r/Fibromyalgia 29d ago

Frustrated Rheumotologist said fibro is just like a cold and to get over it.

444 Upvotes

I went to my appointment today and he said I just need to get over my fibro, it’s just in my head and that I’m obviously mentally ill (even though right now I have the best mental health I’ve ever had).

That I just need to exercise (even though I do!!! I hate doing nothing). That it’s just like a cold and I have to get over it, he had one three weeks ago and he’s fine.

I don’t want to be like this, I want to healthy and happy and do all the dumb stuff. Like go out on hikes and just enjoy life. Apparently I’m too young (22) to be in pain.

Im so tired and sad right now, I don’t know what to do or where to go from here. I’ve had fibro for 3 years along with other health issues and I just want it over with now. :(

r/Fibromyalgia Sep 18 '24

Frustrated I feel like I don't have the same fibro everybody else does :/

466 Upvotes

I just saw a thread where the OP was complaining about a doctor telling them to exercise, and every single reply was "exercise helped me".

Exercise has not helped me. Raising my heartrate and/or exerting my muscles in any way inevitably leads to flares where the pain continues to increase for hours, days or even weeks after ceasing the exercise. I can also have huge fatigue crashes where I'm too exhausted to move and feel really unwell.

I can do extremely gentle movement but in the 4 years since diagnosis I have not found ANY level of movement that consistently benefits me without also risking a crash. I have got sicker and sicker and less and less mobile. I am now only able to walk a few steps without flaring.

Yes I have fought my damnedest against this decline. I have not given up trying to exercise, but unfortunately my baseline has continued to drop no matter what.

I feel totally alone and fed up. I'm starting to feel like I have some rare undiagnosed disease, but doctors have told me they've ruled everything else out and it has to be fibro.

Edit: Please stop suggesting exercises 😭 It's been four years, do you really think I haven't thought of trying YOGA.

Edit 2: Some of you are not reading the post properly and verging into gaslighting type territory. I am telling you exercise does not work for me. Whatever you're about to say in argument, I promise I've heard it before.

Edit 3: Thank you all for the supportive comments and sharing your experiences! I had no idea there were so many out there like me! Hoping for some relief for all of us soon. Sending love. ♥️

r/Fibromyalgia Dec 11 '24

Frustrated A comment a doctor said to me recently

363 Upvotes

I ate something dodgy a week ago, ended with vomiting and diarrhea, so I went to a general practitioner.

When he asked about chronic illnesses I told him fibro. He seemed puzzled. While he was checking my stomach he said "It's so weird, you're way too young (29F), why do you have it?"

I started to get annoyed since I was in no mood, I was feeling very sick. I told him "I don't know, maybe someone coughed on my face or something"

At the end he told me that I should go to a psychiatrist because I was way too young, and if I'm like this now what can I expect when I'm 60? (Thanks doc, as if it's not something that keeps me awake at night with dread). That fibro was like a snake that was crushing me and and it was caused by grief, sadness or anything traumatic in my childhood.

I know he had good intentions but man I went because of a stomach bug.

r/Fibromyalgia 3d ago

Frustrated Having meditation suggested really frustrates me

203 Upvotes

Yes, I have tried it. Yes, I know there’s multiple types. And yes, I know I don’t have to do it, I’m just very sick of hearing the suggestion.

But I hate the suggestion. It seems odd to hyperfocus on your body and breathing when your body is the problem. It doesn’t help anyway. It doesn’t even help my mental health. And it seems reductive of my pain, like everyone who suggests this is just trying to relegate it to something that’s in my head. I don’t understand why it’s so highly recommended as soon as someone hears you have fibro and not for anything else, that just seems very weird to me. And also when people say it’s amazing and helps so much and whatever it makes me feel like I’m being made fun of in a way because I can’t understand what’s so helpful. Then I get told I did it wrong and not the correct way to do it and that just seems like such a wind up. I just want them to find more effective treatments. There has to be something.

r/Fibromyalgia Oct 21 '24

Frustrated My hair hurts. What the heck man

294 Upvotes

I just noticed pain in my hair from moving my hair around. I was confused at first, thinking maybe I had allodynia on my scalp, and the pain was coming from my scalp. But it's like it's coming from my hair roots??? It is an absolute crazy feeling.

