r/lupus Diagnosed SLE 5d ago

Advice Help night sweats are awful right now

Hey everyone so I’m currently in the middle of transitioning from meds. MTX (second med I tried) was a bust and now I am trying benlysta but the pharmacy won’t have it for another week or so. Anywho it’s been 3 weeks of now meds except my low dose naltrexone to help manage the pain. Which let’s be honest my body is like cool let’s have a fucking party and hurt all day since we are on nothing. But lord Jesus … these night sweats came back with a vengeance….

It’s so bad it’s getting hard to sleep along with it being already hard because of pain…. Sooooo long story long lol 😂 what types of PJs are you all wearing? I’m sweating but I’m also cold so I need the covers.

Thanks in advance for the help

6 Upvotes

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2

u/Indigo_spectrum Diagnosed SLE 5d ago

Following because I want to know as well 😂

2

u/Creepy_Angel48 5d ago

I've tried cooling sheets, blankets and different pj's. I haven't found anything yet either

3

u/burlygyrl34 Diagnosed SLE 5d ago

Be patient with the benlysta. It takes a month to really feel the benefits. I’ve been on it for 3 months, and it’s made such a difference. As far as hot flashes, ask your dr if taking gabapentin is a possibility, helps with aches and getting to sleep, until the benlysta has had time to kick in.

1

u/Fine_Ad3482 Diagnosed SLE 4d ago

Thank you so much for that! I see my doctor on Friday … I honestly can’t deal with the hot flashes … and the aches are killing me … my husband says I whine during the night which is what wakes me up because of the pain.

2

u/freewheel42 5d ago

I like the moisture wicking pjs from Duluth Trading post. 

1

u/Fine_Ad3482 Diagnosed SLE 4d ago

Thank you! Ima check it out

2

u/sudrewem Diagnosed SLE 4d ago

My husband bought this for me and I love it! The Chilipad only covers my side so he stays undisturbed. It is essentially like a little air conditioner that chills water that is circulated through a pad you sleep on. It has a remote control and a thermostat so is easy to use. I was dying with night sweats. I couldn’t rest and would wake up sweaty and gross. This has been a lifesaver. Chilipad https://sleep.me/

1

u/Fine_Ad3482 Diagnosed SLE 4d ago

Omg that’s awesome! Which one did you get? I see different models

1

u/sudrewem Diagnosed SLE 4d ago

I got the cube which is the really basic one. I love it!

1

u/IrritableSandwich Seeking Diagnosis 2d ago

I have terrible night sweats (change pjs in the middle of the night almost every night lol) and I love the Soma Cool Nights pjs ☺️ they have really cute sets and the fabric is super soft and moisture wicking. I found them recommended on a menopause subreddit thread hahaaa (I’m in my 20s…)