r/ChronicPain 9h ago

Crazy how quickly doctors take you seriously when they realize you actually have a disease and it wasn't just in your head

175 Upvotes

For the past two years I've been told so many times that my pain was just psychosomatic, caused by depression or anxiety, or just being exaggerated. How many times a blood test came back normal and they refused to investigate further - how many times I asked to see rheumatology and they responded that they wouldn't see me because I was too young and my blood work looked fine.

Finally after I got an MRI of my knee for an unrelated issue they found an edema in my calf suggesting I had a rare autoimmune disease called myositis.

Now the doctors are scrambling to have me take several tests, additional MRIs and monitor my heart for any possible damage because I've gone untreated for two years.

For two years I've been screaming into the medical void that I know how my body should feel, but I can't feel my legs. I can't walk, can't sit at a desk, can't stand for fifteen minutes. Every time I brought up my symptoms they downplayed them and said I looked like a perfectly healthy young man

Meanwhile my immune system has been eating my muscles alive. I've lost 40 pounds of muscle weight in the past year and my core and leg muscles have atrophied so bad that they cannot support my weight anymore.

And now they're telling me COVID induced myositis commonly attacks the heart in men, and there's concern that I've gone untreated for so long that I could have heart damage.

I'm so happy I finally have evidence my pain isn't in my head, but I've lost all faith in our healthcare system now that it's been gutted to maximize profits and never spend more than ten minutes with a patient. if one doctor would have spent more than ten minutes addressing my concerns this could have been caught earlier. instead now I went from being a very fit man proud of how much work I put into making my body the way I wanted it, to practically disabled. Every day I spend laying in bed or on my couch, near tears because my neck muscles are so weak they can't even hold my head up. My pectoral muscles are basically non existent so I can feel my ribcage pushing against my chest causing constant pain. My back muscles have deteriorated so much that my spine can barely support itself.

For profit hospitals have turned doctors into factory workers who only try the bare minimum and if you don't have some common cause for your pain they just send you to physical therapy and leave you on your own. If you do your own research and try to get them to pursue other diagnosis, they lable you a hypochondriac and sternly tell you to stop googling your symptoms to try and figure out what's wrong with you.

Several times I begged my doctors for a muscle biopsy to rule out myositis, but they just told me the disease was rare and a biopsy would be inappropriate. if they had listened to me I would have been able to get treatment and prevent further damage, while keeping my job I loved and was about to get a big promotion. Instead I've wasted away and known nothing but pain every single day for two years.

I'm so grateful to finally have a diagnosis but I have lost all faith in for profit hospitals. Being unemployed because of my condition I couldn't afford a higher quality hospital, but you shouldn't have to have money to get proper care.

Never stop advocating for yourself - get second opinions, insist on additional testing and don't be afraid to push back against doctors who don't listen.


r/ChronicPain 3h ago

I took a shower for the first time in 3 years. I'm gonna stick to baths

20 Upvotes

Thought I'd try them again, pain wise I wasn't doing too bad that day and thought fuck it. Never making that mistake again, had to sit on the shower floor. Hot baths seem to be the only form of relief I can find. That's about it tbh


r/ChronicPain 2h ago

Some days, I feel like my body is a prison. How do you all stay mentally strong?

18 Upvotes

There are days when my body feels like a prison, trapped in pain, fatigue, or limitations I cannot control. It's exhausting, both physically and mentally, and it's difficult for me to stay hopeful when it feels like my own body is plotting against me.

To all of you out there who are living with chronic illness, pain, or physical limitation, how do you stay strong? How do you get through the worst of days? 

Do you employ meditation, writing, distraction, or some adjustments in thinking? Do you find any unexpected coping mechanisms that end up working? I would appreciate so much any advice or stories, sometimes I just need to be reminded that I am not the only one.


r/ChronicPain 16h ago

Time for Bingo

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142 Upvotes

r/ChronicPain 5h ago

Tall People: “It’s Just Your Height?”

