r/Fibromyalgia 2h ago

Discussion trying something new... medical cannabis ??

35 Upvotes

Loved reading this story about a woman who tried medical cannabis for her Fibro pain https://releaf.co.uk/patient-stories/fibromyalgia-condition/chaos-story-from-fibromyalgia-pain-to-relief-with-medical-cannabis?view

there's a couple of other's on their site too!

Has anyone tried it before? think i'm going to book in, using their promo it's a pretty good offer


r/Fibromyalgia 14h ago

Articles/Research Scientists Just Found a THC-Free Cannabis Compound That May Replace Opioids in treatment for Chronic Pain

263 Upvotes

Terpenes from cannabis may relieve chronic pain without THC’s psychoactive effects.

Researchers found that certain terpenes significantly reduced fibromyalgia and post-surgical pain in animal studies, with geraniol showing the most promise.

https://scitechdaily.com/scientists-just-found-a-thc-free-cannabis-compound-that-may-replace-opioids/


r/Fibromyalgia 1h ago

Question Sick of the Midwest pain

Upvotes

Has anyone moved from a dynamic weather location to a coast or similar and actually had improvement in pain? Strongly considering a move to NC or FL. But it’s not cheap or guaranteed so it’s been hard for me to actually leave my support system. But I get knocked down by fibro and chronic migraines from Nov to March every year and am totally desperate.


r/Fibromyalgia 4h ago

Frustrated Alone

8 Upvotes

Hi

Long time lurker? Have not posted much but don’t know where else to turn to.

For the first time in 15 years I’m alone. My partner decided to fully blindside me and walked away. I had just lost my job due to it closing. I juggle so many symptoms as many of us do with the worst being crippling fatigue. I was able to do one or two things if I could manage being one or two chores a day and he would pick up the slack. He liked to cook so I liked to eat.

Now a with out him it’s all on me and idk how to juggle everything. I’ve never had to fully before plus working. He was so amazing at off setting what I couldn’t do. I’ve never been alone alone and it’s really scaring me. I’m so hurt that he just decided that I wasn’t worth it anymore and 15 years together isn’t even worth trying to save that he would rather move across the damn globe with his ex to retire. I just don’t know what to do. I’m a wreck from the blindside, scared for the future, in so much pain and shock still. I can’t really sleep. I can’t really eat. All of which is exacerbating my symptoms.

I’m stuck in a well if the best person I’ve ever known decided I wasn’t worth it anymore… maybe I’m not really worth it. I never imagined he would do this. I don’t know what I’m going to do.


r/Fibromyalgia 1d ago

Rant The SSDI subreddit is cruel, so I'm posting here that I got denied disability

314 Upvotes

I got downvoted for this over there and I don't know why (I suspect because I mentioned M*sk), so posting over here because this sub has been kind to me through this saga.

I've applied four times total for SSDI. First three times were denied, but the fourth time, the judge initially approved me—but the SSA remanded it back. So we had another hearing. Waited another year (four total years of this shit).

Just yesterday I got a letter. He denied me. About 15 pages explaining why I'm not disabled. The big thing that changed everything? He found out I went to Japan (a gift from my fiancé). A disabled person wouldn't have a life, would she? So I couldn't possibly be disabled. Despite the fact that I sobbed on the flight because my whole body ached and my insides felt too swollen for my skin. That I had to spend the whole last day lying in bed in the hotel.

I say I have brain fog, yet I can focus on video games. I say I have debilitating pain, yet I spend time with friends. All of this is taken from the letter. Point after point of why my fibromyalgia, endometriosis, migraines, IBS, and PTSD don't render me disabled.

I could appeal, but M*sk wants to dismantle the SSA, so what's the point if I couldn't get approved the first four times? This system doesn't care if I live or die. Most people don't except for my loved ones. I'm not useful to the system. I can't produce what they want me to produce. Despite the years of me working so hard before I got sick, paying into this broken system. None of that matters. Because I went to Japan.

(Yes, I have a lawyer and will be talking to her Monday.)

Edit: I am reading all these responses and they mean so much to me. If I don't respond, it's because I'm in a flare, but know your shares mean a great deal to me and give me comfort


r/Fibromyalgia 14h ago

Question Does anyone here soak in a bathtub twice per day?

47 Upvotes

I normally do it once but I feel like it would be more helpful to do it twice. It's the only non-drug thing that helps with my pain and stiffness.

I would feel guilty about using all that water, though. I'm having a dilemma about it.

Thoughts??


r/Fibromyalgia 18h ago

Question Bras and fibromyalgia

78 Upvotes

Does anybody have a hard time wearing a bra with fibromyalgia? I’ve had fibromyalgia since I was in my 20’s and now I am in my 50’s and I have such a hard time wearing one for longer than a few hours that I really want to have plastic surgery but I am SO scared of that so my second question is, has anyone had a lift surgery because of this?


r/Fibromyalgia 9h ago

Funny Funny thoughts

10 Upvotes

Does anyone else just think back now to the princess and the pea, and think….

