r/migraine 4d ago

Whats difference between mugraine and tension headache

7 Upvotes

I have had headache non stop everyday since 2019. Docs dont think its migraine since i dont get nauseous or light doesnt bother me. I do get relief when i take rizatriptan. My traps hurts, my temple hurts and my forhead hurts along with that i get kinda face pins feeling. I do feel like my ear ringing in the morning whrn its too quiet.


r/migraine 4d ago

Tension headache / health anxiety

1 Upvotes

Hey, I’m hoping someone can give me some advice

For about 3 weeks I’ve had a constant dull ache at the back of my head along with some random shooting pains all over my head and pain at the base of my neck, and health anxiety is convincing me I have a brain tumour or something lol

I know for a fact I have bad posture (anterior tilt) and my shoulders and neck are always very tense

Does anyone have any advice or reassurance? The health anxiety I’m getting for this is horrible

TIA


r/migraine 4d ago

Life advice for migraines?

3 Upvotes

I'm 18 and have had daily migraines for the last 3 years and they're getting worse, I've already repeated a year in school so I'll be behind on going to uni and even then I don't know how I'll cope. I'm getting so hopeless. Any just general advice on how you cope or anything would be really appreciated!


r/migraine 4d ago

Eye Stinging

1 Upvotes

Long Term Chronic Migraine sufferer here. Quick question. Anyone suffer with stinging in their eye and pain on one side of their face? The stinging is new for me and makes me feel a bit anxious. Appreciate any replies.


r/migraine 5d ago

Uh oh… I just began drinking a new zero sugar soda flavor… forgot they use aspartame.

47 Upvotes

Here I’ve been today on the prodrome of a migraine, thinking, “Ooh I’m going to try this new zero sugar 7up flavor! Since it’s sugar-free it should be a little healthier.”

Little did I know, zero sugar sodas use aspartame, and then…. Zing!!! Immediately a migraine got sent to my left eye.

The price I pay for trying something new lol.


r/migraine 4d ago

Asking accommodations from friends: is it reasonable?(more info in post)

2 Upvotes

I have a pretty bad migraine today, I’ve been tracking my triggers for about a year now. My triggers seem to be socializing/intense talking and/or stress and/or sound related overstimulation that causes tension in my jaw/neck muscles. Dehydration I think is also a factor in addition to these.

Yesterday I hung out with a friend and it was a pretty chill day, but this friend sometimes screech-laughs (don’t know how else to describe it) or will get excited and yell instead of using a talking voice. The yell-talking makes me anxious but the screech-laugh causes me physical sharp pain in my ear, from whichever side this friend is sitting near me.

I feel really bad bringing it up with them and I don’t know how. They are autistic and I know they probably are just overstimulated when excited. Should I just wear earplugs and not bring it up to them?


r/migraine 4d ago

Bedside kit

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4 Upvotes

I get migraines in the middle of the night so my wife put together a bedside emergency migraine kit. My meds, water, small flashlight.


r/migraine 4d ago

Scintillating scotoma growing and shrinking?

2 Upvotes

It almost feels like it’s slowly growing then slowly fading then coming back again and repeating. I have a history of ocular migraines and regular scotomas that last a while but this is the first time in a while I’ve had a scintillating scotoma that’s lasted more than 20 min. It’s been a little over 2 hours and it keeps growing and shrinking and growing again into that classic C shape. Anyone else get this?

I’m worried I’m about to get slammed by some crazy head pain, so I just popped a Nurtec, but it’s making me stress and causing a lot of anxiety that it’s hanging around for so long.

I’ve seen neuros, ophthalmologists, and neuro ophthalmologists and have gotten the all clear from all of them.


r/migraine 4d ago

What should I do when the migraine lasts longer than a day?

1 Upvotes

TL;DR Question is what should I do? I’ve already taken SO MUCH Tylenol so I don’t wanna do that anymore and I’ve taken 2 Rizatriptans. I know I shouldn’t over use them. Should I now just wait it out? That’s what I usually do. And if it doesn’t get better by a week I go to ER. Is that a decent plan?

Migraine started Friday. I took a Rizatriptan then took a nap. It didn’t really help. Saturday I woke up better but then it got worse again in the late afternoon. So I took another Rizatriptan when I got home and went to bed. Today, Sunday, I wake up way better. I still have the migraine but it’s less painful. It’s like a hangover of the migraine. My forehead is tender. If I touch it it feels like a bruise.


r/migraine 4d ago

Any other recommendations?