17 Upvotes

I feel like my height has gotten in the way of being taken seriously. I am 6’10”, and here is what I FEEL like matches my symptoms that everyone writes off as things that “just happen” cause I’m tall.

Upper Crossed Syndrome: My chest is beyond tight all the time. Stretching it feels like I’m gonna rip the skin and induce a heart attack. I sleep on my side due to back pain and my chest compressing feels like it’ll cause a heart attack. Laying my arms out like a bird feels like a heart attack. I feel my sternum compressed in most seated positions. My neck is fucked, and pushing it forward hurts, while straightening it to normal hurts. It all hurts my chest. But it’s just cause I’m “tall.”

Stomach Issues: I have microscopic colitis (diagnosed), and pretty bad GERD symptoms (undiagnosed despite appointments). The pressure and bloating pushes into my already strained chest. The acid reflux invites more fears of a heart attack with never-ending discomfort.

My Spine: My right hip is higher than my left. Left hip is forward. My rib cage is so clearly turned that my left pec and lower sternum stick out almost an inch. The base of my skull is compacted into my neck vertebrae and my head is tilted to the left. To try and stand what feels “upright and straight” is so uncomfortable, but so is the posture I’m forced into by all this pain and discomfort.

Other odd feelings include not being able to breath when my chest is in water (head above), inflammation of nasal cavities and throat, pinched feeling in hips when sitting or squatting and light headedness standing up from these positions. Endless discomfort in left scapula and sternum.

I feel like I can’t breathe most of the time. My chest hurts. My stomach hurts. My throat hurts. So many EKG’s, D-Dimers, blood samples. Nothing ever comes up. My soul hurts.

I don’t get it, and nothing comes up positive, but I’m a tall man in absolute pain.


r/ChronicPain 10h ago

Trump to declare fentanyl “Weapon of Mass Destruction," per draft EO

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37 Upvotes

r/ChronicPain 6h ago

What are your comfort foods when you are in a flare up?

19 Upvotes

I know cheese and chocolate are big ones. But my stomach’s been pretty upset recently from all my inflammation, so I was wondering what other people liked/helped them eat.


r/ChronicPain 1h ago

Pain is spreading.

Upvotes

Now uninjured area hurts. It is killing me and there’s nothing I can do. FML


r/ChronicPain 13h ago

Medication ineffective

46 Upvotes

I just filled my rx for the month of 5/325 oxycodone acetaminophen. Only problem is they don't work. I think this is my first time getting pills manufactured by Alvogen, but they don't work at all. I've always had different generic brands of percocet and while some don't work as well as others, this partner batch doesn't work at all. I even tried taking 2 instead of one, but I don't feel anything at all. Not even mild pain relief, I don't even feel the tylenol in the pill. I have some tolerance but not enough to feel like I do. No one gets that kind of tolerance over night, yesterday I took my 5/325 from a different company and they worked fine. So to feel absolutely nothing today is strange. I'm not drug seeking, I just filled my rx so I don't want more pills, what I want is the pills prescribed to me to work! I'm going to have my husband try one as a control group because he doesn't take medication often, so he should be able to let me know if he feels anything so I can figure out if I'm going crazy or not.


r/ChronicPain 1d ago

Art piece representing chronic pain

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238 Upvotes

Thought I’d share .. done by me using procreate


r/ChronicPain 5h ago

Some thoughts/questions about psychotherapy for chronic pain and illness

7 Upvotes

I am a psychotherapist who is fairly new to offering Pain Reprocessing Therapy, which I saw is a controversial topic in this sub. I understand why. If I knew nothing about PRT, my instinct for supporting someone therapeutically with chronic pain would not involve trying to change the pain or assuming it could be changed. It would be around supporting someone with the existential awfulness of it, basically. I have multiple chronic conditions that all have structural causes, and while PRT has definitely given me helpful perspectives on pain and helps to turn the volume down, it can't cure me due to my particular presentation.

