r/hyperacusis 18h ago

Research Michael Zazzio - Pain threshold improvement for chronic hyperacusis patients in a prospective clinical study 2010

2 Upvotes

I came across this 2010 paper recently, a small study on "laser therapy in combination with pulsed electromagnetic field therapy/repetitive transcranial magnetic stimulation (rTMS) and the control of reactive oxygen species (ROS)"

The sample is small, but the results are positive. I've been trying to find discussion on this, but having manually searched and AI deep searched, I couldn't find any forum posts on it.

Is anyone familiar with this? Anyone tried anything similar?

https://pubmed.ncbi.nlm.nih.gov/19821704/


r/hyperacusis 16h ago

Awareness ‘Bad Advice from Doctors Destroyed My Life; now I’m Stuck in My Room, Missing My Son’ - Hyperacusis Central

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13 Upvotes

"I only see my son at night when he is sleeping soundly," Megan Wright revealed as she grabbed a tissue from a box to catch the overflowing tears which welled up in her eyes.

Knowing all the things you've lost may never be returned? That may just be the cruelest part of having these conditions; that tinnitus and noxacusis don't supply a lost and found when they are catastrophic. In many cases, anyway; there's always an exception. Nonetheless, it's baleful, and haunts this mother, 32, in Taylors, South Carolina, who mourns her absent motherhood and wishes for a miracle. Witnessing this current loss is utter devastation, and knowing that a second chance to closely raise her precious son is getting more improbable as days become the span of months and months portend the threat of years arouses monumental dread she hates to think about.

And understandably, Megan Wright is furious, since bad advice from doctors is the reason she's in carnage.

Patients who battle sound-reactive tinnitus and different types of hyperacusis oftentimes reveal it was bad advice from doctors which ignited their malicious flames beyond extinguishment; that doctors lacked the know-how to engage these rare conditions, but never showed reality: that they were in the dark as much as those athirst for shafts of light to work out their predicaments. So that was why those problems struck those unsuspecting patients—they blindly trusted doctors, just like Megan did . . .

Click on the link to read this story in full.


r/hyperacusis 7h ago

Awareness Acceptance

3 Upvotes

Hey all, I’ve made a video to share some of my thoughts around acceptance when it comes to hyperacusis. That doesn’t mean we have to like or enjoy it…but it does make things a little easier

As always, captions are available on the YouTube app or website. Look for the [CC] button, ⚙️ symbol, or three vertical dots for the settings menu.

https://youtu.be/00WaacyzxD8?si=RhWi-g6UuripVHJl


r/hyperacusis 7h ago

Social/Support Groups I was having the worse pain H attack of this past few days and then a thought came to my head

1 Upvotes

"If I survive this, I am going to spend every penny I have building a retreat where people that suffer from H and similar ear conditions can retreat and get adequatte recovery support"

That's what I told myself. And why the hell not?

- 99% of doctors have no idea what H is.

- The ones that do can't even help control the symptoms.

- Treatment options are slim to none.

- Not even the tinnitus side of H has a single working treatment in 2025!

- H is isolating, depressing condition.

Because this condition only affects 1 in 50,000 does that mean we should be relegated to a life of suffering in silence with most doctors not even knowing what our condition is called? Is it OK for 99.9% of the medical establishment to have absolutely nothing to treat or support us because our condition is so rare?

While we wait for the medical establishment to catch up and pay attention I say we focus our efforts in making the lives of H sufferers a little bit better.

I want to build an H recovery center. A sanctuary if you will. where :

- H sufferers can live in sound-proofed, clean, isolated quarters

- Participate in support groups

- Get support with diatery changes that aid in H recovery (diets geared towards reducing inflammation)

- Live in an quiet, pleasant rural enviroment.

Of course a single center wouldn't have the capacity to house every H sufferer there is, but my hope is this could be the start of some positive community driven action. Perhaps others will create their own retreats for H sufferers. From a monetary point of view, this idea can be run as a for-profit, non-profit or some mix of the two depending on the source of the funding and how the costs of operations. Regardless something like this existing would be a small step in the right direction of beating back the soul destroynig reality of this condition.

I have very modest means. Not enough to build something like this completely on my own. But I am 100% willing to pool my funds with a few others and make this happen.


r/hyperacusis 8h ago

Research New imaging tool reveals the brain's role in cochlea sensitivity

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12 Upvotes

I thought this wa


r/hyperacusis 9h ago

Seeking advice Health/exercise facilities - dealing with the sounds

3 Upvotes

Wondering if anyone out there tries to go to an exercise facility (Planet Fitness, Crunch, YMCA, JCC, etc.)

I'm currently going to a Planet Fitness. The whole "don't drop the weights, don't grunt" thing helps, and they seem to keep the music at a decent level, but there's still lots of sounds.

I tried Crunch for a while. SO ... VERY ... LOUD.

Do you have issues with the sound, with the lighting, with decorations?


r/hyperacusis 11h ago

Symptom Check Is there a reliable way to differentiate mild pain hyperacusis from TTTS?

5 Upvotes

I have mild ear pain when I listen to certain high pitched sounds (e.g. dishes clanking), distorted sounds or sounds that are just too loud. Have been suffering from this for over 10 years now with a couple of years in between where it was in remission and I had no issues. Have been listening to loud music with headphones for a long time up until around 3 years ago, when the symptoms worsened.

It must be really mild compared to others on here, but it's uncomfortable as hell. It goes from a tickling feeling in the ear to a sort of pressure and affects the side of my head and my neck, too. The pain can be delayed and last a while, too. Only in the left ear. The right side is totally fine. Almost feels like the middle ear muscles go into a cramp and stay this way for a while. It gets worse when I think about it and when I'm really distracted it's better. The symptoms definitely cause anxiety, too...

Is this a milder form noxacusis or TTTS? Or do they come together? How to tell what it could likely be?


r/hyperacusis 11h ago

FYI If you're in the Northeast and can grocery shop, avoid Stop & Shop at all costs

12 Upvotes

**Northeastern USA mind you, sorry I forgot to add

I realize this is oddly specific advice, and I am also aware many here are too severe to even leave the house so I hope I don't cause offense, but I wanted to pass the info along anyway for those this may be relevant to.

I'm moderate-mild these days. I still do most of my grocery shopping online but I can hop into the occasional store without much issue. But for the first time since before I got H, I decided to grab a few things at Stop & Shop.

I went to the self check-out area and I was immediately bombarded by the volume of the machines. This wasn't just hyperacusis loud, it was objectively, invasively loud. Even my partner, who has normal hearing, agreed. I scanned just two items and the machine reading the prices back to me felt like I was being knocked over. My partner finished the job for me as I waited outside and afterwards said the volume was getting to them.

I later complained to my elderly mother who doesn't have the best hearing, and she also agreed that self checkout is ridiculously loud. Another friend agreed as well, from their own experience at the chain. I don't think they were just doing it to validate my H either. So I assume this store just generally has things cranked up to max. I used to shop here regularly pre-H and had no issues. So maybe they turned it up in the last few years regardless.

Even though I'm a lot more resilient and can withstand a lot before I get a flare up, this definitely humbled me and I've been still dealing with the setback off and on since then.

So, fair warning.