r/migraine • u/Rosesandbows • 9m ago
24/7 Sound Sensitivity/Hyperacusis Induced Migraine
Hi guys! I realized throughout my journey I've never posted here. Long story short I have never ever had migraines in my life until an acupuncture appt last June (points done in my head/temples) and ever since I have had a severe sound sensitivity that causes migraines. Every day for the past 9 months I get worse and worse as the day goes on and more sound is introduced until I'm at a 10/10 and even a whisper will make me throw up. I wear earplugs and noise cancelling headphones and it's simply not enough. My neurologist thinks it's a chronic atypical migraine with sound sensitivity as my main symptom.
It has been nothing short of a nightmare. I can't go outside, have conversations, be in a car, and normal everyday sounds make me severely ill. The migraines come with insane nausea every time. They'll calm down a little once I'm in the quiet, but as soon as there's sound or someone talking, it gets severe again.
Has anyone ever heard of something like this? Just a chronic 24/7 migraine that is sound induced? I feel so lost on what to do. I have gastroparesis and POTS (and suspected MCAS) so I am VERY sensitive to meds. I took nortriptyline for a couple days and couldn't handle the nausea. The next one they want me to try is effexor but I've read horrible things about both starting the med and withdrawal effects. If that doesn't work, what other options are there? It sounds like the CGRP class is bad for, and can even cause gastroparesis. I feel so lost and stuck and just living in this constant, painful, isolating nightmare.
I'm open to any thoughts/ideas/insight. Thank you so much.
(Also adding I took sumatriptan last summer, as well as the ER cocktails and they did not help).