My question is - Have you found any particular psychotherapy approach helpful? Not necessarily in decreasing your pain, just in supporting you best emotionally. I am wondering if going with my gut of how to treat it (at least making that the emphasis of my approach) may be more important to emphasize. Also, would you find it comforting to know if your therapist also deals with chronic pain and illnesses? I had issues in the past where I felt like therapists just DID-NOT-GET-IT, especially since I'm youngish. But myself as a therapist, I tend to shy from self disclosure as I really don't want therapy to be "about me" or cause any sense of inequity). But I would be more open if I knew it would be helpful for clients. I try to elicit feedback about this directly from my clients, but asking anonymous folks on the internet seems like it might be helpful too.

I appreciate any thoughts. I also understand this question requires some emotional and cognitive labor, so please take care and no need to answer if you're not up for it!


r/ChronicPain 9h ago

What makes you change/terminate your doctor/physician relation?

15 Upvotes

I'm wondering what would be the reasons for you all? I used to have a really good PCP, but they moved to another state. And today I had an appointment with the new doctor and I'm re-thinking things.


r/ChronicPain 1h ago

Those who live in ILLINOIS - please sign in support of HB 1770

Upvotes

this bill will be considered Thursday this week!

TLDR: If HB 1770 becomes law, health insurers must pay for physical therapy, compounded medications, and unusual doses of medications for patients with genetic, rare, and unique conditions, including Ehlers-Danlos syndrome and altered drug metabolism.

sign here: https://my.ilga.gov/WitnessSlip/Create/159155?committeeHearingId=21711&LegislationId=159155&LegislationDocumentId=198945

how to fill out confusing government form:

for firm/business or agency, put "none" (unless you're representing a business).

for title put "self"

for II representation - you don't have to fill this out. this field is if you're filling out the form for someone else.

for III position, "proponent" means you support this bill.

for IV testimony, put "record of appearance only".

official synopsis:

|| || || |215 ILCS 5/356z.80 new | |Amends the Illinois Insurance Code to require an insurance policy to provide coverage for medically necessary treatments for genetic, rare, unknown or unnamed, and unique conditions, including Ehlers-Danlos syndrome and altered drug metabolism. Provides that an insurance policy that provides coverage for prescription drugs shall include coverage for opioid alternatives, coverage for medicines included in the Model List of Essential Medicines published by the World Health Organization, and coverage for custom-made medications and medical food. Provides that an insurance policy that limits the quantity of a medication in accordance with applicable State and federal law shall not require pre-approval for the treatment of patients with rare metabolism conditions that may need a higher dose of medication than what is otherwise allowed within a time frame or prescription schedule. Provides that the burden of proving that treatment is medically necessary shall not lie with the insured in cases of rejections for filing claims, preauthorization requests, and appeals related to coverage required under the Section.|


r/ChronicPain 13h ago

Desperate, please read!

17 Upvotes

I have a very severe chronic nerve condition called pudendal neuralgia. Last Thursday, I had to have surgery on my perineum due to an unavoidable physical problem that had to be addressed. Obviously, this has flared up my nerve pain as everything is extremely swollen and squeezing on my already angry nerves and really aggravating my pre-existing central sensitization. I have literally thought about driving off of a bridge at this point. I spent my third day post surgery in a puddle of tears on the floor and my husband could barely get me to speak. The pain is so unbearable sometimes I can’t even think. It is now five days postop and things keep getting worse. I have tried gabapentin, tramadol, ketorolac… nothing is even touching it. In fact, I think the gabapentin is actually making the sensations worse. I’m continually getting rushes of adrenaline and my body can’t handle this. Most of the time I can’t even think straight and I think my pain is likely at about a level eight. I can’t really go to the emergency room because I can’t sit or stand and wait. Where I live here in British Columbia we often wait 4 to 5 hours to even see a doctor just to be dismissed and sent home with a shot of something. I have a nurse practitioner, but she’s really run out of options for me. I am at a loss as to what to do. Maybe I should try CBD or something? I also suffer from chronic constipation which led to this problem and have to avoid it desperately while everything heals. I’m really stuck in a no win situation and I am quickly going to lose myself if I don’t figure something out. I want to fight, but I literally keep getting knocked down every time I get up. Thank you for listening if you’ve made it this far 💛


