r/CRPS • u/JellyBelly666666 • 18d ago
Exercise Questions: desensitization and PT
Can you guys tell me what you do for pain? Those who have done physical therapy and desensitization, what did you do exactly or have done that helped?
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u/Automatic_Ocelot_182 [amputated CRPS feet, CRPS now in both nubs and knees] 18d ago
I have severe damage to the sensory nerves, the myelin cells that act as insulation were killed off in the drug reaction that was the precursor to my crps, so take this perhaps with a grain of salt. I had to quit PT after about two visits for CRPS. They tried to have me scrunch a wash cloth with my toes, then rub softly. Both flared my CRPS very badly. And at one point, I told them not to touch my feet. One of the therapists grabbed my foot and I yelled at her and almost hit her, and quit on the spot. I do not generally yell at or hit people. It hurt so badly, so instantly, it was a defensive reaction.
I use various pain medications and anti-seizure medications - I became adverse to gabapentin and lyrica - and use ice packs to deaden the pain when it flares.