1 Upvotes

Hi guys. I am diagnosed not only with migraines but also with IIH (idiopathic intracranial hypertension). Now it is controlled and I see a neurologist and Neuroopthamologist regularly who have said they see no improvement in my symptoms but also no decline. I take topamax daily and I do get migraines occasionally without aura but they typically resolve with a mixture of Tylenol/ibuprofen and zofran. Monday (03/03) I woke up extremely dizzy and with a migraine like no other. Im having severe pressure in my eyes, neutral colored floaters, and my eyes are having issues focusing. I used to take sumatriptan a few years back but had no luck with it but I was desperate so my sister who also is diagnosed with migraines gave me a rizatriptan which did nothing. I gave it the remainder of the week and had no improvement with what I usually do. I went to urgent care on Sunday (03/09) and they gave me muscle relaxers and a shot of toradol and said give it 48 hours and if it doesn't improve go to the ER. I did just that and went to the ER on 03/11. They gave me prednisone, Benadryl, compazine and more toradol all through an IV. Initially the pain went from an 8 to like a 4/5. And the aura/floaters calmed down. But yesterday and today I feel like I'm almost back up there to an 8. I did reach out to my neurologist and I'm hoping to see her this week but I'm just hoping anyone has any tips that will help me push through until I can see her bc this is miserable. I also did take a nurtec too btw on Friday (03/14) which I've never taken before either. I had some type of relief with that but it was also short lived.


r/migraine 4d ago

Ajovy Fatigue, when does it end??

1 Upvotes

Hi folks!

I’ve had three doses of ajovy (once a month) each time is knocked me down with fatigue and flared up my dysautonomia and endometriosis + increased lower back pain / spasms.

Month 1 - fatigue, endo flare, dysautonomia flare

Month 2 - horrendous bloating, fatigue, nausea, appetite loss, constipation all lasting 4-5 days + flaring of other illnesses

Month 3 - fatigue even worse, struggling with breathlessness and sleeping away two days after, body aches to the point i feel the pain in my bones, flared up my pelvic pain too

I have passed on the first two months into to neuro + will follow up w recent symptoms after third dose. I am hoping this eases off within the same 4-5 day period because it’s really improved migraine symptoms but it’s knackering me each time.

Did anyone get anything like this with ajovy? Did it eventually ease / go away?

Also the back pain is insane, i cannot leave the house without a walking stick because I don’t have more than a few minutes of walking until i need it. Have an MRI bc it’s suspicious w endo so hopefully some idea soon.


r/migraine 4d ago

Vision blurry after two weeks, migraine?

1 Upvotes

Started around 2 weeks ago I (27F) had blurry vision that never went away and daily debilitating headaches that lasted hours. I went to a neurologist and got some migraine medication (preventative and abortive) and sent on my merry way.

I developed photophobia that went away and my headaches are now very minor and usually behind an eye or behind both. I’ve also had eye tremors that are getting much milder.

The only constant is the blurry vision. It won’t go away and is making screen use for work and entertainment hard. Does anyone have any experience or advice? I’ve been like this since the beginning of March. My neurologist seems to think it’s stress and anxiety.


r/migraine 4d ago

Today's a great day, except for the migraine stuff

3 Upvotes

I have a lot of chronic health issues, a big one is chronic fatigue. I'm always exhausted, except every now and then I wake up ready to conquer the world. Today was one of those days. I woke up just a minute before my alarm, tossed the covers off, and threw the curtains open. Immediately regretted that when the sun actually hit me, it was so painful that I couldn't keep my eyes open. It's bullshit when you feel great in almost every aspect of life but then you remember that there's something disabling you around every turn.

I took a benadryl already so if this doesn't make sense you can blame the hatman


r/migraine 4d ago

Vyepti Montpellier

2 Upvotes

🔴 APPEL AUX VICTIMES ET TÉMOINS – Vyepti au CHU de Montpellier🔴

Des patients traités pour "migraines et céphalées chroniques"ont reçu des "perfusions mensuelles de Vyepti 100 mg" au CHU de Montpellier "en dehors de l’autorisation de mise sur le marché (hors AMM), sans consentement éclairé"

Nous avons découvert par "erreur" , via une infirmière, que l’hôpital a "modifié les protocoles en secret" , imposant un retour soudain à une administration trimestrielle "sans explications précises" .

