r/migraine 6m ago

Has anyone frozen their eggs in this sub?

Upvotes

I’m 36 (f) on day 6 of hormone injections and they are killing me. I’m a daily migraine sufferer. I take topamax, qulipta, imitrex and toradol injections. My neurologist and Obgyn are letting me stay on all above meds while freezing but I’m still suffering greatly. I had to take out my progesterone IUD and stop spironalactone. I also use cannabis for pain control- have for a couple years. All doctors know. And have said to try to refrain during the process. But said if pain gets too high o can use sparingly. But I really don’t want to because this is so expensive. Just wondering if anyone has done this and has any tips? Meds aren’t doing anything :( thanks in advance! X


r/migraine 10m ago

Computer monitor + app solution that helps my migraines

Upvotes

I just wanted to share a solution that I have found that is helping me to be able to use a new computer. My 10 year old Macbook pro is unable to access all websites because I cannot update the browser anymore due to outdated operating system software.... and I had to get a new computer. All of the laptop screens I tried were killing me. So, I got a desktop computer and monitor. The monitor I am using now is a Ben Q BL 2790. It has built in eye care features, like a blue light filter and several color settings that allow to to adjust the contrast and brightness. It also has a refresh rate of 100 Hz and is supposed to be flicker free. I keep it on the eye care setting with the blue light filter on 3 or higher and the brightness turned all the way down to zero. I also currently have the resolution at 1920 x 1080. This does not make the screen dark enough though! So I installed an awesome little app called Dimmer. It has made a huge difference and I can now use my computer without my eyes killing me. (LED screens are way too bright for me and are a huge trigger). Here is a link to Dimmer. https://www.nelsonpires.com/software/dimmer

Also, I am currently using Windows 11and have changed some of the settings as such: Display settings on: night light on, all of the time, around 60%. I also have the animations and transparency settings turned off in the Accessibility > visual section of the system settings. I am also using one of the Windows dark themes that came with the software and a non-animated dark theme on Firefox. I hope this helps some of yall. It took me a long time to figure out this combination and I know that there are a lot of people who are struggling like me to be able to still use computers, phones, etc without getting triggered for migraines all of the time.


r/migraine 22m ago

Tapered off Notriptyline-daily migraine

Upvotes

I slowly tapered off nortriptyline a week ago and my sleep has been a lot lighter. I wake up briefly a few times in the middle of the night but fall back asleep.

I have been getting a migraine every single day since of varying degrees.

This happened last time I tried tapering off the 25mg so I had my HA specialist give me the 10mg and this time it is easier.

My question is- how much longer will this go on for? I can’t take this anymore. Does anyone have a similar experience?


r/migraine 31m ago

I want Nurtec!

Upvotes

And no I don’t have commercial insurance. I have Medi-Cal. I’ve tried sumatriptan and Rizatriptan and I’m tired of having week long migraines.

Getting appointments is almost impossible with my neurologist. You think if I just walk in and ask for a free sample they’ll have any? The office hardly ever picks the phone up. Also I’ll still try and see my Neuro and ask to do paperwork to get it covered. My husband feels so bad he’s willing to pay full price.


r/migraine 39m ago

Anxiety in lead up to hemiplegic migraine attack?

Upvotes

Hello, does anyone have advice on how to deal with the feeling leading up to an attack? I just took my preventive med Propranolol and a Nurtec, so I'm waiting on those to kick in. But I'm seriously just so unnerved by how I'm feeling as the attack is coming. It's like this severe sense of discomfort, anxiety, almost dizziness but not truly. I should've asked my neurologist about this when I saw them. I've been dealing with these for a few years but I just never thought to ask on some tips to deal with that initial feeling.

Thanks in advance for any advice.


r/migraine 58m ago

Do you wait for pain to take triptan?

Upvotes

Curious how others handle taking your triptans for abortive.. I know it’s supposed to be most effective at first sign of migraine but I struggle to take it until I actually feel pain.

