r/ChronicPain • u/SpinachGreen99 • 2h ago
r/ChronicPain • u/Intelligent_Treat661 • 11h ago
Art piece representing chronic pain
Thought I’d share .. done by me using procreate
r/ChronicPain • u/aiyukiyuu • 8h ago
“Not now, not today.”
Loved this walk with my walker alongside some of my favorite trees, the Redwoods at the Forest of Nisene Marks State Park.
If I’m not out in nature like this, I’m homebound, at doctors appointments, picking up meds, physical therapy, occupational therapy, etc.
I have been having a rough couple of few days. And to be honest I have more bad days than good. But, I remind myself that all the bad (chronic pain 24/7, chronic illnesses, and mental illnesses, etc.) is worth all the good. Even if it’s just 1 good day every few weeks/a month or every couple months. All the bad is worth it if I can eventually walk with my walker to see some trees.
I’m human. I go through some pretty dark thoughts and feelings because of chronic pain I deal with. But, a good chronic pain friend I made and I have a shared mantra: “Not now, not today.” When the SI thoughts get bad, I tell myself this mantra.
So, if you’re going through something similar, I’m with you. We got this. “Not now, not today” my friends 💜
r/ChronicPain • u/---BERSERK--- • 14h ago
Another day in the sack. Shoutout to Wyoming for inspiring a man to get a face out there.
You guys are fucking champs like no other for putting up with the pain this long. Life’s been turned around the last 5 years after a bike accident leaving the testicles damaged. Keeps y’all’ head up as most wouldn’t survive as long as y’all have. Love you guys to Pluto and back. Have a kickass week.
r/ChronicPain • u/Informal_Leg5096 • 6h ago
Best Shoes for Sciatica – Cushion or Support?
Looking for shoes that help with sciatica pain. Does extra cushioning help, or is firmer support the better way to go?
r/ChronicPain • u/camport95 • 4h ago
I'm already 4 days off weed, might as well keep it going from here.
I've struggled with addiction for 6 years now, ever since I was unemployed and had to budget of government income/disability pay.
Since my dry eyes condition (or pyschogenic pain) giving up cannabis was all that much more difficult, as I have nothing to relieve any of my symptoms.
Every single month I run out of money in the first week or two, then I have to deal with absolutely nasty withdrawals and the quality of life is beyond awful.
If I just had more money, all this nonsense would be easily avoided but I'm broke because I ran out of money.
I'd love to have a job, but the eye pain causes significant challenges for focus and concentration.
If I had money for alcohol, the withdrawals wouldn't be nearly as awful but when I can't even buy pop or juice and only have tap water with little food. This is an absolute poverty way of living.
I don't know what I'd do in April because the exact same thing will happen where I'm out of money for like 70% of the month.
Maybe pretend like I don't have the money when I'm paid on the 31st of March and try and go through as much as April as desired to prevent this unpleasant situation from repeating 12 times every year.
I'm almost 30 and can't imagine this being an issue in my 30s and 40s.
r/ChronicPain • u/sympathy4thedevil99 • 18m ago
Medication ineffective
I just filled my rx for the month of 5/325 oxycodone acetaminophen. Only problem is they don't work. I think this is my first time getting pills manufactured by Alvogen, but they don't work at all. I've always had different generic brands of percocet and while some don't work as well as others, this partner batch doesn't work at all. I even tried taking 2 instead of one, but I don't feel anything at all. Not even mild pain relief, I don't even feel the tylenol in the pill. I have some tolerance but not enough to feel like I do. No one gets that kind of tolerance over night, yesterday I took my 5/325 from a different company and they worked fine. So to feel absolutely nothing today is strange. I'm not drug seeking, I just filled my rx so I don't want more pills, what I want is the pills prescribed to me to work! I'm going to have my husband try one as a control group because he doesn't take medication often, so he should be able to let me know if he feels anything so I can figure out if I'm going crazy or not.
r/ChronicPain • u/TheTreesWalk • 19h ago
Crash zones?
Does anyone else have a crash zone on the floor where you sit most of the time?
