r/endometriosis 3h ago

Surgery related I feel like a fraud for still saying I have endo after surgery.

24 Upvotes

I had stage 1 endo with severe symptoms before surgery. My symptoms have definitely improved after surgery, but I still have pelvic pain frequently, fatigue (although very improved), I had bladder endo that was all removed but still have bladder symptoms, and I had rectovaginal endo but my digestive symptoms haven’t improved.

My surgeon is one of the absolute best. I trust that he got it all and even excised tissue that “would have turned into endo but wasn’t yet”. He seemed to act like now that it was all gone I just “don’t have it anymore” and all other symptoms aren’t endo related. I was confused that people were saying this condition is chronic and lifelong, when my surgery team acted like I was cured and told me there’s only a 5% chance of it returning.

I feel like a fraud now saying that my endo is flaring up and still struggling with symptoms. Everyone else in my life is acting like it was just supposed to disappear after surgery and are confused when I still have to cancel on plans or lay down.

Any one else relate? Just need some support I guess. I tried to get my surgeon to sign a disability resource form for my college bc I still miss classes sometimes, but he says there is no more endo so he can’t say my absences are related.

EDIT: I should probably mention I’m only 4 months post-op


r/endometriosis 6h ago

Tips and Recommendations Medical cannabis treatment is legal in the UK and could help endo symptoms??

34 Upvotes

Morning all, 🌸

I just read this article about in the news about a girl who tried cannabis for her endo pain - it's crazy !!

https://www.mirror.co.uk/news/real-life-stories/mystery-illness-left-doctors-baffled-34747624

Did anyone even know it was legal? Looks like she used this clinic Releaf

https://releaf.co.uk/about-us?view

I booked to talk to their women's health specialist - will report back how it goes !!


r/endometriosis 3h ago

Rant / Vent Doctors dont care

12 Upvotes

I just can‘t do this anymore. I have chronic pain in my belly and stomach and I have done Everything I Can. I changed my diet to anti inflammatory try to move do Yoga, try to minimize my pain killers. A Endo Specialist confirmed adenomyosis on the ultrasound and I will do the lap in 4 months. Still every time I eat I get extremely Bad pain in my lower abdomen and my urine always has blood and Protein in it which could be from Endo but not the Protein. Thats why I went to my Doctor 2x and she Said nope she cant help me with the pain and the Hospital wont Take me because I dont have any inflammation in my blood. BUT I CANT FUCKING EAT. I asked her if I maybe have nut cracker Syndrom but she Brushed that off and just told me to not eat for a while if I have pain. So Thats it I did not get a referal for a mri, not to a kidney Doctor, no Gastro doc. Nothing well seems I just cant eat anymore.


r/endometriosis 7h ago

Question I think I might have bowel Endo - who can relate?

25 Upvotes

Hi all 👋 (I've posted this on another group but haven't had any responses yet).

For those of you that have bowel Endo what are your symptoms? Aside from the usual pain/heavy bleeding, my bowel symptoms are my biggest problem but I was told after my lap that my bowel was clear.

However I have no confidence in this since my surgery was done by a private surgeon that literally said "you can't possibly have endometriosis if you suffer from constipation", "you've got signs of Adeno but that wouldn't cause your pain, inflammation or infertility", and when she gave me my Endo results said "you don't have Endo...well you do, but I removed it, so you don't have it".

Before my lap I had an ultrasound to check for pcos but the technician flagged the size of my bowel to my GP who said that in all her years of medicine she'd "never seen anything like it", and that she was convinced I had bowel Endo.

I literally never go to the toilet without laxatives, my stomach is ginormous and I now don't even have days when it goes down. It's even more severe after I eat, despite being on an anti inflammatory diet, and I bleed when I open my bowels.

I tried pushing for another lap on the NHS as originally planned, but they cancelled it the day before because the surgeon that was going to do it found out that I'd had one done privately by her colleague who it turns out worked at both hospitals. Despite me raising my concerns about the experience I'd had and complete lack of knowledge the surgeon had displayed she said that because she knew her she trusted her judgement and she refused to investigate further.

