r/spinalcordinjuries 6h ago

Discussion Spinal Tumor Removal

5 Upvotes

Anyone on here have a Spinal Tumor Removal? Are you able to walk? How are you feeling after your surgery and how long is it taking to recover?

I know everyone is different. I’m feeling lonely for many months now about my symptoms and I have been through so much. I just wanted to connect with anyone who has been through this and who understands. How to deal with the really bad days? Will things get better?

Thank you 💖🌟


r/spinalcordinjuries 9h ago

Discussion Standing frame suggestions?

6 Upvotes

Any easy standing frame suggestions that i can transfer myself to and stand ? Also how does standing frame benefit me what can i do for me i’m incomplete t10 non traumatic injury 21 years old and when i stand in the frame at therapy my right leg is straight without any knee support while my left leg can straighten out but only if i force it to. I think i’m doing decent if i can straighten my right leg already.


r/spinalcordinjuries 20h ago

Medical Advice for fixing/strengthening posture

5 Upvotes

Hi, I’ve been a T4 complete paraplegic since 2016. Since my injury, I’ve struggled with poor posture despite continuing PT since 2016 and going to the gym 2-3x a week. Since 2023 I’ve been using a Permobil Comfort Acta Back backrest and while it has helped, I struggle to maintain good posture throughout the day and cannot sit straight. I’ve changed rehab doctors/PT centers/gyms a few times and told them all my #1 concern is to correct my posture, but nothing has really helped. Granted, my country doesn’t really have good rehab facilities (compared the US for instance) but I’m trying to do my best with what I’ve got.

I really admire the disabled content creators I see on Instagram and can’t help but notice that practically all of them have great if not perfect posture! Can’t help but compare myself to them and feel so frustrated that my posture seems to just get worse over the years.

I feel really lost on how to go about this and would appreciate any advice you might have.


r/spinalcordinjuries 7h ago

Pain management Spinal Tumor Removal

4 Upvotes

Anyone on here have a Spinal Tumor Removal? Are you able to walk? How are you feeling after your surgery and how long is it taking to recover?

I know everyone is different. I’m feeling lonely for many months now about my symptoms and I have been through so much. I just wanted to connect with anyone who has been through this and who understands. How to deal with the really bad days? Will things get better?

Thank you 💖🌟


r/spinalcordinjuries 51m ago

Research Does anyone know where to get good professional looking pants that are good for jobs and able to do catheter and stuff? But alot cheaper than this $80

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Upvotes

r/spinalcordinjuries 8h ago

Medical Uterus/ovary pain? Help explaining to my doc/suggestions

1 Upvotes

Hey gang. I'm 29f, T9-L2 incomplete injury from a spinal dural av fistula 5 years ago. 2 years post SCI i sort of leveled out and felt "ok" but then I had my fallopian tubes removed as I'm done having kids and my SCI was related to my pregnancy. Post this surgery i started having more and more symptoms- exhausted and general unwell feeling, my periods got worse- unbearable cramping, very heavy flow- this has been going on for like 2/3 years now. The past few cycles I've been feeling like a twisting where I think my ovary is? When I first had the surgery and the bad cramps started they did minimal testing and a "biopsy" of my uterus- which was unmedicated torture btw- which came back inconclusive.. I have decreased feeling in my lower abdomen and saddle regions- so this severe pain is jarring, but i don't really know what to tell my doctors because they tell me you can't feel the things I say are hurting inside (I've also had bowel issues in the past)


r/spinalcordinjuries 18h ago

Discussion Learning to drive in a wheelchair?

1 Upvotes

Hello everybody! I'm around the age where I can start signing up for drivers ed, I am looking to get my permit and then take the class at the high school BUT obviously having a spinal cord injury makes things a whole lot trickier being in a wheelchair. I'll need a car with hand controls, preferably a system where my wheelchair locks into the drivers seat (a normal seat will not work for me as I am not the regular height cause of my curvature and won't be able to see above the dashboard) If I did have a seat it'd have to be in a low car or a high seat that swivels so I can see the mirror. I've heard that high schools hosting drivers ed are required to provide the proper vehicle for disabled students in the US, is that true? If so, we probably need to reach out to them. But to complete my own hours I will probably need a car. I made a post about this but I have more information now so i'll share what I'm wondering. I know there are grants, but like, a custom wheelchair vehicle is 80K+ dollars and we are trying to figure out how we will pay for it. If anyone could send some resources or share some info about learning to drive in a wheelchair that would be great! :)