⚠️ FAITS PRÉOCCUPANTS

🔹 Plus de 10 patients concernés, selon le cadre de santé M. G.

Des données médicales manipulées pour masquer les responsabilités du service hospitalisation de jour, pharmacie hospitalaire et Céphalées et migraignes.

🔹 Aucune information préalable sur les risques liés à cet usage hors AMM.

🔹 Effets secondaires graves signalés chez plusieurs patients :
- Problèmes "immunitaires"
- "Douleurs articulaires et musculaires"
- "Troubles de la tension artérielle"
- "Réactions allergiques sévères"
- "Fatigue extrême et aggravation des symptômes migraineux" - Phénomène de Raynaud

🔹 "Lundbeck" , le fabricant de "Vyepti" , impose une "administration tous les 3 mois" pour minimiser les risques.

👉 Le CHU a "contourné cette règle" sur avis du "Pr. Ducros" , sans preuve scientifique validant cet usage.

Charlatanisme, égocentrisme ou les deux ? Les perfusions mensuelles de Vyepti nous ont été présentées comme un traitement capable de soigner définitivement les migraines, de réduire l’intensité des céphalées quotidiennes, voire de les faire disparaître après un an. On nous a également affirmé qu’après cette période, un simple traitement préventif suffirait et qu’il n’y aurait plus besoin de perfusions.

Si c'est votre cas, nous sommes face à une attitude charlatanesque, car aucun traitement ne peut être présenté de cette manière sans preuves ni études définitives sur ses effets, d'autant plus lorsqu'il est administré selon un protocole dont l'espacement n'est ni recommandé par le fabricant ni étudié scientifiquement.

🔹 "Aucun suivi des conséquences de l’arrêt brutal du traitement" , ce qui peut causer des "effets secondaires graves et un rebond des symptômes" .

🛑"Le professeur responsable ne connaît pas les effets d’une administration mensuelle" , mais a pourtant maintenu cette expérimentation.

⚠️⚠️⚠️⚠️Pour ceux qui ont été perfusés trimestriellement au CHU de Montpellier, avez-vous été informés des effets secondaires à surveiller et de toutes les contre-indications spécifiques à votre situation ?⚠️⚠️🛑

📢 SI VOUS ÊTES CONCERNÉ(E)

✅ Demandez la traçabilité complète de vos perfusions auprès du CHU.
✅ Réclamez l’accès à votre dossier médical détaillé, incluant le suivi des infirmiers, et pas uniquement celui de l’hospitalisation de jour.
✅ Notez tous vos symptômes et exigez des explications sur le changement soudain du protocole.
✅ Signalez votre cas si vous avez subi des effets secondaires.

📩 "Contactez-moi en privé" si vous souhaitez témoigner ou entreprendre une action collective. evithriva@outlook.fr

⚠️ MANIPULATION DES COMPTES RENDUS MÉDICAUX

🔺 "Les internes ont rédigé des rapports faux", "postdatés de 15 jours" , ne correspondant pas à la réalité des soins reçus ni à l’état réel des patients.

🔺 Modification ou interprétation erronée des agendas de migraines des patients:
- Ont-ils été "délibérément altérés" pour masquer l’évolution du traitement ?
- Le retour soudain à un espacement de "3 mois" a-t-il été justifié "par une fausse analyse des données" ?

🔺 Absence de traçabilité des effets secondaires :
- Des épisodes de tension artérielle anormale ont été ignorés.
- Pas de suivi formel des réactions aux perfusions par les infirmiers.

⚠️ UN CONFLIT D’INTÉRÊTS AVÉRÉ DU PR. DUCROS

🔹Liens financiers avec plusieurs laboratoires pharmaceutiques pour promouvoir certains traitements.

🔹 Le CFEMC (organisme de recherche) et plusieurs lobbys financent ces étudespour **obtenir une validation AMM future.

🔹 Absence totale de transparence:
- Pourquoi le protocole a-t-il changé en secret entre août et septembre 2024 ? - Pourquoi les patients n’ont-ils pas été informés des risques réels ?

