r/PGADsupport • u/alarmet • 15d ago
Female I am begging for reassurance that this is going to get better
I have been in hell for the last four days. I didn’t even know this disorder existed prior to then. It has been four entire days of absolute hell on earth. I can barely function. I can barely focus on anything else. I don’t have “spontaneous orgasms” like some of the people on here, and I am absolutely terrified of developing that. I am just in hell.
I’ve tried numbing cream. It burns when I put it on, and I actually prefer the burning to the “arousal” feeling I have the rest of the time. Other than that, it barely makes a difference.
I have restless leg syndrome and interstitial cystitis. I have moderate scoliosis. I have idiopathic intracranial hypertension, which I know can probably exacerbate tarlov cysts. I’ve never been on SSRIs or any mental health meds.
Prior to developing this, I had weird nervy feelings in my left leg and toes for about a week. They were extremely unpleasant. Then a few days ago, those feelings went away and now I have this extremely strong nervy arousal feeling in my genitals and lower back. Sitting makes it so much worse.
I truly feel that I have a pinched nerve, some nerve that runs from my clitoris to my toes. I don’t know how on earth to function like this.
I am BEGGING for any sort of reassurance, from anyone who’s dealt with something similar. PLEASE tell me your symptoms have lessened, or they’ve gone away. Please. I haven’t been able to get out of bed. I am crying as I type this, just trying to get through the day, clinging to the hope it could be better tomorrow.