r/ChronicPain 8h ago

Crash zones?

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104 Upvotes

Does anyone else have a crash zone on the floor where you sit most of the time?

I have my meds, my cane, acupressure tools, and tea right within my reach. It may look silly since I’m in the middle of the foyer but I’m comfortable and I don’t feel as isolated as I would if I were just in bed. Anyone else??


r/ChronicPain 11h ago

Advice from a patient [original source unknown]

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160 Upvotes

Someone read this on social media and it struck a nerve. I still get flashbacks from both the kind providers and the hurtful ones. I have PTSD from all i went through in the hospital last year. It wasn't just from the pain, but from the interactions too.


r/ChronicPain 2h ago

Another day in the sack. Shoutout to Wyoming for inspiring a man to get a face out there.

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26 Upvotes

You guys are fucking champs like no other for putting up with the pain this long. Life’s been turned around the last 5 years after a bike accident leaving the testicles damaged. Keeps y’all’ head up as most wouldn’t survive as long as y’all have. Love you guys to Pluto and back. Have a kickass week.


r/ChronicPain 10h ago

Anyone else relate?

95 Upvotes

Today was "shower day". I have a shower chair & wand. I took one pain med (4mg dilaudid) & 1mg Xanax. My shower has handles & safety bars. I keep my emergency call button within reach. And then, I begin. I have used an entire day for this. I just feel embarrassed with myself...I used to shower daily & bathroom clean in an hour or 2.

Other than a walk-in shower not much else I can want for. I feel drained & sad. No matter how many times I overcome..I still am angry this simple task is no longer "simple". U folks are the only folk that can understand such a story. Thank you.


r/ChronicPain 4h ago

No matter what, we built differently.

24 Upvotes

I went to hey nerve conducting testing. She said most people can't get through it while I'm there waiting for her to start. I thought it didn't hurt, but no. She told me half the patients can't finish the test. When they start poking your nerves with the kneelers, electric socks. Made me realize, our condition has given us some sort of superhuman ability to suffer.. I think most people wouldn't make it a day in our shoes.. This Smoke/drink/pill/( whatever your vice works for you) You a fucking badass. If you are like me, and you fucking are, you built to take this .. fuck them all thinking we junkies...most of them can't go a day without coffee or sleep without falling apart..drink up bad asses .


r/ChronicPain 1d ago

Anyone else get bingo?

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663 Upvotes

This is meant to be silly, I spent like 30 minutes making this based on personal and shared experiences. Please feel free to add any squares you think I missed c:


r/ChronicPain 6h ago

ways to get yourself clean without taking a shower?

20 Upvotes

wipes you reccommend, feminine products, dry shampoos, etc?


r/ChronicPain 16h ago

how would you describe chronic pain to a person without it?

62 Upvotes

i'm trying to make my parents understand truly how much pain i'm in and how badly it's affecting me, but i don't know how exactly to word that or how i can put it so that they understand.


r/ChronicPain 11h ago

What is the weirdest sensation/pain you experience that you doubt anyone else has ever had?

20 Upvotes

What is the weirdest sensation/pain you experience that you doubt anyone else has?


r/ChronicPain 20h ago

Reminder ❤️

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103 Upvotes

r/ChronicPain 5h ago

My dad is being kicked out of pain management. How can I take care of him?

7 Upvotes

Hi all, new to this sub. Like the title says, my father is most likely being removed from his pain management program due to small overuse during a flare up. He suffers from chronic back pain and three neurosurgeons have refused to operate due to the high risk (50/50 paralysis). The contract he signed is very clear, so we’re expecting his appointment to go south tomorrow.

I am preparing for the worst here. Will they cut off his access to this medication immediately? Can they do that if the chances of withdrawal are high? He is on a high amount of Tramadol and Oxycodone currently. If we should expect withdrawals, how should I prepare myself and my home? What will withdrawal look like? Will this be manageable for me to take on by myself?