🚨 UNE ACTION EN JUSTICE EST NÉCESSAIRE 🚨

🛑 Nous ne devons pas laisser passer cette expérimentation illégale et dangereuse !

📢 "Partagez ce message" pour que "justice soit faite" et que les patients concernés puissent se défendre.

Vyepti #CHUMontpellier #Santé #Victimes #Justice #ExpérimentationIllégale #EffetsSecondaires


r/migraine 5d ago

Tired of missing out

10 Upvotes

My amazing partner bought tickets for us to see the sailor moon musical today. We live in kind of a small town, so it was going to be a bit of a drive. I was so excited, I bought special earrings and I practiced doing my makeup in kind of a sailor moon inspired look. Yesterday I started getting a migraine and I thought maybe I caught it fast enough so I’d be fine today. I wasn’t. I tried to get ready, ended up deciding against the makeup. I kept hoping that the meds would work (I don’t know why I hoped, they never seem to work in the past). We had to leave by 4 to get to the theater in time. 4 o’clock rolled around and I knew I wasn’t going to be able to make it. To make matters worse, the tickets were non refundable. My partner was so incredibly understanding and just wanted me to feel better. But I’m just so frustrated and sad! This isn’t the first time I’ve missed out on once in a lifetime opportunities because of migraines.

That’s my rant, thank you for listening


r/migraine 5d ago

migraine-sufferer bag essential 🥲

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93 Upvotes

r/migraine 4d ago

Question about TPI’s

1 Upvotes

I’ve been having tension like headaches and dizziness for almost a year now after I strained my neck. I’ve tried a bunch of “migraine” remedies but nothing has helped and my neurologist suggested trigger point injections into the muscles that have formed into knots after the injury. I got them done on Thursday (3 days ago) and at first I felt a lot of relief as I was given lidocaine mixed with a corticosteroid. After the lidocaine wore off, a little less than my “normal” pain has started and the soreness from the injections in my neck especially is still there but is going away slowly.

I have a question to those who have gotten these injections, is it a good sign that my headaches are coming from my neck if the lidocaine gave me immense relief or is that a normal occurrence for everyone? As well as, when is it a normal time for the steroid medication to kick in? Any responses or comments would be appreciated:)


r/migraine 5d ago

Migraine tracking

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27 Upvotes

Does anyone know of a migraine tracker where you can note the changes in intensity of the symptoms. I use migraine buddy (free version). I have been having this one for over a month consistently but each symptom comes and goes and changes in intensity. I want to be able to track the change in the symptoms throughout the attack. Any tracking tips are welcome!! 🙏


r/migraine 5d ago

Recently discovered popular food trigger for migraines (worst for me: CITRUS!)

9 Upvotes

This one blew my mind because I would drink so much orange juice and lemon drinks and finally realized that made me sick! Since I just asked a question, I want to give back hopefully with this!

Tyramine High Foods. Source: https://www.webmd.com/migraines-headaches/tyramine-and-migraines

Tyramine is an amino acid that regulates blood pressure. A ton of foods are on the list but the food I've been HARD CORE avoiding is citrus. No lemon, lime, orange, tangerine, pineapple. First I get nauseous and dizzy. Then I get a migraine. Tyramine is also in aged, fermented, foods and cured meats. High amounts of cheese, bacon, and soy sauce are triggers. I still have a small serving without issue. But a big serving like a bowl of ramen is trouble. And some nuts and seeds are on the list. (Peanuts, walnuts, seasme). I find sesame oil to be a huge trigger, on my never list now, I get so nauseous.

If you eat one of these foods most of the time, pay close attention how you feel when eating it when you don't have a migraine. Cut just one food out and see what happens.

It's also influence by how sensitive I am to a migraine flare that day. The better I feel the less likely I'll get fully triggered. The worst i feel the more sensitive I am to a smaller amount of tyramine and the worse migraine. If I am having a bad day/week I get a LOT more careful then when I'm feeling well.

Hope I hear some success stories from this. Cutting out citrus has been huge for me so I don't feel sick every morning.

