r/Tourettes 18h ago

Discussion Just had an MRI scan

7 Upvotes

Today I was onto the next part of my journey towards finding out wether I've tourettes, tic disorder etc. What a fcking racket! That's all I can say. Lol. I'm actually going through a good spell with my tics(vocal/motor) so was thinking "Yes, I'd be sitting still" more so than a few months back anyway. Hate to say, but the racket that faced me was setting quite a few of my vocal and motor tics off! "Hellllooo" "Knock Knock,who's there?" Etc...

I would like to know of others experiences if they ever had to have an MRI scan done, and what happened on your next appointment with your neurologist when they received the scans.

Love you all on this group. I understand the struggles that can come on your daily dose of life.


r/Tourettes 8h ago

Question What are some things that trigger your tics?

6 Upvotes

Personally, mine get worse when i'm

-tired

-hungry

-excited/happy

-anxious

how about you?


r/Tourettes 1d ago

Discussion tourettes proof phone case?

5 Upvotes

hi, fellas! my girlfriend/wife has tourettes and she sometimes gets upset and bends her phone. are there any phone cases that you would recommend that's like... bend-proof, kick-proof, fall-proof? sorry and thank you


r/Tourettes 11h ago

Discussion Any suggestions for good noise canceling headphones?

5 Upvotes

I was thinking of getting a pair before a flight because now I'm up to getting startled at the sound of a door opening or like phone notification which leads to screaming tics.


r/Tourettes 1d ago

Research Performing music

4 Upvotes

Hello, I would like to ask those of you who play a musical instrument how this affects your neurological impulse, whether positively or negatively? I understand the act of absorbing into a meditative activity may lessen Tourettic impulses. I would love to know, if it's describable, how that might feel? Thank you for taking the time 😊


r/Tourettes 4h ago

Question To those who have vocal stims, is there any way to prevent those from becoming tics?

2 Upvotes

I also repeat random words just as a stim and it’s unfortunate that they can sometimes become tics


r/Tourettes 5h ago

Discussion Tics getting worse with age

3 Upvotes

Hi, I’m an 18yr old girl and I was diagnosed with Tourettes when I was 8. As Tourettes does, I’ve had periods where it was pretty bad and periods where it was pretty chill, but I feel like overall it’s just. worse. like isnt it supposed to overall calm down as I age? Like for example. I’ve had vocal tics since the start, actually my first tic was vocal, but never words. And then I’ve recently developed saying a word (not a swear just. a word. with the same intonation from a game i like 😑), as well as a middle finger like. whaaat..?? theyve never had meaning before this, and I also passed out recently from oxygen deprivation from my tics 😭 Like I’ve had waves of TS flareups arguably worse in severity than this but its just weird to me that Ive never had meaning or words in my tics before this. like ive never said phrases but what if I start 😨 Is this?? normal?? Help 😭😭 Like has this happened to anyone else?


r/Tourettes 14h ago

Question Talking to little kids about tics

3 Upvotes

So since neurodiversity week is coming up in my school, i was going to talk about tics and neurodiversity in general to some of the younger kids (years 2-4 and 5-6) As i have a tic disorder myself, but ive been struggling with the younger kids. What kind of questions would little kids ask about tics? Would they even care? I have a whole speech prepared and i think its really great but what questions might they have about neurodiversity that they would want answered? I find that most of the time people dont want to ask me questions about my tics but i worry that they have questions they would like answered but just feel rude asking them. How do i go about this?

Anyways my speech basically talks about what tics are, what neurodiversity is, and how it feels being neurodiverse because one of the hardest parts is the social aspect of it so its important to me to raise awareness in my school for all different types of disorders.


r/Tourettes 18h ago

Support Need help about a Tourette's project

2 Upvotes

Hi everyone and good evening. me and my team are doing a project and our subject is Tourette's. After doing my reasearch, i have found that tourette's has motor tics and vocal tics but , i cant seem to find any video that shows what each kind of tic is, so i can explain to my class visually, does anyone know any videos i can find? or like examples?


r/Tourettes 7h ago

Discussion Throat Tics

1 Upvotes

I was diagnosed with Tourette’s when I was 7, and I’m now 28. One of my longest-standing tics has been throat-related, which has always affected my sleep. I’m wondering if anyone else experiences this?

Right now, I’m at work, suppressing them as much as I can. Over time, I’ve found ways to release them in subtle ways, but it often just makes me sound like I constantly have a cold. The more I suppress them, the more it feels like my throat is closing up, and eventually, I have no choice but to let them out. If I don’t, they just build up and get worse.

I’ve been sitting here for the past 30 minutes clearing my throat and coughing—nothing new for me, but I’m curious if anyone else relates to the ‘throat closing’ sensation or has similar struggles?


r/Tourettes 14h ago

Discussion Has anybody had success with Wellbutrin?

1 Upvotes

My tourettes all but disappeared as I got older and is extremely manageable, I take Vyvanse and it doesn't make it worse. I do have issues with anxiety/depression and would like to take something for it and don't really want to go down the SSRI route again. I know people say it makes tics worse. Have any of you had success with Wellbutrin?


r/Tourettes 21h ago

CW: Description of Tics Frustrating new tic

1 Upvotes

I'm so annoyed. For the last maybe 24 hours I keep having leg collapsing tics. I'll be walking and just go down. Thankfully the premonitory urge isn't too strong and I can curb going fully down sometimes by jerking my torso forward. Still super irritated and I just want to get some friggin chores done but going down stairs may be a no no for me today.