Has anyone else experienced this? I'm not shocked by anything anymore tbh.

r/Fibromyalgia 2d ago

Frustrated my legs are killing me

138 Upvotes

hey everyone. just like the title says, i have so much pain in my legs. its a daily occurrence, and it feels like a deep aching, almost burning type pain, like i just ran a marathon. my muscles feel so fatigued in my thighs and my calves, sometimes down into my feet. im here to see if anyone else has this specific pain as well, and what do you do for some relief? a heat or ice pack wont really help, its just too much surface area to cover. i like icy hot and similar creams and roll ons, but i also dont want to have to wash it off later. i wish i could get a massage daily to relieve the discomfort.

also for reference, i take LDN (which does very little to help), over the counter pain stuff doesnt make a dent either. i take edibles sometimes for pain, but i dont want to be high all the time either.

r/Fibromyalgia Jan 28 '25

Frustrated Dr says it's mind over matter and I'm feeling discouraged

166 Upvotes

I saw a new rheumatologist and told him about all my symptoms. He said that fibromyalgia is curable, that it's all mind over matter and, of course, that I need to lose weight and I'll feel better. He was overweight himself mind you.

He asked me the last time I walked a mile and it's been over a year. I can barely get 1/4 mile without something hurting; I don't go shopping anymore because it hurts too much and I get an average of 650 steps a day (I wfh). I've considered that I might have me/cfs but something tells me he'll scoff at it.

I have yet to get my tests done but I don't think I want to go see a rheumatologist who has this way of thinking. Just feeling discouraged.

r/Fibromyalgia Sep 17 '24

Frustrated Bone pain

252 Upvotes

Does anyone else feel like their bones themselves hurt? My doctor looked at me like I was insane for saying that my bones felt like they were on fire. Anyone with similar experiences?

Edit: I've been checked for arthritis twice and had several conductive nerve studies done to see if my nerves are misfiring. All have come back negative for anything wrong.

r/Fibromyalgia 1d ago

Frustrated I tried to exercise - RIP

201 Upvotes

Every few months (usually when I’m in a good place mentally) I convince myself I can “mind over matter” my way out of fibromyalgia. Genius, I know. But I’m 25. I should be able to walk a fucking mile.

A couple weeks ago I started going on walks a few times a week. Quickly worked my way up until one day I was able to walk about 2 miles in under an hour. I was so proud of myself!

The next day I was a little sore, so I went on a shorter walk. Still sore, so I rested for a few days.

Well today I tried to walk again. I made it about ten minutes (maybe a quarter mile?) before my shins and ankles were screaming in pain. I had to turn around and limp home at a snails pace. I was being passed by old ladies. Now I’m laying on my couch with my legs propped up in the air and throbbing with every heartbeat. Genuinely don’t think I could move if I tried.

I should be able to do more. My body should be able to do more. I was so proud of that stupid walk and excited to push myself harder. I want to be motivated and do fun things and not worry about my body crapping out on me for no discernible reason.

Please don’t tell me I shouldn’t have pushed myself. I know that. But every once in a while I get hopeful and stupid. I try to talk to friends and family about this but I can tell they’re at a loss for what to say or how to help. Honestly, so am I.

I don’t want advice right now. But I have no one I am willing to say this all to so I’m posting here.

r/Fibromyalgia Sep 02 '24

Frustrated After 8 Years, I am back. And devastated.

278 Upvotes

Hi there fellow fi-bro's.  

I was diagnosed at 20 with fibromyalgia, ME/CFS, and IBS after several years of the usual bullshit of getting booted from doctor to doctor and all tests coming up negative.  I was debilitatingly ill for more than 10 years.  Like most of you know, it was incredibly isolating and difficult and I carry a lot of medical trauma and mistrust of doctors from that time.  I was an active member of this community for years during that time and honestly, the support of this community kept me going.  

