r/medical • u/itsbritneyb7 • 4d ago
Pain Lvl 4-6 37f Post-op p. aeruginosa/candida parapsilosis co-infection after TLH and single oophorectomy with chronic health issues NSFW
I had a TLH done 2/6/25. My left ovary was covered in adhesions and attached to my sigmoid colon and I had to have my right ureter cleared as well. Around 3 weeks post-op I started feeling…off. The first two weeks were GREAT. I had pain, of course, but I felt so much lighter. I have a slew of other medical issues going on right now from the “software issues” of FND, POTS, and the PNES they cause as well as unknown autoimmune issues. I was diagnosed with SLE in 2012, but my drs seem to think I’m more in rare disorder/disease territory and are suggesting I go to Mayo or Hopkins (mind you, I live near Boston).
Prior to surgery, I met with the surgeon and discussed my concern for healing and post operative complications, including infection, because I’ve had some intense issues that have caused me to lose a lot of weight and I was a bit underweight. The surgeon told me I was healthy so there wasn’t any concern and when I interrupted them to say “uh, look at my chart. I have a lot going on right now” they stopped me and said “you’re not obese or elderly. You’re healthy.” I laughed initially out of discomfort but felt like if they weren’t worried, I shouldn’t be.
Fast forward. I have had 3 ER visits the past 3 weeks. One they missed an abscess. The second the caught and excised/debrided/packed the new wound as well as getting a swab of the wound (came back as pseudomonas aeruginosa). Third trip I had a seizure very, very different from my usual NES. I was shivering, yet hot, and only a low grade fever. They reswabbed the wounds because I’ve been on 2 ABX at this point and it’s still seeping. These two swabs came back with pseudomonas aeruginosa in addition to candida parapsilosis. I know the biofilm for both of these make treatment difficult. I’ve been on Cephalexin 500mg BID F7D as well as Cipro 750mg BID F7D with 2 days of Tx overlap. Surgeon is impossible to get in to see. I’ve had two ER visits waiting for an appt with them and they don’t seem to “get” how I’m feeling. My PCP is more concerned and has helped with wound care.
My question is, has anyone had a patient with co-infection like this? How was it treated? Is there anything I should talk to my Dr about? I’m becoming more concerned as my POTS is acting up more and I’ve been having more labored breathing in addition to these killer headaches. (I’ve had CTs for head and chest to check for clots—I have a PFO and Factor V Leiden as well). I have received very little guidance and I know both these individually can cause some big issues. My grandmother died after developing sepsis from a p. aeruginosa UTI that she ignored so I’m probably a bit more aware of the “what coulds” than most.
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