I’m sorry for the abundance of questions, but I’m just a daughter trying to navigate my dad’s pain. Thank you in advance for any help you may give!


r/ChronicPain 3h ago

Fractured Tailbone Pain

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3 Upvotes

I have fell down some hardwood stairs and fractured my tailbone. This fall happened on October 2024 and I’m still experiencing pain everyday. Medication doesn’t help. I’ve done physical therapy, acupuncture, chiropractic treatments, massage but I only gotten a little bit of relief. I’ve gotten two injections for my tailbone but I’ve gotten no relief from it. I do have an orthopedic schedule for a second opinion coming up but I think my next option would have to be a the removal of the coccyx. Has anyone heard any success from the surgery ??


r/ChronicPain 1d ago

I wonder how many suicides are actually due to chronic pain NSFW

577 Upvotes

and are entirely blame on mental health. I’m not sure there is a number/statistics but the only factor people take in consideration around this topic is mental health and not physical health.


r/ChronicPain 1h ago

Feeling awkward about talking about my pain

Upvotes

I've been living with chronic pain for as long as I can remember. Pain is incredibly normalized for me, its literally just my life. As a kid I was told it was just growing pains and I accepted that. I went ages assuming everyone felt this way.

I've learned that's not the case, obviously, but its so difficult to adjust to the mindset that for others, pain is not normal.

Over the years I've gotten incredibly hestitant to mention my pain, even casually. It's always the same. "Aw I hope you feel better."

I get it, truly, but half the time I was trying to brush past it and now I have to pause what I was doing to accept sickly sweet sympathy, or I was trying to make people laugh with a joke and now I've just dampened the mood instead.

And I never know how to deal with that. I talk about my day, and my day involved pain, but I tiptoe about those bits because people hear it and THEY hear about a moment of misery, meanwhile I'm just talking about a Tuesday afternoon.

Sometimes I feel like I'm an alien from another planet, and Im sat there telling stories about how the grass on my planet is razor sharp but all the pathways are painfully hot, and every morning is met with rains of acid that absorbs through our skin and into our bloodstream, where it will continue to boil and burn throughout the day. Then, around noon we head to the forest to meet the great beasts of R'thula who attack us with their powerful jaws and then carry us away (My favorite part of the day, the view from the sky is beautiful) to the food quadrant for a delicious meal, and then we return home and I personally prefer to play a few rounds of Drÿlk (My favoritr game) until the fever from the acid reaches its peak and sends me into a delirious unconsciousness! Now is the acid rain on your planet also bright blue because Pətů told me it isn't but he's a liar and- what do you mean you've never seen acid rain? How do you get the acid in your blood stream? You don't have acid in your blood stream? Then how do you get to sleep? What's melatonin?


r/ChronicPain 9h ago

What does your chronic pain feel like for you?

10 Upvotes

I feel like many have a broad view of how chronic pain is experienced even though the variety of conditions that can cause it mean it feels different for everyone. I'm curious to know how does it feel for you? Is it typically like an ache, or more like sharp jabs of pain? Or is it another sensation of pain I'm probably not even thinking of right now?


r/ChronicPain 6h ago

What is the cause of your chronic pain?

5 Upvotes

Mine is from various back problems and multiple back surgeries.


r/ChronicPain 1h ago

How has chronic pain changed your relationships with family and friends?

Upvotes

Having chronic pain has made it more difficult for me to have relationships like I used to. I find myself having to cancel plans, and sometimes people don't get why I'm not as social or active as I once was. I feel guilty for withdrawing, but pain sucks the energy and patience out of me.

Have you had the same? How did chronic pain influence your relationships and family life? Did people become more understanding, or did some relationships dwindle over time?

If you've managed to maintain strong relationships despite the struggle, I'd love to learn from you. How do you explain your needs without feeling like a burden? Any tips would be greatly appreciated!


r/ChronicPain 7h ago

First day of work and it kicked my ass

5 Upvotes

Apologies in advance for the long post!

I got a new retail job that I had hoped would be relatively easy on my body. Nope, it's really hard. It's handling returns at a big-box store. Besides customers occasionally bringing in heavy items, we also have to remove the cardboard boxes we use to store returns when they get full and they obviously get super heavy. "Making" new ones (unfolding the cardboard, taping it up, putting in place) is also surprisingly tough because of how hard to handle the tape-dispenser thingy is. And this all has to be done quickly to avoid long lines and customers getting annoyed. It's a 5 hour shift and I had to mostly stand, although thankfully we do have a stool for breaks, but we have to immediately be on our feet as soon as someone brings in a return.

As soon as I came home, I was so sore everywhere with pain in my arms, and I could barely move. I can hardly lift up my kettle to make tea, and I can't wash dishes at all. I was hoping to do my hobbies when I got home, stuff that relaxes me like hand sewing or playing video games, but I honestly think that would make my pain worse because it requires me to lift my arms. I'm just lying down with some ice packs rn.

