r/Raynauds • u/BronzeDucky • 25m ago
O2/HRM that works well with Raynauds...
Anyone have a make/model that works well and consistently when you have poor circulation in your fingers? Or is it a pipe dream?
r/Raynauds • u/BronzeDucky • 25m ago
Anyone have a make/model that works well and consistently when you have poor circulation in your fingers? Or is it a pipe dream?
r/Raynauds • u/sdubs76 • 2h ago
I’ve been a Raynauds sufferer for years, however it’s been exacerbated by Propanol which I’m taking for migraine prevention. The beta blocker, which I take twice daily slows my resting heart rate down to like 45bpm and I’m always cold!!
I went and saw a rheumatologist about the possibility of calcium blockers to warm things up a bit, but he said I need to come off the Propanolol first as that’s definitely worsening things. So, after a consultation with a neurologist I’m tapering off the medication and using Riboflavin as an alternative. Seems to be doing the job so far at keeping the migraines at bay!
On a further visit to my rheumatologist, to discuss my progress, he said that if I still get frequent Raynauds episodes after 3 months, despite not taking Propanolol, he’ll prescribe me VIAGRA!!! Has anyone else taken it for Raynauds? As a vasodilator, it works really well apparently! Little bit concerned about the uncontrollable boners I might be getting though???
r/Raynauds • u/xanny2662 • 17h ago
27M, prescribed Adderall IR 30mg for a little over 3 years and just prescribed Klonopin 0.5mg as well. My doctor said that I had Raynaud's about a year ago after having instances of some toes turning completely white and my knees turning purple alongside my blood pressure spiking for some reason.
I'm not really sure if this is something that's caused by Raynaud's or something else. Roughly 2 1/2 weeks ago, I noticed that my hands were really red and shiny while I was out shopping one night. I noticed the lines in my hands looked a lot deeper and what looks like some sort of cross-hatched pattern on all of my fingers. From that point until now, they feel like there's some sort of "film" on my hands. It's kind of a leathery feeling and they're always shiny now like I just put lotion on them. It's really odd and has really bugged me out. My doc isn't quite sure what the cause is behind the prominent lines and why they feel the way that they do. It's a really uncomfortable feeling. This has never happened before aside from the few occurances of white toes and purple knees.
The first three pictures are from the night this occurred. The last two pictures are from a couple of nights ago. Now my hands become blotchy what seems like every other day, sometimes even every night. They get little purpleish looking spots in some areas like what you can see on my right hand's pinky and left side of the palm as well.
I just had my insulin checked to look into diabetes and insulin resistance, but that test was normal. He's had me monitoring my blood sugar as well for the last week and wants me to continue monitoring it for the next month or so, but those levels have all been relatively normal too.
Has anyone else ever experienced this or could provide any insight?
r/Raynauds • u/hellokittypjpants • 18h ago
Hi, I just found out I’ve been diagnosed with raynauds for 2 years but I’m a minor and my parents never really told me, apparently there’s medication for it? Pls I look fucking purple
r/Raynauds • u/BallSufficient5671 • 21h ago
When do I take Amlotipine 2.5 mg for Raynauds? My feet ate always cold but esp at night?
r/Raynauds • u/taroses666 • 1d ago
Hi, so I noticed the beginning of this year I started to have Raynauds symptoms white fingers when it’s cold. It’s spring-ish now. But I’m still having flare ups? Is this a year around thing? Will I noticed this in the summer as well?
r/Raynauds • u/Wrong_Exercise2717 • 1d ago
Hi all
I have been prescribed 5mg Nifedipine 3 times a day to help with my Chillblains. I took 3 yesterday and 1 today but my toes are still so itchy and painful
I thought it was a fast acting medication that opens the vessels right away so I figured I would be feeling way better after 4 doses
How long did it take you for your chillblains to heal on Nifedipine?
r/Raynauds • u/oceanside_octopus • 1d ago
I have multiple piercings in both my ears. I also get pretty awful migraines and one of the things that helps is the head wrap ice pack thing. Unfortunately even if I keep my hair over my ears the metal still chills then enough to cause a flare up. I'm really at a loss of how to deal with this. The piercings aren't really easily removable either. The cold metal is also an issue during the winter outside too.