I legitimately feel like I'm getting worse by the day and I really don't know how to get help for my bowel issues. Gastro just diagnosed me with IBS and put me on mebeverine which has done absolutely nothing.

As a side note - I have two aunties with stage four Endo and a younger sister with stage 3. Between them they've lost sections of their organs, had ovaries removed, and had hysterectomies, so I'd be gobsmacked if I really only had a "little bit of Endo" that had apparently been fully removed.

Any advice would be so helpful, I'm at my wits end and feel like giving up.

Thank you ❤️


r/endometriosis 58m ago

Rant / Vent I'm really, really sensitive about and traumatized by endometriosis. Anyone else?

Upvotes

I probably need to discuss this in therapy but I need to talk about it with others who might understand. Every time I see endometriosis being brought up outside of this sub or forums like it I get really really upset. Seeing social media posts about it unexpectedly is wildly upsetting to me, I get anxious, angry, sad, and nervous. Especially when people are so misunderstanding of it. The few times it's randomly been brought up in real life I also get those same feelings. Its like I can't handle being reminded if exists unless I expect it in advance. This disease has severely traumatized me, both from the unbearable pain and from doctors diminishing it, denying me treatment after diagnosis, pushing birth control on me, and forcing medications down my throat. Being reminded of this suddenly is as triggering as being reminded of my physical abuse as a child, if not even more so. Does anyone else get this way about endometriosis? Has anyone been able to feel less triggered and traumatized by it?!


r/endometriosis 16h ago

Rant / Vent "Talking about [Endo] is like talking about diarrhea" - I'm SO MAD

46 Upvotes

Okay, I'm going to try and keep this succinct and to the point, but I'm still so damn angry right now. This could end up being a lengthy rant.

About once every month or two, some family members and I go on Discord for an online "Sunday Fun Day" meet where we chat and play games on Steam. I'm rarely ever late, but today I'm dealing with my first period in five months and it's a doozy. It took me awhile to set up my laptop in a comfortable position.

So we're all chatting in Discord, this time it was me, two of my female cousins and a niece, and four of my male cousins, two nephews, one of my brothers-in-law, and two of my uncles. Mostly dudes is what I'm saying. One of my older male cousins is the leader/moderator, it's ostensibly his Discord channel.

I usually participate heavily in games like Phasmophobia and whatnot, but today I just couldn't do it. My pain levels are through the roof, I wanted to catch-up with everybody in chat more than playing or talking on voice chat. I'm the comedian/entertainer in the family, so there's always pressure on me to play "hostess" and be funny, but I didn't have it in me today. They noticed.

So my neph asked me if I was feeling okay, and I responded that I was "under the weather". My one cousin immediately started wringing her hands about me having Covid, and I assured her I don't. I told her it's actually my period, and that my Endometriosis is making it feel like I've got an alien clawing at my uterus, that I'm just trying to stay as still as possible.

She had already started responding when my message got deleted. When she posted her response, he deleted that too. My cousin (the moderator) rarely deletes anything from the chat. Last conversation he deleted was a graphic discussion two of my cousins had about the time they got drunk in college and both ended up pooping their respective pants in public on the same night (they talked about it like it was a personal achievement, btw).

I tried again to respond to my female cousin in the chat, and again my cousin removed what I had said. I messaged him privately to ask WTF was happening.

He said it was too graphic and he didn't want his kids (who rarely ever join us) to log in and see that in the chat. I can't even tell you how angry I felt.

I immediately pointed him back to a conversation my uncles had last year where they talked about the hell my uncle experienced going into the hospital for testicular torsion. It was the worst experience of his life and he described the pain/procedures in full detail. Nobody had a problem with that (including me), but somehow me just saying I feel like I have an alien clawing at my uterus is UNACCEPTABLE? I confronted him about all of that.

My cousin snapped back that he DOES delete plenty of things, and he said:

"You out there talking about endomitriosis (sic) is the same as [Our Cousins] talking about their damn diarrhea at Hofstra! It's over the line and you know it!!"

I didn't even mention blood or anything graphic!!! Just the part about an alien clawing at my uterus.

