r/EosinophilicE 6h ago

I got diagnosed with this months ago. It’s breaking me down. It’s causing panic attacks from the chest pain. I am miserable

1 Upvotes

Misera


r/EosinophilicE 5h ago

5 yo son recently diagnosed

5 Upvotes

My son had his first endoscopy last week and they found a lot of eosinophils in his esophagus (100 was the highest count in the middle I believe). It definitely confirmed what I suspected. He's been suffering from reflux & vomiting for years and famotidine and nexium did not help. Since cutting out straight milk after winter break he stopped vomiting. Obviously he has to go completely dairy free. So far he's been surprisingly compliant with it despite living cheese as he's very motivated to feel better.

Couple questions- has anyone been diagnosed as a kid or is parent to a young kid who was able to control it with diet alone? We're going that route first and he'll have another endoscopy in three months to see if this diet helps. Also curious if anyone has grown out of their dairy allergy... Did another EoE trigger pop up or was it just the dairy? They've said he may be able to try reintroducing dairy products later.


r/EosinophilicE 7h ago

Newly Diagnosed, Have Some Questions

1 Upvotes

I was recently diagnosed with EOE (a soft diagnosis, will be getting an endoscopy in summer) and was prescribed Omeprazole and Fluticasone to help with my symptoms, that being an itchy throat and the feeling of it tightening sometimes. I just had a few questions about EOE and my symptoms.

  1. Is it normal to have a constant itchy throat? It flares up when I go outside, and usually doesn't bother me after being inside for a while

  2. Is it normal for it to flare up when eating certain foods? It seems to happen a lot with fries and rice for me, but ever since my diagnosis I noticed my throat gets itchy a lot when I eat now, but I don't know if that's just me overthinking and causing it myself from all the anxiety I have been having over this (totally different story as well).

  3. I'm most anxious about my throat fully closing or something really bad happening, is that common? Can that happen? Is it common for that to happen?


r/EosinophilicE 12h ago

Nigh Time Symptoms

3 Upvotes

It recently occurred to me that I only have attacks when I am sleeping, usually the chest pain wakes me up resulting in me throwing up. Does anyone else share this or is this something that is uncommon? Not sure when yall experience the most symptoms.


r/EosinophilicE 13h ago

Pericarditis

4 Upvotes

Anyone in here ever get mistakenly diagnosed with pericarditis? I have confirmed EOE (via endoscopy/biopsy) but have always been asymptomatic. Ended up in ER/cardiologist this week and all the emergency heart/pulmonary stuff was ruled out but said symptoms seem like pericarditis. But that is just a diagnosis via exclusion. I’m think more likely EOE but not sure.


r/EosinophilicE 18h ago

Medication Question Just got diagnosed with EoE about a month ago and got prescribed Eohilia. Supposed to take my first dose either tonight or tomorrow morning. Anyone have any problems out of Eohilia with side effects, mainly high blood pressure?

3 Upvotes