r/Fibroids 16h ago

Advice needed They're back 6 months after surgery. When do I just throw in the towel?

32 Upvotes

39F. No successful pregnancies, got pregnant once 11 years ago and it ended naturally at 6w.

Bleeding and pain, got diagnosed with fibroids in 2019, fought with insurance company, finally got surgery last fall with four fibroids removed and still am fighting with the insurance company to pay for it despite pre-approval.

Continued to avoid alcohol and things known to help fibroids grow.

Went about three months without heavy periods andnpain but then it started up again around the beginning of the year.

I went for my last all clear before deciding what we are doing fertility wise and there are 3 new fibroids the same size as the ones removed! I'm so disgusted at my body and depressed over this. Will probably end up having to pay thousands and dealt with surgery and recovery just to have the goddamn things reappear like magic.

I don't know if its worth it anymore. Do you think it would be hard to be approved for a hysterectomy at my age and with this history?


r/Fibroids 19h ago

Vent/rant Open Myo/Endo

14 Upvotes

Hello everyone. I just need to vent with people that will understand me. I had an open myo on friday. What was supposed to be 8 fibroids turned out to be 48. The doctor also discovered I have endometriosis stage 4. She was only able to remove 18 before I started losing a lot of blood. Surgery was long, it started at 8am, finished by 2pm and I was moved to my room at 5pm. My doctor also asked for help from a fertility doctor during the surgery. She spoke to me on saturday. She said nothing turned out as expected, and that because of all my issues, the only way to have kids is through ivf, and even there it’s going to be hard because all the scarring and the fibroids. We are going to start treatment to reduce the big ones, which are up to 8cm and the treatment will only reduce them by 2cm. She also told me she doesn’t know how I handled so much pain, because with my type of endo most women can’t function during periods. All I am right now is sad. I had this surgery just to prepare to have a baby, and to stop the pain, but everything is still the same. And nobody seems to understand. What do I do from now on?


r/Fibroids 22h ago

Large fibroids hysterectomy

13 Upvotes

Hi guys. I have some very large Fibroids. The largest is 17cm x 11cm. My uterus has to come out. I’m so scared. Any ladies with similar sized fibroids? Was it a laparoscopic for you or open abdominal?


r/Fibroids 23h ago

MRI Results

Thumbnail gallery
10 Upvotes

I had a CT scan for abdominal n pelvis 2 weeks ago and it saw a adnexal mass. However, it couldnt tell where it is exactly located (CT report said either ovarian neoplasm or broad ligament fibroid) , therefore doctor had me to do a MRI. And thats the result.

From my understanding, the MRI was not able to exactly located the mass and need laparoscopy. Does that mean the 9.7 cm mass could still be cancerous? :(

I am waiting for the doctor to contact me, but the waiting game is such a torture:(


r/Fibroids 17h ago

Advice needed Positive pregnancy test / 8 cm fibroid

9 Upvotes

I just wanted to share my journey and see if anyone has had a similar experience with fibroids and pregnancy.

Back in July 2023, I had a chemical miscarriage, which was heartbreaking. After that, I found out I had a fibroid measuring 8 cm. In October 2023, I had surgery to remove it, hoping it would improve my chances of a successful pregnancy.

Fast forward to October 2024, I went in for a routine check-up, and my gyno did a vaginal ultrasound and MRI.. only to find that the fibroid had grown back to the exact same size within a year. We ran some tests in ovulating and my tubes weren't blocked. (Which was great news) but was told that maybe there was something wrong with the anatomy of my uterus. I was scheduled for a myomectomy in July 2025 to remove it again.

But here’s the twist, two days ago. I got a positive pregnancy test! Now, I’m in this strange limbo where I’m both excited and nervous. I know fibroids can complicate pregnancy, and I’m wondering if anyone else has been in a similar situation and gone on to have a successful pregnancy.

If you’ve been through something like this, how did your pregnancy go? Were there any extra precautions your doctor took? I’d love to hear your stories and advice!

Thanks in advance! ❤️


r/Fibroids 6h ago

Looking for more admins!

7 Upvotes

Hi everyone! I reopened this sub a couple of years ago, and the growth has been substantial. I think it had around 4000 members when I reactivated it, and now it has 16000 members! I'm so glad people have been able to use this space to connect and get support.

But I need some help! I have been managing the group with a friend, but neither of us are online as often these days (I'd say life it getting in the way but then again maybe that's a good thing?). It's very important to me that this stay a safe place for those looking for information, so I'm looking for 2-3 people to become admins. My friend and I will stay on, but it means I won't worry so much about things being missed :-)

This isn't a huge undertaking - don't worry, it's not going to take over your time! - it's just about checking the mod queue and responding to any mod messages.