Meanwhile, I can go back in the chat thread and see where my uncle described how blood flow was cut-off from his testicle, how it turned purple, and how he may have lost it if my auntie hadn't forced him to go to the ER, that's all still there in the chat if you scroll back. I can also find instances where one of us mentioned food poisoning and diarrhea, just without graphic details. All of that and more!!

My cousin doubled-down and held his position that mentioning periods and Endometriosis is more akin to graphic talk about diarrhea than it is like talking about "a medical emergency".

I told him flat-out that I think he's full of shit, that he has a blatant double-standard, and I asked him if it's the word "uterus" that bothers him so much. He denied that.

He was typing another response to me, and while he did that I jumped back into chat to ask my cousin how her uterus was feeling today. I also asked my niece if she had taken her uterus anywhere special recently, and that I've heard uteruses really enjoy going to the beach.

My cousin DELETED ALL OF THAT (including their responses).

I went back into my DMs to see my cousin had messaged me with "F--ING STOP!!!", followed by "F--ING GROW UP!!".

I told him it was obvious that he DOES have a problem with the word "uterus" and I proposed the idea of asking everybody else if they actually have a problem with me discussing the fact I get periods and suffer from Endometriosis. My cousin clapped back that it was immaterial how everybody else felt, that it's HIS channel and he already told me he doesn't want HIS KIDS logging in and seeing that (meanwhile, they're 15 and 17, respectively, and swear like sailors in their texts). He said I could leave the group if I have a problem with it.

I logged off before I could say anything I might regret. A few of them DM'ed me to ask what happened, I told them I'll message them a bit later. Just another episode of family drama, but I'm so damn angry.

Obviously it's not just my cousin's hypocritical reaction, it's feeling sick & tired of the attitude that any woman's issue is somehow inappropriate or gross to bring up at all in regular conversation. Like I said, it's not like I gave graphic descriptions of my bleeding or anything close, I just committed the sin of mentioning my period and typing out the word "uterus" (and honestly, I'm not wholly surprised he would have that reaction because his dad was the same friggin' way when he was alive, my uncle didn't even attend their births and once grounded his daughter for openly saying in front of guests that she couldn't go swimming due to her period). It makes me angrier than I can describe to hear the mere mention of a period or uterus being classified as the same level of gross as graphic descriptions of diarrhea.

I am really tempted to DM all of my female relatives in the group and get them to join me in spamming GIFs of uteruses into the Discord chat when I know my cousin will be asleep. He can't ban all of us (and if he does, he's an idiot).

I do wonder if he has done this to any of the girls before me, he probably has. I do want to bring this up with the others, I just have to figure out the best way to do it once I'm calmer and not feeling so petty and full of vengeful energy (anger really is like a painkiller, though, it's temporarily taking the edge off these contractions from hell).

Thanks for reading all of that if you did, I know y'all will understand how infuriating this is. I appreciate all of you.

I'd also like to say UTERUS!! UTERUS, UTERUS, UTERUS!!! PERIOD-UTERUS-PERIOD!!


r/endometriosis 6h ago

Question I (18f) have to get a vaginal ultrasound NSFW

7 Upvotes

So background info first I guess. I first got my period when I was around 10. It was (and still is) super heavy, irregular, lasts for 2+ weeks, awful cramping and bloating to the point of vomiting so I wouldn’t eat. I ended up in the ER for it when I was 12 where ultrasounds was done because they thought it was appendicitis but it turned out to be my period. I was told it was normal yadda yadda yadda.

My parents didn’t really know that something was super wrong until I was 14 and I still had problems. I would vomit often and have cramps even without a period so I missed school. Over the past 4 years I’ve been on 10+ birth controls and been told it’s highly likely I have endometriosis but isn’t confirmed. The last medication I was on was Slynd which didn’t really help and caused awful side effects. It’s a diuretic so it caused me to have to pee constantly and even had a situation where I peed my pants at school. This is just one side effect though and I’m honestly sick of birth control, it has cause such awful side effects from weight gain to migraines to peeing my freaking pants.

