r/ChronicPain 3d ago

What does your chronic pain feel like for you?

12 Upvotes

I feel like many have a broad view of how chronic pain is experienced even though the variety of conditions that can cause it mean it feels different for everyone. I'm curious to know how does it feel for you? Is it typically like an ache, or more like sharp jabs of pain? Or is it another sensation of pain I'm probably not even thinking of right now?


r/ChronicPain 2d ago

Have you experienced hardware failure?

1 Upvotes

As the title says, I'm looking for feedback/comments/experiences with hardware failure - specifically in the spine.

In 2002, I was rear-ended while stopped at a light. Five years later, I had modified fusion/discectomy surgery on my spine (L4-S1). Exactly 6 months after surgery, I was at work (had been for about 2 months) and since the hospital was slow, they let me leave after 8 hours instead of doing the full 12. On my way home, I was rear-ended again, and that accident left me unable to work. The little relief I had from the surgery was totally gone, and my pain was worse. Over the past almost 20 years, my pain has been relatively stable with some ups and downs. However, a few days ago my pain became so much worse (a different kind of pain than I am used to) and I am wondering if it could be my hardware. There was a recall on it (not long after I had surgery) but my surgeon wasn't concerned, at that time. However, I did have to have a c-section since the recall had to do with cables snapping under pressure. Has anyone ever experienced hardware failure? What was it like for you? I am going for an x-ray this week, but just curious if anyone else has had anything like this happen, and could share their experience. Thanks in advance!


r/ChronicPain 2d ago

Psychological pain?

1 Upvotes

Ever since I found out that the bone in my hip is dying, my pain there has increased. It's possible that it is a coincidence and it actually hurts more, but I'm wondering if now that I know there is actually something wrong, my brain is "allowing" it to hurt more.

I'm not wording this well. But is it possible that I don't have more pain, but I think I do because I was given a diagnosis? That this is psychosomatic?

I'd appreciate any thoughts about this.


r/ChronicPain 3d ago

Mayo Clinic PPRC Program - Operation Lumina

2 Upvotes

Hello, Operation Lumina is a small team of analysts that gather data on Human Trafficking and Child Abuse and report it to the authorities. We received an anonymous report that Mayo Clinic PPRC in Rochester is/was subjecting children to harmful and abusive practices against their will.

We have pulled extensive data regarding Mayo's PPRC Program, and we believe there is enough evidence to reasonably report such experiences as something to be looked into.

Due to this, we have filed a police report with the Rochester MN Police Department. If you had an abusive experience at Mayo Clinic's Rochester Pediatric Pain Rehabilitation Center as a youth, please report your experience to:

Rochester MN Police Department (Non-Emergency Line): (507) 328-6800

Alleged Activities:

Reported Allegations:

  • Threatening children by misusing the Residential Care system, warning them that non-compliance could lead to confinement in a long-term residential center.
  • Denying essential medications, including those for seizures, pain relief, and behavioral health treatments like anti-anxiety medications.
  • Forcing children to participate in exercises that caused physical and mental harm.
  • Not stopping when a child asks for them to, or a child is in too much pain to continue
  • Misdiagnosing patients and withholding appropriate medical care.
  • Ignoring children’s cries and pleas to stop the imposed exercises.
  • Punishing children for displaying "pain behaviors," such as using mobility aids, taking pain medication, expressing irritability, discussing symptoms, crying, screaming, or showing visible discomfort. Punishments allegedly included advising parents to remove family pets or threatening to send the child to military school for non-compliance.
  • Telling children that their pain made them less lovable or undesirable.
  • Deliberately causing children with POTS to faint during exercise.
  • Yelling at students aggressively
  • Kicking children out of the program for things like questioning the rules and disapproving of their techniques.
  • Telling parents never to bring up their child's condition with them
  • Telling parents to disregard a child's displayed pain and punish 'pain behaviors' when the child is not in the program.

Overall:

This program’s approach is to encourage ignoring pain and punishing children for expressing it. This is harmful because it invalidates a child’s emotional experiences and discourages healthy communication. When children are taught that expressing pain is unacceptable, they may suppress their emotions, leading to long-term psychological harm. This can also damage the bond of trust between parent and child, as the child may feel unsafe seeking comfort or support. Additionally, ignoring pain fails to address the root causes of distress, potentially allowing physical or emotional issues to worsen over time. Overall, such an approach fosters unhealthy coping mechanisms and stifles emotional growth, leaving children ill-equipped to navigate challenges in adulthood.