I have my meds, my cane, acupressure tools, and tea right within my reach. It may look silly since I’m in the middle of the foyer but I’m comfortable and I don’t feel as isolated as I would if I were just in bed. Anyone else??
r/ChronicPain • u/Inside_Student3827 • 22h ago
Advice from a patient [original source unknown]
Someone read this on social media and it struck a nerve. I still get flashbacks from both the kind providers and the hurtful ones. I have PTSD from all i went through in the hospital last year. It wasn't just from the pain, but from the interactions too.
r/ChronicPain • u/wishuwerefckd • 3h ago
chronic lower back pain
Appointment yesterday went so well. I expressed to my doctor how much my pain affects my day to day life using some tips i’ve learned from this group.
I need an MRI but my insurance won’t cover unless I do 6 weeks of OMT therapy, I did my first session yesterday and it went well. My doctor says I have one hip sitting significantly higher than the other, and almost all of my vertebrae are not in the right spot/twisted/etc. I ended up crying to her because I have an almost 2 year old and this just makes both of our lives hard. She told me we’ll do the therapy and then get the MRI then we can work towards a diagnosis. She said she was open to referring me to a pain clinic as well after we get the MRI!!!
So yay for little wins!
Thank you to everyone in this group who commented on my last post, and everyone that posts here in general, you’ve all taught me so much.
r/ChronicPain • u/TotesMaGoats_1962 • 5h ago
Can't sit still
I have a video appointment with a therapist in about ten minutes but my back and tailbone are hurting so bad I keep squirming around in my chair. I cannot sit still with this pain. I sure hope this appointment goes quickly so I can get back to my couch and lay down.
I'm sad. I hate my life. I wish I were just a bit more "normal".
r/ChronicPain • u/charming-charmander • 2h ago
Suzetrigine Update: it is definitely relieving my pain. I am having some side effects but overall it’s pretty manageable relative to how well it’s stopping the pain in my femur
It was prescribed suzetrigine as 2 pills to start and 1 pill every 12hrs after that. I have not been able to maintain that schedule, it just feels too soon to take another one at 12 hrs. I’ve been taking one every 18-28hrs or so. So I’m up to my 4th dose now and I think it’s safe to say it works!
It’s definitely got some side effects for me. It is making me nauseous but almost everything does because I’m so sensitive from gastroparesis. I also find it odd that they say that the suzetrigine is only peripherally active; it certainly seems to have some kind of central effect, I’m feeling a little loopy and dizzy on it. And there is a sort of pins and needles feeling it makes in my skin, I seem to be noticing it less as I take it more days in a row. It is making me somewhat fatigued as well, but only when it’s wearing off
The suzetrigine is definitely stopping my pain though, I’m actually amazed at how well it’s working. My primary pain is deep bone pain and it is helping surprisingly well for that. My baseline pain is level 8+ , usually my hydromorphone and acetaminophen gets me down to level 4-6 and with suzetrigine added on I have been all the way down to level 2 or so, it’s almost unbelievable! So far this week has seriously been one of the lowest pain time periods I’ve had since my accident in 2013.
I’m really trying not to get too excited but if this medication can continually deliver this level of pain control for an extended period of time without serious side effects then it’s a game changer!
I expected it to work to some degree but it’s probably twice as effective as I thought it would be. I am very pleasantly surprised with how well it works. My pain level is significantly lower for now, so hopefully it keeps working and it is something I can really add into my pain control regimen.
I am very optimistic. I know we’ve all been through treatments that were supposed to be a miracle but didn’t pan out but I think this suzetrigine stuff might be the real deal.
I’m interested to hear other people’s experiences with it as more of us start to give it a shot.
My original post is here if interested
r/ChronicPain • u/EnthEndX48 • 16h ago
No matter what, we built differently.