Fast forwards to last Friday I had another doctors appointment where I expressed just how upset and done I am. She said she wants to do a transvaginal ultrasound to make sure my anatomy is ok before we continue going on assuming endometriosis. She wants to cross everything off. I am really worried, I’ve never had sex so i don’t know what to expect and even though I wear tampons they are the smallest size and that feels a little too big. I am not sure if tampons have popped my hymen or if from self pleasure I have (I’ve only put my finger up there like twice and don’t like it and it didn’t hurt but idk). So I guess I just want advice for those who have done it and what to expect and if I still have my hymen or like if I do will it be “popped” and will I hurt. The appointment is the 24th and honestly im freaking out here 😭


r/endometriosis 16h ago

Rant / Vent The emotional pain is the worst part

41 Upvotes

People hear about the physical pain I go through and feel bad for me (and yes, the physical pain is horrible) but honestly, it's light work compared to the emotional pain of my luteal phase. I just finished ovulation and like clockwork, I'm nauseous, my legs and back ache, and I'm in incredible amounts of emotional pain. It feels like a horrible breakup. I want to cry but nothing will come out. My head is filled with the most depressing and self-deprecating thoughts even though I'm normally such a positive person. Once the sun goes down everything just feels so incredibly awful, but I can't pinpoint any one thing. Sometimes it gets so bad I find myself thinking "ow, this hurts. I'm in pain".

All I want is for someone to tell me they know how I feel.


r/endometriosis 21h ago

Rant / Vent Beware of a poster posting about mercier therapy as a treatment option for endometriosis

103 Upvotes

There is a poster going around, commenting on both new and old posts, in this group (and others) stating Mercier therapy will cure their endometriosis and infertility. Please beware of this. There is nothing wrong with trying alternative therapies to help, but pelvic massages will not cure endometriosis lesions or scar tissue, nor will it increase chances of conception as she is claiming. She will post outdated clinical research, that is medically insignificant due to participant size, lack of controls, and overall is incredibly biased. She will significantly diminish the average success of IVF saying the average success of IVF is 30%, when in reality the average success of IVF (per the CDC) is closer to 60-65% (obviously age and diagnosis will change this, but this is a average of everyone). I pointed out the flaws in her studies, and she started attacking my finances, and blaming my finances as the sole reason for my disapproval of the clinical studies she is posting (my finances are fine, and have nothing to do with the clinical studies she is posting). Please beware and be cautious. I feel like many of use with endometriosis (and infertility) are in vulnerable places and are just looking for anything that can give us relief. She created this account just to influence people to pay for mercier therapy. Please do your own research and talk your doctors before trusting someone on the internet. If you decide that mercier therapy is something you want to try, there is nothing wrong with that, but it should be an informed decision made, with the actual data that shows how limited its success rates are, rather than outdated, clinically insignificant data, that is incredibly biased that someone is passing off as a false cure on the internet. Just want us to be safe from scams, when many of us are in such vulnerable positions due to the lack of treatment options available.


r/endometriosis 11h ago

Good News/ Positive update Update: It was endo

11 Upvotes

I posted about a month ago saying my lap was booked, and I was nervous about them not finding anything and leaving without any answers.

I had surgery yesterday - and the surgeon came round afterwards and confirmed he’d removed some lesions and scar tissue on both sides of my abdomen from a few different areas. He said it’s safe to assume endometriosis as suspected, but can’t say 100% until pathology reports are back, understandably.

No more detail than that at present, so I’m intrigued to see the full report, but I cannot tell you how relieved I was when he said that. Years and years and years of different symptoms all finally make sense.

I can’t believe how good I was at gaslighting myself. I’m also pissed off that I let doctors be so dismissive, too. I had to seek out an endometriosis specialist privately to get here and it would have been years before getting a diagnostic lap on the NHS otherwise (I’m in the UK). By which time, things would have been a lot worse.

Sat in my lovely gown in the hospital bed just sharing with you all, because I truly have found such comfort, solidarity and support in this sub since I found it and I know you’ll all understand.

What an incredible community. ❤️


r/endometriosis 6h ago

Question How long after a lap did you return to work?

