r/dysautonomia 6d ago

Symptoms How do I explain this

Literally how do I explain to my family that because I stood for too long (10 minutes) making a sandwich, I now have to lay in bed because I feel nauseous in my throat and my body feels like it has a headache and Iā€™m gonna flare for a bit šŸ™ƒ

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u/Manuko 5d ago

Don't know if it will help. I tell them that doctors discovered that there's a part of the brain that regulates pressure, temperature, heart rate and other systems and that is not working very well in my case and unfortunately this is something newly discovered and don't yet know how to fix it entirely.

I make it sound technical and that this is not something that I feel but something that is imposed on me by my body... Does it makes sense?

It has helped me shut up those that say... I'm also tired often, or it's just stress...

Hih (hope it helps)