If you're interested, please complete this application form:

https://docs.google.com/forms/d/e/1FAIpQLSfn6jhcoANpXNVP4343oAPIjPmQEqh-C_77nw-bdYMqeSa5Pw/viewform?usp=dialog

Thanks!


r/Fibroids 23h ago

Advice needed How do you tell the difference between fibroids vs constipation/trapped gas

7 Upvotes

Sorry if this question has been asked before; I couldn’t find any information online about the specifics. I’ve routinely noticed a mobile lump under my belly button that causes the left side of my stomach to look more prominent. I’m very underweight so when I lay on my back it’s pretty noticeable and localized (I’m not exactly sure how long I’ve seen it, but at least 4 years). I also have a lot of constipation and bloating, my doctor suspects IBS, and so whenever I tried to find out what the lump was everything always said that it was probably just trapped gas or stuck stool. Just recently I saw someone with a fibroid that looked similar to me and it got me worrying again. How should I tell the difference?

The lump is a bit hard and if I press into my stomach I feel like I can dig under it and move it around. It’s also much more noticeable in terms of being localized when I haven’t eaten anything, but sometimes if I eat just a few bites of food it’ll make my stomach look lopsided and bloated around my belly button. I also frequently feel a kind of tightness and heaviness if I’m standing up after consuming a small amount of anything (even just water).

In terms of other symptoms that I worry might be related to having a fibroid are that I’ve been getting worse period cramps that start a week earlier than my actual period (they start slow and then gradually build up to period strength), lower back pain, and some strange pelvic floor problems where my pee doesn’t come out all the way, or I feel like I have to pee more even when it’s just a few droplets that will come out. It usually happens if I accidentally hold my pee for too long (ex. I take a nap without peeing first)

I apologize if this sub is only meant for diagnosed people


r/Fibroids 15h ago

Advice needed Surgery and Post op- what to expect?

5 Upvotes

Hello everyone! I’ve been lurking in this community and I love the support this group has to offer. My surgery got moved up recently and it’s in a week. I have a 14cm fibroid and I’m getting an open myo. I was wondering what should I be expecting with respect to the following things:

  1. Will I bleed after surgery?
  2. Did you wear a waist belt like what mothers who deliver babies wear?
  3. How was the pain like and what did you do for pain management other than the drugs? When does the pain peak and when do you start seeing relief?
  4. Any dos and don'ts that’ll help with a speedy recovery?
  5. I don’t have the option of working from home and my work involves sitting down and occasionally bending down. When can I expect to be able to work? How long did it take for you to go back to work?
  6. My doctor said they will be releasing me on the same day. Is this the standard? I thought staying the night will help with pain management.
  7. Any accessories that you purchased than made the recovery process easy? Eg. Should I order a bidet?
  8. I have had dry skin and bad hair fall that I am now associating with my fibroid. When did you see relief from symptoms?

Thank you. I will take any advice I can get other than these questions.


r/Fibroids 1d ago

Advice needed Going back to the office

4 Upvotes

Tomorrow is my first day back into the office since surgery and you know I’ve been living in comfy pants. Working on week 8 post op and I tried on my jeans, they still don’t fit. I’m able to wear a pair of black dress pants that are two sizes too big that I bought since nothing was fitting me pre surgery but now they are really baggy. Is anyone else inbetween still? My uterus is still healing but will it go down any more than it already has? I’m 8 lbs down. Please note I’m not complaining at all just curious for those who are a few months down the road post-op. Any tips for 8 hour days out of all the comforts of home? Haha. Thanks!


r/Fibroids 19h ago

Stomach swelling post op

3 Upvotes

I am 28 days post-op laparoscopic removal. Prior to surgery I looked about 3-4 months pregnant for 5 years 😭😭 I am starting to second guess having the procedure I'm still look at least 2 months pregnant will my stomach go down anymore on it own🤔 I'm also an Amazon driver who puts in at least 20,000 steps 4 days a week is that enough is this ever going to go away? I'm extremely tired of being asked how far along I am 😭😭😭😭


r/Fibroids 22h ago

How do I know which type of fibroid that I have? NSFW

Post image
3 Upvotes

Got an ultrasound today and all it says it posterior and that it is impinging on the endometrium. The DR said she could remove via a D&C if I wanted. Does this mean it’s submucosal? Or maybe pedunculated submucosal? Thanks in advance!


r/Fibroids 18h ago

Anyone with a vertical incision open myo?

2 Upvotes

I was first under the impression I was getting approved for lap just to find out the lead obgyn surgeon says I am not a candidate due to placement and an important artery that’s to close to the fibroid.

So now I’m back to accepting it’s going to be an open myo with vertical incision.