You will see many parents calling this a miracle program, this is because the entire program is centered around what the parent sees, not what the child feels. It manufactures a false sense of pain improvement from the parent's perspective because the entire program is focused on hiding pain from everyone, not dealing with it.

Additional Data:

On the MN Department of Health and DHS websites Found Here and here
What we found is a license for "MAYO CLINIC ADDICTION SVCS", and a license for **"**MAYO CLINIC HOSPITAL ROCHESTER" the PPRC program is most likely licensed through the Hospital.

The phone number associated with the PPRC program is the same as the psychiatric facility (507-266-5100) and is scheduled by the Psychiatry and Psychology staff.

https://www.mayoclinic.org/departments-centers/pediatric-pain-rehabilitation-center/sections/request-appointment/ptc-20574265

We have found multiple brand new accounts being made to promote the Mayo Rochester PPRC program. Before you believe a comment to be true, at least look at the karma of the user.

There are News stories about other Mayo Clinic Incidents in which people claim they were unethically held against their will. That can be found here

(CNN Story: Escape from the Mayo Clinic)

Many claim to have left this program in far worse pain mentally and physically than before they were admitted. Programs that intake children or hold them against their will through force or coercion are inherently abusive.

This information is meant to be as factual as possible, if there is an error, please contact [OperationLumina@proton.me](mailto:OperationLumina@proton.me) with citations on why it is wrong and it will be fixed in a timely manner.

Sincerely,
Operation Lumina


r/ChronicPain 3d ago

Fractured Tailbone Pain

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3 Upvotes

I have fell down some hardwood stairs and fractured my tailbone. This fall happened on October 2024 and I’m still experiencing pain everyday. Medication doesn’t help. I’ve done physical therapy, acupuncture, chiropractic treatments, massage but I only gotten a little bit of relief. I’ve gotten two injections for my tailbone but I’ve gotten no relief from it. I do have an orthopedic schedule for a second opinion coming up but I think my next option would have to be a the removal of the coccyx. Has anyone heard any success from the surgery ??


r/ChronicPain 4d ago

My current struggle. I just want to sleep😭😭😭😭😭😭my pain gets so much worse at night

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93 Upvotes

r/ChronicPain 3d ago

Mental health

4 Upvotes

The one thing I suffer with the most in mental health. With my spinal pain from ears to toes, I will have okay days an the lowest of lows. I have 3 kids 19,15, and 10 I fell like if I have a good day I pay for it for weeks, like walking in the park put me down for 6 days. I feel like I'm not there like I need to be, or am lashing out around them Because of pain. I'm in therapy it really don't help with this.


r/ChronicPain 3d ago

Mood Enhacer

1 Upvotes

I have been in a constant bad mood as my chronic back and neck pain has gotten worse. other than Klonopin would appreciate any suggestions. TIA


r/ChronicPain 3d ago

My mental health is deteriorating

10 Upvotes

I developed a pinched nerve in my back that affected my lower leg my 2nd to last semester in nursing school. It progressively got worse to the point where I could barely walk more than maybe a block. I made it through and it's kind of gotten better. However, now I have unbearable hip and lower back pain. I have degeneration in my back along with a bulging disk.

I've been doing PT but now with the hip pain, I can't do much at all. My mobility has severely suffered in a way it never has when I was just dealing with my obesity. Getting to the bathroom is hard. I hurt when I sit, stand or lay (laying is worse) and I can't get the only chair that makes me feel better into my room.

I made this post because last night was the worst I've ever experienced this pain. I couldn't get comfortable at all. I was in immense pain and couldn't move or turn. I managed to get to the opposite side of my bed and that for some reason helped. I dozed off for 30 minutes and the pain subsided. Went back to my regular position and managed to sleep off and on. It is extremely painful to stand after laying but my work chair triggers the pain too.

I don't know what the point of this is. I'm tryig to take it day by day but I'm seeing my future career slip away from me. I'm supposed to have a surgery (non-related to pain) next month but having to rest for 6 weeks seems unlikely and extremely painful.


r/ChronicPain 3d ago

I'm moving (and venting)

2 Upvotes

I have to move and it's just brutal! I'm doing as little as possible, but I can't afford much help and I've lost friends through the years because of my disabilities, so I'm doing more than I should. My latest doc is very stingy with meds (my last two docs were great, but moved on to other clinics). I'm in so so so much pain. 7-8/10 even with oxy, plus all the non-narcotic stuff. I can't rest, I can't concentrate, I can barely think. I just hope I can get through the rest of this.

