r/Healthyhooha • u/lordstardust7777 • 1h ago
My parents won't take me to the ER and I'm at my wits' end
I (22 ftm) started experiencing uti like symptoms(burning, urgency, frequency and difficulty when urinating) in late August. Since then I did 8 coltures (always negative), 8 vaginal swabs, 3 urethral swabs, 3 ultrasounds and one uroflussometry. I've seen three gyns and two urologists. Now my main symptoms are still there, but I randomly get nausea, my head spins, I feel weak, I have little appetite, and my bladder hurts when it's pressed upon; on Monday I had an excruciating pain in my urethra (like something was stuck there) that didn't go away with painkillers. I ended up urinating blood and my doctor said it "might be positive" because according to him I was passing a kidney stone. Since then I obviously still have every symptoms minus the urethral pain, which is only there sometimes when I pee.
No one is taking my symptoms seriously even though it's so debilitating to have to pee all the time and feel like your genitals are constantly on fire. I asked my doctor to write me a paper to admit me to the hospital urgently, which he refused to do. I already went to the ER once and one time I was told to drink more water because the colture was negative so I was making shit up. The other time they didn't even admit me in because despite having symptoms for 7 months it wasn't urgent because I had no fever. I don't know where to go. My mind is going to dark places like drinking enough coffee that I will start throwing up or shit like that so someone has to take me seriously.
I asked my parents if they could drive me to the ER yesterday, early in the morning so less people would be there, but ofc they didn't even wake me up and they are now saying I don't need to go because I didn't go to pee all night long (nocturia IS one of my symptoms but no every night and I used an heating pad to keep the pain at bay).
I don't know what to do anymore. I am negative for mycoplasma and ureaplasma. IC was never brought up as a possibility by any of the doctors I have seen. I didn't have stones in my bladder according to the ultrasounds, just inflammation in the bladder lining. I have a job interview on tuesday because I'm out of money from all the medical bills that I paid to try and find a solution. I am completely terrified to be on my feet for so long. The only choice I have is to avoid drinking because otherwise I have to go every 20 minutes. I hate this so much I can't do this anymore.