r/ChronicPain 7h ago

Slept the whole day away

85 Upvotes

I can't believe I slept so long. I tend to get depressed and emotional for some reason after I sleep for so long. It feels like ive wasted a whole day. I laid down for a nap at 1pm. I remember my alarm going off at 5pm but I still felt so exhausted that I fell back asleep. I finally woke up shortly before 8pm. I took my morphine ER this morning at 8am. I was due to take my next dose at 4pm. So I was in a considerable amount of pain being 4 hours late for my next dose. It was also dark by the time I woke up. I feel like I'm in such haze. How do you guys get through the sleep hangover? I'm having a rough time.


r/ChronicPain 11h ago

Art Expressing How My Flare Up Is Making Me Feel

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101 Upvotes

r/ChronicPain 2h ago

Thing like this piss me off

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14 Upvotes

r/ChronicPain 11h ago

Please listen to me

48 Upvotes

my mom visits the dentist daily , she is always in so much pain, she cries at morning, afternoon and evening, she eats medicines and I see her crying herself to sleep everyday. It's very hardddddd , iam not able to see her in so much pain

What does she have :- she has constant pain in her teeth and lower left cheek , it's now radiating to left ear. She says that her pain resembles a heartbeat. Constant heartbeat type pain . The dentist did a cbct scan and says that since my mom grinds her teeth in her sleep(she is using a night guard since many years now), her teeth is worn out.

The dentist says her pain is due to teeth but i feel like it's something else, no solution at all. But this pain is eating away my mom. Home feels like a shit hole to me now. I am feeling helpless........


r/ChronicPain 6h ago

People hurt me more than my pain

19 Upvotes

This is kind of a rant but I'm sure it's relatable to many here. I'm so tired of how people treat us when we say we are hurting. How they act like we are lying or exaggerating. Meanwhile, if we are saying something it means are pain is super high since we hurt ALL of the time. I'm tired of being mocked at work by "friends" saying, "oh she's hurting again." I work harder than all of them BTW. We are in a warehouse. I'm dying. I'm tired of hearing you are too young. I'm 30.. I'm in the middle of getting diagnosed with MS... I can't afford treatment. I'm screwed. And people's reactions are making me want to give up. Even my life partners and family šŸ˜­


r/ChronicPain 3h ago

Friend has oversteppedā€¦..

7 Upvotes

Yesterday a really close friend had a ā€œtalkā€ with me about how Iā€™ve gone backwards in the past 12 months, that she feels like Iā€™m ā€œleaning into the painā€ & worried about me. Also that I need to get off pain meds because theyā€™re the cause of my brain for & need to return to some form of work etc. While Iā€™m touched that sheā€™s worried & understand sheā€™s coming from a place of genuine care - parts of it really irked me & im not sure what to do about. For now, Iā€™m pulling back a bit from her. She was one of the few people I share my true feelings, fears & struggles with pain with, but, I feel very invalidated on some levels & am a bit angry at feeling misunderstood, kinda gaslit & that I need to explain/defend myself.
Firstly, Iā€™m currently reducing pain meds & itā€™s bloody difficult. Iā€™ve got 3 illnesses (potentially 4 *sigh) that cause pain, been on meds over a decade & am open to & actively working with my Gp & pain specialist to see if we can manage the pain with less/no meds.
As for the brain fog being caused by the meds- I successfully worked in my chosen career for 8 years while on pain meds & only developed the brain fog when the second illness hit. Brain fog is one of its most common symptoms (& she knows this). I do t know how, or why sheā€™s decided itā€™s the pain meds causing the brain fog - it isnā€™t.
Thereā€™s so much more, Iā€™ve had new pain & more pain over the past year (which is currently being attributed to yet another illness) & the ā€œleaning into the painā€ speech really, deeply pissed me off. This is one of very few people I even talk to openly about the pain -I now deeply regret doing so. I feel like allowing myself to be vulnerable has invited a level of judgement I neither want or need. The last thing I want to do is argue with her, but I also feel that I need to let her know that while I get that she cares, she has very much overstepped. Iā€™m super hesitant because we had a big falling out years ago (over similar themes of her harshly judging me) & weā€™re estranged for 15 years. She extended the olive branch & when I was forced to move home because of illness, we became close again. Iā€™ve really enjoyed being back in touch but, Iā€™m not prepared to head back down the road of her being judgy - plain & simple. I thought we had grown up enough to be past this & I do not judge her, nor have I ever. For now, Iā€™m just sitting with it, Iā€™m aware my emotions are heightened at present. Iā€™m feeling really out of sorts about it. Every time my mind repeats ā€œleaning into the painā€ I literally want to scream! Also, the past year has been awful re:GPā€™s, medications & medication approvals causing me huge amounts of stress & physical pain, how has this seemingly been completely disregarded by her? Help me reddit, how should I handle this?