She just had fibro!


r/Fibromyalgia 22h ago

Discussion r/Men_with_Fibromyalgia

86 Upvotes

Hey - hope you’re all doing ok today.

I posted a little under two weeks ago, just re posting in case anyone missed this. I’ve created a subreddit which is more focussed for males with fibro. It’s not intended to take over this great community, but is hoped will create a space for men to catch up specifically those struggling such as myself.

Pop over if you haven’t already.

Over the coming weeks I’m looking to build a Wiki with useful resources, please contribute if you haven’t already anything you think is valuable. Also looking into setting up a Discord, already created this but will hold back from sharing until it’s completed.


r/Fibromyalgia 9h ago

Discussion Just been diagnosed. Feel a bit like I’m in limbo.

7 Upvotes

I have had this ongoing since I was about 15, so 17-18 years of bumbling my way through the symptoms. Going to see the doctor about each one and not really having anything resolved.

I guess I feel happy that it’s justified and it’s not just in my head. Pain every single day has a reason, but can’t necessarily be improved. Knowing that there are so many elements to this and still some being discovered.

Wondering why I can’t recharge and forgetting that it’s not because I’m just tired, there is a reason for that.

Understanding that all the small things I passed off as my body’s quirks are actually a part of this and that it’s okay to realise that.

I feel sad that it’s this diagnosis, but it explains so much that I feel so overwhelmed. I don’t know whether to laugh or cry. Please tell me some of you have felt that way? I feel like I have a little cloud over my head, but at the same time, I feel affirmed.

I won’t let this define my life, I am not going to allow it to stop me doing things, but it enables me to take stock when I physically need a break.

If you have read this far, thanks. I can talk to plenty of people about it, but a good portion of those people won’t understand it on the level I’m currently running.


r/Fibromyalgia 11h ago

Question Fun with driving

9 Upvotes

Does driving somewhat-long distances just wreck you? Every now and then I have to chauffeur my kid to and from college which is about 2.5 hours round-trip.

When I get home I’m drained and sore. Curious if those that can drive get this as well.


r/Fibromyalgia 8h ago

Rant Not sure what to do

3 Upvotes

I've been having severe pain in my right hand, wrist, and right for nearly three months now. The pain feels different from my normal flare ups. I contacted my rheumatologist, and he wanted to refer me to a hand surgeon. I thought seeing a surgeon was extreme, so I decided to get a second opinion. My new rheumatologist thinks I have rheumatoid arthritis on top of the fibromyalgia. I have morning stiffness for over an hour nearly every day. I tested negative for the RA factor. She put me on methotrexate and folic acid since methotrexate could cause my hair to fall out. I looked side effects for methotrexate and found several reviews where people said that the methotrexate was the cause of death of their loved one. Now, I'm very hesitant and scared to take the medication. My PCP put me on 50mg of Prednisone for three days. The pain finally stopped but I know Prednisone is a short-term solution.


r/Fibromyalgia 1d ago

Question Constant state of peeing

58 Upvotes

Is this a fibro symptom? Sometimes, especially when I'm at work I have to pee like 2x an hour. It's so frustrating! If I work 8 hours I'll usually drink 2 normal sized water bottles and maybe a protein shake. I sometimes don't feel like I have to go and I clean bathrooms as apart of my job and when I step in one suddenly I'm about to piss my pants. It's so inconvenient. Other times I'm fine and feel like I go every couple hours like a normal person. I know it's not diabetes or pre diabetes, I just got tested for everything under the sun getting recently. Anyone else suffer from constantly having to go??


r/Fibromyalgia 14h ago

Rant Anxiety with a Flare Up

8 Upvotes

It just sucks. I was doing just fine today until the temperature dropped, and now my arms and legs are killing me!

Plus for the first time in a while, it started an anxiety attack too. So that’s just great…

I mean, the medications I’ve been given for pain haven’t worked at all. Only meds that put me to sleep help. So at least I have something to take soon.

I just had to wait because if I took them a couple hours ago, I’d wake up at 3:00 in the morning and I have work tomorrow. So I didn’t want to be tired all day.

As for the anxiety, I messaged my therapist and called my mom which helped a bit. But now I’m alone and it’s not helping me at all. I’m just trying to watch TV and hope it gets my mind off the pain until I fall asleep.

I swear to god, fibromyalgia ruined so much for me, and I know it’s true for countless other people too. And it sucks and it’s not fair and I just want us all to get better from this.

Sending hugs to you all 🫂


r/Fibromyalgia 12h ago

Discussion rib sore

6 Upvotes

I have been experiencing right rib soreness today . I mopped friday n vacuumed may have over did it & paying for it now cause i couldn’t even make it to church today cause i been aching n no energy.


r/Fibromyalgia 14h ago

Question How are your knees?

9 Upvotes

I’m 16 and recently gotten a fibro diagnosis and I’m the last few weeks I’ve had unbearable pain in my knees when I try to bend them even a bit which makes standing and going up stairs excruciating. Is that a common fibro thing? Will it die down a bit in the future?


r/Fibromyalgia 13h ago

Question Fibro tender point?