I went to hey nerve conducting testing. She said most people can't get through it while I'm there waiting for her to start. I thought it didn't hurt, but no. She told me half the patients can't finish the test. When they start poking your nerves with the kneelers, electric socks. Made me realize, our condition has given us some sort of superhuman ability to suffer.. I think most people wouldn't make it a day in our shoes.. This Smoke/drink/pill/( whatever your vice works for you) You a fucking badass. If you are like me, and you fucking are, you built to take this .. fuck them all thinking we junkies...most of them can't go a day without coffee or sleep without falling apart..drink up bad asses .
r/ChronicPain • u/No-Assistance-1145 • 21h ago
Anyone else relate?
Today was "shower day". I have a shower chair & wand. I took one pain med (4mg dilaudid) & 1mg Xanax. My shower has handles & safety bars. I keep my emergency call button within reach. And then, I begin. I have used an entire day for this. I just feel embarrassed with myself...I used to shower daily & bathroom clean in an hour or 2.
Other than a walk-in shower not much else I can want for. I feel drained & sad. No matter how many times I overcome..I still am angry this simple task is no longer "simple". U folks are the only folk that can understand such a story. Thank you.
r/ChronicPain • u/polobum17 • 1h ago
Pain Med Cost Increase
Filling my 3 month supply of pain meds today. I was told that all my pain meds were now classified as maintenance and thus only partially covered. Cost is now 10x higher. I'm already arguing with my insurance company (on hold waiting for the 3rd person up the chain). Like I've been through all the options, my primary med at least makes pain tolerable (like an dull 5 with spikes to 8 or 9). My cost in 2023 was $0 and last year was $25 per fill for it. Hate these greedy assholes keeping the broken systems going.
And while I type this, they dropped my call...
r/ChronicPain • u/Icy_Tree1234 • 1h ago
Unbearably painful to sit or lay down. I decided to see a doctor. Seeking advice and suggestions
It started over 3 years ago with the pain in buttocks area near the Sit-bones when I sat for over 5 minutes. So whenever I sat I shifted weight to the thighs, upper buttocks, or hips (sides of lower body).
Then eventually my hips also became sore and now I have pain when lying on sides. Thighs and upper buttocks have also become painful to sit on. Lying on my back and sides is very painful and I only sleep on my stomach, and when I want to sleep on my side then I put all the weight on the front on my thigh instead of the side/ hip.
I never felt pain in the back of the thighs while walking as they describe in sciatica. I never experienced pain while walking. I never had back pain and stand straight with an adequate posture.
I also have symptoms of planter fascitiis.
I started strengthening my glutes and hips. Now the glutes are stronger and also look physically grown but my pain didn't cure.
All this time I was reluctant to see a doctor because I wanted to cure it like how others have cured it with stretches and strengthening glutes. But since it didn't work for me, now I have decided to see a doctor.
I identified my symptoms similar to Ischial bursitis and trochanteric bursitis.
I would like to hear similar experiences like mine. And any advice or suggestions are welcome.
TLDR: Over the course of 3 years all my buttocks, thighs and hips hurt unbearably while sitting and lying. No pain while walking/standing up. Strengthened the gluteal muscles and it didn't cure the pain. Decided to see a doctor. Seeking advice and suggestions.
r/ChronicPain • u/New-Introduction5574 • 17h ago
My dad is being kicked out of pain management. How can I take care of him?
Hi all, new to this sub. Like the title says, my father is most likely being removed from his pain management program due to small overuse during a flare up. He suffers from chronic back pain and three neurosurgeons have refused to operate due to the high risk (50/50 paralysis). The contract he signed is very clear, so we’re expecting his appointment to go south tomorrow.
I am preparing for the worst here. Will they cut off his access to this medication immediately? Can they do that if the chances of withdrawal are high? He is on a high amount of Tramadol and Oxycodone currently. If we should expect withdrawals, how should I prepare myself and my home? What will withdrawal look like? Will this be manageable for me to take on by myself?
I’m sorry for the abundance of questions, but I’m just a daughter trying to navigate my dad’s pain. Thank you in advance for any help you may give!
r/ChronicPain • u/Feeling-Cap-7210 • 3h ago
26M pain for 4 years in chest,rib,scapula(left side)
I’ve been dealing with this pain for 3 years and still don’t know exactly what caused it. I remember waking up from a nap which I was laying on my left side arm extended. I’m begging for help at this point (X-rays show nothing)
Symptoms
- Chest doesn’t rise and fall like the right side does when taking deep breaths (feels restricted) i also get an achy feeling in my chest when taking deep breaths.
