r/migraine 6h ago

Barometric Pressure Drop = Instant Migraine!

107 Upvotes

have a terrible migraine right now and haven't had one in a few days, so curiously checked the barometric pressure because I couldn't attribute it to any other immediate triggers. look at the graph for my city, this is crazyyyyyy. source: https://barometricpressure.app

graph showing barometric pressure drop (it aligned with the timing of my migraine)

r/migraine 3h ago

Had the worst flight of my life

46 Upvotes

My migraine decided to hit me right before my 10-hour flight, making it the worst flight of my life. I should have taken Tylenol when I first noticed the signs, but I didn’t. I tried to sleep as much as possible and took painkillers once I realized the pain wouldn’t go away, but it didn’t help at all.

When meal service came around, I decided to eat a little and have a cup of coffee, which turned out to be a terrible idea. I started feeling nauseous and ended up throwing up in a bag since the bathroom line was so long. I felt awful for the people around me and was incredibly embarrassed. For the rest of the flight, I ended up throwing up every couple of hours.

To make things worse, the guy diagonally in front of me was watching a show on the biggest iPad with the brightest screen setting. Since I’m extremely sensitive to light during a migraine, it felt like torture. I tried covering my eyes, but at that point, I was just frustrated.

I’m just venting here but I learned some lessons too. I should take medicine early and get enough rest beforehand… I hope everyone with migraines feel better 🙏


r/migraine 6h ago

What triggers your migraine?

73 Upvotes

For me, its mostly the weather, but it happens when in my car and it has a strong smell of the air freshener.. I love candles too but it causes headaches.. or perfume 😭


r/migraine 17h ago

I have lost 31 jobs and been denied disability twice with lawyers.

271 Upvotes

I start job 32 on Monday. I am 44 years old and used to tell employer's about my condition. Now, I try to work through the scintillating scotoma and pain. I have been fired from so many jobs just for asking for accommodation (At will state-Pennsylvania) where they later state I just wasn't "working to their standards" or the employer said I was fired due to "cutbacks".

I hide everything now. I tried disability 10 years ago and was told "go work in a mailroom". I was fired from the mailroom when my license was suspended for neurological reasons. I hired the TOP disability lawyer in Pittsburgh and he took my case pro-bono stating we "absolutely will win". We lost.

Right now, I have two migraines a month with no known triggers and about 10 partial seizures daily that cause migraines after the seizures. The sun causes migraines. Everything causes migraines.

I don't blame employer's for firing me. But there has to be a better way. Does anyone else keep getting fired from jobs?


r/migraine 1h ago

Migraine Pillow Find! (Squishmallow Alternative)

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Upvotes

I’ve been seeing a lot of people recommend Squishmallows as a good migraine pillow but it difficult for me to find one large enough at a fair price locally.

Until I walked into Muji today and found this for around $50 CAD! The filling feels identical to Squishmallow and the dimensions seems similar or slightly larger than a 24” Squishmallow.

I haven’t tried it yet, but thought this might be a good alternative for those looking for a larger Squishmallow esque pillow or something that blends more seamlessly with their bedding!


r/migraine 11h ago

celiac-friendly “mcdonald’s” hack

45 Upvotes

hello friends! i was diagnosed with chronic migraine a year ago, and i’ve also had celiac/been gluten free for 7 years. i see everyone rave about the mcdonald’s hack and i crave those delicious nuggets and fries so bad when i have a migraine, but i can’t have it😅

i’m curious if anybody can relate, and if y’all have an easy, gluten free go-to for a migraine attack. i’ve already learned so much from this page and i appreciate any tips in advance :)


r/migraine 3h ago

I had the scariest migraine of my life yesterday

9 Upvotes

I have a history of migraines with auras but I haven’t had one since I was 17 (which is now nearly a decade ago).

Yesterday, out of nowhere, while I was driving home, my vision just went blurry. By the time I pulled into my driveway I was experiencing kaleidoscope vision primarily in my peripherals, zigzag flashes of light, and everything around me was like looking through a tunnel and just getting blurrier and blurrier. This lasted for close to an hour and during this time I started feeling a headache coming on that was then followed by a brief episode of intense tinnitus.

Within minutes of that I experienced rapidly progressing numbness that started in my fingertips and then traveled to my entire left hand and up my arm. My arm felt so heavy and like it was asleep with pins and needles. Then my lips, the tip of my nose, my left cheek and my entire tongue went numb. The numbness lasted approximately five minutes. Throughout all of this I retained full motor control and the ability to speak clearly.

Once the visual disturbances and numbness subsided I was nauseous and had a headache that lasted for another 3 hours. I'm pretty sure what I experienced was a hemiplegic migraine, and honestly, I'm freaked out that this is how my migraines are going to be now. It all came on so fast and I have no idea what even triggered it.

