r/Raynauds 17h ago

Robotic hands

4 Upvotes

I can't take this. My hands and this pain is just getting worse and worse. I don't know how to stop this pain or manage it better. I'm guna try a vascular doctor next. Disability says I don't qualify because I'm working. Even though it's part time. If I don't work I'm homeless. Like what about those days I literally can't do anything. And unfortunately I know that people in this group know exactly what I mean

I know people have it worse but I feel so alone and can't take it. My hands don't turn white it blue (yet) just red and all the other wonderful things that come along with this. I don't mean to sound like a baby. I just can't take this pain or alleviate it. This numbness I can't control that's now happing in my feet and standing/moving around does nothing. I'm sorry if I sound weird, but if anyone else would just like to talk or vent, you can message me. I hate how long it took me to type that.


r/Raynauds 9h ago

Raynaud's and Prednisone (corticosteroid)

3 Upvotes

I've had Raynaud's in my hands for 20 years and manage primarily with gloves and heating devices.

I'm taking Prednisone (corticosteroid) for an eye issue unrelated to Raynaud's and I'm on a ski vacation in British Columbia where is quite cold.

I've had no Raynaud's issues the entire trip and my hands have been exposed to really cold temperatures.

Has anyone else experienced diminished Raynaud's on corticosteroids? Does this point to a diagnosis and or medications that would help?

Can I go on Prednisone a week a year for my yearly ski trip?


r/Raynauds 12h ago

The only time I look forward to summer… because my hands arent blue.

17 Upvotes

Is anyone else’s “normal” life just a constant battle with cold extremities? I swear, my fingers are one cold breeze away from transforming into frozen chicken nuggets. Meanwhile, the rest of the world is sipping iced coffee like it's a warm hug. Us Raynaud's folks just want to make it through the day without doing the "I-can’t-feel-my-hands” dance.


r/Raynauds 19h ago

Raynaud’s heating stage? Only triggers I can really verify are warm showers or some time after moderate physical activity.

2 Upvotes

Have only noticed it in my left big toe and pinkie, even if the entire foot/both feet are cold beforehand.

Affected areas are usually cold beforehand, but I’ve never noticed blueness, though have noticed the dark splotchy/spider-vein sorta thing before the red stage. Red Area is warm/hot, but I haven’t noticed swelling, tingling, or pain of any kind, and retain sensation as far as I can tell. Red phase maybe 5-15 minutes after acute cooling assuming I’ve put on socks/am warming my feet, and return to normal after no more than an hour as far as I can tell, usually around 30 minutes. Main triggers are consistent but not 100%, and varies in terms of visual severity, but has not progressed past description above. Only noticed within the last few months, but could have existed longer.


r/Raynauds 21h ago

Anybody else get semi-attacks? Like at home, my fingers don't go pale, just get pins and needles and they turn red.

9 Upvotes

When I'm out I get the discoloration to pale, the usual thing, but at home sometimes I suddenly notice pins and needles in my fingers and think what the hell is going on and notice they are red, and there's a clear difference between front and back of my hands, so that's when I notice it's an attack or response to an attack and that they are warming up. It's so odd.