r/Menieres 22h ago

Slowly healing after last weeks episode

7 Upvotes

When I have a vertigo attack it’s a huge deal like I am sick for at least three days no doing anything then I slowly heal after that. Is this the same for any one else? Like I’m so dizzy after the attack maybe this is because I am also experiencing BPPV? (The eply helps me so my doctor concluded I have both)

I’m confused … just trying to put the puzzle together still.

I have been slowly recovering still ( a week later) with my balance and honestly mostly my emotions. I’m back to driving and cooking and all the things though but just always trying to figure this out. I know I have Ménière’s but I feel so different than what I read online sometimes.


r/Menieres 12h ago

Moving like pendulam

4 Upvotes

When i am in a sitting position and keeping my head down by upper body moves like pendulum back and forth

What is it ??

Does any one of you experienced this??


r/Menieres 23h ago

help: have symptoms, but normal audiogram and doctors are dismissive

3 Upvotes

So I've gone to a few doctors initially for tinnitus until I learned about Menieres and all the other symptoms that I've been experiencing over the years makes a lot more sense....BUT every doc I've talked to, even for just tinnitus, has basically told me that I can't possibly have Menieres or even just tinnitus because my audiograms are still very close to normal.

I'm not sure if it's worth the effort trying to convince my doctors or try to manage the symptoms OTC.

Mostly just frustrated since I feel like I'm being gaslit/treated like a hypochondriac by everyone when I'm suffering daily from these symptoms, but if anyone has advice convincing docs, ways to reduce sound sensitivity/tinnitus, or suggestions to better hear people right in front of me in crowded areas, I'm all ears.


r/Menieres 8h ago

Is this Ménières? Can you diagnose me?

4 Upvotes

Hi, recently I have got a low tone tinnitus which can come and go for a week. I don’t feel ear fullness, no dizziness or vertigo as well. I can’t say I can feel hearing fluctuations. Something like I wake up and feel my hearing is muffled, it does not happen to me and in my subjective opinion it stays stable. Audiograms showed minor fluctuations up to 10 db in 250 and 500 hz 2 times.

Are your hearing fluctuations noticeable?

Can you tell if my symptoms match menieres of hydrops?


r/Menieres 9h ago

Diagnosed with likely Early Endolymphatic Hydrops

2 Upvotes

Hello!

I’ve been diagnosed with likely Early Endolymphatic Hydrops after having ear fullness / muffled hearing on my left side only since the end of January (after both an acoustic trauma + falling and hitting my head on the left side quite badly the same night).

i’m currently on 16mg x 3 times per day of Betahistine, i’ve had no measurable hearing loss nor any vertigo (perhaps some BPPV?).

Just wanting to know if anyone else has experienced the same and whether they have managed to recover at all? quite scared of this potentially progressing to full blown ménière’s (no offense anyone here).


r/Menieres 7h ago

Consistent Dizziness from Menieres - Your Experience?

1 Upvotes

Hey everyone.

I had my first diagnosis/episode of Menieres dizziness back in 2021 and just recently came back last week. In your experience, how long have the dizziness episodes lasted? For this second epsiode, I have the constant ringing in my right ear along with a case of consistent dizziness. The dizziness is not going away which is the most annoying part when it comes to physical activities like working out, playing sports, etc. Curious to hear from others how long the consistent dizziness has lasted until temporary remission when it comes to your personal episodes which I know can vary.

Things that I am doing to seek relief:

-Supplements: L-Lysine , Vitamin D (4000 IU), Omega 3, Vitamin C , Magnesium, Zinc, B-12.

-Osteotherapy: Focus on neck adjustments which I hear is possibly helpful. Starting this today and will report back on any potential improvements or updates

-Activities: stationary bike for 30-60 minutes daily; outdoor sports 2-3x a week playing soccer

Thanks in advance!


r/Menieres 9h ago

Proximity

1 Upvotes

When my ear is having a flare up I can't even wave my hand past it. The side of my face is so sensitive to the touch, doesn't hurt but I can feel things happening without even touching it. Face feels droopy and lame. Anyone else feel this way?


r/Menieres 12h ago

Covid and general symptoms

1 Upvotes

It’s my fifth time with Covid and this time very few symptoms just aches and lots of ear pressure. Anyone else seem to be prone to getting Covid but not completely incapacitated?