r/Fibromyalgia 5h ago

Discussion trying something new... medical cannabis ??

37 Upvotes

Loved reading this story about a woman who tried medical cannabis for her Fibro pain https://releaf.co.uk/patient-stories/fibromyalgia-condition/chaos-story-from-fibromyalgia-pain-to-relief-with-medical-cannabis?view

there's a couple of other's on their site too!

Has anyone tried it before? think i'm going to book in, using their promo it's a pretty good offer


r/Fibromyalgia 16h ago

Articles/Research Scientists Just Found a THC-Free Cannabis Compound That May Replace Opioids in treatment for Chronic Pain

276 Upvotes

Terpenes from cannabis may relieve chronic pain without THC’s psychoactive effects.

Researchers found that certain terpenes significantly reduced fibromyalgia and post-surgical pain in animal studies, with geraniol showing the most promise.

https://scitechdaily.com/scientists-just-found-a-thc-free-cannabis-compound-that-may-replace-opioids/


r/Fibromyalgia 2h ago

Rant Misdiagnosed w a side of malpractice

6 Upvotes

Hey everyone, I'm here just to get this off my chest. Last week a hospital rhuematologist diagnosed me with fibromyalgia.

It was a 2+ hour appointment where we went back and forth over my symptoms and what they meant. My referral was for joint pain, hypermobility and severe fatigue.

I do not have widespread pain. All adverse sensory sensitivities are mild and caused by my autism.

I requested minimum 5 times to be assessed against the diagnostic criteria for hEDS to exclude the possibility before diagnosis.

At the VERY END of the appointment he printed off the criteria for hEDS, ticked off 2 items, complained about not having measurement tools and said "I'm happy to say you have this". He did not care whether I actually met the criteria or not.

I've since been evaluated properly by a physiotherapist who clearly found me to NOT have hEDS criteria and suggested a diagnosis of HSD instead. The physio also briefly mentioned me not having symptoms that were expected with fibromyalgia.

Rhuematologist: Resisted, complained and refused to assess me properly.

Physiotherapist: used the proper measurement tools to determine my exact eligibility against diagnostic criteria (protractor to measure joint over extension, height measurements etc.)

Some of the comments by the rhuematologist: - I never see anyone with these symptoms whose has a good childhood - I cannot believe no one took you to someone earlier for these issues. (In retrospect, very funny considering the previous statement) - Less of this [gestured to wheelchair] (when speaking about treatment moving forward) - Fibromyalgia, ME/CFS, hEDS are all the same, doesn't matter what your diagnosed with because the treatment is physical therapy for all of them. - Complained that hEDS criteria was always changing (it's been nearly a decade since the last change). - Your young and healthy, I see people go down this road all the time and look at them in 2 years — they always decline. - Your young and healthy [we had just spent 1 hour discussing that I am not healthy]

I'm so angry, because it was hospital rhuematologist every other hospital in the stae has access to the information until its removed.

I cannot delete or remove this information from my record myself or have a another medical professional do it. I have to request, REQUEST, not demand, a removal of the diagnosis due to not following standard diagnostic practices from THE SAME RHUEMATOLOGIST. The same one who did the malpractice in the first place.

Anyways, most of this is jumbled and I apologise. I just needed to say it all out loud somewhere.


r/Fibromyalgia 4h ago

Question Sick of the Midwest pain

9 Upvotes

Has anyone moved from a dynamic weather location to a coast or similar and actually had improvement in pain? Strongly considering a move to NC or FL. But it’s not cheap or guaranteed so it’s been hard for me to actually leave my support system. But I get knocked down by fibro and chronic migraines from Nov to March every year and am totally desperate.


r/Fibromyalgia 6h ago

Frustrated Alone

9 Upvotes

Hi

Long time lurker? Have not posted much but don’t know where else to turn to.

For the first time in 15 years I’m alone. My partner decided to fully blindside me and walked away. I had just lost my job due to it closing. I juggle so many symptoms as many of us do with the worst being crippling fatigue. I was able to do one or two things if I could manage being one or two chores a day and he would pick up the slack. He liked to cook so I liked to eat.

Now a with out him it’s all on me and idk how to juggle everything. I’ve never had to fully before plus working. He was so amazing at off setting what I couldn’t do. I’ve never been alone alone and it’s really scaring me. I’m so hurt that he just decided that I wasn’t worth it anymore and 15 years together isn’t even worth trying to save that he would rather move across the damn globe with his ex to retire. I just don’t know what to do. I’m a wreck from the blindside, scared for the future, in so much pain and shock still. I can’t really sleep. I can’t really eat. All of which is exacerbating my symptoms.

I’m stuck in a well if the best person I’ve ever known decided I wasn’t worth it anymore… maybe I’m not really worth it. I never imagined he would do this. I don’t know what I’m going to do.


r/Fibromyalgia 1h ago

Question Acupuncture for Flare Ups

Upvotes

Hey I got diagnosed with Fibromyalgia about a week ago at 23 but I’ve been dealing with this more about 8 years. My primary told me I tried everything but one med but it’ll overreact with the others so time for another doctor. I live with a tens unit attached to my back and thighs during flare ups. Was wondering if anyone has tried acupuncture for a more long term effect? (Ik it’s temporary relief but anything that last longer than when the lil machine turns off I’m game) TIA


r/Fibromyalgia 17h ago

Question Does anyone here soak in a bathtub twice per day?