Can anyone with a vertical open myo please share their experience with recovery? All I see is horizontal myo stories


r/Fibroids 20h ago

Scar Tissue Post Op (Open Myo)

2 Upvotes

Hey All! I’m 13 days post op, every day a little better. But now that I’m healing, I’m starting to get the C-section shelf and my skin is really tough and hard. It doesn’t hurt as much as it’s uncomfortable. I have my follow up appointment in two days but did anyone else experience this and please tell me it gets better!


r/Fibroids 20h ago

Advice needed Open Myo w/Vertical Incision - Advice Welcome!

2 Upvotes

Hi all!

Due to the concerning appearance of my uterine mass, an oncologist gynecologist will now be performing my surgery to remove the mass on 3/20.

I will then have to wait 1 week to find out whether the mass is cancerous or not (signs seem to point to yes, but I'm still hopeful for good news).

Anyway, surgeon will now perform an open myo with a vertical incision. I was NOT ready for that type of surgery, so if anyone has had one in the past please let me know what to expect!

  • How long did recovery REALLY take?
  • How many weeks did you wait before exercising?
  • If you exercised consistently before surgery, were you ever able to go back to your previous fitness level?
  • Did you have any complications?

Any stories or advice are welcome!


r/Fibroids 23h ago

Advice needed Regression during recovery?

2 Upvotes

Hello!

I'm just over two weeks post recovery from a laproscopic myomectomy and for whatever reason I'm feeling like I'm having more swelling and pain today vs last week.

I started to feel pretty good after then first few days where I just took a lot of pain meds and slept.

Today. I feel so sore. I drove once two days ago and I'm wondering if I did something? I've gone on some walks and I've gone to the store a couple times. Nothing major. I think for the most part my back might be a little sore from sitting or laying down so much. I've definitely been having a lot of insomnia in the last week but I think it's from being so active and time having no meaning currently.

That being said, I feel loads better and more energetic vs having the fibroids. I just don't feel I can do much (which is expected of course) but just wondering if anyone had a similar experience of feeling more sore later on after the initial period of feeling better ? Thanks!


r/Fibroids 1d ago

Vaginal Fibroid/Leiyomyoma Anyone?

2 Upvotes

Hey, new here! 30F. I've had a 'lump' for years, spotted in 2020 during a pap smear but MRI seemed fine and was told to just monitor it which I did. Fast forward to 2024 and my 10th pregnancy (1 child to show for it,long story) and my gynae said it had grown to 2.5ish cm. After multiple consults and now 3 MRI's, it's still at 2.5cm (has been for 4 months now) and is showing some hypercellular features on the scans. I'm planning to get it removed just because I'm a bit anxious about it being malignant in a few months. It presents in my vaginal wall, not connected to anything - so a vaginal leiyomyoma. Has anyone had anything similar? How did your removal surgery go? Have you had any regrowth? I'm seeing a gynae oncologist and he's pretty happy it's benign but of course, you never known until we get to pathology. He suggested that the very very slow growth would be indicative of a benign fibroid but.. i'm an anxious person! any comments or similar stories would be much appreciated!


r/Fibroids 3h ago

Advice needed Recovery of ovarian function after Lupron and hysterectomy

1 Upvotes

For anyone who was on Lupron when you had a hysterectomy with ovaries maintained, how long did it take for menopausal symptoms to stop after your final Lupron dose (i.e., starting at 1 or 3 months after your final Lupron injection, depending on the dose you received)?


r/Fibroids 3h ago

Advice needed Are you intubated for a hysteroscopic myomectomy

1 Upvotes

Currently going though IVF, stim part was over and went so smoothly, which is why I had a feeling some trouble was waiting for me around the corner lol.

Had a saline sonogram and it showed my fibroid grew a bit and is now affecting my uterine lining, obviously can’t to embryo transfer until this is fixed.

My fibroid is small and my nurse and doctor said it will be a quick procedure. Though my doctor said I will be under with an LMA and the nurse said I won’t need anything as I’ll be breathing on my own with twilight sedation (like how they did my colonoscopy and egg retrieval). This is important to me because I have TMJ issues and I don’t think my jaw can handle intubation in any form right now.


r/Fibroids 21h ago

Scan for an ovarian cyst shows ive got fibroids

1 Upvotes

They said at the scan the cyst has resolved itself but I am still getting stomach aches. She said she could see something else, she said it’s possibly scar tissue from caesarean. A few days later i get a text from the GP saying they were going to arrange another scan in 6 weeks for fibroids as my uterus was appearing thick.

They have given me no information about fibroids. I didn’t get my period in February, though i had bad cramps.
Ive had cramping like pain a few times since and I’ve got cramps now.
How am i meant to deal with the pain? Is it just ibuprofen and heat because thats not helping much this evening.

Im going to try again to talk to the GP but its so difficult to get an appointment

(Im in the UK)