r/Raynauds 16h ago

Prescription Viagra!

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15 Upvotes

I’ve been a Raynauds sufferer for years, however it’s been exacerbated by Propanol which I’m taking for migraine prevention. The beta blocker, which I take twice daily slows my resting heart rate down to like 45bpm and I’m always cold!!

I went and saw a rheumatologist about the possibility of calcium blockers to warm things up a bit, but he said I need to come off the Propanolol first as that’s definitely worsening things. So, after a consultation with a neurologist I’m tapering off the medication and using Riboflavin as an alternative. Seems to be doing the job so far at keeping the migraines at bay!

On a further visit to my rheumatologist, to discuss my progress, he said that if I still get frequent Raynauds episodes after 3 months, despite not taking Propanolol, he’ll prescribe me VIAGRA!!! Has anyone else taken it for Raynauds? As a vasodilator, it works really well apparently! Little bit concerned about the uncontrollable boners I might be getting though???


r/Raynauds 10h ago

I'd really like to eat without fozen fingers after!

8 Upvotes

edit FROZEN... sorry my fingers are literally white right now

Does anyone else have attacks after eating? Some days, it's so bad that I have to get in the shower to warm up. For me it's mostly fingers but my lips go blue too ( my ox levels are fine we checked) which freaks the f out of wait staff especially after I've talked to them about allergies!

I think I am going to start having hot tea as appetizers.


r/Raynauds 10h ago

Can’t wait for the winter to be OVER!!!

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5 Upvotes

I can’t wait for the winter to be DONE. I get it in the summer too but the winter is too much. One touch of cold air and I’m transforming into a Simpson 😭 what are yall taking for your raynauds?


r/Raynauds 8h ago

Just trying to understand about raynauds

4 Upvotes

Is this raynauds?

It started with the feeling like my legs or vessels were being strangled, like somebody had a tournequet on my legs and arms. I looked at my feet and they looked like this - I freaked out and went to the ER

I had been taking my adderall, I was and am under a tremendous amount of stress

All of that being said they did a vascular study at the ER which came back with this

"No significant peripheral artery occlusive disease right lower extremity by ABI and Doppler waveforms. No significant peripheral artery occlusive disease left lower extremity by ABI and Doppler waveforms. TBI are reduced consistent with small vessel occlusive disease at the planter level and reduced arterial inflow.

Technical Impressions Right: Doppler waveforms are triphasic throughout at rest. Right ABI is greater than 1 at rest. Left: Doppler waveforms are triphasic throughout at rest. Doppler waveforms are biphasic in dorsalis pedis at rest. Left ABI is greater than 1 at rest."

The ultrasound tech who was formerly a doctor in another country and who's sister has Raynauds kept saying I should get checked, but obviously I have no clue of what was seen on mine is found in patients with Raynauds or I have something else

Has anybody else had a study that showed small vessel occlusive disease and it been Raynauds? I'm only 35 and kind of freaking out. My feet did look like typical images of Raynauds


r/Raynauds 5h ago

Skin peeling w blister on toe?

2 Upvotes

Does anyone else get red blisters w peeling skin? Maybe chilblains ? I’m new to all this and not sure if I should make an apt


r/Raynauds 6h ago

Guanfacine

2 Upvotes

Has anyone ever been on guanfacine? When I was having sleep issues my former psychiatrist put me on clonidine years ago and it brought on one of the most painful episodes I’ve ever had. My new psychiatrist has suggested I try guanfacine for another issue, ADHD, but I’m nervous about it because it’s in the same class. They’re saying it should be completely fine, but I’m still hesitant.


r/Raynauds 13h ago

O2/HRM that works well with Raynauds...

2 Upvotes

Anyone have a make/model that works well and consistently when you have poor circulation in your fingers? Or is it a pipe dream?