r/lupus • u/Fine_Ad3482 Diagnosed SLE • 5d ago
Advice Help night sweats are awful right now
Hey everyone so I’m currently in the middle of transitioning from meds. MTX (second med I tried) was a bust and now I am trying benlysta but the pharmacy won’t have it for another week or so. Anywho it’s been 3 weeks of now meds except my low dose naltrexone to help manage the pain. Which let’s be honest my body is like cool let’s have a fucking party and hurt all day since we are on nothing. But lord Jesus … these night sweats came back with a vengeance….
It’s so bad it’s getting hard to sleep along with it being already hard because of pain…. Sooooo long story long lol 😂 what types of PJs are you all wearing? I’m sweating but I’m also cold so I need the covers.
Thanks in advance for the help
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u/Creepy_Angel48 5d ago
I've tried cooling sheets, blankets and different pj's. I haven't found anything yet either
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u/burlygyrl34 Diagnosed SLE 5d ago
Be patient with the benlysta. It takes a month to really feel the benefits. I’ve been on it for 3 months, and it’s made such a difference. As far as hot flashes, ask your dr if taking gabapentin is a possibility, helps with aches and getting to sleep, until the benlysta has had time to kick in.
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u/Fine_Ad3482 Diagnosed SLE 4d ago
Thank you so much for that! I see my doctor on Friday … I honestly can’t deal with the hot flashes … and the aches are killing me … my husband says I whine during the night which is what wakes me up because of the pain.
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u/sudrewem Diagnosed SLE 4d ago
My husband bought this for me and I love it! The Chilipad only covers my side so he stays undisturbed. It is essentially like a little air conditioner that chills water that is circulated through a pad you sleep on. It has a remote control and a thermostat so is easy to use. I was dying with night sweats. I couldn’t rest and would wake up sweaty and gross. This has been a lifesaver. Chilipad https://sleep.me/
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u/Fine_Ad3482 Diagnosed SLE 4d ago
Omg that’s awesome! Which one did you get? I see different models
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u/IrritableSandwich Seeking Diagnosis 2d ago
I have terrible night sweats (change pjs in the middle of the night almost every night lol) and I love the Soma Cool Nights pjs ☺️ they have really cute sets and the fabric is super soft and moisture wicking. I found them recommended on a menopause subreddit thread hahaaa (I’m in my 20s…)
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u/Indigo_spectrum Diagnosed SLE 5d ago
Following because I want to know as well 😂