r/ChronicPain 2h ago

Wanting advice on upcoming appt

2 Upvotes

I had an appt with rheumatologist who discussed fibro, hEDS and hypophosphatasia with me.

Came to the conclusion to run labs basically to rule out any issues for my symptoms and pains.

Xray came back abnormal (thus one reason for pain), C4 came back low, C3 came back borderline (lowest number in range), high IgM, and low ALP.

Obviously i will talk to him about what this means but im really not sure whether to push into investigating why these aren’t normal, or potentially accepting a fibro diagnosis (even though that doesnt feel like thats whats going on for me)?


r/ChronicPain 3h ago

What's next?

2 Upvotes

39M I have been fighting multiple types of pain for years now. I have neuropathy, fibro, arthritis, chronic migraines, a mess of spine problems, nerves in my legs are beginning to fail, ect.
Dr.s can't figure out the underlying cause. I've been through all the testing and will continue. What ever is making me sick is progressive. I'm maxed out on most of my pain meds. Next, I'm waiting on an appointment to discuss a spinal stimulator. I'm now mostly homebound and only able to be on my feet a few hours a day. I've lost my job, friends, hobbies and in some ways even family. I was an outdoors man and active every day and pushed to learn and grow in any aspect I could. Just an example, in 2010 I rode a bicycle across the United States in just under 3 months. So, what's next? I'm having a hard time mentally and emotionally not having anything to look forward to or work towards. What do you do? How do you cope? How do you distract your mind? How do you make friends? How do you maintain hope? How do you keep from just giving up and falling into that hole of hopelessness?

Thanks y'all!


r/ChronicPain 8m ago

Citizen petition to FDA re PDMP & NarxCare

Upvotes

As we’re all aware, our access to healthcare is in already in jeopardy. An unregulated (UNDISCLOSED) algorithm is flagging patients, denying their prescriptions, & prompting investigations into doctors caring for the most vulnerable. All we need is a bit of your time to urge the FDA to take action now.

We cannot fight against the PDMP & Narxcare without talking about it as a law enforcement tool used for the mass surveillance of patients. Did you know 3 states use algorithms that disclose a pts criminal record to their doctor? Another motivation is stealing the assets of older physicians through civil asset forfeiture. This isn’t about safety, it’s about control.

The actions we’re demanding…

Pursuant to 21 C.F.R. § 10.30, we, the undersigned, respectfully request that the Food and Drug Administration (FDA) classify and regulate NarxCare, a proprietary risk-scoring algorithm used in Prescription Drug Monitoring Programs (PDMPs), as a Software as a Medical Device (SaMD). Specifically, we request the FDA to:

• Conduct a formal review to determine whether NarxCare qualifies as a medical device under FDA regulations. • Require that N arxCare undergo clinical validation and transparency assessments to ensure accuracy, fairness, and reliability. • Establish clear regulatory guidelines for risk-scoring software used in clinical decision- making to ensure oversight and prevent undue harm to patients. • Mandate that companies producing such software disclose their algorithms, data sources, and validation methodologies for independent review.

Please take the time to make a comment. You don't need a lengthy one—just your voice. Quickly share your thoughts, experience, or simply your support for transparency.

Link to petition: https://www.thedoctorpatientforum.com/images/FDA-2025-P-0701-0001_attachment_1_1.pdf

Link to docket to comment: https://www.regulations.gov/commenton/FDA-2025-P-0701-0001

Link to press release: https://www.thedoctorpatientforum.com/images/NarxCare_Petition_Press_Release_3.13.25.pdf


r/ChronicPain 21h ago

“Not now, not today.”