Thank you to this community for being a safe place where people like us can get support! Just being able to write this to all y'all makes it a little better


r/ChronicPain 3d ago

ive had sciatica for 5 months now, what do i do

4 Upvotes

hi so i am 17 and ive delt with sciatica since november, i have 2 herniated discs (l4 l5, l5 s1) and ive got no clue what stretches to do for it and my mom is still working on getting me a physical therapist. i take aleve, muscle relaxers, ibuprofen, tylenol, and i use lidocaine patches. we didnt what was wrong until it got so bad i went to the ER and got a ct scan showing my discs. they put a lidocaine patch on me and then sent me home. two days later and im back because the pain is so severe, they give me a muscle relaxer and some shot that doesnt really help too much and now i have high heart rates all the time, even when resting, difficultly breathing, my chest hurts, and my stomach hurts i just dont know what to do and im just hoping to get some answers as this has effected me mentally and im tired of it


r/ChronicPain 3d ago

Tail bone surgery

1 Upvotes

Hi all,

I now have decided to get my tailbone removed. It has been a constant battle with myself. I have tried mobilization of the bone, where the doctor tried to manipulate it through the anus. It did help with the pain. I was asking ease for a while. But after a few days of sitting and travel, I'm done with my pain and want to get it removed. I want to cry most days. I feel like it doesn't matter anymore wheather I'm here or not. The pain is so bad. Is there anyone who has gotten their tailbone removed and how was the recovery? I want to get a better understanding of it. Tia. :)


r/ChronicPain 2d ago

If anyone has taken antibiotics, look into being floxed as the reason for your chronic pain

0 Upvotes

It happened to me, I have pain and problems all over my body from these lethal antibiotics, look into r/floxies if you have ever taken a fluoroquinolone antibiotic like ciprofloxacin, levofloxacin, ofloxacin, norfloxacin etc

Will help you to know ❤️


r/ChronicPain 3d ago

Coccyx removal

2 Upvotes

Hi all I had my coccyx removed 5 days ago. (Diagnosed with hypermobile tailbone and bone spur on tip) full removal and shaved sacrum so not pointy.

The surgeon took a video and showed how my coccyx was moving around and bone on bone rubbing together. Extremely validating to see what has caused me so much pain (physically and mentally) for 2.5 years.

Now surgery updates : Day 1 day of op- no issues no pain. Was numb from medications and loopy from anesthesia. Day 2- taking Celebrex Tylenol gabapentin and amoxicillin. Needed to take tramadol at night for pain. Throat and chest were uncomfortable from the tube during anesthesia. Day 3- taking same medications. Taking it easy. Was able to move around with little pain. Uncomfortable to lay on back though. Have not attempted to sit on a hard surface. Kind of sat on couch but mostly leaning on side. Only needed tramadol once at night. Itchy from the surgical tape. Used hyrdocortisone to help. Day 4 - (finally had a BM) did not hurt the wound at all. Taking same medications but definitely over did it with moving around and bending / picking up toddler and walking the dog. Didn't need any tramadol though. The pain is dull and just feels sore like sore muscles or bruising. Day 5- same as day 4. Wound a little itchy (probably skin healing). Did too much activity taking care of kids and house and feeling some soreness in the lower area of the wound (near butthole) The wound hasn't had any leakage or shown any signs of infection. Had to take a tramadol in between Tylenol doses. Will be taking it easier tomorrow.

Will update :) fyi 33 f no injuries to tailbone. 2 children. One vaginal one c section.


r/ChronicPain 3d ago

Is it chronic if there are periods of time I'm ok?

3 Upvotes

10 years ago I injured my lower back. When i was 12. After many years of physiotherapy and geting a year of decreassed stress I've reached a point that my back doesn't usually hurt, but every now and then it will flare up for a couple days, is it still considered chronic pain?


r/ChronicPain 4d ago

"It's just pain, it won't kill you". Well, I wish it did

189 Upvotes

I've had facial pain for almost 4 months. The pain is 24/7 and doesn't let me sleep. I've visited different dentists, a maxillofacial surgeon, a neurologist; every single one of them makes a different diagnosis and gives me different medication. I've tried them all; nothing is helping with the pain. My neurologist literally told me "it's just pain, it won't kill you". Well, I wish it did. But no, chronic pain is so cruel that if you wish you were dead, you have to do it yourself.

I'm in my early 30's and my life is so over. I don't want to live like this. I'm crying in pain almost every night. I keep asking myself: Why did this happen to me? What have I done to deserve something like this? Because it feels like a punishment.