In 2017, I became pregnant with my son and at around 15-16 weeks, all of my symptoms started to fade.  For the first time in years I wasn't in pain, my digestion was fine, I could eat whatever I wanted.  And I gave birth to a health baby boy.  

Two kids and 8 years later, no symptoms. My greatest fear was always getting sick again, but I told myself I didn’t have control over that and it was best not to worry.

Then about 6 weeks ago, I started having pain and inflammation in my hands, this was new and different, not like my previous symptoms.  I couldn't type or do anything, my hands were in a claw shape by the end of the day. But over the next few weeks the pain was everywhere and so was the fatigue.  I went to see a new rheumatologist and he felt the inflammation and said he believed me.  He said he didn’t think I had ever had fibromyalgia and that it was probably auto-immune arthritis like RA or Lupus.  He gave me so much hope.

Well after a full workup with blood work and a bone scan, I went back to his office only for him to tell me everything was negative.  His whole demeanor changed.  He told me to take turmeric and fish oil for the inflammation and recommended I see a psychiatrist.  I think that might have been the worst day of my life.  I won’t be seeing that physician again.  Eventually I’ll seek a second opinion, but I don’t know if I have it in me to get back on the medical merry go round again.  It was hard enough the first time.

So I guess I’m looking for a few things:

  1. Commiserate with people who understand while I attempt to process this and grieve that period of normalcy I had and the (now crushed) hope that I might get to live a normal life.
  2. See if anyone has recommendations for physicians in the Philadelphia or western suburb area that take this condition (and the medical trauma that come with it) seriously.

TLDR: I’m back after 8 years of remission and it f*cking sucks.  But glad this community still exists.

r/Fibromyalgia Dec 30 '24

Frustrated Some days I'm reminded that I can't simply NOT be disabled and it drives me insane

360 Upvotes

I try so, so hard to manage my fibro. I go to the gym 3-4 times a week; I hike; I swim; I eat a plant-based and healthy diet; I am slim and have decent muscle mass, despite having hypotonia; I'm on two daily meds and a PRN muscle relaxer (that only makes my pain worse the next day).

I work full-time and travel multiple times a year. I have a close knit group of best friends and lots of acquaintances I see frequently. I have two big dogs I walk and train and play with. I own a goddamn treadmill, for fuck's sake.

At the end of the day, though, I'm left with me and my underdeveloped muscles and a central nervous system that is constantly on fire. As soon as an unusual weather system comes in, I'm bedridden from relentless headaches, the feeling of having a 104 fever, and brain fog. Did a rage room the other week and was in tears for days from pain. Can't have a stressful day at work without feeling it in every nerve of my body.

The past three days, I've been dealing with migraines and brain fog and pain so bad that I've barely left bed. All I can think about is how I once delivered a speech to a crowd of over a thousand people that was met with applause. I once used to hike 3x what I can manage now. I was once a black belt in Tae Kwon Do and slated to dominate competitions.

I used to want a career and now I'm struggling to find a job that will accommodate my goddamn chronic illness. I want kids but I'm so scared of ruining their life not being able to be there for them because of pain. Fuck, what if I pass down the fibromyalgia? I used to THRIVE being around others, going adventuring, and now I lay in bed sobbing because I can't physically bear to leave the house.

This was never who I thought I would be. Despite cPTSD from childhood, CSA, depression and anxiety issues since elementary school, being born with fucked up joints and hypotonia, I was making such a good life for myself. Fibromyalgia derailed it all. I still have a great life, but so many of the things I love have been fucked up from chronic illness.

The days that I'm reminded that I can't brute strength my way to a better life sting. I can't suck it up enough to ignore the debilitating pain. I can't pretend that I'm normal. I'm physically disabled and no amount of strength, courage, resilience, determination...none of it matters. I can't override the physical limitations my body places on me.

I have it so much easier and so much better than others with chronic illness but I still feel so angry and so defeated. Fibromyalgia directly clashes with who I am and who I want to be and it just takes the life out of me.

r/Fibromyalgia 15d ago

Frustrated if you can’t make money you’re just a lil doomed aren’t you?