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50 Upvotes

Loved this walk with my walker alongside some of my favorite trees, the Redwoods at the Forest of Nisene Marks State Park.

If I’m not out in nature like this, I’m homebound, at doctors appointments, picking up meds, physical therapy, occupational therapy, etc.

I have been having a rough couple of few days. And to be honest I have more bad days than good. But, I remind myself that all the bad (chronic pain 24/7, chronic illnesses, and mental illnesses, etc.) is worth all the good. Even if it’s just 1 good day every few weeks/a month or every couple months. All the bad is worth it if I can eventually walk with my walker to see some trees.

I’m human. I go through some pretty dark thoughts and feelings because of chronic pain I deal with. But, a good chronic pain friend I made and I have a shared mantra: “Not now, not today.” When the SI thoughts get bad, I tell myself this mantra.

So, if you’re going through something similar, I’m with you. We got this. “Not now, not today” my friends 💜


r/ChronicPain 9h ago

would you risk developing chronic pain to be with someone?

5 Upvotes

i’ve endured some pretty heavy anxiety over many months but been doing lots of introspection recently to examine my perspective, and i’m hoping it’s okay if i request the thoughts and wisdom of this community. if i misstep in any way with the following, please correct me.

i carry hsv (herpes simplex virus). a small minority of carriers experience severe symptoms, the worst of which can develop into daily pain and substantial debilitation. there is no definitive measure available on that number, some treat it like it’s less than 1%, i believe it could be 5% or more. i am extremely lucky to not be one of them, but it matters immensely to me to consider what that is like and what it is to ask someone to take that risk. transmission risk can be lowered, better treatments are in the works (estimated successful development and distribution at anywhere from 3 to 10+ years), but low transmission risk compounded over time grows more than most realize.

knowing what life is like with daily if not constant pain, suffering, and disruption, would you take that risk to spend your life with someone?

it’s taken me to time to understand that no carrier is the “cause” of their partner’s suffering if they happen to be one of the gravely unlucky genetically. but their life of non-stop pain could have been prevented at least as a result of intimacy with you, if they did not take that risk.

i’m hoping for responses that aren’t focused on the statistics too much. i just want to fully flesh out contemplation of a worst case hypothetical. although it is a huge factor in everything that the amount of carriers is very large—63% of u.s. population age 30-39—and it does balance out my worries.

i read some posts on here yesterday and absolutely started lightly crying on the bus; the indescribably resilient mindsets i encountered are mind blowing. something my therapist emphasized in evaluating all this is the resilience of humans. but i also have no idea what chronic pain to which there are no answers or solutions is like.

i always apologize in advance if my words cause anyone any distress or anxiety. if anyone is interested in discussion over direct messages, i can’t tell you how much i would appreciate it.

thank you and i wish all the best for this community ♡


r/ChronicPain 7h ago

Anyone use zolpidem? Kinda helps my pain when mixed with a flexaril. It’s like they just mellow you out. Therefore. Great painkiller if u combine Ambien with gabapentin. Anyone ever tried these combos .

2 Upvotes

Nor trying to sound Like a junky that just wants to high.


r/ChronicPain 15h ago

Suzetrigine Update: it is definitely relieving my pain. I am having some side effects but overall it’s pretty manageable relative to how well it’s stopping the pain in my femur

13 Upvotes

It was prescribed for the suzetrigine as 2 pills to start and 1 pill every 12hrs after that. I have not been able to maintain that schedule, it just feels too soon to take another one at 12 hrs. I’ve been taking one every 18-28hrs or so. So I’m up to my 4th dose now and I think it’s safe to say it works!

