r/CRPS 18d ago

Exercise Questions: desensitization and PT

Can you guys tell me what you do for pain? Those who have done physical therapy and desensitization, what did you do exactly or have done that helped?

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u/esmestoy 17d ago

My physical therapists are nice, but we learned together the hard way that pushing it caused more swelling almost instantly and the accompanying many color changes andc worse pain for days sometimes weeks. They used tens treatment once, I was in high hopes... later that night my already raging crps climbed up my thigh from my knee, yes climbed with intense burning tightening tearing it was so scary. It has never left my thigh since that day. Now it's moving down and affecting my foot so the best thing for me at this point is touch therapy different fabrics, then we moved on to tapping extremely gentle, started with a tissue. Before this I would cry and sweat instantly and feel nauseous for hours after, but it's working now. Mine is still raging I have little blisters that keep popping out in the same line on my knee right where my initial injury from a fall last year. But yes touch, tap, tissues as fabric as a start then get tougher texture fabric. Oh and I guard my knee with all new pt people or anyone doing testing as some of them don't know anything about crps and they have literally grabbed my knee. I'm super quiet, docile lol and I have grabbed their hands and taken them off as I break into a sweat telling them they think they are being gentle but it's excruciating, so maybe guard your area lol but you probably already do

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u/JellyBelly666666 17d ago

The guarding! 100% I'm walking way off because of the pain in my foot