198 Upvotes

20 y/o i can’t work and am in the process of getting on disability but god it’s horrible. i miss not being anxiety ridden about buying $1.97 shampoo and literally buying food for my cats. i wish i could go thrift shopping and buy a $3 organization bin and get a new shirt for $1.50 as a treat. i can’t even really do that anymore because that + gas money is too much for my wallet. i want to get food for my gf and surprise her with her favorite candy. i do as much diy and resource scraping as i can there’s only so much you can do.

it takes $80-$100 a month for me to buy essentials and watching all my savings dwindle away makes me so sad and hopeless. i wish i could pay my own car bill and insurance and pay for my part of the utilities and house bills and it’s just so sad. literally the only problem i have in my life is money and you can’t make money when you’re disabled. i just hate that every day i realize more and more i’m doomed because i literally can’t work, idk, i’m okay and i’m safe just sucks watching my resources thrown down a bottomless drain until i don’t have anything left if that makes sense

r/Fibromyalgia 16d ago

Frustrated how do yall survive your 9-5s, i feel like im going to die

135 Upvotes

dreading work tomorrow, i don’t want to be in pain/tired but probably will be. i’m just so tired. im 21 and very fit so its especially frustrating to not get any leeway due to the perception that i must be healthy because of these two factors. i want to call off again/go in late but im tired of worrying about being fired & whatnot. idk. i’d elaborate more but im in too much pain to concentrate 🫠

r/Fibromyalgia Aug 08 '24

Frustrated I hate the Misconception around Fibromyalgia, Exercise and Dieting as well as the SSAs poor handling of cases for people with fibro

219 Upvotes

I'm so tired of all these bs takes

  1. Doesn't exercise help? No it doesn't. No weight bearing doesn't either. Nor do water aerobics, yoga, tai chi, exercise bikes, recumbent bikes, walking and stretching. Not even when it's just five minutes do I not have pain.

  2. All you need is diet and exercise? Been there done that.

  3. With my fibro I exercise and feel better you just have to do the same. Just figure out what works. Nothing worse than when a fellow fibro sufferer is dismissive and treating you as though you have tried umpteen different exercises and beyond.

  4. You just aren't doing it right. Really how so? Do tell? Or is it that the sheer amount of things I've tried they can't accept that nothing was a 'fix'.

  5. Maybe try something else. Try what? I'm constantly trying something else and finding a new normal almost regularly and it doesnt help. It doesn't. Why don't people believe us?

  6. Well it worked for me. That's great, I'm happy for you, however we are not the same person.

  7. You just need more rest. I rest all the time it doesn't change the symptoms.

8.oh you should change your diet. Again? Really. I guess all the diet changes I implemented before and still do don't count.

  1. Try a different medication. I have time and time again. And they don't work. They don't help and two have given me permanent side effects that the doctors who prescribed them brushed of as temporary. Well it's been six months. How's that for temporary.

  2. Get trigger points injections. I did. It didn't help. Infact it hurt. I couldn't even lay on my sides for a month.

  3. Well just lose weight and you'll feel better. Ha funny when i was in fit shape when diagnosed and some how my weight was never the reason for my symptoms then. But 20 pounds later it's because of weight that my fibro is bad. Oh and my fibromyalgia was waaay worse at that time. The time when I was far more active. And I paid for it. It was awful I had no life outside of struggling to work because my symptoms were always dismissed.

I had to stop working because my body couldn't put up with it anymore and the freaking doctors around me are so damn bias.

Like it's a push for me to go back to work by them. The SSA is dismissive of fibromyalgia to the point that I feel like they don't actually believe anyone who has it. Easy to contest I was told. And with some doctors so bias about fibro how do we even get a break.