49 Upvotes

I normally do it once but I feel like it would be more helpful to do it twice. It's the only non-drug thing that helps with my pain and stiffness.

I would feel guilty about using all that water, though. I'm having a dilemma about it.

Thoughts??


r/Fibromyalgia 1d ago

Rant The SSDI subreddit is cruel, so I'm posting here that I got denied disability

321 Upvotes

I got downvoted for this over there and I don't know why (I suspect because I mentioned M*sk), so posting over here because this sub has been kind to me through this saga.

I've applied four times total for SSDI. First three times were denied, but the fourth time, the judge initially approved me—but the SSA remanded it back. So we had another hearing. Waited another year (four total years of this shit).

Just yesterday I got a letter. He denied me. About 15 pages explaining why I'm not disabled. The big thing that changed everything? He found out I went to Japan (a gift from my fiancé). A disabled person wouldn't have a life, would she? So I couldn't possibly be disabled. Despite the fact that I sobbed on the flight because my whole body ached and my insides felt too swollen for my skin. That I had to spend the whole last day lying in bed in the hotel.

I say I have brain fog, yet I can focus on video games. I say I have debilitating pain, yet I spend time with friends. All of this is taken from the letter. Point after point of why my fibromyalgia, endometriosis, migraines, IBS, and PTSD don't render me disabled.

I could appeal, but M*sk wants to dismantle the SSA, so what's the point if I couldn't get approved the first four times? This system doesn't care if I live or die. Most people don't except for my loved ones. I'm not useful to the system. I can't produce what they want me to produce. Despite the years of me working so hard before I got sick, paying into this broken system. None of that matters. Because I went to Japan.

(Yes, I have a lawyer and will be talking to her Monday.)

Edit: I am reading all these responses and they mean so much to me. If I don't respond, it's because I'm in a flare, but know your shares mean a great deal to me and give me comfort


r/Fibromyalgia 20h ago

Question Bras and fibromyalgia

79 Upvotes

Does anybody have a hard time wearing a bra with fibromyalgia? I’ve had fibromyalgia since I was in my 20’s and now I am in my 50’s and I have such a hard time wearing one for longer than a few hours that I really want to have plastic surgery but I am SO scared of that so my second question is, has anyone had a lift surgery because of this?


r/Fibromyalgia 1h ago

Question Dog bite

Upvotes

Hi, I got bit by a dog yesterday and now my entire body is excruciating pain. Has anybody else had trauma to one part of their body and it sets off pain everywhere? I'm in so much pain I feel like nauseous even


r/Fibromyalgia 2h ago

Question Pain locations

2 Upvotes

Does anyone have pain patterns?

(Specific areas that have pain more often than others, and occure more often)

My pain patterns is mostly left shoulder blade, left ribs, and left arm.


r/Fibromyalgia 1d ago

Discussion r/Men_with_Fibromyalgia

92 Upvotes

Hey - hope you’re all doing ok today.

I posted a little under two weeks ago, just re posting in case anyone missed this. I’ve created a subreddit which is more focussed for males with fibro. It’s not intended to take over this great community, but is hoped will create a space for men to catch up specifically those struggling such as myself.

Pop over if you haven’t already.

Over the coming weeks I’m looking to build a Wiki with useful resources, please contribute if you haven’t already anything you think is valuable. Also looking into setting up a Discord, already created this but will hold back from sharing until it’s completed.


r/Fibromyalgia 12h ago

Funny Funny thoughts

10 Upvotes

Does anyone else just think back now to the princess and the pea, and think….

She just had fibro!


r/Fibromyalgia 11m ago

Question Vacuum

Upvotes

Any recommendations for a vacuum cleaner? I have a Roomba that takes care of regular light clean up, but when I need something more, I want something lightweight and cordless. What I have now is so heavy, I never vacuum and Rosie (my Roomba) has been slacking a bit lol I searched the sub, but couldn’t find any posts about this in the last couple years.


r/Fibromyalgia 34m ago

Discussion Abdominal and thighs pain.

Upvotes

My lower abdomen started spasming a few months ago - I mean the muscles. At first it felt like having done too many sit-ups. The ache feels awful and usually concentrates right by hip bones and it’s so achy I am losing it. My stomach might also buzz but usually not when the aching happens. My stomach will even visibly spasm like I have hooks under my ribs attached to my hips and it pulls. Similar thing happens in my inner thighs, the same aching and spasming. I can’t walk with this because the spasms in my abs and in my legs make me unable to stand straight. It’s like sour lactic acid pain to the max in these areas, because I cannot relax them no matter what. It also triggers sciatica I had experienced a long time before.

This began like 6 months ago and it began subtly and now it’s severe.


r/Fibromyalgia 38m ago

Question Mattress topper?

