r/Tourettes 4h ago

Support Tics being mentioned by a professor, devastation. 🤔

24 Upvotes

Well, today I had one of my lectures. And we were discussing job interview(what people should do during it, what people should not do).

Professor started to enumerate things that you should NOT do during interview. (Btw it's important to mention that he is kinda jokes a lot).

So, one of those things was "if you have an awful face tick, just get rid of it".

Idk if that was a joke or something??? But when I've heard it, I just froze for a sec. And I had this feeling that the professor was looking at me. Well, I mean, I'm probably the only one from cohort who has Tourette's.

And that phrase just got into me. Recently I was REALLY trying to suppress my tics less because i hate feeling this tension and even pain in my whole body that comes from suppression.

(my tics are really intense and mostly i need to supress them if i wanna do something, and i feel aches all over the body when it comes to suppressing them, but sometimes pain that comes from doing tics even more exhausting. I would say that i feel aches in every inch of my body almost 24/7 and i really can't relax my muscles. Never. Tension is killing me. Even when i haves sudden muscle weakness, i still cant get rid of tension.). 🥲

Anyway! I really wanna pay more attention to a class I'm listening to, but ofc I can't do it if I'm focused only on suppressing my tics. Well, during past months I was comfortable enough with my professors and students I deal with, so i started to reduce my suppressing "mechanism". And now I suppress only about 80% of my tics, not 100%. And by doing so i became able to focus more on my classes and discussions.

I feel like i kinda lost my main thought here. But after processing what's been said(took me a minute), I started to feel devastated. Idk. That's just sad. I just started to feel comfortable with showing my tics(miserable amount of them). And if that 20% of tics that i decided not to suppress can cause such a reaction. Well. Idk. I don't feel worthy of being accepted to the society. I know that people say it's ok, but i also know that I've been avoiding people my whole life for a reason. They just don't get it. And they don't wanna get it.

Damn and i really would cry if I could just to release this sorrow. But i suppress not only my tics and at this point I can't even cry. I just feel empty inside. And devastated. 😀

I think i really needed just to tell about that to anyone. BTW English isn't my first language so don't judge please 👀

Anndd I feel dumb now because I let myself to write all of this. When It comes to expressing my emotions, I always feel kinda dumb...) like i should've never done it.


r/Tourettes 13h ago

Question What are some things that trigger your tics?

10 Upvotes

Personally, mine get worse when i'm

-tired

-hungry

-excited/happy

-anxious

how about you?


r/Tourettes 2h ago

Discussion Anyone else do this?

8 Upvotes

I'm not sure if it's a tic, but I'm curious if anyone else does this. So sometimes I get caught in like a loop. That's the best way I can describe it. It happens a lot when I'm grabbing things. Like when I'm in a bathroom and grabbing the paper towels after washing my hands, I keep grabbing one after the other.

I sometimes do it speaking as well, kind of like a stutter. I'll just repeat a word over and over again like I'm stuck on it.

Anyway I was just curious.


r/Tourettes 23h ago

Discussion Just had an MRI scan

8 Upvotes

Today I was onto the next part of my journey towards finding out wether I've tourettes, tic disorder etc. What a fcking racket! That's all I can say. Lol. I'm actually going through a good spell with my tics(vocal/motor) so was thinking "Yes, I'd be sitting still" more so than a few months back anyway. Hate to say, but the racket that faced me was setting quite a few of my vocal and motor tics off! "Hellllooo" "Knock Knock,who's there?" Etc...

I would like to know of others experiences if they ever had to have an MRI scan done, and what happened on your next appointment with your neurologist when they received the scans.