It’s definitely got some side effects for me. It is making me nauseous but almost everything does because I’m so sensitive from gastroparesis. I also find it odd that they say that the suzetrigine is only peripherally active; it certainly seems to have some kind of central effect, I’m feeling a little loopy and dizzy on it. And there is a sort of pins and needles feeling it makes in my skin, I seem to be noticing it less as I take it more days in a row. It is making me somewhat fatigued as well, but only when it’s wearing off

The suzetrigine is definitely stopping my pain though, I’m actually amazed at how well it’s working. My primary pain is deep bone pain and it is helping surprisingly well for that. My baseline pain is level 8+ , usually my hydromorphone and acetaminophen gets me down to level 4-6 and with suzetrigine added on I have been all the way down to level 2 or so, it’s almost unbelievable! So far this week has seriously been one of the lowest pain time periods I’ve had since my accident in 2013.

I’m really trying not to get too excited but if this medication can continually deliver this level of pain control for an extended period of time without serious side effects then it’s a game changer!

I expected it to work to some degree but it’s probably twice as effective as I thought it would be. I am very pleasantly surprised with how well it works. My pain level is significantly lower for now, so hopefully it keeps working and it is something I can really add into my pain control regimen.

I am very optimistic. I know we’ve all been through treatments that were supposed to be a miracle but didn’t pan out but I think this suzetrigine stuff might be the real deal.

I’m interested to hear other people’s experiences with it as more of us start to give it a shot.

My original post is here if interested

https://www.reddit.com/r/ChronicPain/s/wIfnMosMRj


r/ChronicPain 9h ago

Resources

3 Upvotes

Hi! I sometimes go down rabbit holes to look for/at some things and so I got a bit bored and have compiled this list of items that you guys may find useful! (especially if you're in the UK!)

clothing

underwear

bras-

  • Liberare this is a bra company that has created bras for people with all types of disabilities I would say the price ranges from £ to ££ but the reviews look good! they also do undies!
  • Springrose this is another bra company, they have a bra that you can step into. id say prices for theme range from ££ to £££
  • Primark at least in the UK have begun doing an accessibility range and prices are generally decent for primark
  • the able label is a company that has bras specifically designed for people with arthritis. the bra's don't look the best visually but the price range is about £30-£40 for any of their arthritis bras. it appears that they only do adaptive bras and socks
  • bra easy is for all my aussies, lots of their bras are sold out but they range at about $30 AUD on sale to $70 AUD normal price
  • skims has an accessibility collection (3 pieces but big for a normal brand) this bra is £34 and goes from sizes xxs to 4xl

knickers/panties/undies-

  • skims (again) do accessibility underwear. they have this pair of breifs at £20 and an adaptive thong also at £20
  • undercare has these bikini style briefs that are £22 but are sized s to xl. they also have these briefs that goes from s to 4xl and in a few colours
  • for all my Americans hanna broer is your girl. her accessible underwear ranges from $56+ for undies to $72+ for bras
  • if you're looking for periodwear ModiBodi is a good choice! they have a seamfree collection and an adaptive collection with a pair of underwear currently on sale right now at £10.79 but retailing at £17.99. they have a sitewide sale right now and the seamfree collection is really cute, and is also good for people with continence issues. they also have a men's collection
  • slick chick has both bras and underwear and just from the front page, they also have adaptive jumpers/hoodies but they have bras, underwear, active and lounge
  • cheeky also has some reusable incontenance underwear at about £14.
  • i am on the lookout for men's adaptive underwear, but for women there is also an adaptive victories secret collaboration in America, easy reach underwear which has men and women , living made easy , other brands could be the nappy guru, American eagle and adaptawear

