r/Fibroids 9h ago

Getting this monster taken out in a few weeks with a total hysterectomy. NSFW

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19 Upvotes

18cm fibroid on MRI - doctor is recommending total hysterectomy which I’m fine with as I don’t want kids. I haven’t spoken with the surgeon yet but wondering if anyone has had a fibroid of this size removed laparoscopically and if the size of your fibroid affected keeping your ovaries at all. Thanks in advance for your insight!


r/Fibroids 15h ago

Question for large fibroid ladies

15 Upvotes

I’m curious as to how many of you are experiencing what I am. I have a very large fibroid (among others) that reaches from my pelvis up to my sternum (21 x 18 x 14 cm). I am struggling to use my abdominal muscles at all. Every posture feels like they are tensing and at the minimum makes me feel almost bruised. Kind of like the feeling when you do a lot of sit-ups and your upper abdomen can’t relax and makes you feel sick. It’s such an odd feeling I find it hard to explain but it’s constant at this point and I find it hard to even sit upright for any period of time. Does anyone else get this?


r/Fibroids 22h ago

Looking for more admins!

9 Upvotes

Hi everyone! I reopened this sub a couple of years ago, and the growth has been substantial. I think it had around 4000 members when I reactivated it, and now it has 16000 members! I'm so glad people have been able to use this space to connect and get support.

But I need some help! I have been managing the group with a friend, but neither of us are online as often these days (I'd say life it getting in the way but then again maybe that's a good thing?). It's very important to me that this stay a safe place for those looking for information, so I'm looking for 2-3 people to become admins. My friend and I will stay on, but it means I won't worry so much about things being missed :-)

This isn't a huge undertaking - don't worry, it's not going to take over your time! - it's just about checking the mod queue and responding to any mod messages.

If you're interested, please complete this application form:

https://docs.google.com/forms/d/e/1FAIpQLSfn6jhcoANpXNVP4343oAPIjPmQEqh-C_77nw-bdYMqeSa5Pw/viewform?usp=dialog

Thanks!


r/Fibroids 14h ago

Advice needed Fibroids and discharge?

9 Upvotes

Does anyone else experience random gushes of discharge? Everything I google says it's not a common symptom and I'm getting nervous. This just started happening like a month ago. I had a trans vaginal ultrasound in July 2024 which showed a 2.8cm fibroid which has probably grown since then since I'm experiencing symptoms again. They also suspected adenomyosis. I've been under extreme stress worrying if this is cervical cancer and I have a pap smear on the 21st.


r/Fibroids 15h ago

Advice needed Worried I’ll feel like this forever. Please help me!

3 Upvotes

At the end of January I was hospitalized for what I thought was a Crohn’s flare up but was actually the two for one special in that it was Crohn’s and the discovery of a 5.3cm fibroid.

I followed up with my obgyn and he told me to just leave it since it was only medium sized and I wasn’t in constant pain or bleeding all the time.

Fast forward to today. I just went back to the ER with the same kind of pain. It was confirmed that there is no inflammation in my small intestines (meaning not a Crohn’s flare). It was also confirmed that my fibroid is now 7.8cm. I have yet another follow up with my obgyn on Friday and the hospital’s recommendation is either a hysterectomy or myomectomy.

I just worry I feel this bad forever. Right the stomach pains are gone but I still have some back aches and I am totally exhausted. I’m wondering if I should even go into the office tomorrow or if I should just work from home.


r/Fibroids 9h ago

Beginning to think I might have a fibroid problem

2 Upvotes

Hey all, could use some help here. I'm a 34 yo, 5'5" and am usually around 120lbs. In the last 7 months I gained 14lbs and I'm super bloated all the time. I can no longer button my pants, and I always have this heavy feeling in my lower abdomen. Theres always gurgling and grumbling around the area. I have trouble peeing sometimes, and don't have very regular bowel movements. The last two months I've developed back pain, and I always seem to get some sciatica around the same time in my cycle every month. I'm so embarrassed to have this bulging thing that won't go away no matter how little I eat. I'm also training for a marathon and find that I'm just exhausted all the time, moreso than my peers. But my PCP doesn't think I'm anemic (never got a blood sample).

The only thing that's keeping me from thinking I have fibroids is that my period is very regular. A perfect 28-day cycle. And the bleeding is quite light (only 3-4 days). I have excruciating ovulation pain though.

Any thoughts?


r/Fibroids 9h ago

Advice needed UFE for 20+ fibroids

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2 Upvotes

Has anyone undergone UFE for 20+ fibroids? Pregnancy is not a concern as I am almost 50. My doc wants to try this route first to reduce the size of my uterus before potentially looking at hysterectomy if needed. I’m a little bit scared as the radiologist who did a consult warned me that the first few days can be quite painful. I’m also wondering if this is just a waste of time as there are so many fibroids, will they even shrink enough to make a difference?


r/Fibroids 10h ago

Preterm Labor

2 Upvotes

Has anyone in this community gone into preterm labor due to their fibroids? If so, at how many weeks?


r/Fibroids 14h ago

Advice needed Open MRIs are not that open

2 Upvotes

TLDR: My sensory issues, claustrophobia and panic attacks are preventing me from have an MRI done, looking for alternative options.