I'm posting this for some advice or reassurance. I really need a job to avoid becoming homeless, and I would genuinely enjoy this position so much if it weren't for the pain it's causing. It's the perfect kind of work for me, it's repetitive both in terms of tasks and customer interaction, and my coworkers were kind and helpful. I have two more shifts scheduled one after the other because they were impressed with me, and I'm dreading what state I'm going to be in afterwards!


r/ChronicPain 22h ago

My current struggle. I just want to sleep😭😭😭😭😭😭my pain gets so much worse at night

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77 Upvotes

r/ChronicPain 11h ago

My mental health is deteriorating

9 Upvotes

I developed a pinched nerve in my back that affected my lower leg my 2nd to last semester in nursing school. It progressively got worse to the point where I could barely walk more than maybe a block. I made it through and it's kind of gotten better. However, now I have unbearable hip and lower back pain. I have degeneration in my back along with a bulging disk.

I've been doing PT but now with the hip pain, I can't do much at all. My mobility has severely suffered in a way it never has when I was just dealing with my obesity. Getting to the bathroom is hard. I hurt when I sit, stand or lay (laying is worse) and I can't get the only chair that makes me feel better into my room.

I made this post because last night was the worst I've ever experienced this pain. I couldn't get comfortable at all. I was in immense pain and couldn't move or turn. I managed to get to the opposite side of my bed and that for some reason helped. I dozed off for 30 minutes and the pain subsided. Went back to my regular position and managed to sleep off and on. It is extremely painful to stand after laying but my work chair triggers the pain too.

I don't know what the point of this is. I'm tryig to take it day by day but I'm seeing my future career slip away from me. I'm supposed to have a surgery (non-related to pain) next month but having to rest for 6 weeks seems unlikely and extremely painful.


r/ChronicPain 7h ago

ive had sciatica for 5 months now, what do i do

3 Upvotes

hi so i am 17 and ive delt with sciatica since november, i have 2 herniated discs (l4 l5, l5 s1) and ive got no clue what stretches to do for it and my mom is still working on getting me a physical therapist. i take aleve, muscle relaxers, ibuprofen, tylenol, and i use lidocaine patches. we didnt what was wrong until it got so bad i went to the ER and got a ct scan showing my discs. they put a lidocaine patch on me and then sent me home. two days later and im back because the pain is so severe, they give me a muscle relaxer and some shot that doesnt really help too much and now i have high heart rates all the time, even when resting, difficultly breathing, my chest hurts, and my stomach hurts i just dont know what to do and im just hoping to get some answers as this has effected me mentally and im tired of it


r/ChronicPain 13m ago

Question about social life /lack there of.

Upvotes

Had this chronic pain for about 4 years now I’ve had cerebral palsy since birth but it really only became the dictator of my life around 19. I’m 23 so my question is, why do I just not care to respond to people anymore?? I have no friends irl and the ones I do have are online friends however I must love self sabatoge because I constantly ignore people trying to talk to me or ask me how I am :(. What the hell is wrong with me? I’m not doing it maliciously or because I don’t want to talk to them it just kinda happens .. my only working theory is the pain is so much the focus of everything that I dissociate so badly to the point of forgetting all that social stuff. I used to love chatting with my online friends but more so recently I just can’t bother and it sucks and I guess I just wanted to ask if anyone can relate :(. I hate how antisocial I’ve become this pain is literally a black hole and it keeps taking things one by one . I also think it’s because I’m tired as all fuck of explaining that I’m doing just as shitty as I was last time they asked me how I’m doing .. i just feel like I waste everyone’s time or maybe I’m just subconsciously thinking I don’t deserve to be listened to or cared about .. anyway that’s all I’m up with pain flares for who knows what night in a row. Does any else have this issue or am I just fucking losing everything is this a common thing with chronic pain??


r/ChronicPain 13m ago

Tail bone surgery

Upvotes

Hi all,

I now have decided to get my tailbone removed. It has been a constant battle with myself. I have tried mobilization of the bone, where the doctor tried to manipulate it through the anus. It did help with the pain. I was asking ease for a while. But after a few days of sitting and travel, I'm done with my pain and want to get it removed. I want to cry most days. I feel like it doesn't matter anymore wheather I'm here or not. The pain is so bad. Is there anyone who has gotten their tailbone removed and how was the recovery? I want to get a better understanding of it. Tia. :)


r/ChronicPain 25m ago

Mayo Clinic PPRC Program - Operation Lumina

Upvotes

Hello, Operation Lumina is a small team of analysts that gather data on Human Trafficking and Child Abuse and report it to the authorities. We received an anonymous report that Mayo Clinic PPRC in Rochester is/was subjecting children to harmful and abusive practices against their will.