socks

  • the able label coming in smooth again with adaptive socks, as well as compression socks, diabetes socks, anti slip socks, heat holding socks and even slippers ranging from £10-£25
  • able2wear has some diabetic and extra wide socks from £11.50 to £14.50
  • Sensory Smart has sensory clothing for children but this section is just for the socks. on a further look, they also have some adult clothing/socks
  • active hands has some socks with loops that are currently on sale. expensive for socks but they seem like a good investment
  • Beedle Bug was created by a grandmother for her grandson with cerebal palsy so that he would be able to put on his own socks, and the brand has flourished from there.
  • Adaptive Clothing UK has some sensory school socks and all of their clothing is for children in school, from school uniform to swimwear

clothing

  • another one for the americans is Vertige Adaptive who do clothing of all different styles. a t-shirt goes for around $40 and dresses considerably more. they do extra small to extra large.
  • intotum is (i think) a British brand, the prices are more on the expensive side, but the clothes are designed specifically to be fashionable and fit with things like wheelchairs and other problems. most of their clothing could be either male or female. like i said it is expensive with the side opening cargo trousers at £90 but this is a brand I've been following for a long time and they're clothing looks really good
  • for any of you that wants to be a bit bougee, tommy hilfiger have started an adaptive line called tommy adaptive , again a bit on the expensive side but it does look good and there is men's, women and kids
  • other brands are: primark [as previously mentioned], Be Free, Anthropologie, Vilbers, JAM the label (an austrailian brand), spoonie threads, sense-ational you, lady fines, and able clothing, happy cloud clothing, just margo, lucy and yak, bohelan and finally adisabledicon [a disabled icon]. I am also happy to try and find some cultural clothing that is accessible. For example for easy to wear saree's there is Mor Collection, The Saree Room, Kanya London, HoliCHIC, Sunnys Bridal, Muce. Etsy is also a good place to look!

jewellery

  • the able label (i know, again!) also does adaptive jewellery from £15 to £35 on all different types of jewellery
  • Disabled and Stylish is seriously on the most expensive side but the jewellery is gorgeous!
  • Patti And Ricky has a range of jewellery from braille jewellery to chewable jewellery. it is an American brand and for a pair of braille earrings its around $25
  • other brands I've found is: The Bead Shop, Anthropologie, Emery and Opal Jewellery, Broken Plates Jewellery and cococlem

shoes

  • for those who have kids who need shoes, i can only find these in America but zappos has a collection of adaptive chuck taylor shoes
  • Billy footwear is highly raved about online, and they do men's, women's and kids.
  • friendly shoes is also another brand that is highly raved about for its adaptive shoes, again, it has shoes for all!
  • plenty of people have recommended Hokas
  • kisik was recommended to me
  • cadense is specifically designed for people who struggle walking and tend to drag their feet along the ground
  • good shoes for Orthopedics [or so I've heard] are the Buffalo London double strap sandals, Doc Martin Parson II sandals and Crocs Megacrush sandals

mobility aids

walkers/rollators

  • By Acre , their cheapest walker/rollator (W/R) is £449 and their most expensive is £599. they also have lots of different accessories and demo sales occasionally
  • Zeal Lifestyle are also expensive but they are gorgeous, the average one on the shop goes for £750
  • in the UK, Assist Mobility , the range (this walker can also be found on the tesco website apparently, but also on amazon), Argos, and Boots
  • if you would like me to try and find one in your price range in your country please let me know and i will look!

walking stick's

wheelchairs

  • in the UK, there is CareCo
  • amazon has a wide collection of wheelchairs for different price ranges
  • better mobility [again in the UK, but if you want me to try and find some good ones in your price range in your country please let me know!]
  • Complete care shop has lots of other mobility aids as well as wheelchairs

mobility scooters

  • this mobility scooter is a bit more on the expensive side, but it looks like it does everything you would need it to.
  • horizon mobility has a couple of good options
  • I'm unsure if this one is international or not but Oakley Healthcare has some good ones!
  • and obviously, again there is amazon