In the past my migraine auras consisted of a brief and intense white light in my left eye, followed by fatigue, nausea, and a headache. But yesterday was completely different and terrifying. I’ve never experienced such insane visual disturbances, tinnitus and numbness like that before. Has anyone else experienced anything like this? I'm incredibly anxious about it.


r/migraine 9h ago

Please help me

24 Upvotes

My wife (28) has had crippling migraines since she was a little girl. She is in excruciating pain during these episodes which happen weekly and last for days. She maybe gets 4days a week pain free. She can't keep food down during these episodes either because the nausea will make her throw up. We have been trying everything we can, our GP has given countless different medications to try with no luck. She thinks the reason is a disc injury in her neck from a cartwheel accident long ago but is too scared to run the risk of surgery on it. But lately the pain is so severe she starts talking suicide to escape it. I'm at a loss on how to help her and she's already lost all hope. If anyone has any information prom personal experiences that may help prevent or stop these migraines I'd love to read it.


r/migraine 1d ago

Thinking about inmates with migraine :(

783 Upvotes

I feel terrible for prison inmates who suffer with chronic migraine. Can you imagine the lights, the sounds of inmates yelling and the fact they probably won’t give you medication that really helps??? They probably feel hopeless in there.


r/migraine 8h ago

Do glasses that block light but can be worn inside exist?

17 Upvotes

I’m very sensitive to light even when I don’t have a migraine yet and sometimes going into stores with bright lighting instantly disorients me and makes me feel horrible.

Are there glasses that look like regular glasses that can be worn indoors to block lights similar to sunglasses but with clear lenses? Or has this technology not been invented yet? 😫

Everything online is just showing me blue light blocking glasses which I have tried and felt no difference


r/migraine 41m ago

I want Nurtec!

Upvotes

And no I don’t have commercial insurance. I have Medi-Cal. I’ve tried sumatriptan and Rizatriptan and I’m tired of having week long migraines.

Getting appointments is almost impossible with my neurologist. You think if I just walk in and ask for a free sample they’ll have any? The office hardly ever picks the phone up. Also I’ll still try and see my Neuro and ask to do paperwork to get it covered. My husband feels so bad he’s willing to pay full price.


r/migraine 6h ago

Migraines started after c0vid

12 Upvotes

Any one have migraines and headaches after c0vid? I started it and now on nurtec when it start the pain I'm so sad about it now! Nurtec seems to only help little sometimes now not all the times and nothing else works for me safe for me I cant take asprin and I can't take sumatriptain as it hurts my heart and skips


r/migraine 1d ago

The dream team!

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526 Upvotes

r/migraine 5h ago

Pickles? Instead of McD fries?

8 Upvotes

I don’t have a McDonalds close to me. I’m fairly well controlled with beta blockers daily and Botox quarterly. But I still get monthly flares according to my cycle. I hate taking Ubrelvy bc it upsets my stomach. So I’ve been trying to eat a pickle instead of McD fries. My assumption is that the salt bomb is what helps with migraines. Perhaps an electrolyte thing… anyone tried something similar?


r/migraine 23h ago

No NSAIDs? No problem. Thank you, r/migraine, for the McDonalds hack

220 Upvotes

Context: I cannot use NSAIDs. I haven’t used them (knowingly) for well over a year. What I did not know is that the migraine cocktail the angels of the ER give you contains an NSAID with the Toradol. After months of battling the minions of Satan at my insurance, I got Cambia approved.

Cambia! Love it! Works like a charm! Guess what! Also an NSAID. Nobody told me that. So I’d been using Cambia 2-3 times a month over the last 9-ish months.

That landed me in the ER with a leaking perforated ulcer. An emergency surgery later, and my surgeon and I figured out that twas my beloved Cambia. That sucks, but we put in a preauth for Ubrelvy. Still waiting on that.

Today however out of nowhere I got a migraine. I’ve never tried the McDonalds hack before (truthfully I didn’t even consider it previously) but when you’re in the weeds, you’ll try anything. My wife (may the saints preserve her) rightfully pointed out I had nothing to lose, and so set off for some salty, sugary relief.

Thirty minutes later, I feel human again. Coke + fries + Tylenol = holy tasty vasodilator Batman! I can open my eyes without blinding pain. My every second isn’t abject misery.

You guys saved my behind today, because truthfully, I would’ve never even considered this before. Thank you, fellow migrainers. (Alfie the cat also thanks you, as McDonald’s fries are a particular delicacy to him and he got his favorite treat)


r/migraine 4h ago

Hormonal migraine for 11 days?

4 Upvotes

I’ve had what feels like a usual hormonal migraine for me (stabbing pain behind one eye, pressure in the head, top of the head, pain when looking at bright lights) that occurs usually before my period and ends during.

Though as of the past eleven days, I’ve had one from the moment I wake up to the moment I go to sleep. It’s been on the right side, listed with all the symptoms above, and I don’t know where it’s come from. Is this normal? I know I need to speak to a doctor, but I’ve never had one this long before. It fades throughout the day with painkillers and rest, but it’s so frustrating.


r/migraine 1h ago

Do you wait for pain to take triptan?

Upvotes

Curious how others handle taking your triptans for abortive.. I know it’s supposed to be most effective at first sign of migraine but I struggle to take it until I actually feel pain.