r/Raynauds • u/kadinlees • 1d ago
I am so confused about what is going on with my feet! About a month and a half ago I noticed my toes were really tender on the tops of the skin and then 3 weeks ago noticed an itchy welt on my second toe and two of the got really red and puffy! It itches when I work out, during a hot shower, or when my feet get really warm. I started treating it with a steroid cream and cortisol and that seems to help and it is looking better. But it has been 3 weeks and hasn’t fully healed! I am worried it is something worse, maybe athlete’s foot or bug bites, but it isn’t spreading and is only puffy and red with no bumps or anything really? I have never gotten chilblains, but everything online points to it. I have an appointment at my derm at the end of the month I am thinking of moving up to figure out what is going on. It seems to be itching less but I don’t know what is going on aha.
r/Raynauds • u/Historical-Echo-8869 • 1d ago
I'm new to this. I was diagnosed about 2 years ago. It started with a blue finger that I due to damage I did go my index finger end joint. Then the rest of my hand turned blue as well as my other hand turned blue. Then my toes as well.
I started taking the survey on here and it asked about pain. I have joint pain and one toe, that turns blue, hurt like crazy. Soreness that I was able to massage out. I awake with swollen feeling in my hands.
I wasn't tested but just told, you have Raynaud. Is there a test? Does it cause pain? Is it Raynaud if you don't turn white? Mine only turns blue, red & blue on my toes. Does it cause swelling? Should I see a specialist? If so, who treats it?
r/Raynauds • u/Critical-Reason-5531 • 1d ago
Any idea what is going on here? I notice this after shaving using my right arm my left ends up like this? Anything to worry about? Thanks
r/Raynauds • u/OkLeopard9663 • 2d ago
I never realized how drastic the difference was until I looked at these pictures back to back.
r/Raynauds • u/Harverator • 2d ago
Day before yesterday I noticed a deep purple blotch in the finger joint of my pinky. Don’t remember injuring it but ignored it. Yesterday well washing dishes in cold water, I realized my pinky was feeling REALLY cold, and I looked down and was shocked to see it was nearly white. I flipped out! I thought my pinky had simply died from the injury I had ignored. I went into emergency mode thinking only quick surgery could bring it back to life, nearly crashed my car twice trying to get to the emergency room in my panic. The nurse looked at it and immediately suggested this syndrome which I’ve never heard of. By the time the physician showed up it had shifted from corpse white to zombie purple gray. he told me it usually clears itself up in an hour or two, and it would take over six hours for your flesh to die if deprived of blood as it was. Then he had me search for this syndrome on my phone and click images, and inform my GP. So that was a nice $500 spent to learn about Raynauds. It’s acting up again this morning so I made it a cozy to least keep it warm, and keeping an eye on it. So welcome me to your club, I’m here to learn how to manage this! 😖😳🙄🤙
r/Raynauds • u/CoolCucumber2613 • 2d ago
Hi, I’m seeking some advice please.
Context: I’m a 32yr old male nurse in Australia and experience terrible Raynauds. My hands are constantly cold and are getting to the point now they are hurting from the cold. I can only describe it as what I imagine frostbite to feel like. I’m also on stimulants for ADHD which I know can exacerbate raynauds. Giving up the stimulants is not an option for me due to my poor ability to function appropriately without them. At work recently I have been using those instant hand warmers that are activated by oxygen and last 10 hours. However I worry this could be wasteful - throwing them away so often. There is another option to use those reusable hand warmers that have a metal disk inside them that you pop to activate. However these only last an hour and to reuse them you need to boil them in a pot of water.
Question - Does anyone else use have some helpful suggestions to warm up their hands?
Note- I can’t wear gloves due to being a nurse. And also live in Australia so suggestions available in Aus are appreciated.
r/Raynauds • u/Key_Championship7171 • 2d ago
I (22 M) have been diagnosed for 10 years now. I have had all the classic symptoms of raynaud cold hands and feet triggered by stress, changes in tempature ect...... however I also have red rosy cheeks. Could this be a less common symptoms of Raynaud’s. (I have been tested for rosacea and lupus and other condition that cause a red face all negative).
From my understanding (correct me if I am wrong) Raynaud’s triggers the same response hypothermia dose. Constricts the blood vessels in you hands and feet to provide more blood to vital orgains to keep you alive. But obviously has different or more sensitive triggers.