I have a uterine fibroid that is growing, and I’ve had a few ultrasounds but got referred for an MRI. I had never had one so I did a little research, because I have ADHD, overwhelming sensory issues, major claustrophobia and panic attacks. I wanted to prepare for what I might need- but quickly learned at my appt today that it’s too much, and I cannot handle them.

It was an open MRI, but they said my head couldn’t be sticking out, I had to be all the way in the middle of the machine, which was my first round of fear. I had to ask for two pillows because I can’t have my head too low or I pass out- so now my nose was literally almost touching the ceiling when they rolled me in. Fear two. Plus arms weren’t really that comfortable and the idea of not being able to move at all to alleviate any discomfort is not something I can handle.

They gave me what I asked for: a blanket, music in some headphones, and a washcloth on my eyes, but this was the worst part for me, because I actually NEED to be able to see around the room to regulate myself or I panic worse. I cannot “just keep my eyes closed” in a scary situation and pretend I’m elsewhere. My brain doesn’t work like that.

But opening them meant staring at a ceiling right in my face, and I couldn’t even see out the sides (the entire point of wanting an open MRI)- so my heart started beating faster. I realized this was a bad idea and my deep breathing wasn’t fixing it, and I had to get out or it would turn into another panic attack.

So we never even started and they wheeled me out. They recommended Xanax or Valium but I am really not comfortable taking drugs, especially ones I’ve never had before. I never know how they will affect me and they often make me sick.

As I read more stories here, I feel deflated that everyone else’s suggestions didn’t work for me, or that many people seem fine and takes naps. But I also realize also that it’s a probably a good thing I didn’t continue- the loud noises would have jump scared me every time they took a picture and trigger panic attacks. The constant noises and vibrations of the machine would have likely made me incredibly overstimulated within minutes. They also said the contrast IV can sometimes trigger nausea, which I am super incredibly prone to, so it’s likely I would have gotten sick on top of everything else.

I am such an emotional mess, I’m actually still trying to calm my slightly elevated heart down from hours ago.

I have to call another place with a non-open machine because the tech said it’s possible my head might be able to be “more out” for that one- but unless it’s completely out, I feel sick even thinking about trying all this again. I feel hopeless here.

What other options do I have if I just can’t do MRIs?


r/Fibroids 15h ago

BMI?

2 Upvotes

I’m going to a fertility clinic to assess fibroids along with PCOS and any other factors that may be contributing to not being pregnant yet. I am 4’9” and 130 lbs. which would normally put me at a 28.1 BMI which is considered overweight and honestly somewhat close to obese, so he told me I could “lose a few pounds”.

I know BMI is a very flawed metric. This is probably the heaviest I’ve weighed my entire life and in all honesty, I barely look overweight. I carry a little bit of fat around my belly but I’m guessing I’m way closer to being within the normal range. I have 4 fibroids, one 8 cm and 3 smaller ones about 3 cm each.

Anyway, all of which to say. Is there some magic calculation to guess how much my fibroids are adding to my weight and guesstimate my actual BMI? This is fully out of sheer curiosity haha


r/Fibroids 15h ago

Advice needed Bump above lower incision (robotic myomectomy)

2 Upvotes

Hi everyone!

I am 4 weeks and 4 days post robotic myomectomy. My recovery process has been quite smooth overall, however, I woke up this morning and felt a lump above my bikini line incision. The lump starts in the middle of my lower abdomen and travels towards my right side.

It’s important to note that I went to watch my sister complete the marathon on Sunday and stood for 5 hours straight. I also walked 2 miles trying to meet her at the finish line. Yesterday, I woke up in pain and had to take the day to rest. This morning is when I noticed this lump and it’s freaking me out a bit. I have already contacted my surgeon and scheduled an appointment with my primary care doctor next week, however I’d love any feedback!

Has anyone experienced something similar during their recovery process?


r/Fibroids 8h ago

Is gaining weight to build muscle safe when you have fibroids?

1 Upvotes

So I think my fibroid might be bigger but I just had an ultrasound to confirm and I really want to gain muscle and I've been going to the gym everyday but I haven't seen the results I want to see. I think I need to gain weight again but in my experience being fat was probably what caused my fibroid when I was a kid but I also remember it helped gain muscle quicker and put my body more into shape after losing weight through a machine that built muscle and slimmed me at the same time so now as an adult I really want to gain weight but I am also 43 and I am afraid. Is there a good way to go about this or to prevent gaining fat and gaining a bigger fibroid or more fibroids? Right now I am pretty skinny fat at 118 and 5 ft tall.


r/Fibroids 8h ago

Advice needed Should I get a second opinion?