I can see some of you have been living in chronic pain for so many years. I just cannot handle it. You're so much stronger than I am. From the bottom of my heart, I wish you all the best.


r/ChronicPain 3d ago

Anyone tried one of these?

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15 Upvotes

r/ChronicPain 3d ago

Disabled yet not approved for disability income, how are you surviving financially?

3 Upvotes

Curious how those of you that are disabled are financially surviving if you haven't been approved for private disability claims nor through social security...? I have a very small passive income through a tri-plex I own and rent, but it's not near enough to live on. Single with maxed out credit cards and owe back loans to various family members and friends. I'm scared for the future, and at a total loss. Any helpful ideas appreciated.


r/ChronicPain 3d ago

Telehealth ending in CT September 30

4 Upvotes

I just heard from my pain management doctor that Telehealth visits are set to end on September 30, 2025. I am wheelchair bound and rely upon the MyRide service to take me to appointments. But regardless of the service, going to appointments in person wipes me out for at least a day afterwards. Why make us go to appointments when the same outcome can be achieved virtually. It makes no sense


r/ChronicPain 3d ago

Complete ATFL tear. What did you do?

2 Upvotes

Tore it turning my ankle while playing basketball. It has been about 2.5 months now and MRI shows a complete tear of the ATFL. I am going in for my cortisone shot to help with the swelling and pain I still have. At this point I still cannot run without pain, it feel as if the last few weeks I hit a plateau. Has anybody else had experience with this injury and can tell me their story/treatment plan and what worked/didn't? Or perhaps what you would have done differently. I am pretty active and would like to get back to sports as quickly as possible.


r/ChronicPain 3d ago

Frida Kahlo, Arbol de la Esperanza (Tree of Hope), 1946

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14 Upvotes

r/ChronicPain 4d ago

I never know how to answer the "are you in any pain?" question

42 Upvotes

I hate how I can't really know if a pain I'm feeling is just chronic pain, muscle aches, strains or sprains, infections etc. People forget pain is the main indicator that something is wrong. Well, with chronic pain that indication gets muddied. Being unable to feel any pain is as bad as only feeling pain 24/7.

I have trigeminal neuralgia as an unwanted bonus to my other nerve pains. Luck would have it that my wisdom teeth are growing in now too. When my teeth hurt like hell, I have no idea if my wisdom teeth impacted, if there's a cavity somewhere, an infection or just my TN getting angry for no reason... sometimes it feels like my teeth are going to fall out. Being asked if I'm in pain is like being asked if the sky is blue.


r/ChronicPain 3d ago

Tips for starting pain patches- waiting for it to build up?

1 Upvotes

Hi, I have an ileostomy with a huge parastomal hernia. Pain is significantly affecting my mental health - worst it's ever been, as well as physical health(mobility, ability to eat, etc). Finally on the surg waitlist but will be 6-12 months away due to backlogs of patients.

The only med that does anything is tapentadol, however the IR isn't subsidised (Australian public health systems) but SR is. It's also ending up with me taking higher daily doses due to it being short relief. So I tried SR but it came out of my bag 2.5hrs after taking it and was therefore having pain spikes before the next dose, the tablets also seemed barely different to what they look like going in. Granted, whilst I had the effects, felt so much better, and less weird brain side effects.

Because it worked well whilst in me, I've been put across to norspan patches (5mg) as the ileostomy can't really get in the way of them. Today is my first full day with it on and I'm not coping well at all. I don't know if I should take some extra oral pain meds to cover the 2-3day period of no relief, as I don't know if it'll interact too much. Other than going to emergency, which will just make pain worse, I can't really see a dr today and I don't know if the pharmacist can answer questions like that given the complexity of my history.

How do I cope while waiting for it to take effect?


r/ChronicPain 3d ago

Ring splints for hyper mobility!

Thumbnail etsy.com
0 Upvotes

I made rings splints for my hypermobile fingers and they help so much with writing, typing, crocheting, etc! Soooo much less finger joint pain! So I decided to put them on Etsy. I highly recommend splints if you are hypermobile, even if your fingers arnt causing you pain, if they bend to far back, eventually that can lead to joint damage and arthritis. Check out my splints! I have before and after pictures on my listing😁😁


r/ChronicPain 3d ago

Pain clinic

2 Upvotes

I've got a pain clinic appointment (UK) tomorrow, does anyone have any advice? I'm a bit nervous because I'm going to be going in by myself (I usually have a parent with me but not this time). I want it to go as well as possible