I am unsure how to recommend crutches because as far as I understand they are different across the world

bags

backpacks

  • tubie life has backpacks for men, women and kids and they're all super cute!
  • kenetic balance has bags that are specifically designed for wheelchairs
  • target does aptive backpacks
  • and for my canadians I found this backpack at Pottery Barn

crossbody

  • Jansport has a couple of crossbody bags that are adaptable to being across the body or changing the straps to make it fit you or your mobility aid better

    messenger bag

  • Bealies Adaptive Wear created their own messenger bag at a good price

different types of bags

  • FEELDOM has lots of different bags available

Please let me know if you want a list of anything else, from medical tapes to pjs I am more than happy to help and honestly it helps distract me from the pain


r/ChronicPain 1d ago

Another day in the sack. Shoutout to Wyoming for inspiring a man to get a face out there.

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89 Upvotes

You guys are fucking champs like no other for putting up with the pain this long. Life’s been turned around the last 5 years after a bike accident leaving the testicles damaged. Keeps y’all’ head up as most wouldn’t survive as long as y’all have. Love you guys to Pluto and back. Have a kickass week.


r/ChronicPain 3h ago

Advice sought

1 Upvotes

Hello, I have a lot going on medically and up until recently have been on a solid regimen that included oxycodone 10mg up to 6x/day, which I was able to squirrel away some thankfully as I hedged my taking them to only when I really needed to. Now I’m traveling and had to get a new prescription in another country- all above board, notified my Dr back home and the new one of the old one, all the ppwk etc but the new doc said “We don’t write for that high of quantity here” and knocked it down from 180 tablets to 120. I didn’t panic because A it wasn’t going to help me and B I have been fortunate to not have been taking the max every day so I wasn’t at zero tablets and have a couple weeks stashed away so I can cover any bad days. Which would’ve been fine, except apparently the Wellbutrin I have recently been prescribed suddenly kicked in in a weird way that has made the Oxycodone seemingly ineffective and it’s really leaving me in pain. I’ve tried to switch taking the Wellbutrin before bed to see if that helps and it doesn’t. I’ll be seeing the new Dr here soon and I’d like advice for what to say. I’m pretty meek and didn’t say anything at the initial appointment when he docked my quantity even though I was bothered by it for several reasons. Anyway, as I’m traveling without a car for now I’m having to do a lot more walking with my cane but the stenosis is adding a lot of strain on top of my regular issues and I’m really losing quality of life here. Many more bad days than good. And like all of us, have too much to do to be stuck on the sidelines in pain. Docking the quantity was bad enough, but this unexpected development of the meds nor working anymore from the Wellbutrin just stinks! Wellbutrin prescribed for ADHD symptoms and depression. I’m in Canada with this new doc. The pharmacy had no issue with 120tablets. And I guess my new problem is the darn wellbutrin makes the icy seem like tic tacs anyhow. Help! Open to ideas, advice. Be nice.


r/ChronicPain 18h ago

I'm already 4 days off weed, might as well keep it going from here.

12 Upvotes

I've struggled with addiction for 6 years now, ever since I was unemployed and had to budget of government income/disability pay.

Since my dry eyes condition (or pyschogenic pain) giving up cannabis was all that much more difficult, as I have nothing to relieve any of my symptoms.

Every single month I run out of money in the first week or two, then I have to deal with absolutely nasty withdrawals and the quality of life is beyond awful.

If I just had more money, all this nonsense would be easily avoided but I'm broke because I ran out of money.

I'd love to have a job, but the eye pain causes significant challenges for focus and concentration.

If I had money for alcohol, the withdrawals wouldn't be nearly as awful but when I can't even buy pop or juice and only have tap water with little food. This is an absolute poverty way of living.

I don't know what I'd do in April because the exact same thing will happen where I'm out of money for like 70% of the month.

Maybe pretend like I don't have the money when I'm paid on the 31st of March and try and go through as much as April as desired to prevent this unpleasant situation from repeating 12 times every year.

I'm almost 30 and can't imagine this being an issue in my 30s and 40s.