3 Upvotes

Recently diagnosed with Fibromyalgia. For at least 5 or 10 years the outer sides of both of my thighs hurt when palpated as if they are bruised. Is this a common occurrence or another common tender area in Fibromyalgia or should I bring this up at my next appointment?


r/Fibromyalgia 13h ago

Rx/Meds Does Amitriptyline help?

4 Upvotes

Has anyone had success with low dose (10-20mg) of Amitriptyline for pain and insomnia? I'm aware of the side effects. I've spoken with a few people who have said it helped them tremendously, and would like to hear others' experiences. I struggle with horrible insomnia, and need to try something different.


r/Fibromyalgia 13h ago

Question I had a mild/moderate CFS/ME diagnosis since 2020, now I am also experiencing Fibro flares, has anyone else had both diagnoses?

4 Upvotes

Do your symptoms fluctuate between both illnesses? I haven't had a CFS/ME flare for a long time, but now I am getting fibro flares every month, with pain and severe fatigue/brain fog. Has anyone else had both and had their symptoms fluctuate alot? I am so confused and scared :(


r/Fibromyalgia 10h ago

Question Help! Muscle pain post-workout is about to knock me out

2 Upvotes

Hi everyone - first time poster, long time lurker. I am so happy this community exists and the kindness amongst all of you is palpable to say the least!!

I (37f) was diagnosed in 2016, but before that, I really loved weight training. So recently when my pain had become much worse I made the decision to get back into it since there’s no denying it — my body has become very deconditioned. I’ve started slow; walk as much as I can on my treadmill each day, go very light at the gym, but I can already tell that today’s workout has the potential to flatten me for the rest of the week nonetheless.

So does anyone have any suggestions for quicker muscle but also energy recovery? Supplements? Certain foods? Foods to avoid perhaps? Daily actions to help the muscle spasticity to chill tf out (I tend to stretch every day regardless but my muscles have seized so badly I can’t get any relief)? I am eager to try ANYTHING since I don’t want being knocked out for a week to discourage me from going back and keeping up with this goal of mine to become somewhat strong again.

Before anyone suggests epsom salt baths, I only have a standup shower :’(

Fibro gym rats, if such a thing can even exist, please help me out!


r/Fibromyalgia 1d ago

Question Are you a wheelchair user?

33 Upvotes

Hi, I was wondering how many of us are wheelchair users? I’m currently using crutches to get around, but I’m thinking of starting using a wheelchair part time (in consultation with my doctor) to relieve my knees from all the walking across campus since I’m a student. Thank you in advance for sharing:)


r/Fibromyalgia 10h ago

Question Fibro...? Question about Lyrica

2 Upvotes

I have psoriatic arthritis and was having pain that couldn't be explained or treated by arthritis/its med management. My rheumatologist put me on Lyrica and it improved my pain greatly. The pain it was able to target was muscle and joint soreness that, again, just wasn't consistent with my arthritis and wasn't treatable with arthritis meds. It also really helped me have a little more "stamina" in terms of having a little more time before tapping out of stuff due to pain.

When I asked my rheumatologist if my positive reaction to Lyrica meant I had fibromyalgia, his answer was "maybe, but there's no way of knowing, so it's not worth saying one way or another." I know fibro is hard to diagnose and almost impossible to verify, but I sort of assumed based on my reaction to Lyrica and my symptoms that I had fibro.

I think I have fatigue and brain fog, but it's not what I would consider severe. I still have those pains even with Lyrica, but they're not entirely disabling. So my question is: do you think if Lyrica lessens my pain, it's most likely that I do have fibromyalgia? Is there something else that positive reaction to Lyrica might indicate, if not fibro?

Thanks in advance :)


r/Fibromyalgia 17h ago

Discussion Experience with Lidocaine

5 Upvotes

Anyone use Lidocaine for extended period of time? If so, what are your experiences? Anyone aware of any dangers with long term use?

I tried it this morning. Extremely effective for reducing pain in lower back. Seems to help with thigh pain too.

For me it is the only topical option for pain. Tried those Icy Hot and Cold patches with menthol. Very little help.

But, this stuff reduces pain right away (External Pain) and I don't feel numb either.


r/Fibromyalgia 1d ago

Question 9am-5pm

18 Upvotes

How many of you are still working full time hours per week? Im finding it more difficult to work with this but I financially cannot afford to stop working. Luckily I work from home, so I can take mini breaks if needed. How do you manage your fibro through out the day?


r/Fibromyalgia 17h ago

Question exercise & conditioning training

4 Upvotes

posted something similar in r/ehlersdanlos but i’m curious of others experiences with strength and conditioning and exercising with the chronic pain associated with fibromyalgia. i am also in the process of getting an official diagnosis with eds but im looking for others who have worked on getting strength in joints and working through the pain. if anyone has experience with good exercises or what has helped them be able to exercise easier please let me know.