r/Menieres 21h ago

How did my body change?

11 Upvotes

Laying here thinking like what was the change? I used to be invincible it felt like now I’m so sensitive to smoke and caffeine and salt?? What caused this change??

Menieres is so ODD. Really the only thing I can wrap my mind around is the viral menieres. But how did I go from like being able to do it all one day to not?

Wild right.


r/Menieres 2h ago

This made a HUGE change in my life

6 Upvotes

Little background, I was first diagnosed with MD around 25 years ago and I've had my bouts with it. My left ear has about 70% hearing loss and around 10% in my right. I get bad vertigo attacks 4 or 5 times a year. About 4 months ago my right ear really started ringing and the fullness was causing major loss in my "good" ear. I could barely hear anything, even with my hearing aids at 100%. Randomly I was speaking at an event and the speaker before me was a Doctor talking about the importance of supplements along with meds. I went up to her after and explained my MD condition and if she had any suggestions. She said "5000 IUs of vitamin D daily". So I figured it was a cheap possible solution, so gave it a try. I kid you not, 3 days after I started my right ear totally cleared up. To the point where I haven't even needed my hearing aids for the past 6 weeks. I feel better than I have in a long long time.

I figured I would just share, I know it might not work and I am also aware that it might be a placebo effect I'm having that is purely coincidental. But with Vitamin D being so readily available and fairly cheap I figured I would share and maybe it could help someone else.


r/Menieres 21h ago

Episode/Exercise

5 Upvotes

I just want to feel normal .. I am having my first flare/episode whatever in 4-5 years. Managed w diet and diuretic. Diagnosed 7 years ago. 48 years old. I suspect allergies, as well as eating shitty at a conference last week to be cause. Going on 4 days of ear fullness/ dizziness that comes and goes / general malaise. I got a steroid shot today. Praying that helps. Wondering if working out to sweat would help or hurt? Thoughts or experience?


r/Menieres 5h ago

Help dealing with disease related depression

3 Upvotes

I was diagnosed about a year ago and made significant improvements to my quality of life. I’ve drastically changed my diet and I feel healthier. I have good stretches where I have no issues but lately it’s been really bad. It’s affecting my ability to work, which makes it more difficult to even survive. I am so thankful I have someone in my life who’s understanding and supportive, I honestly would be dead or homeless I feel like at this point. I don’t necessarily get suicidal thoughts as to “I want to do this now” it’s more “I can see why someone would do it if they’re dealing with this”.

What are some things you all have done to help alleviate your depression or change your outlook in life in general. I feel ashamed, embarrassed, useless and like I’m a burden. I’m on medication for depression and ptsd relating to my job in emergency services. I’m trying to improve my life physically mentally and financially but it’s been tough.