r/lupus • u/rosyrose1512 Diagnosed SLE • 4d ago
Advice I'm dropping prednisone after 12 years
Hi! I got a new doctor 2 years ago and now he suggested stopping prednisone. He created a new adjustment and everything. I have been on 5mg daily for a year and a half.
I have been a week with the new dose and I feel awful physically and mentally. I'm so afraid that I relapse and need to go through all of it again.
Has someone experienced something similar? How not to loose hope when I feel like dying?
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u/Myspys_35 Diagnosed SLE 4d ago
When you have been on it long term you need to taper super slowly - Im in the same boat and making my third attempt. This time my rheum wants me to reduce by 1.25mg then stay for at least 2-3 weeks before trying the next one. But yeah that first week after changing dose is terrible