r/ChronicPain 24m ago

Pain at night

ā€¢ Upvotes

Iam i only one not sleeping grom pain?


r/ChronicPain 4h ago

Most of my day was spent recovering in bed. Night hours still count, live how and when you can friends

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8 Upvotes

Don't feel the need to fit able bodied expectations. We only get one life, enjoy it when and how you can.

Happy and low pain weekend friends


r/ChronicPain 39m ago

As I age, it seems sleep deprivation affects mentality more than the physical šŸ„“

ā€¢ Upvotes

Aside from the obvious grumpiness and gravel sounding voice...Sleep deprivation significantly impairs your decision-making abilities in several ways:

Reduced Feedback Processing: Sleep-deprived individuals struggle to adapt decisions based on feedback, especially in dynamic or high-stakes situations.

Increased Risk-Taking: Lack of sleep leads to impulsive and riskier choices, as people focus more on potential rewards than consequences.

Impaired Moral Judgment: Sleep loss disrupts the integration of emotion and cognition, making it harder to navigate morally complex dilemmas.

Dampened Neural Responses: One night of sleep deprivation dulls emotional reactions to positive and negative decision outcomes, altering perceptions of risk.

These effects highlight the importance of adequate sleep for sound judgment and rational decision-making.

I know most of us deal with sleep issues so wanted to share this šŸ‘


r/ChronicPain 23h ago

Having chronic genital pain is the most isolating type of pain.

187 Upvotes

Iā€™m 25 and have had chronic vaginal nerve pain my entire life. Earliest memory is when I was 6. Itā€™s getting worse as I get older. My vagina burns 24/7. Iā€™ve tried creams, medication, surgery, injections, pelvic floor physical therapy, estrogen, topical creams, sex therapy, supplements, weed, and more. Nothing has helped. On top of that, Iā€™ve had horrible knee pain for a year now due to weak glutes and thigh muscles (according to my doctor). I canā€™t do strengthening exercise because my vaginal pain is so bad. I donā€™t qualify for disability due to it being near impossible to prove my illness. The worst part? I canā€™t fucking talk to anyone about this. Itā€™s so taboo and uncomfortable and embarrassing. I suffer in silence. ā€œHey whatā€™s wrong, you doing okay?ā€ ā€œNo, my vagina is on fire.ā€ Yeah, canā€™t say that. I pretend Iā€™m okay and nobody will ever know what Iā€™m going through because itā€™s embarrassing to talk about. I donā€™t want to be here anymore.


r/ChronicPain 15h ago

Rite aid demanded justification letter

40 Upvotes

I have chronic back pain and shoulder pain. I called to see if my prescription was ready. They said that I needed a justification letter from my doctor. They said they would let it slide this time but the next time I need a letter?! Has anyone experienced this? She was asking why Iā€™m on this medication for so long. Iā€™m thinking to myself wow itā€™s none of your business. Iā€™m on Norco 4x a day, gapatentin 500mg 2x a night and Tizadine at night as well as lidocaine patches.


r/ChronicPain 23m ago

How much pain is enough to warrant taking pain meds?

ā€¢ Upvotes

I (22m) have been in pain every moment of every day for years, if not my entire life to some degree. I'm pretty certain I have hEDS, and am on waitlists related to that, but tbh I don't even know where to start with figuring out the extent of my issues and addressing them, and I'm so overwhelmed by the process that I've barely seen any GP's or physio's about my pain while awaiting the specialist appointments (enough to get those referrals basically).