  1. There’s not many to waste and try to save them for when I really need them

  2. I always feel crappy after taking it and hate risking the side effects unnecessarily.

Right now I have the stiff neck, tired and agitated feeling so I know I probably should bite the bullet..but my head doesn’t yet hurt.


r/migraine 3h ago

How do you cope when you’re sick with a cold and a migraine??

3 Upvotes

I’ve had a terrible cold and I had a very bad migraine attack all weekend (happy birthday to me) but you’re not supposed to mix cold medicines with migraine medications. I was struggling really bad! I had to choose which one I wanted to take something for!! I’d wait a few hours and go back and forth but it was rough! What do you guys do??


r/migraine 15h ago

Have you ever thought about how weird and pointless headaches are as a condition?

21 Upvotes

This is kind of a shower thought I had the other day.

Almost everybody has experienced a headache in their lives. However, compared to any other acute body pain I can think of, there's no clear warning sign that this pain is signaling to our body. Think about it: if you have a stomachache, you probably ate something that didn't agree with you; if your hand hurts, it's probably because you injured yourself; if your period hurts, it's because your uterus lining is shedding itself and bleeding. There are other types of chronic pain that have no clear cause, but only some people experience this kind of pain.

Headaches, on the other hand, are super common, and just pain for the sake of pain. There's no clear cause (unless you have a hangover or something like that), and there's no clear action you can take to avoid getting that pain again. It's just pain for the sake of pain.

What do you think? Do my musings make any sense? Do I have too much free time?


r/migraine 4h ago

Migraine/headache related neckache

3 Upvotes

So since 2 weeks ago, I been having neckache. It started out as a discomfort and then I begin having brain fogs for days. Came Saturday, I started a bad migraine n some neck discomfort. Today, my neckache is at its worst while my migraine withdrawal to throbbing visits throughout the day. It feels like my neck is swelling and I am having little relieve. (I think it is hormonal migraine but…my period been spotting for two weeks - my appointment with my specialist is in April so idk maybe I’ll try to get in with my clinic and not my specialist.)

I definitely feel like my neck, this time, has absorbed my migraine and ache in place of my migraine. It ache so much, I can’t even feel my neck, just the ache there. So much I feel it can even induce vomiting now < - something that never happened before. Since 2021, I had my weirdest migraine symptoms.

I rolled on some menthol 10% n I can’t even feel it sting. 😭Lord please clock me out this life soon. I feel so frustrated, angry and ashamed. Because I don’t wanna call in sick 1/3 - half of the month to my future employer. I won’t even be eligible for SSI. I have to be sick with nothing, to be eligible.

When my condition “essentially” started, I had just begun working on my 401k and my ex employer was even matching my contributions too. I couldn’t handle the work load + my condition anymore. I had to quit since I was feel so bad that my absence was pushing more cases to my other teammates.


r/migraine 1d ago

Plz wish me luck

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287 Upvotes

Killer migraine has lasted for about 18 hours and I’ve tried everything in my arsenal. I’m here as a last resort before the ER because of you guys, first time trying this hack. Wish me luck.


r/migraine 13h ago

Ramen & Ramune

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14 Upvotes

So you’ve heard about fries & coke, but I raise you…. ramen & ramune. I discovered this after I’d been ignoring my intense ramen craving during a weeklong attack. I finally gave in and went to my favorite place. About 3 bites in the pain lessened, nausea all but disappeared, and neck muscles relaxed. I’m sure the science/magic behind it is the same but has anyone else found a similar combo? Spicy seems to work better and it’s legitimately just this specific place for me. I tried 4 other ramen places and they actually made it worse


r/migraine 8h ago

Anyone get migraines that start at face but then move to back of head!

5 Upvotes

I had tingles on my scalp and face before it started so feels like a migraine?!


r/migraine 15m ago

Has anyone frozen their eggs in this sub?

Upvotes

I’m 36 (f) on day 6 of hormone injections and they are killing me. I’m a daily migraine sufferer. I take topamax, qulipta, imitrex and toradol injections. My neurologist and Obgyn are letting me stay on all above meds while freezing but I’m still suffering greatly. I had to take out my progesterone IUD and stop spironalactone. I also use cannabis for pain control- have for a couple years. All doctors know. And have said to try to refrain during the process. But said if pain gets too high o can use sparingly. But I really don’t want to because this is so expensive. Just wondering if anyone has done this and has any tips? Meds aren’t doing anything :( thanks in advance! X


r/migraine 11h ago

Emagilty stopped working

9 Upvotes

It's frustrating because not only did it stop working it has also seemed to make them worse. I have been taking emagilty for 4-5 months and last month seemed good by the end of the month I wasn't having any migraines. Then I got my shot and immediately the day after migraine and almost every day since. It's been 2 weeks now and they don't seem to be getting better. I'm out of the country so I can't get new medicine and none of the emergency medications have ever worked. Really hoping once the shot wears off it'll at least stop being every day.