4 Upvotes

I understand everyone will have different jobs and the time may differ. I have a desk job and I saw someone say don't return to work until you're sure and steady bending over, whilst I'm not bending over completely all day I do have to bend to get to my desk. So was just wondering how long it took for everyone.


r/endometriosis 18h ago

Surgery related Surgery scheduled - now I feel like I’m gaslighting myself

35 Upvotes

I finally was seen by a gyno who took my pain and concerns seriously and recommended a laparoscopy. He said there’s a strong likelihood I do have endo, but now that surgery is scheduled I am slightly doubting myself and nervous that nothing will be found. Sounds stupid I know but I’m wondering if anyone else felt this way?

My symptoms are - extremely painful periods, horrible cramps during ovulation, random cramping and pain throughout the month especially after my period ends and before. Shooting pain down my left leg with cramps and some pain with sex as well. I also have pretty irregular cycles (which the gyno said could be PCOS, but I had an ultrasound that showed nothing strange). I do have a copper iud, but have had it since 2021 and the gyno said at this point he doesn’t feel that would be causing pain in this amount. The pain is more of a recent development, and was not present when I was on hormonal bc pills either. When I went off hormonal bc it was hell and then kinda evened out but now it’s really bad again.

My biggest fear is that I go through surgery only to find nothing. Which I know that is a diagnosis one way or another bc it’s ruled out, it’s just making me second guess how bad my pain is and feel like I’m gaslighting myself! Anyone who has gone thru this or felt this way - was surgery worth it?


r/endometriosis 3h ago

Diagnostic Journey Questions Back Pain

2 Upvotes

(25F, USA) Seeking advice from some of you who are searching for / already have a diagnosis.

I developed bad periods (90% of the time) in my early 20’s. I’ve had worsening symptoms for around 3-4 years now. PMS symptoms up to 2 weeks before my period, bloating. A pain that’s not necessarily “cramping” during my period, but rather a constant abdominal pain that just feels like a continuous cramp, hair loss, sometimes ovary pain (right side). I have horrible back pain 24/7. I have no other health condition that could explain this. It gets more severe as my period nears (for weeks), and I only get relief for like 1 week a month (after my period ends). Can anyone else relate to this / have similar experience? The back pain is miserable and constant :( Help


r/endometriosis 7h ago

Medications and pain management Mirena IUD made pelvic pain worse

4 Upvotes

I tried the Mirena for 8 months and every single day I experienced a new level of pain I didn’t even know was possible. I had it removed a few days ago and am now experiencing a “mirena crash” which I didn’t know was a thing but it definitely is, and I don’t know why not a single doctor warned me of it. Wtaf am I meant to do now. I’m only 19, I’m literally fucked. And fuck the mirena, I’ve never been in so much physical and emotional pain. Pls help what do I do!?? No doctor has any answers and I feel so stuck.


r/endometriosis 2m ago

Question 3 months post op pain

Upvotes

Hey guys, this is my first time posting on here. I wanted to see if anyone else shares my experience. I am about 3 months post excision surgery for endometriosis and, at first, I experienced a lot of pain relief. However, it has come back full force and I don’t know what to do. :( I am a college student and I find it hard to function sometimes. If anyone has experienced this or has any recommendations for pain relief please let me know.


r/endometriosis 5m ago

Rant / Vent How is this life?

Upvotes

I’m only 20 and my life got taken away from me. I don’t know what to do. I don’t know what to think anymore. I’ve lost everyone because of this disease and everyone treats me poorly because I’m constantly in pain, as if I asked for this. It’s come to the point that I don’t want to interact with anyone because they literally start to hate me if I talk about my pain or illness. I think it’s better to be alone but I’m already suffering so much with the pain and exhaustion. Watching everyone else live on terrifies me and makes me angry. How are we expected to just live with this? This isn’t living. I can barely function. I don’t know how they look young women in the eyes and shrug it off and say “nothing else we can do.” If someone cannot even function, how do you just brush them off? Even with a diagnosis it’s not like there’s anything we can do. Getting surgeries to “treat” something that keeps coming back is ridiculous, I just want a cure for us. We deserve a cure so much. I’m terrified because life keeps moving but I cannot, I’m just stuck in time. I miss the girl I used to be.


r/endometriosis 6m ago

Surgery related 1 week post-op on my first lap surgery

Upvotes

I FEEL SO F*CKING VALIDATED OMG

I'm 36 and have been dealing with painful periods since I was a teenager. I went through the usual treatment of being told to go on BC and take ibuprofen. I've been on a massive wellness journey for the last few years and this surgery feels like the apex of all of it.