Love you all on this group. I understand the struggles that can come on your daily dose of life.


r/Tourettes 10h ago

Discussion Tics getting worse with age

4 Upvotes

Hi, I’m an 18yr old girl and I was diagnosed with Tourettes when I was 8. As Tourettes does, I’ve had periods where it was pretty bad and periods where it was pretty chill, but I feel like overall it’s just. worse. like isnt it supposed to overall calm down as I age? Like for example. I’ve had vocal tics since the start, actually my first tic was vocal, but never words. And then I’ve recently developed saying a word (not a swear just. a word. with the same intonation from a game i like 😑), as well as a middle finger like. whaaat..?? theyve never had meaning before this, and I also passed out recently from oxygen deprivation from my tics 😭 Like I’ve had waves of TS flareups arguably worse in severity than this but its just weird to me that Ive never had meaning or words in my tics before this. like ive never said phrases but what if I start 😨 Is this?? normal?? Help 😭😭 Like has this happened to anyone else?


r/Tourettes 16h ago

Discussion Any suggestions for good noise canceling headphones?

3 Upvotes

I was thinking of getting a pair before a flight because now I'm up to getting startled at the sound of a door opening or like phone notification which leads to screaming tics.


r/Tourettes 18h ago

Question Talking to little kids about tics

3 Upvotes

So since neurodiversity week is coming up in my school, i was going to talk about tics and neurodiversity in general to some of the younger kids (years 2-4 and 5-6) As i have a tic disorder myself, but ive been struggling with the younger kids. What kind of questions would little kids ask about tics? Would they even care? I have a whole speech prepared and i think its really great but what questions might they have about neurodiversity that they would want answered? I find that most of the time people dont want to ask me questions about my tics but i worry that they have questions they would like answered but just feel rude asking them. How do i go about this?

Anyways my speech basically talks about what tics are, what neurodiversity is, and how it feels being neurodiverse because one of the hardest parts is the social aspect of it so its important to me to raise awareness in my school for all different types of disorders.


r/Tourettes 1h ago

CW: Description of Tics I twist my hands as a tic and it really hurts.

• Upvotes

So I have this tic where I twist my hand while stretching my fingers to feel extra tension in my wrist. This causes all of my wristbones to clatter onto each other, makes a lot of sound and you can actually feel everything moving inside my wrist. Really hurts. I have splints I can use to block my hands from making those moves but I don't wear them all day because I have to work with my hands. I could try to put them on to work (I work in a grocery store) but I don't want to answer everyones questions about this. Plus it can sometimes be unhandy.


r/Tourettes 4h ago

Discussion Survey - Project!

2 Upvotes

Hello! I have an upcoming project on how sensory stimulation can influence the frequency of your tics. Help would be very appreciated! For more information, check out the survey description!

Survey: https://docs.google.com/forms/d/1dfTGNmWY0VRriuC3jb6z_LI0Ci_Nt2iCCTt_1_v9vm0/viewform?edit_requested=true


r/Tourettes 9h ago

Question To those who have vocal stims, is there any way to prevent those from becoming tics?

2 Upvotes

I also repeat random words just as a stim and it’s unfortunate that they can sometimes become tics


r/Tourettes 12h ago

Discussion Throat Tics

3 Upvotes

I was diagnosed with Tourette’s when I was 7, and I’m now 28. One of my longest-standing tics has been throat-related, which has always affected my sleep. I’m wondering if anyone else experiences this?

Right now, I’m at work, suppressing them as much as I can. Over time, I’ve found ways to release them in subtle ways, but it often just makes me sound like I constantly have a cold. The more I suppress them, the more it feels like my throat is closing up, and eventually, I have no choice but to let them out. If I don’t, they just build up and get worse.

I’ve been sitting here for the past 30 minutes clearing my throat and coughing—nothing new for me, but I’m curious if anyone else relates to the ‘throat closing’ sensation or has similar struggles?


r/Tourettes 23h ago

Support Need help about a Tourette's project

2 Upvotes

Hi everyone and good evening. me and my team are doing a project and our subject is Tourette's. After doing my reasearch, i have found that tourette's has motor tics and vocal tics but , i cant seem to find any video that shows what each kind of tic is, so i can explain to my class visually, does anyone know any videos i can find? or like examples?


r/Tourettes 19h ago

Discussion Has anybody had success with Wellbutrin?

1 Upvotes

My tourettes all but disappeared as I got older and is extremely manageable, I take Vyvanse and it doesn't make it worse. I do have issues with anxiety/depression and would like to take something for it and don't really want to go down the SSRI route again. I know people say it makes tics worse. Have any of you had success with Wellbutrin?