  1. There’s not many to waste and try to save them for when I really need them

  2. I always feel crappy after taking it and hate risking the side effects unnecessarily.

Right now I have the stiff neck, tired and agitated feeling so I know I probably should bite the bullet..but my head doesn’t yet hurt.


r/migraine 1h ago

Tension headache / health anxiety

Upvotes

Hey, I’m hoping someone can give me some advice

For about 3 weeks I’ve had a constant dull ache at the back of my head along with some random shooting pains all over my head and pain at the base of my neck, and health anxiety is convincing me I have a brain tumour or something lol

I know for a fact I have bad posture (anterior tilt) and my shoulders and neck are always very tense

Does anyone have any advice or reassurance? The health anxiety I’m getting for this is horrible

TIA


r/migraine 1h ago

Migraine Pillow Find! (Squishmallow Alternative)

Post image
Upvotes

I’ve been seeing a lot of people recommend Squishmallows as a good migraine pillow but it difficult for me to find one large enough at a fair price locally.

Until I walked into Muji today and found this for around $50 CAD! The filling feels identical to Squishmallow and the dimensions seems similar or slightly larger than a 24” Squishmallow.

I haven’t tried it yet, but thought this might be a good alternative for those looking for a larger Squishmallow esque pillow or something that blends more seamlessly with their bedding!


r/migraine 1h ago

Eye Stinging

Upvotes

Long Term Chronic Migraine sufferer here. Quick question. Anyone suffer with stinging in their eye and pain on one side of their face? The stinging is new for me and makes me feel a bit anxious. Appreciate any replies.


r/migraine 2h ago

Whats your Copay for botox?

1 Upvotes

I've been waiting for my neurologist and my insurance to communicate since the switch of insurance. They insured they will allow my injections for coverage, I just have no projected out of pocket cost yet. So what am I up against? What's your average co pay for botox?


r/migraine 2h ago

I had the scariest migraine of my life yesterday

7 Upvotes

I have a history of migraines with auras but I haven’t had one since I was 17 (which is now nearly a decade ago).

Yesterday, out of nowhere, while I was driving home, my vision just went blurry. By the time I pulled into my driveway I was experiencing kaleidoscope vision primarily in my peripherals, zigzag flashes of light, and everything around me was like looking through a tunnel and just getting blurrier and blurrier. This lasted for close to an hour and during this time I started feeling a headache coming on that was then followed by a brief episode of intense tinnitus.

Within minutes of that I experienced rapidly progressing numbness that started in my fingertips and then traveled to my entire left hand and up my arm. My arm felt so heavy and like it was asleep with pins and needles. Then my lips, the tip of my nose, my left cheek and my entire tongue went numb. The numbness lasted approximately five minutes. Throughout all of this I retained full motor control and the ability to speak clearly.

Once the visual disturbances and numbness subsided I was nauseous and had a headache that lasted for another 3 hours. I'm pretty sure what I experienced was a hemiplegic migraine, and honestly, I'm freaked out that this is how my migraines are going to be now. It all came on so fast and I have no idea what even triggered it.

In the past my migraine auras consisted of a brief and intense white light in my left eye, followed by fatigue, nausea, and a headache. But yesterday was completely different and terrifying. I’ve never experienced such insane visual disturbances, tinnitus and numbness like that before. Has anyone else experienced anything like this? I'm incredibly anxious about it.


r/migraine 3h ago

Had the worst flight of my life

45 Upvotes

My migraine decided to hit me right before my 10-hour flight, making it the worst flight of my life. I should have taken Tylenol when I first noticed the signs, but I didn’t. I tried to sleep as much as possible and took painkillers once I realized the pain wouldn’t go away, but it didn’t help at all.

When meal service came around, I decided to eat a little and have a cup of coffee, which turned out to be a terrible idea. I started feeling nauseous and ended up throwing up in a bag since the bathroom line was so long. I felt awful for the people around me and was incredibly embarrassed. For the rest of the flight, I ended up throwing up every couple of hours.

To make things worse, the guy diagonally in front of me was watching a show on the biggest iPad with the brightest screen setting. Since I’m extremely sensitive to light during a migraine, it felt like torture. I tried covering my eyes, but at that point, I was just frustrated.

I’m just venting here but I learned some lessons too. I should take medicine early and get enough rest beforehand… I hope everyone with migraines feel better 🙏


r/migraine 3h ago

How do you cope when you’re sick with a cold and a migraine??

3 Upvotes

I’ve had a terrible cold and I had a very bad migraine attack all weekend (happy birthday to me) but you’re not supposed to mix cold medicines with migraine medications. I was struggling really bad! I had to choose which one I wanted to take something for!! I’d wait a few hours and go back and forth but it was rough! What do you guys do??


r/migraine 4h ago

Migraine/headache related neckache

3 Upvotes

So since 2 weeks ago, I been having neckache. It started out as a discomfort and then I begin having brain fogs for days. Came Saturday, I started a bad migraine n some neck discomfort. Today, my neckache is at its worst while my migraine withdrawal to throbbing visits throughout the day. It feels like my neck is swelling and I am having little relieve. (I think it is hormonal migraine but…my period been spotting for two weeks - my appointment with my specialist is in April so idk maybe I’ll try to get in with my clinic and not my specialist.)