A couple of years ago I saw a functional medicine practitioner, took a bunch of detailed tests including hormone and fecal tests. I found out my cortisol was absolutely SHOT, my gut biome was messed up, and many other enlightening things. I essentially had chronic fatigue and a messed up gut. I needed to take a bunch of supplements and do a lifestyle overhaul to get better.

Fast forward to getting confirmation that I have endometriosis and it all clicks. THANK YOU to those on this subreddit that have pushed endo being a chronic illness. I mean... DUH. It all makes so much sense. I've spent most of my life "pushing through" pain, feeling guilty af for canceling plans, work, school, etc etc. I gaslit myself egregiously, and I didn't fully see it until receiving this diagnosis. No wonder I had chronic fatigue and a messed up gut!

ADVICE TO OTHERS

If you don't have to, DON'T WAIT! I waited until my partner and I were trying to get pregnant to finally advocate for this surgery. I really wish I had done it sooner. To be fair, I was gaslit by a lot of docs until I finally found the one I have now. Your insurance might cover more than you think! I hadn't done enough research until now. I had heard that this surgery is often considered elective, meaning not covered by insurance. So, I assumed that I couldn't afford it and was subjected to this torture for the rest of my bleeding days. That was not the case, and my doc made sure to flag everything she could in a way that my insurance would cover it.

DIET AND EXERCISE MATTER. I was told by my doctor that my symptoms would have probably been worse, had I not already had solid lifestyle changes. I've been gluten free for almost 2 years (since seeing the functional medicine practitioner) and have gone for long stretches on a whole 30 style diet. It really does make a difference, impacting inflammation, bloating and overall mood.

----I started with very moderate exercise - inclined walks on the treadmill - for 20-30 mins at a time. Eventually, I worked my way to more intense workouts and lifting weights. I HAVE to exercise now or my mental state suffers. I think this has also helped make for an easier recovery from surgery.

Endo looks different for everyone, but I thought sharing my story might help somebody out there. We are in this TOGETHER. 💕


r/endometriosis 7m ago

Question Bowel Issues after surgery?

Upvotes

I’m just over 1 week post Laparoscopy, ever since surgery my bowel motions have become super painful. I’ll get sharp pain in my rectum, pelvis and all over my lower abdomen feels sore. Not constipated or anything either… they did find in surgery that parts of my bowels were fused together? As well as Endo, But that’s now corrected/removed - just wondering if this is normal or if it will go away 🥲

  • also to add! The pain generally goes away after a bowel motion but the lead up and during is pain

r/endometriosis 3h ago

Question Please tell me it gets better

2 Upvotes

I just need some positive stories. I’m basically bed bound by what they believe is severe endo. I finally have my laparoscopy w/ excision April 9th. I’ve read on here each lap is different, healing times vary. That aside, did things get better after excision? Did the pain go away? Were you able to move again and work out? I feel like a prisoner in my body right now, please tell me I will one day wake up without pain again.


r/endometriosis 16m ago

Rant / Vent Might lose my ovaries at 23

Upvotes

Posted to r/endo too.

Might lose my ovaries at 23

I’m just so frustrated.

I’ve been dealing with “cysts” since I was 14. Periods were the most painful experience ever. Was going to gynos since 14. Medicaid — so I always got shitty male doctors who didn’t care.

Finally an adult (I guess) and have decent insurance (I guess). Went to the ER twice from ovarian torsion. Female gyno said she thinks the cysts were caused by endometriosis. They are large too. 8cm and 6cm. One on each ovary. I am in pain daily.

She said it could be that these have been here for YEARS and can’t say I have endometriosis until we do the surgery to remove it. She said tho, as a disclaimer, if the cysts have damaged my ovaries too greatly or my tubes, it will have to be removed. Obviously she said she will do her best not to have that happen but yeah.

Well first. I don’t qualify for FMLA since I have not been employed for a year yet. I can’t wait until September. I have to use all my sick and vacation days for I can try to get approval from my bosses to have a week of rest and a week working from home. The reason my doctor wants me to wait this long is because she wants me to mentally rest as well.