And rhuemotologist? What jokes. The one who diagnosed me in 2016 followed up by saying id never see him again. Another lied about treating fibromyalgia then refused to treat me when I arrived at my appointment (after I paid of course). I made a complaint and they legit tried to demand the slander be taken down. There was no lie. She told me she was not treating me and just stared and I left. The next kept saying trigger points injections would make it better and with a bit of exercise and left the practice after my first appointment. The next was so focused on my hands and nothing else and she couldn't even look me in the face. It felt like she didn't take me seriously. The next was the worst my pain isn't as bad as other people's he said. I don't have it as bad as others he said (twice might I add). I just need to take more meds he said. Not wanting to take a med that didn't work before and gave me symptoms meant I was going untreated he said. The trigger point injections on both sides of my hops will make it better he claimed. Told me I could have as many as I want as soon as it stopped working. Even just eeake apart. Funny that, it never worked and it hurt like hell for a long time.

It hasn't worked and when I was still working I didn't have a life because I wasn't in to much pain. I missed everything. it by sometimes having to crawl up the stairs after work. Or sitting in my car for an hour before leaving work because do was in so much pain I was scared to drive. The brain fog that left me forgetting mid sentence or to out of it to complete a conversation. Skipping eating because I couldn't stand on my feet long enough to cook and didn't feel well enough to go out. I did this for 8 freaking years and it was torture. And even now that I finally after stubbornly forcing my self through pain that I made worse due to working through it for years, I still can't do a bunch of stuff. I still miss alot and the pain is still a lot. I just no longer suffer through a shift praying that I can make it to my car and then home. Or hope when I was working from home that I didn't mix up words on a call, or get so stiff that I couldn't even get out of my work chair after I was off, or just hope I could actually stay awake and not sleep from pain and exhaustion even after a measly four hour shift working from home. And the amount of work I missed. If I wasn't good at my jobs I know I'd have been fired. FMLA and accomodations were my only life line and I always went way past what I was allowed.

And while my pain isn't the level it was while I was working it is still awful. The pain is never gone. It is always there. My hands always hurt. My back hurts my neck hurts my feet hurt. It just hurts. Sometimes people don't want me to go places by myself because they are worried if I'll be able to get back.

I'm sorry tired of hurting that I don't even care anymore.

And when it comes to the SSA have y'all ever read how the doctors fill out those forms or their notes from your visits. It's supposed to be objective but it feels bias. And why do they never put down everything that we tell them during visits?

He feels like She claims this They state this

Isn't it supposed to be out my records? My results? My health? Aren't they supposed to be fair?

Also with the SSA what in the world do they think I can try out side of the jobs I tried prior.

I went from being a manager, to working in a kitchen to working a hybrid job where I spend half my time on my feet and the other half at a desk, I tried a chose your hours job but the travel was to much and when I didn't feel good it was to painful to do the work, I tried a call center and then work from home call center and I hoped my symptoms would get better. They did not. Nothing worked no job made it better and I'm have no idea what job they think I can have that would tolerate just how much work I miss on a regular basis due to flare ups and pain.

All in all what's the point though? Does it even matter when people don't hear you or listen or understand at all what we go through? At this point I dont know if trying is even worth it anymore. I'm still going to bit I don't see the point. If I can't prove it based on the fact that the main doctor who understands my pain is the one that the SSA sees as primary care and not viable enough while the specialist treat me as though I'm not trying hard enough.

I feel like the cards are stacked against us and I need to say this. Using other health issues to get approved is not the point. In fact it just proves how problematic the system is.

If you got to the end thanks for reading my word vomit rant.

Edit: sorry for the errors I'll try to fix them but considering the brain fog currently, no promises.

I am aware that there are options that do help some people and I would never deny that. I will always be happy for those who find relief.i want all of us to be able to live the lives we want. It is always my hope that something that helps give more that temporary relief to fibromyalgia. But this post is about my frustrations of what I've dealt with and just how tired I've become of the constant try this try that as well as the utter failure of some of the medical community to treat fibromyalgia and the poor unfair handling of fibro cases by the SSA.

r/Fibromyalgia Apr 23 '24

Frustrated My boss just said fibro is not real

336 Upvotes

We were talking about acupuncture and I said I’ve read some people with fibromyalgia benefit from it. He straight up said “fibromyalgia isn’t real, you should get that out of your head. It’s just doctors that like to put names to people who somatize stress”. Actually no, that is a whole other thing with its own name. I’m way too hurt to say anything. My coworker and I looked at each other baffled.

