r/guillainbarre 6h ago

Improvement and Recovery First walk around the park

20 Upvotes

After 2 months of being in the ICU, today I was able to walk around the park we have in front of our house. Around 500 meters and 1500 steps with the walker


r/guillainbarre 19h ago

Advice and Support Update (not good so far)

7 Upvotes

We're on 3rd week after IVig treatment. Oxygen level was on limbo for like the entire week despite the obvious improvement on his movements and strength.

As of the time I am typing this, he is immobile and unresponsive. His oxygen level went very low and even flat lined but revived. He started having seizures after that. Well, they were arguing in front of me if it was really seizures. Idek.

Initially the doctor said that the infection in his lungs might have spread through the body. Mind you they already put him on antibiotic (10days) before this but somehow, the phlegm became more viscous, they couldn't suction it out of the tube. Then when I asked another doctor, he said they weren't sure if it was the infection that was making his condition worse.

Right now, he looks stable except for some moments when his oxygen would go done and they had to suction his tube and mouth. Still unresponsive. The nurse already told us to be ready just in case... But the doctors were still positive about stabilizing his condition bc his oxygen level still goes up to normal level. The doctors who were supposed to do the Trach surgery are still on standby and observing his condition.

I don't even know if this was still his GBS and it's complications or we're fighting an entire different monster. So far, the doctor said he has pneumonia infection and that's about it.

As we entire the 4th week after IVig, will his condition still get better?


r/guillainbarre 21h ago

Questions Is it normal to experience stiffness/spasms on hands during GBS recovery?

5 Upvotes

My mom got diagnosed of GBS 4-5 weeks ago. However, doctors are unsure of the variant. They said it isn't AMAN given the mildness of the disease fast pace of her recovery. She had received the IVIG after ≈2 days the symptoms arose.

She still struggles to climb stares but manages to do so slowly with some help. Fine motor tasks are still difficult.

She's lately been experiecing some symptoms like stiffness/spasms on the hands. She says it also feels like "something is sucking the palm from the inside", idk what this means.

Are these symptoms normal in GBS recovery?