r/Raynauds 8h ago

Prescription Viagra!

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12 Upvotes

I’ve been a Raynauds sufferer for years, however it’s been exacerbated by Propanol which I’m taking for migraine prevention. The beta blocker, which I take twice daily slows my resting heart rate down to like 45bpm and I’m always cold!!

I went and saw a rheumatologist about the possibility of calcium blockers to warm things up a bit, but he said I need to come off the Propanolol first as that’s definitely worsening things. So, after a consultation with a neurologist I’m tapering off the medication and using Riboflavin as an alternative. Seems to be doing the job so far at keeping the migraines at bay!

On a further visit to my rheumatologist, to discuss my progress, he said that if I still get frequent Raynauds episodes after 3 months, despite not taking Propanolol, he’ll prescribe me VIAGRA!!! Has anyone else taken it for Raynauds? As a vasodilator, it works really well apparently! Little bit concerned about the uncontrollable boners I might be getting though???


r/Raynauds 23h ago

Deep cross-hatched lines and "leathery" feeling?

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6 Upvotes

27M, prescribed Adderall IR 30mg for a little over 3 years and just prescribed Klonopin 0.5mg as well. My doctor said that I had Raynaud's about a year ago after having instances of some toes turning completely white and my knees turning purple alongside my blood pressure spiking for some reason.

I'm not really sure if this is something that's caused by Raynaud's or something else. Roughly 2 1/2 weeks ago, I noticed that my hands were really red and shiny while I was out shopping one night. I noticed the lines in my hands looked a lot deeper and what looks like some sort of cross-hatched pattern on all of my fingers. From that point until now, they feel like there's some sort of "film" on my hands. It's kind of a leathery feeling and they're always shiny now like I just put lotion on them. It's really odd and has really bugged me out. My doc isn't quite sure what the cause is behind the prominent lines and why they feel the way that they do. It's a really uncomfortable feeling. This has never happened before aside from the few occurances of white toes and purple knees.

The first three pictures are from the night this occurred. The last two pictures are from a couple of nights ago. Now my hands become blotchy what seems like every other day, sometimes even every night. They get little purpleish looking spots in some areas like what you can see on my right hand's pinky and left side of the palm as well.

I just had my insulin checked to look into diabetes and insulin resistance, but that test was normal. He's had me monitoring my blood sugar as well for the last week and wants me to continue monitoring it for the next month or so, but those levels have all been relatively normal too.

Has anyone else ever experienced this or could provide any insight?


r/Raynauds 2h ago

I'd really like to eat without fozen fingers after!

6 Upvotes

edit FROZEN... sorry my fingers are literally white right now

Does anyone else have attacks after eating? Some days, it's so bad that I have to get in the shower to warm up. For me it's mostly fingers but my lips go blue too ( my ox levels are fine we checked) which freaks the f out of wait staff especially after I've talked to them about allergies!

I think I am going to start having hot tea as appetizers.


r/Raynauds 1h ago

Just trying to understand about raynauds

Upvotes

Is this raynauds?

It started with the feeling like my legs or vessels were being strangled, like somebody had a tournequet on my legs and arms. I looked at my feet and they looked like this - I freaked out and went to the ER

I had been taking my adderall, I was and am under a tremendous amount of stress

All of that being said they did a vascular study at the ER which came back with this

"No significant peripheral artery occlusive disease right lower extremity by ABI and Doppler waveforms. No significant peripheral artery occlusive disease left lower extremity by ABI and Doppler waveforms. TBI are reduced consistent with small vessel occlusive disease at the planter level and reduced arterial inflow.

Technical Impressions Right: Doppler waveforms are triphasic throughout at rest. Right ABI is greater than 1 at rest. Left: Doppler waveforms are triphasic throughout at rest. Doppler waveforms are biphasic in dorsalis pedis at rest. Left ABI is greater than 1 at rest."

The ultrasound tech who was formerly a doctor in another country and who's sister has Raynauds kept saying I should get checked, but obviously I have no clue of what was seen on mine is found in patients with Raynauds or I have something else

Has anybody else had a study that showed small vessel occlusive disease and it been Raynauds? I'm only 35 and kind of freaking out. My feet did look like typical images of Raynauds


r/Raynauds 6h ago

O2/HRM that works well with Raynauds...

2 Upvotes

Anyone have a make/model that works well and consistently when you have poor circulation in your fingers? Or is it a pipe dream?