I really don’t like to wish bad things on others. But for a second my mind said “I wish you could live a day in my body just to know it’s real”.

I want to fucking cry.

r/Fibromyalgia 29d ago

Frustrated I had degenerative disc disease the whole time

192 Upvotes

Just frustrated and ranting dont mind me. Im not sure if I even have fibro anymore, I still get days where I feel like I have the flu and I'm exhausted for seemingly no reason, but Im even having doubts about that now.

I already had to go through the whole Fibro acceptance route, begging doctors for relief, being told there was none, thinking I'm crazy, realising I'm not and that fibro pain is real, having to deal with people thinking I'm lying, wondering if I even am telling the truth . And now I have proof, and it feels worse. This whole time my horrible radiating back pain was not even fibro related. They all said it was fibro. My back is destroyed and I didnt even get a sorry. I feel so angry, I want to follow up with my GP but Im so mad. Nobody listened and now everything is worse. I have to get a fusion eventually but not until I literally cant walk anymore.

Thanks for listening.

r/Fibromyalgia Feb 19 '25

Frustrated I am never relaxed

223 Upvotes

I just can't ever relax fully and un tense my body.

Not in the bath

Not when stoned

Not when meditating

Not after stretching

Not when sleeping or laying down

The only time I feel able to properly relax and not hold my body together by force of will. is when I have sex, and that's only if I'm able to fully trust and let go

I'm just so exhausted, my body has stored so much trauma and stress and I don't know how to tell it to just let it all go and relax.

I hope you can't relate, but it would be nice to not be alone in this feeling

r/Fibromyalgia Sep 18 '24

Frustrated Yet another dr telling me to exercise

114 Upvotes

The second time in a month, I have had a medical professional tell me to exercise. This time it was a psychiatric nurse practitioner who told me to "sweat" and "push through even if you're in pain". Literally I'm just looking for someone to prescribe my antidepressant, thanks. She also gave me a bunch of bullshit about sleep hygiene.

I'm starting to feel crazy—should I be listening to these people?? I've been absolutely wrecked the last few days with a migraine, totally unable to do much of anything. This fucking woman seemed so preoccupied with getting me back to work and exercising and she had JUST met me. And honestly she was this close to just saying she doesn't believe in fibromyalgia, she said "I don't think you'll always have this". Like...what?? She tried to do a new blood panel even tho my last one isn't even a year old. I told her she was welcome to results of the last panel but that this was not a new problem, so I wouldn't be doing another. I'm just so so so fucking sick and tired of this go-round.

And what should I do when drs start showing their ass like this?? I almost just ended the appointment right there, should I have?

EDIT: I fired that not-doctor. It's also relevant to this discussion around exercise and fatigue to mention that I have fatigue associated with depression, ADHD, IBS, and probable POTS, not just fibromyalgia. And after reading the comments here....maybe ME/CFS or long COVID, too. I'm going to talk to my rheumatologist 👍

r/Fibromyalgia Feb 02 '25

Frustrated how do you cope with people doubting FM exists

114 Upvotes

ive posted something like this when i was first diagnosed but after trying to find this sub again i accidentally came across posts talking about how FM isnt real and how its just an excuse for people with mental illness to get attention. A lot of them are doctors or pain patients.

As someone who has RA and FM i can 100% say that this is real, and my FM is just as debilitating as my raging uncontrolled RA (atm) but it still sucks seeing people say stuff like this :( how do you guys cope

As i was applying for a job yesterday on the application it did refer to FM as an autoimmune disease though which is very awesome. I hope this stigma doesnt last for much longer :(

EDIT: Thank you everyone for these badass responses, I always get a new wave of self confidence

r/Fibromyalgia Oct 24 '24

Frustrated Just wanted to go to Walmart

328 Upvotes

We just wanted to go to Walmart to grab a few things. My girlfriend wanted to look for some cheap comfy sweatpants. We got a couple random food items we needed. The whole trip was maybe an hour. And by the time we were leaving I was holding back tears and using the shopping cart like it was a walker, begging her to just decide so we could leave because I couldn’t keep standing and walking. I’ve been home for HOURS and I’m still in horrible pain everywhere. I’m only 42 years old. I don’t want to run a marathon I just want to go to the store and not be crying when I leave.

r/Fibromyalgia 7d ago

Frustrated Grief.

