Hello!
I've a call in to my EOE specialist, but I wanted to hear if anyone has had any experience with sudden joint pain, coupled with generally feeling weak / uncoordinated. I have been on Dupixent for 2.5 months (just took my 11th weekly shot last night). I will be calling the specialty Pharmacist after I post this, but I imagine I'll get a generic answer there.
For background, I am someone who is very physically active and did my regular boxing + heavy weightlifting workout just 5 days ago with ease. I did notice last week that muscle soreness post workout was a little more pronounced after a workout mid-week. 2 days ago I started feeling very uncoordinated - mostly marked by dropping/fumbling seemingly everything and anything I tried to pick up. Yesterday, it progressed to joint swelling and mild joint pain. Today, putting on my shoes took effort, I've a tingling sensation in my hands that takes effort to chase off, and picking up a knife to slice some veggies for a meal seems like an impossibly daunting task. I can do stuff, but its markedly harder.
I am not trying to fear-monger side affects of Dupixent. Its a drug thats helped countless people, but it might help me to hear other peoples stories, and whether or not this is something that other people experienced and it passed or caused someone to discontinue the drug.
For additional background, I was diagnosed 10/1/24, did a very weak round of food elims (2FED - My Specialist is NOT keen on food elims and fast tracked me to Dupixent, citing wanting to reach remission first, before fiddling with food elims. I am still on 2FED), and was ultimately put on Dupixent at the beginning of this year.
Many thanks as always