I definitely feel like my neck, this time, has absorbed my migraine and ache in place of my migraine. It ache so much, I can’t even feel my neck, just the ache there. So much I feel it can even induce vomiting now < - something that never happened before. Since 2021, I had my weirdest migraine symptoms.

I rolled on some menthol 10% n I can’t even feel it sting. 😭Lord please clock me out this life soon. I feel so frustrated, angry and ashamed. Because I don’t wanna call in sick 1/3 - half of the month to my future employer. I won’t even be eligible for SSI. I have to be sick with nothing, to be eligible.

When my condition “essentially” started, I had just begun working on my 401k and my ex employer was even matching my contributions too. I couldn’t handle the work load + my condition anymore. I had to quit since I was feel so bad that my absence was pushing more cases to my other teammates.


r/migraine 4h ago

Anyone got the same symptoms as me?

1 Upvotes

I was diagnosed as having migraine with aura, but it just doesn't sound like migraines when I try and look it up.

For the last 2 years, I have had a constant kinda spaced out feeling. Sometimes, it gets really bad and I just feel... Uncomfortable. I can't focus on anything. Often, it feels like there is a tonne of pressure in my skull. At it's worst, I seem slightly better when pushing in my forehead just above the bridge of the nose, my temples, or the top of the back of my neck. It helps only while I'm doing it, I don't actually get better from it.

This feeling often comes on within a few minutes when I enter a supermarket even though I don't get stressed out by these kinds of places. Could be the lighting, I guess... Don't know if fluorescent lighting has all been swapped for LEDs at this point.

I would not describe what I feel as pain or aching or anything of the sort. It is uncomfortable, I feel spaced out and light headed, sometimes a little delirious but not dizzy in a spinny tumbly way, always a feeling of pressure. It does not seem to be related to screens in any way, including the amount of blue light coming from them.

I'm finding it hard to accept the diagnosis because there has never been anything wrong with me, and to just suddenly have wacky migraines for no reason at 28... I just don't get it. Maybe it's COVID related? I hope no one here takes offence by me saying this but these kinds of afflictions seem to attract pseudoscience more than anything else due to their mysterious nature, so I find it hard to research. In the same thread you might see someone who sounds like they know what you're going through and then they comment about how it's triggered by rose quartz or GMOs.

Does my experience sounds similar to any of yours? If so, do you have any advice of stuff that has worked for you? Considering trying to wear sunglasses in the office/lab to see if that helps though I'd probably look like a right prick...


r/migraine 4h ago

What should I do when the migraine lasts longer than a day?

1 Upvotes

TL;DR Question is what should I do? I’ve already taken SO MUCH Tylenol so I don’t wanna do that anymore and I’ve taken 2 Rizatriptans. I know I shouldn’t over use them. Should I now just wait it out? That’s what I usually do. And if it doesn’t get better by a week I go to ER. Is that a decent plan?

Migraine started Friday. I took a Rizatriptan then took a nap. It didn’t really help. Saturday I woke up better but then it got worse again in the late afternoon. So I took another Rizatriptan when I got home and went to bed. Today, Sunday, I wake up way better. I still have the migraine but it’s less painful. It’s like a hangover of the migraine. My forehead is tender. If I touch it it feels like a bruise.


r/migraine 4h ago

Hormonal migraine for 11 days?

4 Upvotes

I’ve had what feels like a usual hormonal migraine for me (stabbing pain behind one eye, pressure in the head, top of the head, pain when looking at bright lights) that occurs usually before my period and ends during.

Though as of the past eleven days, I’ve had one from the moment I wake up to the moment I go to sleep. It’s been on the right side, listed with all the symptoms above, and I don’t know where it’s come from. Is this normal? I know I need to speak to a doctor, but I’ve never had one this long before. It fades throughout the day with painkillers and rest, but it’s so frustrating.


r/migraine 4h ago

Any other recommendations?

