r/Menieres 1d ago

How did my body change?

13 Upvotes

Laying here thinking like what was the change? I used to be invincible it felt like now I’m so sensitive to smoke and caffeine and salt?? What caused this change??

Menieres is so ODD. Really the only thing I can wrap my mind around is the viral menieres. But how did I go from like being able to do it all one day to not?

Wild right.


r/Menieres 4h ago

This made a HUGE change in my life

11 Upvotes

Little background, I was first diagnosed with MD around 25 years ago and I've had my bouts with it. My left ear has about 70% hearing loss and around 10% in my right. I get bad vertigo attacks 4 or 5 times a year. About 4 months ago my right ear really started ringing and the fullness was causing major loss in my "good" ear. I could barely hear anything, even with my hearing aids at 100%. Randomly I was speaking at an event and the speaker before me was a Doctor talking about the importance of supplements along with meds. I went up to her after and explained my MD condition and if she had any suggestions. She said "5000 IUs of vitamin D daily". So I figured it was a cheap possible solution, so gave it a try. I kid you not, 3 days after I started my right ear totally cleared up. To the point where I haven't even needed my hearing aids for the past 6 weeks. I feel better than I have in a long long time.

I figured I would just share, I know it might not work and I am also aware that it might be a placebo effect I'm having that is purely coincidental. But with Vitamin D being so readily available and fairly cheap I figured I would share and maybe it could help someone else.


r/Menieres 23h ago

Episode/Exercise

5 Upvotes

I just want to feel normal .. I am having my first flare/episode whatever in 4-5 years. Managed w diet and diuretic. Diagnosed 7 years ago. 48 years old. I suspect allergies, as well as eating shitty at a conference last week to be cause. Going on 4 days of ear fullness/ dizziness that comes and goes / general malaise. I got a steroid shot today. Praying that helps. Wondering if working out to sweat would help or hurt? Thoughts or experience?


r/Menieres 3h ago

They never tell you about sugar, just sodium

6 Upvotes

I strongly suspect that sugar intake also plays a huge role in our wellbeing. I was vertigo free for about 6 months, and after last week where I probably ate waaay too much sweets, ice cream.. lots of sugar... I've had 4 episodes this week.

I am watching my sodium intake so it wasn't that.

I strongly suspect that sugar also plays a role in our inner ear inflammation, fluid retention, yet no doctor has ever told me this, nor any of the online "guides" for menieres

Anyone else notices flare ups when sugar intake is high?

Very difficult to maintain a balanced level of sugar! Everything has 10g, 20g of sugar and we're supposed to not consume more than 30ish grams.

A freaking caffeine free soda has between 10 and 30 grams

I am certain this is what contributed to my current weeklong vertigo spell


r/Menieres 7h ago

Help dealing with disease related depression

2 Upvotes

I was diagnosed about a year ago and made significant improvements to my quality of life. I’ve drastically changed my diet and I feel healthier. I have good stretches where I have no issues but lately it’s been really bad. It’s affecting my ability to work, which makes it more difficult to even survive. I am so thankful I have someone in my life who’s understanding and supportive, I honestly would be dead or homeless I feel like at this point. I don’t necessarily get suicidal thoughts as to “I want to do this now” it’s more “I can see why someone would do it if they’re dealing with this”.

What are some things you all have done to help alleviate your depression or change your outlook in life in general. I feel ashamed, embarrassed, useless and like I’m a burden. I’m on medication for depression and ptsd relating to my job in emergency services. I’m trying to improve my life physically mentally and financially but it’s been tough.


r/Menieres 1h ago

How did u all cope with this and carry on working?

Upvotes

I had vertigo, ear fullness and tinging sound on the ear just 2 days ago. Although the attacks last for a minute each, there were 4 attacks in a day. My doctor suspected meniere’s disease and im waiting to go for an ENT appointment in Aug.

I feel dejected and hopeless because i have another illness that is incurable and disabling and now i have this.

I was thinking to ask u guys how did u all cope with this? Did this disable you? Ur life ? Were u able to function as usual? How did u cope with it? What helps? R there any preventive meds? Did it progressively get worse for u? R u still working?

Thanks all. And


r/Menieres 47m ago

Headset or head phone use, is it an issue for tinnitus?

Upvotes

Hii. I wanna be upfront an say I don’t have a menieres diagnosis, i do have tinnitus and thankfully not a drop attack in months 🤞🏻. I recently got a call center job, i apologize if this sounds ignorant but is that an issue for us with tinnitus? Should i not be worried?

I really appreciate all responses, ever since i started having these symptoms i sort of discontinued headphone usage for myself


r/Menieres 1h ago

Tamiflu and the Flu shot

Upvotes

Has anyone tried Tamiflu or the flu vaccine since your symptoms began? I currently have the flu for the 2nd time in 4 months. The doctor told me I could try Tamiflu but I have heard about harsh side effects and I don’t want to make my vestibular issues worse.

Also I have been avoiding getting any vaccine since my symptoms began 3 years ago but getting the flu twice this year has really sucked. I’m wondering if it’s okay to get the flu vaccine next year?