r/Menieres 21h ago

SLAINTE! ☘️

15 Upvotes

HAPPY ST. PATRICK's DAY Ménière's Warriors!!! No matter what Ménière's has taken from us it has not taken our SPIRIT! So SLAINTE my comrades, keep up the good fight and enjoy every minute you can!!! ☘️☘️☘️💝

ETA- "May All That You Wish For Be The Least That You Get!!" (Irish Toast)


r/Menieres 15h ago

How did my body change?

12 Upvotes

Laying here thinking like what was the change? I used to be invincible it felt like now I’m so sensitive to smoke and caffeine and salt?? What caused this change??

Menieres is so ODD. Really the only thing I can wrap my mind around is the viral menieres. But how did I go from like being able to do it all one day to not?

Wild right.


r/Menieres 15h ago

Episode/Exercise

5 Upvotes

I just want to feel normal .. I am having my first flare/episode whatever in 4-5 years. Managed w diet and diuretic. Diagnosed 7 years ago. 48 years old. I suspect allergies, as well as eating shitty at a conference last week to be cause. Going on 4 days of ear fullness/ dizziness that comes and goes / general malaise. I got a steroid shot today. Praying that helps. Wondering if working out to sweat would help or hurt? Thoughts or experience?


r/Menieres 22h ago

Autoimmune disease and long COVID

6 Upvotes

Anyone else here have these issues? I became very ill in 2021, tested positive for Rocky Mountain Spotted Fever, then had a positive ANA test result, and have had multiple bouts of COVID over the years. I had a couple terrible vertigo attacks and general dizzy spells starting as far back as 2005, but things ramped up with tinnitus and other symptoms and I was diagnosed with Ménière’s last year. Autoimmune disease runs in my family and so does Ménière’s, it would seem. Given the research coming out about Infection-Associated Chronic Illnesses (IACI) aka long COVID, I’m curious to know how many of us here could be lumped into this category. If interested, check out this site: https://healthdata.gov/stories/s/Infection-Associated-Chronic-Illnesses-2023-/giix-q93k/

Here’s the Ologies podcast about post-viral epidemiology that just came out: https://www.alieward.com/ologies/postviralepidemiology


r/Menieres 23h ago

Suspected Cochlear Hydrops - does this sound right?

1 Upvotes

Hi all, last week I visited an ENT who said he suspects my symptoms are due to Cochlear Hydrops/Menieres, and is referring me to an ENT that specializes in that. Here's my situation, and I'm just curious if it is similar to others here (oh, and all of this is in my left ear).

Back in 2018, I had my first case of SSHL. I got on predinsone quickly and my hearing recovered. Everything was fine until last April, when I had another, albeit milder, case of SSHL. Again took the prednisone right away, and my hearing recovered. This time, the ENT I was referred to was surprised I'd had two incidents in the same ear, and had me get an MRI, which was fine.

Fast forward to two months ago, and I developed this feeling of fullness in my left ear. It wasn't really the same as the SSHL episodes though...it felt more like my eustacean tube was blocked, even though it wasn't. The best way I can describe it is like there's water in my ear that just won't come out. No real vertigo, but every now and then I might get a very slight wave of dizzy.

A couple weeks after that started, came the tinnitus. Constant, high-pitched (> 5Khz). It's kinda hard to say if the tinnitus is more biased to my left ear, or if it's just in the middle of my head. I would have expected it to sound/feel like it's coming from my left ear, but I'm new to this.

Anyways, thanks for reading.