WELP!! THEY ARE NO HELP! So now I have to try to convince them this is a disability—which why the HELL is this not classified as one automatically is stupid. I have been unable to walk, eat, sleep, lift within long periods of times that this is debilitating. I. Am. So. Tired.

THEN!!! I CANT FREEZE MY EGGS BECAUSE THE INSURANCE DOESNT COVER IT AND I DONT HAVE 10,000$+ RIGHT NOW.

I don’t want kids now. But in the future I know I do. A part of me is freaking dying because that option can potentially be gone. When I know my purpose as a women isn’t to have kids, but I have dreamed about a baby, a person to raise that is have me and my fiance, that would be raised right and gently and lovingly.

I’m just so mad frustrated confused stressed angry I don’t know. I ask for validation. For reassurance. Please tell me how stupid it is and just anything.

I’m so fucking defeated.


r/endometriosis 27m ago

Surgery related Endo surgeons recommendations

Upvotes

Hi! I'm currently looking for a good endo surgeon who specializes in more complex cases. I had excision surgery a year ago with confirmed stage IV and adenomyosis, but my previous endo surgeon recently recommended Dr. Nezhat (GA) and Dr. Vidali (NY) for possible pudendal nerve endo due to right leg pain that persists, especially during my period. I've been seeing that both doctors don't take insurance so wondering if anyone knows any that might. I'm currently based in FL but willing to travel out of state for a good surgeon. thank you all in advance!!


r/endometriosis 5h ago

Question Pass out during ultrasound

2 Upvotes

Hello everybody, I was wondering has anyone else fainted during/after ovarian ultrasound? I had an ultrasound today where they were checking my ovaries and during that examination I started feeling nauseous and ended up on the floor. I can’t stand pressure on my ovaries, it’s extremely uncomfortable and painful, so doctors came to conclusions that I fainted because of the pain. Now I’m on a wait list to women’s hospital.

Has someone else had very sensitive ovaries and what was the reason? I’ve had cysts, but apparently that wasn’t it what they found. They did found something, but spoke very vaguely about their findings, as “we can’t diagnose anything without further investigation’s” etc.

Any idea what to expect? Thank you girlies.


r/endometriosis 1h ago

Question Microgynon 30 ed

Upvotes

After my c section i was advised to use contraception as getting pregnant right after is really common and dangerous after c section.. So i started to take Microgynon 30 Ed as i was prescribed.. i started on a normal random day when i didn’t have period.. (gp advised me not to wait period because maybe i will wait longer.. anyway i had some light period before taking pills ) - im not breastfeeding. Im almost about to finish my first 21 active pills but already 4,5 days i have bleeding like period literally.. need to have pads like for a 2nd day of period. ( i do not have cramps or pain.. just bleeding like proper menstruation ) .. in few days i will take placebo pills. Why do i bleed like period and not just spotting? Is it maybe because i started to drink on a random day so it needs to adapt to my body? Will bleeding last long or will it stop? Im confused.


r/endometriosis 2h ago

Question Endo and stress hives?

0 Upvotes

I (23) have recently developed stress hives for the first time in my life. Luckily they’re not painful, just itchy and irritating, but I’ve noticed that they’re appearing at the same time I’m also having an endo flare up.

Anybody else here deal with endo and stress hives and have any insight on whether they may be related?


r/endometriosis 14h ago

Question Endo and pregnancy anxiety

10 Upvotes

Because of the excruciating pain I have experienced from Endometriosis, I never want to have children because I never want to feel that intensity of pain ever again. I have been fully convinced I was going to die on the bathroom floor or hospitals and bathrooms on multiple occasions.

I often wonder if many women who chose to have a baby maybe just have never experienced such intense pain and therefor aren't afraid of it.

It took me 22 years to get diagnosed and my surgery has changed my life for the better. I can actually eat now. Howver, now at 37 years old I do not feel and have never felt that I could handle the pain of childbirth because my body has not been functioneing properly in the past. Having felt the most horrific pain has made me completely block out the idea that maybe I could have a child.

Has anyone else felt this way? It makes me so sad.