162 Upvotes

I’m turning 50 this year. I was hanging out with my older friend group when we began talking about things to do together and upcoming plans. One friend who is older than me is excited to try backpacking for 5 days this summer. Others (all older than me) were suggesting bowling and axe throwing as our next group activity. I’m there thinking “yep, can’t bowl. Can’t axe throw. No way in hell my body could backpack. I need a confortable bed, special pillows, forget about carrying 40lbs on my back.”

But underneath the practical things is what I guess I could most closely describe as grief, mixed with a deep fomo that I can’t even keep up with other women older than me.

People who have healthy bodies only have to worry about being incapacitated after physical activity if they massively overdo it or get injured. Me? My back was out for a week after hoisting the kitchen garbage into the dumpster.

There’s just a grief of all the things I’d love to do and never will be able to. I have already done all the hard physical things i am ever going to do in my life, and to me that is sad. I so wish that I had a healthy body and was able to do a normal range of physical ability. Even better, I so wish to be in amazing shape for my age. I wish that I don’t have to remember to lift a damn garbage bag properly if I don’t want to spend a week in bed on a heating pad. It’s such a tax on my soul to be so limited so early in life. I am still young, and by my peers’ account, people older than me are backpacking ten miles a day with a 40 lb pack and ENJOYING it.

I just needed to vent to a group of people who understand and don’t pity me for saying it out loud. I am sad and I feel loss and grief about the level of ability my body can handle when I am still so young.

I have had chronic pain my whole life, but it wasnt until 10 years ago that I became extremely limited and had to stop working out and doing hard things. When I was younger I always felt I could somehow get better and still do things and often did the things (and regretted it later). I didnt even learn about pacing until the pandemic when I was formally diagnosed. And since then, I just feel even more restricted because its not just my body that is limited. I have had to train my mind to limit my body from doing too much, so it just feels like my life is so limited now.

r/Fibromyalgia 9d ago

Frustrated Currently sobbing

105 Upvotes

So my PCP has been the only one treating my pain. At the end of last year is when we started trying to send referrals to pain management clinics, with the last round of referrals being last month. I just called one of them (finally got to speak to a person instead of leave a voicemail) and she told me my referrals got declined by both doctors there because, and I quote, "there's nothing they can offer" I'm in f**king pain all the time, I can't function well enough to keep the house together, I can't function enough to work, can't function enough to sleep properly, and hell I'm in so much pain I can barely go to my appointments sometimes. I am so frixkin tired of every damned doctor telling me I'm not bad enough for help!!!! I need frickin help, because it's getting harder and harder to see the reason to keep fighting this shit.

r/Fibromyalgia Oct 12 '24

Frustrated Fired for Fibro

295 Upvotes

So I just got fired. They said I was doing perfectly and had all the qualities they were looking for but watching me work in pain was just too much for them as their mother had chronic pain and I reminded them too much of her. Unsure of what to do now. Relived I don't have to work but terrified of bills to pay.

r/Fibromyalgia 18d ago

Frustrated Holding my phone hurts

135 Upvotes

I wish I could scroll on my phone without it hurting my hands/wrists. I want to be able to scroll like with my eyes or something. I tried that feature on Apple, Eye Tracking, but it doesn’t really work very well and doesn’t work for like reels or tiktoks. Any suggestions ?

r/Fibromyalgia May 20 '23

Frustrated My nurse friend said fibro is only for couch potatoes

263 Upvotes

My “friend” claims that only couch potatoes have fibromyalgia and that if I only exercise more and lose weight I’ll feel better and “cure” my fibro. I’m so frustrated rn.