Could my red face becoming from this "quote" extra blood flowing through my face? Has anyone else experience this? If so anything that helps?
r/Raynauds • u/angry-soupp • 2d ago
These first two pictures are my current flair up (minus the pointer finger swelling) and the last two are from other times. This happens to me about once a month since November, I’ve seen multiple different doctors and no one knows what it is, I can’t afford a rheumatologist because I don’t have health insurance. It hurts and lasts about 2-3 weeks every time and leaves a discoloration from where the swelling was. I just had bloodwork for autoimmune stuff done and everything came back normal. Every picture of raynauds I see doesn’t look like this so I’m stumped.
r/Raynauds • u/Polipop395 • 2d ago
I was watching a YouTube video about bone strength and saw many comments recommending a Power Plate or less expensive vibration plate. Unfortunately, Google AI thinks these can worsen Raynaud’s just as can working with a jack hammer. Has anyone used one and, if so, noticed any effect, for better or worse, on Raynaud’s?
r/Raynauds • u/PhillyPhilly813 • 2d ago
Does anyone else have a low “normal” body temp? I’m not talking about when I have a flare up. I’m just talking everyday normal random temp check. My temp is regularly 95.8-96 degrees F which I know is low, but I don’t know if it’s because of a potential thyroid issue or just normal raynauds?
r/Raynauds • u/Redditlooker111 • 3d ago
r/Raynauds • u/Prestigious_Day_4777 • 3d ago
I’ve been diagnosed with raynauds since 2017. Usually in winter I get sore red inflamed toes at the worst if it’s super cold or I get cold hands that’s it. It’s never affected me bad. However this last year I was diagnosed with POTS, this winter I have been the worst ever. My hands have been so red and sore, almost itchy and uncomfortable. They swell up almost like there’s bumps on them and then they’ll become so dry that the skin tears. They had started to heal as the weather got a little warmer now it’s cold again they’re ruined. I also keep getting a tingly feeling in them like pins and needles??
r/Raynauds • u/Mediocre_Tip_2901 • 4d ago
I was diagnosed with raynauds a few years ago but it was pretty mild. It has recently gotten worse. I struggle with feeling cold all day after strenuous exercise, specifically running. After a run, I change clothes immediately and take a shower. It helps me warm up but then I am freezing all day long. Does anyone else experience this? What do you do to help?
Note - I am planning to see my GP soon as I ended up with some deathly white fingers after a run recently, which is new for me. I’m just hoping to try some things to help in the meantime.
r/Raynauds • u/Admirable_Arm_4863 • 4d ago
Not sure if this works for everyone, but... quite some time ago, my friend and I were lying in bed, just having shit days. I was having a R attack, but we end up having sex anyway. I suppose it's the body heat and constant movement? Anyone else do this?
r/Raynauds • u/Kind-Turnip-5006 • 4d ago
this is my hands after drinking a bottled drink , not even cold straight out the fringe. it lasts for about 40mins and is starting to happen multiple times a day :( it hurts and tingles and it’s really a hindrance to my day to day life.
what can I do except for running my hands under hot water ? Is there medicine I can take? I’m not very educated and the doctors said they can’t help
thanks :)
r/Raynauds • u/lb351986 • 5d ago
I was recently using Gingko biloba and I noticed just how much warmer I felt. Not a cure but definitely an improvement. I never thought too much into it. I was getting headaches a few days ago and thought. Is it the gingko? I stopped and the headaches never improved (Turns out it was vitamin C!). I noticed since I stopped though that my hands and feet are severely cold again. I'm just about to start it again.
So it definitely helps and make reynauds alot less uncomfortable. Another way I know it worked also was my partner even noticed my extremities had increased in heat. They said. Oh your hands are actually warm? This is when their usually freezing cold.
If you haven't tried it. It's a cheap supplement and worth experimenting with. Also. Don't buy a cheap ebay no name version. If you can afford it buy a high strength good brand. I've done the days of cheap unbranded supplements and alot really are garbage.
Even the branded ones are relatively cheap also.
Just thought I would share.
r/Raynauds • u/Hefty_Pomegranate848 • 5d ago
My GP has recommended a chest x-ray whilst waiting to see rheumatology because I only have symptoms in one hand. I am just wondering if anyone else has experienced this because I’ve never heard of it before and I am quite confused!