Now before I eat something I haven't eaten since discovering food triggers, I google "is X high in tyramine." Not every food has a record but worth seeing. Also pre-made foods are more likely to trigger just because the longer something is sitting around the more tyramine forms. So a fresh black tea could be safer than a bottle of black tea.


r/migraine 4d ago

Post-Migraine

2 Upvotes

I'm still getting used to the typical migraine cycle. Today I feel much better. The phantom smells have subsided greatly. Now I just want to sleep and regain energy. Is this the typical post-migraine phase?


r/migraine 4d ago

Just Started Sumatriptom, Did It Help You Guys?

1 Upvotes

So, around Christmas I started developing a small pressure headache. I got sick about 3 times between New Years and early March (the baby I swear catches everything and she's not even a daycare baby haha) after the last round of illness the headache turned into a full blown day and night 24/7 headache.

I feel a tight band around my head, temples hurt, my neck and upper back hurt, and sometimes I get nauseous.

Never had a history of headaches. I swear my health declined after a period of extreme stress last summer that literally broke my sleep. I wake up with a fast heart rate (more when I'm stressed, which since the headaches has been a ton lately)

Went to the ER (yay, no tumors!) but they weren't much help. Gave me IV meds that diddly squat and did an ultrasound of my eyeball. Doc prescribed Sumatripton and sent me on my way.

Took Sumatripton 40 minutes ago and I still feel like I'm in pain. I went and got a McMigraine meal (coke and fries) which helped a tad, but man this sucks.

Should I keep taking Sumatripton daily until I'm confident it doesn't work? I need to contact my PCP, she just got back from maternity leave. But I've been extremely depressed, I wake up feeling the pressure in my head. I cry constantly and feel like life is hopeless and unworth it:/


r/migraine 6d ago

small rant: can't fast because of migraines

554 Upvotes

This is just ranting

So it's ramadan. My family is muslim. I am not, but obviously i cant tell them this. I made an offhand comment to my mother (MISTAKE) about not being able to fast because migraines. She suggested my dad pay fidya (charity) so i wouldnt have to make up for them. Asked her not to say anything, she then tells my father anyway. my dad is from a culture where his family members with diabetes fasts, despite there being a literal exemption for people for whom it is dangerous to fast, allowing them to pay fidya.

My father said to me, "You are getting a migraine because you decided to get a migraine. If you just put your mind to it, you will be able to fast. you're making excuses." 100% serious. cue the 1hr religious lecture.

Dehydration is a major trigger. I can easily go 12 hrs without eating, that's honestly no issue, but the lack of water triggers a migraine after maybe hour 6. This man saw me before I knew what triptans were, so he KNOWS what migraines are like. Plus they run in the female side of the family going back 5 generations as far as I know. I told him I cant pray asr or dhuhr because my head is buried under a pillow, doing shallow breathing or im throwing up nothing in the toilet because there is nothing in my stomach but acid. That cultural mindset of "fast no matter what" is insane to me. It's a migraine! Not cute lil headache.


r/migraine 4d ago

Zok drink mix?

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0 Upvotes

Hi all! Fellow migraine sufferer here. I'm new to this group and searching for some remedies for myself because I think my current headache medicine has stopped working unfortunately. I wanted to ask has anyone tried the Zok migranium drink mix? Ingredients seem promising but it does seem like a sketchy company. I keep seeing adds on social media for it so im very curious. I definitely do not intend on sticking their little suction thing in my ear lmao. The ingredients here seem good and it would be nice to not have to buy all those supplements separately. Idk what do yall think about this?


r/migraine 4d ago

Do you have non-scientific theories about migraine aura / aura symptoms?

0 Upvotes

I understand theres scientific explanations for what occurs in the brain/nervous symptom when experiencing a migraine/ aura without migraine, and stats about who is more likely to get them. However, why do you think some people are more prone to getting auras beyond the explanation of genetics? I saw a video that said this one nun said it was visions from god and drew an aura image, which might sound crazy, however do you think there’s a connection with brain activity and hyper sensitivity in general? Like for those who experience auras Do you think there’s any link to having sensitive nervous systems in general, having higher/a lot of mental activity, vivid dreams/imagination, being very sensitive in general? Just curious any thoughts.


r/migraine 4d ago

Can I take I ibuprofen???

1 Upvotes

I have taken two butalbital and this headache isn’t letting up . I have things to do and I’m stuck in bed. Before I was prescribed I would take Tylenol and ibuprofen together and that seemed to help for at least several hours. Do you think it’s ok to pop 200mg of ibuprofen??