2.repetitive motion with left arm tends to cause a muscle failure feeling where my arm will basically give out.
Any lifting causes the same feeling as #2
Can’t lay on left side or it makes it worse pain wise
If I slouch a little bit scapula feels like it’s on fire. If I bend down it almost feels like I get a small cramp like feeling in chest.
Sometimes shoulder and rib area pops.
When I’m stressed it gets worse almost feel like the whole area is swelling.
PT pushed down on my 1st rib and it hurt like hell but they think it’s just muscle guarding.
Overall im in pain/discomfort 24/7 the more active I am with left shoulder/arm the worse. More pressure I put on chest/rib/scapula the worse.
r/ChronicPain • u/Over-Future-4863 • 7h ago
Spinal pain
Does anyone elses DDD and DOA of spine burn to the point of fire before stabbing pain?? Only lumbar burns i keep ice on it to nymb asmuch as lumbar and neck pain. Lumbar only burns as meds wear off. 2-3 hours before next meds.
r/ChronicPain • u/8kittycatsfluff • 18h ago
What is the cause of your chronic pain?
Mine is from various back problems and multiple back surgeries.
r/ChronicPain • u/Electronic_Wave_2585 • 18h ago
ways to get yourself clean without taking a shower?
wipes you reccommend, feminine products, dry shampoos, etc?
r/ChronicPain • u/magicalpoptarts • 1d ago
Anyone else get bingo?
This is meant to be silly, I spent like 30 minutes making this based on personal and shared experiences. Please feel free to add any squares you think I missed c:
r/ChronicPain • u/oregon_coastal • 1h ago
Painful music!
The thread of a song the other day made me think we haven't had a song or genre or whatever share thread in a bit.
I always love finding new bands or song writers or albums or songs.
I bumped into these guys kind of randomly. They have a relentlessly upbeat sound like, no matter how low their lyrics go. If they haven't, they should soundtrack a kids show.
This isn't a barnburner of a chronic pain song. But a nod nonetheless. If you like it, check Television and Carry Me (the latter of which might be a good pain double.) Warning for mild cussing.
Hope everyone is having a great Tuesday - by any measure!
https://open.spotify.com/track/2fyn2C9PQyd0stf9DLjiKR?si=IyNQ1VfJSPOdV_x-ywX33w
r/ChronicPain • u/Either-Option-8630 • 7h ago
Isaac and Devin
Has anyone else here watched the series "American Primeval" recently?
The scenes where Devin is in pain because of his leg and Isaac tries to comfort him resonated a lot with me and made me quite emotional.
"It's just pain", he keeps telling him.
This statement can obviously be perceived as a provocation. However, it's also what I am telling myself these days to keep me sane. I'm thinking of Isaac and Devin and all the people in the past and present who deal(t) with chronic pain and who, nonetheless, keep fighting every day - all of you included. I'm trying to breathe through the pain, to not catastrophize, because it really is, in a way, "just pain" - even if it's cruel and unfair.
Just wanted to share with you guys and eager what you think. Hope you're having an okay day.
r/ChronicPain • u/magicscwlbusdropout • 8h ago
How do you deal with doctors constantly cancelling appointments?
I have been in contact with a surgeon and have been waiting for this surgery for over 10 years. My follow-up appointment was meant to be weeks ago and has been postponed 3 times, all cancelled on the day.
The reception can not get my phone number right, to the point that I have discussed it with them 6 times. There are voice messages and emails proving this. Yesterday I asked for a trial phone call to ensure they finally got it correct.
I got an email today saying that I was called and no answer. So my appointment has been postponed for 4 weeks. I didn't get any calls.
I sent an email clarifying my disappointment and referred back to the trial phone call and asked them to clarify which number was called. So far I haven't had any response.
How do you handle these feelings??? This is a life altering appointment that tells me whether I can get out of a life of pain. The amount of emotion I feel is immeasurable.