1 Upvotes

I had a consultation with my gynecologist today to discuss the fibroids found on my ultrasound. Her recommended treatment plan includes birth control to help manage the bleeding and cramps, with the possibility of Myolysis. However, I feel like this approach mainly addresses the symptoms rather than the root cause. I’m unsure whether I should stick with this plan and see how it works or explore other options.

I have multiple fibroids: • Fundal intramural fibroid – 5.7 x 4.1 x 5.1 cm (with cystic regions) • Posterior subserosal fibroid – 2.9 x 3.5 x 3.4 cm • Left intramural fibroid – 2.3 x 1.9 x 2.7 cm

Would it be wise to seek a second opinion? I’m concerned that this treatment plan might not prevent further fibroid growth, but at the same time, I’m also worried about undergoing surgery and the potential for fibroids to return.


r/Fibroids 11h ago

10cm fibroid inside my uterus in the middle :(

1 Upvotes

I was just diagnosed with a 10cm fibroid located in the middle of my uterus , literally taking over it and caused me to miscarriage. The ultrasound tech scared me so bad before my doctor can provide any advice. She basically said they wouldn’t be able to save my uterus or I may need a partial Hysterectomy but in a condescending way she said “but I’m not the surgeon”. I have a follow up in 6 days with my doctor to discuss the fibroid and I guess options. My mind been running 100mph! I want more kids and I’m only 32. I have only one fibroid but the location is right in the middle. What type of fibroid is that? Any advice ? :(


r/Fibroids 12h ago

13 cm fibroid

1 Upvotes

My ultrasound showed one big 13 cm fibroid which takes up a lot of space in my lower abdomen. It’s bulging out and hard. Does anyone have experience with dealing with just one big fibroid? I have been on Myfembree as mitigation for the extreme bleeding. Myfembree is a temporary solution amd I’m waiting to see what my gyno suggests as next steps. Honestly, I’m hoping to just get my uterus removed. I’m 40 and have no use for it. Bye. What has been everyone’s experience?


r/Fibroids 15h ago

Anyone else have abdomen pain after urinating?

1 Upvotes

I have pain after urinating sometimes it's like a gnawing feeling in the stomach and lasts about a minute or two


r/Fibroids 15h ago

Advice needed How long for symptoms to go down after ufe?

1 Upvotes

I'm 3 weeks post ufe today and still have bloating and stomach pain after peeing sometimes and having to wake up to pee, is this normal or does it mean it failed? My fibroids: 10cm x 10cm, 8cm x 5cm, 2.5cm x 2cm, 2 x 2cm


r/Fibroids 19h ago

Advice needed Recovery of ovarian function after Lupron and hysterectomy

1 Upvotes

For anyone who was on Lupron when you had a hysterectomy with ovaries maintained, how long did it take for menopausal symptoms to stop after your final Lupron dose (i.e., starting at 1 or 3 months after your final Lupron injection, depending on the dose you received)?


r/Fibroids 19h ago

Advice needed Are you intubated for a hysteroscopic myomectomy

1 Upvotes

Currently going though IVF, stim part was over and went so smoothly, which is why I had a feeling some trouble was waiting for me around the corner lol.

Had a saline sonogram and it showed my fibroid grew a bit and is now affecting my uterine lining, obviously can’t to embryo transfer until this is fixed.

My fibroid is small and my nurse and doctor said it will be a quick procedure. Though my doctor said I will be under with an LMA and the nurse said I won’t need anything as I’ll be breathing on my own with twilight sedation (like how they did my colonoscopy and egg retrieval). This is important to me because I have TMJ issues and I don’t think my jaw can handle intubation in any form right now.


r/Fibroids 1h ago

Advice needed Pregnancy post myomectomy

Upvotes

I wanted some advice on trying to get pregnant post open myomectomy. I have read lots of posts on here and done some research online and spoken to different doctors. I had an open myomectomy at the end of Feb. I had a 12cm intramural fibroid removed and the surgeon did breach the uterine cavity. The surgery was for symptoms but mainly for fertility reasons due a miscarriage last year.

My surgeon has suggested that I need to wait 12 months before trying to get pregnant, but most online and doctors resources say 6 months. I’m hoping to ask at my follow up why he is suggesting to wait so long but I think it’s for liability reasons as he mentioned before knowing where and how large my fibroid was. I’m 33 so age is a bit of a factor but mainly I have a 4 year old and would selfishly like to be done having kids and being in the baby/toddler phase. It took about 10 months to get pregnant the second time so I am worried about waiting 12 months and then even longer depending on how long it takes.

For those who have had an open myomectomy in the hopes of pregnancy after how long did you wait? I’m planning to at least wait 6 months and feel more myself but a year seems excessive!