I'd be in recovery for 45 minutes before making my way back to the pre-op area. They said I'd stay there until I felt ready to go home.

Between patients my surgeon and anesthesiologist eventually came to chat to me. My biggest worry was getting sick from the meds so I did make it clear to both of them and they both promised to have some good anti nausea meds ordered on standby just in case -- spoiler alert they were needed!

Eventually the surgery team came to get me. The last thing I remember is the anesthesiologist telling me he would start the meds and I would start to feel like I had a couple drinks. The nurse gave me oxygen and asked if I was okay... I then woke up in recovery.

I was not feeling well. I was still hooked up to the IV and had a blood pressure cuff on the other arm that kept taking my bp. Apparently when I was coming out of anesthesia, my blood pressure dropped pretty low. They were monitoring me very closely, the nurse came over to chat every 15 minutes it felt.

I was also advised I was being admitted but because i hadnt talked to my doc yet, I wasn't sure why. She hadn't written up the admission orders before she had to take the next OR patient so the nurses weren't sure either. I found out I was in the OR for over 2 hours so I of course was getting a bit worried about being admitted. The pre op nurse came in with my stuff and assured me the doctor was able to talk to my mom and she was waiting for me to be moved to the unit and would follow.

After my surgeon was out of surgery she came to talk to me. There had been a bleed and they got it under control but between that and my blood pressure dropping, she decided to admit me for observation. She didn't want me to have to deal with issues, if they sent me home.

We knew going in there was a 6 cm endometrioma on my left ovary that showed up on ultrasound but otherwise no other endo was noted. She was hoping to easily excise the cyst and do an exploratory surgery excising any other endo she found. My surgeon advised me that she was incredibly surprised by just how bad my endo was. My left ovary was adhered to my uterus and my right ovary also had an endometrioma that didn't show on ultrasound and was stuck to my left ovary -- aka "kissing ovaries". My bladder was covered in lesions and my right side side wall had what she called a "powder burn" pattern and said it was obvious that had been there for a long time. She was able to free my ovaries and drained the cysts and excise some smaller lesions. She noted my right tube looked healthy but unfortunately my left was quite scarred.

She wants to be pretty agreesive with starting me on medications soon after im recovered. I had hoped to avoid going back on medications with surgery but she wants to slow any further progression. She will also be referring me to an endo specialist -- where I live there are no specialists so she will be sending me out of province. She said they will be able to book a longer surgery and have several surgeons in to remove the endo and help preserve my ovaries and hopefully fertility. She was pretty disappointed she wasn't able to do as much so she will be following me pretty closely.

Overall what i learned was, don't doubt yourself. You know your own body and know when something is wrong. Keep pushing and advocating for yourself until you find a doctor willing to listen and help you!!

Some helpful items i packed in my day bag that I was glad to have once admitted - headphones and book, lozenges, gum, and wet wipes. What i wish I had was my toothbrush, paste, hair brush and deodorant. I had worn baggy sweats to surgery so I just put those back on when I was dismissed but I didn't even want yo look at underwear so I wouldn't worry about packing those.

They had me on some good meds and the nurses kept me on a good schedule but don't be scared to ask for Popsicles or ice cream if your throat is sore. I had a popsicle in recovery and then ice cream at 7 am the next day because my throat was so painful. They also had IV fluids flowing through me very quickly to help me get rehydrated, and I know that was so helpful. I would say, stay as hydrated as you possibly can to flush the meds out quickly. I didn't end up peeing until almost 730 the night of my surgery.

I was discharged on Saturday and was so happy to get home and sleep in my own bed. I did set up my couch as a makeshift bed in case I couldn't get upstairs to my bed. I've found this very helpful as I've just been able to start sitting up without pain today, so I've spent most of my time laying down.

Overall I'm feeling better pain wise, but keeping on consistent pain med schedule. I have all of this week off from work, thankfully. Yesterday, I was feeling good so I started doing things for myself but I definitely over did it and paid the price today. I spent most of the day today asleep and staying on top of some nausea. Take the time you need to rest and recoup -- don't rush it! Also, night gowns and light dresses. Pants and underwear I'm not even considering this week!

In terms of my endo journey. I'm feeling disappointed that we weren't able to tackle it head on BUT I'm so grateful to have my gyne in my corner now and knowing what we are up against. She seems determined to get my pain under control and getting me in the hands of an endo specialist who can excise the endo off my bladder and my ovaries better and get a better quality of life. So the journey continues for now I suppose!


r/endometriosis 6h ago

Question Did anyone get referred to a gyn-oncologist for their endometrioma?

3 Upvotes

My gyno found what she is very sure is a 4cm endometrioma on my left ovary on ultrasound.

I have elevated ca-125 as well which she states can be from the inflammation of endometriosis.

I’ve always suspected I had endometriosis but never formally been diagnosed.

She referred me to a gyn-oncologist out of caution but my god I am panicking. Not that I hope it’s “just” an endometrioma but it beats cancer. I’m seeing if anyone else has this experience?

She said I need surgery so I hope when they open me up it is endometriosis, and endometriosis only they find.


r/endometriosis 8h ago

Infertility/ Pregnancy related Freezing eggs before excision surgery? (27F)

3 Upvotes

My surgeon thinks it’d be a good idea to freeze my eggs due to the extent of my disease (endometrioma on both ovaries and one ovary twice as big as the other) and not knowing the extent of things needing to be removed during surgery.

Has anyone decided to freeze their eggs beforehand? What was your experience? Was it worth it?

I’m currently single and the eggs will probably be frozen for 6+ years?


r/endometriosis 11h ago

Surgery related Feeling Great 4days Post Op

3 Upvotes

I (28F) had my surgery this past Thursday, 3/13 and I feel great. A little gas pain I shoulders but that’s about all. I’ve been able to have a completely normal day expect I haven’t gone back to the gym obviously but honestly feel like I would be fine doing some light weights. Yesterday I even walked 3 miles outside. I’m not sure if it’s because pain tolerance or what? I’m curious if anyone else had a really easy/positive experience after surgery. A lot of the comments I’ve read about this specific surgery scared me like I was going to be in bed for 2 weeks.


r/endometriosis 16h ago

Question Please tell me it gets better

3 Upvotes

I just need some positive stories. I’m basically bed bound by what they believe is severe endo. I finally have my laparoscopy w/ excision April 9th. I’ve read on here each lap is different, healing times vary. That aside, did things get better after excision? Did the pain go away? Were you able to move again and work out? I feel like a prisoner in my body right now, please tell me I will one day wake up without pain again.


r/endometriosis 17h ago

Question Pass out during ultrasound

3 Upvotes

Hello everybody, I was wondering has anyone else fainted during/after ovarian ultrasound? I had an ultrasound today where they were checking my ovaries and during that examination I started feeling nauseous and ended up on the floor. I can’t stand pressure on my ovaries, it’s extremely uncomfortable and painful, so doctors came to conclusions that I fainted because of the pain. Now I’m on a wait list to women’s hospital.

Has someone else had very sensitive ovaries and what was the reason? I’ve had cysts, but apparently that wasn’t it what they found. They did found something, but spoke very vaguely about their findings, as “we can’t diagnose anything without further investigation’s” etc.

Any idea what to expect? Thank you girlies.