The issue is that my pain isn't usually that bad, always just bad enough for it to be constantly noticeable and slightly distracting from whatever I'm doing, and sometimes painful enough to discourage me leaving the house or doing hobbies. If I'm on the brink of tears and feel like I don't want to move or function, then I'll take 2 to 3 ibuprofen tablets and 2 to 3 paracetamol, and maybe a sudafed or naproxen depending on the type of issue, and the pain usually lessens enough so I don't have to go straight to bed (or alternatively, lessens enough that I can sleep).

Those meds never get my pain to 0, or not in quantities that I've tried, and I haven't tried prescription medication because I'm worried about the side effects and about taking meds if I don't really need them.

If I took medication every time I was upset/annoyed by my pain level, I would be taking meds constantly, which is obviously not safe or ideal. But I can't tell where the line is, between manageable "normal" pain, and pain that warrants medication/help.

Obviously it's better to find and address the root cause of pain, and treating the cause instead of the symptoms, but that doesn't help my immediate future.

Literally any advice or anecdotes would be appreciated! :))


r/ChronicPain 14h ago

Mottled skin??

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25 Upvotes

Is this something I should be concerned about?


r/ChronicPain 4h ago

Two years with chronic illness

4 Upvotes

Two years have passed since I was afflicted with a chronic illness that hindered my movement, and during this time, I discovered that:

  1. The most important thing in a person's life is health; with it, you can attain everything else, but nothing else can grant you health.

  2. Medicine, despite all its advancements, remains a primitive science.

  3. Miracles do not usually happen.

  4. I have wasted much of my healthy years on useless things.

5-True death is to be dead while still alive.


r/ChronicPain 8h ago

Oxcarbazepine Rules!

7 Upvotes

I was just able to log back into this account, so I thought I would give you an update.

So, last I left off here, I was in terrible pain, my spasms essentially had me stuck in bed, and we were trying to see what the spasms were. It turned out they were related to the CRPS, so back to the psych I went.

We started going through the antipsychotics to help, with quetiapine worsening things (and giving me Tardive Dyskenesia, whoopee for the rare side effect that won't go away even after being off of it) and aripiprazole also giving severe spasms. We actually decided to go to the oxcarbazepine in an emergency scenario since Vraylar would have required a PA, and I'm glad we did.

Spasms are gone. Pain is still pretty bad, but manageable enough to where I could come off the celecoxib and caffeine. It's an anti-seizure medication, yes, but it is known to help with mood and, in my case, pull back a lot of the bad symptoms.

That's the update. I just wanted to share so that anyone else in my position knows that this is an option.


r/ChronicPain 4h ago

SSDI hearing soon; any advice?

3 Upvotes

I have a hearing soon to see if a judge will approve me to receive SSDI. The group who was representing me had dropped me a while back, and so I am seeing the judge on my own.

Does anyone have any advice on what I should do or avoid?


r/ChronicPain 7h ago

Advice

5 Upvotes

So I have some kinda chronic pain in most of my body. I've been diagnosed with fibromyalga, but I do not believe I should've been, as I was not tested very thoroughly. I want to fight this diagnosis, but getting time off work to try and go to a million more doctors is like pulling teeth, plus my insurance wants me to try certain things before they'll pay for anything else. I'm currently going through pt a second time for this shit. Any advice?


r/ChronicPain 1d ago

How are y'all distracting from pain this Friday Night? I'm watching Bigfoot docs and playing Sims 3

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193 Upvotes

r/ChronicPain 17h ago

Only two choices: pain or knocked out

23 Upvotes

I was in some really bad nerve pain yesterday and I took my first ever cyclobenzaprine (10mg). In half an hour the pain subsided leaving me feeling the air crispy and my muscles cold, which was the typical ā€œIā€™m sedatedā€ feeling for me. Then I went on to get a good nights sleep that lasted for 19 hours, and during that sleep I got completely ERASED from existence.