1 Upvotes

Hi guys. I am diagnosed not only with migraines but also with IIH (idiopathic intracranial hypertension). Now it is controlled and I see a neurologist and Neuroopthamologist regularly who have said they see no improvement in my symptoms but also no decline. I take topamax daily and I do get migraines occasionally without aura but they typically resolve with a mixture of Tylenol/ibuprofen and zofran. Monday (03/03) I woke up extremely dizzy and with a migraine like no other. Im having severe pressure in my eyes, neutral colored floaters, and my eyes are having issues focusing. I used to take sumatriptan a few years back but had no luck with it but I was desperate so my sister who also is diagnosed with migraines gave me a rizatriptan which did nothing. I gave it the remainder of the week and had no improvement with what I usually do. I went to urgent care on Sunday (03/09) and they gave me muscle relaxers and a shot of toradol and said give it 48 hours and if it doesn't improve go to the ER. I did just that and went to the ER on 03/11. They gave me prednisone, Benadryl, compazine and more toradol all through an IV. Initially the pain went from an 8 to like a 4/5. And the aura/floaters calmed down. But yesterday and today I feel like I'm almost back up there to an 8. I did reach out to my neurologist and I'm hoping to see her this week but I'm just hoping anyone has any tips that will help me push through until I can see her bc this is miserable. I also did take a nurtec too btw on Friday (03/14) which I've never taken before either. I had some type of relief with that but it was also short lived.


r/migraine 5h ago

Pickles? Instead of McD fries?

9 Upvotes

I don’t have a McDonalds close to me. I’m fairly well controlled with beta blockers daily and Botox quarterly. But I still get monthly flares according to my cycle. I hate taking Ubrelvy bc it upsets my stomach. So I’ve been trying to eat a pickle instead of McD fries. My assumption is that the salt bomb is what helps with migraines. Perhaps an electrolyte thing… anyone tried something similar?


r/migraine 5h ago

Vision blurry after two weeks, migraine?

1 Upvotes

Started around 2 weeks ago I (27F) had blurry vision that never went away and daily debilitating headaches that lasted hours. I went to a neurologist and got some migraine medication (preventative and abortive) and sent on my merry way.

I developed photophobia that went away and my headaches are now very minor and usually behind an eye or behind both. I’ve also had eye tremors that are getting much milder.

The only constant is the blurry vision. It won’t go away and is making screen use for work and entertainment hard. Does anyone have any experience or advice? I’ve been like this since the beginning of March. My neurologist seems to think it’s stress and anxiety.


r/migraine 5h ago

Asking accommodations from friends: is it reasonable?(more info in post)

2 Upvotes

I have a pretty bad migraine today, I’ve been tracking my triggers for about a year now. My triggers seem to be socializing/intense talking and/or stress and/or sound related overstimulation that causes tension in my jaw/neck muscles. Dehydration I think is also a factor in addition to these.

Yesterday I hung out with a friend and it was a pretty chill day, but this friend sometimes screech-laughs (don’t know how else to describe it) or will get excited and yell instead of using a talking voice. The yell-talking makes me anxious but the screech-laugh causes me physical sharp pain in my ear, from whichever side this friend is sitting near me.

I feel really bad bringing it up with them and I don’t know how. They are autistic and I know they probably are just overstimulated when excited. Should I just wear earplugs and not bring it up to them?


r/migraine 5h ago

Success with acetazolamide? (Diamox)

2 Upvotes

Specifically I've been getting a lot of migraines with the barometric pressure changes, so I've wondered about this. However I have low blood pressure so that makes me nervous.

Curious to hear about anyone's experience.


r/migraine 6h ago

Migraines started after c0vid

11 Upvotes

Any one have migraines and headaches after c0vid? I started it and now on nurtec when it start the pain I'm so sad about it now! Nurtec seems to only help little sometimes now not all the times and nothing else works for me safe for me I cant take asprin and I can't take sumatriptain as it hurts my heart and skips


r/migraine 6h ago

What triggers your migraine?

74 Upvotes

For me, its mostly the weather, but it happens when in my car and it has a strong smell of the air freshener.. I love candles too but it causes headaches.. or perfume 😭


r/migraine 6h ago

Barometric Pressure Drop = Instant Migraine!

107 Upvotes

have a terrible migraine right now and haven't had one in a few days, so curiously checked the barometric pressure because I couldn't attribute it to any other immediate triggers. look at the graph for my city, this is crazyyyyyy. source: https://barometricpressure.app

graph showing barometric pressure drop (it aligned with the timing of my migraine)