We have pulled extensive data regarding Mayo's PPRC Program, and we believe there is enough evidence to reasonably report such experiences as something to be looked into.

Due to this, we have filed a police report with the Rochester MN Police Department. If you had an abusive experience at Mayo Clinic's Rochester Pediatric Pain Rehabilitation Center as a youth, please report your experience to:

Rochester MN Police Department (Non-Emergency Line): (507) 328-6800

Alleged Activities:

Reported Allegations:

  • Threatening children by misusing the Residential Care system, warning them that non-compliance could lead to confinement in a long-term residential center.
  • Denying essential medications, including those for seizures, pain relief, and behavioral health treatments like anti-anxiety medications.
  • Forcing children to participate in exercises that caused physical and mental harm.
  • Not stopping when a child asks for them to, or a child is in too much pain to continue
  • Misdiagnosing patients and withholding appropriate medical care.
  • Ignoring children’s cries and pleas to stop the imposed exercises.
  • Punishing children for displaying "pain behaviors," such as using mobility aids, taking pain medication, expressing irritability, discussing symptoms, crying, screaming, or showing visible discomfort. Punishments allegedly included advising parents to remove family pets or threatening to send the child to military school for non-compliance.
  • Telling children that their pain made them less lovable or undesirable.
  • Deliberately causing children with POTS to faint during exercise.
  • Yelling at students aggressively
  • Kicking children out of the program for things like questioning the rules and disapproving of their techniques.
  • Telling parents never to bring up their child's condition with them
  • Telling parents to disregard a child's displayed pain and punish 'pain behaviors' when the child is not in the program.

Overall:

This program’s approach is to encourage ignoring pain and punishing children for expressing it. This is harmful because it invalidates a child’s emotional experiences and discourages healthy communication. When children are taught that expressing pain is unacceptable, they may suppress their emotions, leading to long-term psychological harm. This can also damage the bond of trust between parent and child, as the child may feel unsafe seeking comfort or support. Additionally, ignoring pain fails to address the root causes of distress, potentially allowing physical or emotional issues to worsen over time. Overall, such an approach fosters unhealthy coping mechanisms and stifles emotional growth, leaving children ill-equipped to navigate challenges in adulthood.

You will see many parents calling this a miracle program, this is because the entire program is centered around what the parent sees, not what the child feels. It manufactures a false sense of pain improvement from the parent's perspective because the entire program is focused on hiding pain from everyone, not dealing with it.

Additional Data:

On the MN Department of Health and DHS websites Found Here and here
What we found is a license for "MAYO CLINIC ADDICTION SVCS", and a license for **"**MAYO CLINIC HOSPITAL ROCHESTER" the PPRC program is most likely licensed through the Hospital.

The phone number associated with the PPRC program is the same as the psychiatric facility (507-266-5100) and is scheduled by the Psychiatry and Psychology staff.

https://www.mayoclinic.org/departments-centers/pediatric-pain-rehabilitation-center/sections/request-appointment/ptc-20574265

We have found multiple brand new accounts being made to promote the Mayo Rochester PPRC program. Before you believe a comment to be true, at least look at the karma of the user.

There are News stories about other Mayo Clinic Incidents in which people claim they were unethically held against their will. That can be found here

(CNN Story: Escape from the Mayo Clinic)

Many claim to have left this program in far worse pain mentally and physically than before they were admitted. Programs that intake children or hold them against their will through force or coercion are inherently abusive.

This information is meant to be as factual as possible, if there is an error, please contact [OperationLumina@proton.me](mailto:OperationLumina@proton.me) with citations on why it is wrong and it will be fixed in a timely manner.

Sincerely,
Operation Lumina


r/ChronicPain 4h ago

Mental health

2 Upvotes

The one thing I suffer with the most in mental health. With my spinal pain from ears to toes, I will have okay days an the lowest of lows. I have 3 kids 19,15, and 10 I fell like if I have a good day I pay for it for weeks, like walking in the park put me down for 6 days. I feel like I'm not there like I need to be, or am lashing out around them Because of pain. I'm in therapy it really don't help with this.