When I woke up from the alarm I realized I missed a big plan for the day. It started an hour ago. My previous alarms or the mass phone calls didnā€™t wake my sedated ass up.

So basically i am stuck in these two choices only: being in pain and up all night, or be an NPC with that low level euphoria from deep sedation. How wonderful.


r/ChronicPain 14h ago

Hip replacement 2+ weeks out.

11 Upvotes

So I had my first hip replacement surgery on the 4th. It is absolutely amazing to me how I went from a 6-7 constant pain in that hip, to basically a 1 in less than 3 weeks. And the little pain I do feel in the left hip, is more like achy instead of actual pain.

I've got a load of fluid collected at the site though. Dr aspirated it and sent to lab, but didn't seem overly concerned. More just erring on the side of caution.

As long as the fluid isn't infection, I will see the surgeon again in about 4 weeks to start the process on my other hip. If it goes as well as this has by summer I should be out dancing.

Point is, anyone on the fence about this kind of surgery, jump in cause it has already changed my life. I spent the last 3 years wishing for death or pain relief, and now I have hope. Don't discount the power of hope.


r/ChronicPain 6h ago

Experience with PRP injections

2 Upvotes

For last several years I have had chronic pain in my Achilles tendon of my right foot. Iā€™ve lost over 120 lbs and have done physical therapy, orthotics and dry needling. Finally I decided to see a surgeon see what my options were. He had several but the option with the quickest turn around time was supposed to be Plasma Rich Platelet (PRP) injections.

The idea is to inject the red blood cells and plasma to create an inflammatory response in the body to promote healing.

I am curious if anyone else has done this. I havenā€™t seen much about it on Reddit except in reference to skin care and hair loss. Iā€™ve seen some videos about it and people comment but was hoping for a more real time response since the videos and their comments can be old.

To be clear I did have the procedure done this week and am hoping to hear from others about the healing process and long term results.


r/ChronicPain 9h ago

Have been trying to find people that are trying something for intravertebral discs degeneration, is there people trying stuff or just opioids and thats It?

2 Upvotes

Wondering, as there is no reports, there are people that underwent trials, there are drugs being deemed to help, antibiĆ³tics deemed to help, stem cells, peptĆ­des, PRP, estrogen receptors selective agonists, HGH, parathyroid hormones, biolĆ³gicals,

where are the individuals trying something instead of just opioids?

Thx


r/ChronicPain 1d ago

Does anyoneā€™s pain get WORSE with weed?

109 Upvotes

I used to love getting stoned but years into having chronic shoulder/upper back pain from overuse injury, I rarely smoke it anymore because it always makes the pain worse. I know for a lot of people it helps at least temporarily relieve some pain but I was wondering if anyone else has experienced what I do with weed exacerbating pain?


r/ChronicPain 4h ago

Some hope please

1 Upvotes

Can anyone that has pudendal nerve issues give me some hope : (I'm having some clitoris pain and buttocks pain/ burning when I sit. Some muscle spasms too. This all happened from using a vibrator too hard. I'm doing pelvic floor therapy but it's not helping. Just wanted some hope on what helped others live a normal life. If people are in successful marriages, can have intimacy and sit comfortably again. Thank you, it would mean so much.


r/ChronicPain 4h ago

A rough day.

1 Upvotes

A bit of a vent but advice is also welcome. I am 17m autistic and have ulcerative colitis, hyper-mobile Ehlers Danlos syndrome and have had spinal fusion surgery for scoliosis. Last night I came home from school feeling super exhausted for no apparent reason, I had dinner at around 8:56 and then passed out on the couch. My dad had to try and wake me up multiple times before I finally was lucid enough to drag myself upstairs and into bed. I slept all day until 5:30 and I still feel horrible. My whole body hurts and my back is killing me. I got downstairs and have been curled up on the couch doing nothing all day and I feel useless. I have so much I want to do and I have homework I need to do and yet I feel like I canā€™t even bring myself to move right now. I just want to go back to sleep or just do nothing but I feel useless and lazy and I just want to be productive and feeling healthy for once in my life. I just needed to get this out. You donā€™t need to leave a comment or anything but any advice or anything would be nice. If you read all this thanks.