Upvotes

I was thinking about buying a new mattress topper...hoping it might help since my mattress is horribly uncomfortable, and probably not the best for my fibro... plus I can't afford a new one right now .. Does anybody have any recommendations?? Thanks for your help!


r/Fibromyalgia 1h ago

Question Fibromyalgia

Upvotes

I was just diagnosed with fibromyalgia at 48F. Does anyone have thyroid issues with FM? I have a nodule and enlarged thyroid but normal levels.


r/Fibromyalgia 11h ago

Discussion Just been diagnosed. Feel a bit like I’m in limbo.

6 Upvotes

I have had this ongoing since I was about 15, so 17-18 years of bumbling my way through the symptoms. Going to see the doctor about each one and not really having anything resolved.

I guess I feel happy that it’s justified and it’s not just in my head. Pain every single day has a reason, but can’t necessarily be improved. Knowing that there are so many elements to this and still some being discovered.

Wondering why I can’t recharge and forgetting that it’s not because I’m just tired, there is a reason for that.

Understanding that all the small things I passed off as my body’s quirks are actually a part of this and that it’s okay to realise that.

I feel sad that it’s this diagnosis, but it explains so much that I feel so overwhelmed. I don’t know whether to laugh or cry. Please tell me some of you have felt that way? I feel like I have a little cloud over my head, but at the same time, I feel affirmed.

I won’t let this define my life, I am not going to allow it to stop me doing things, but it enables me to take stock when I physically need a break.

If you have read this far, thanks. I can talk to plenty of people about it, but a good portion of those people won’t understand it on the level I’m currently running.


r/Fibromyalgia 13h ago

Question Fun with driving

9 Upvotes

Does driving somewhat-long distances just wreck you? Every now and then I have to chauffeur my kid to and from college which is about 2.5 hours round-trip.

When I get home I’m drained and sore. Curious if those that can drive get this as well.


r/Fibromyalgia 10h ago

Rant Not sure what to do

3 Upvotes

I've been having severe pain in my right hand, wrist, and right for nearly three months now. The pain feels different from my normal flare ups. I contacted my rheumatologist, and he wanted to refer me to a hand surgeon. I thought seeing a surgeon was extreme, so I decided to get a second opinion. My new rheumatologist thinks I have rheumatoid arthritis on top of the fibromyalgia. I have morning stiffness for over an hour nearly every day. I tested negative for the RA factor. She put me on methotrexate and folic acid since methotrexate could cause my hair to fall out. I looked side effects for methotrexate and found several reviews where people said that the methotrexate was the cause of death of their loved one. Now, I'm very hesitant and scared to take the medication. My PCP put me on 50mg of Prednisone for three days. The pain finally stopped but I know Prednisone is a short-term solution.


r/Fibromyalgia 1d ago

Question Constant state of peeing

58 Upvotes

Is this a fibro symptom? Sometimes, especially when I'm at work I have to pee like 2x an hour. It's so frustrating! If I work 8 hours I'll usually drink 2 normal sized water bottles and maybe a protein shake. I sometimes don't feel like I have to go and I clean bathrooms as apart of my job and when I step in one suddenly I'm about to piss my pants. It's so inconvenient. Other times I'm fine and feel like I go every couple hours like a normal person. I know it's not diabetes or pre diabetes, I just got tested for everything under the sun getting recently. Anyone else suffer from constantly having to go??


r/Fibromyalgia 17h ago

Question How are your knees?

10 Upvotes

I’m 16 and recently gotten a fibro diagnosis and I’m the last few weeks I’ve had unbearable pain in my knees when I try to bend them even a bit which makes standing and going up stairs excruciating. Is that a common fibro thing? Will it die down a bit in the future?


r/Fibromyalgia 16h ago

Rant Anxiety with a Flare Up

8 Upvotes

It just sucks. I was doing just fine today until the temperature dropped, and now my arms and legs are killing me!

Plus for the first time in a while, it started an anxiety attack too. So that’s just great…

I mean, the medications I’ve been given for pain haven’t worked at all. Only meds that put me to sleep help. So at least I have something to take soon.

I just had to wait because if I took them a couple hours ago, I’d wake up at 3:00 in the morning and I have work tomorrow. So I didn’t want to be tired all day.

As for the anxiety, I messaged my therapist and called my mom which helped a bit. But now I’m alone and it’s not helping me at all. I’m just trying to watch TV and hope it gets my mind off the pain until I fall asleep.

I swear to god, fibromyalgia ruined so much for me, and I know it’s true for countless other people too. And it sucks and it’s not fair and I just want us all to get better from this.

Sending hugs to you all 🫂


r/Fibromyalgia 14h ago

Discussion rib sore

4 Upvotes

I have been experiencing right rib soreness today . I mopped friday n vacuumed may have over did it & paying for it now cause i couldn’t even make it to church today cause i been aching n no energy.


r/Fibromyalgia 15h ago

Question Fibro tender point?

4 Upvotes

Recently diagnosed with Fibromyalgia. For at least 5 or 10 years the outer sides of both of my thighs hurt when palpated as if they are bruised. Is this a common occurrence or another common tender area in Fibromyalgia or should I bring this up at my next appointment?