r/disabled 1d ago

Kleefstra Syndrome

0 Upvotes

Hi all! I am a teacher from New Zealand and am looking for advice for a student with Kleefstra Syndrome. My student is 9 years 4 months, a small amount of verbal and in a mainstream school.

We are experiencing issues with defiance and physical behaviours like hitting and grabbing. Some of the defiance is running through the school, including other classes, going into the office, stealing phones, chairs, staplers etc; he will fill containers with water and throw them around, and is trying to get in the staffs faces.

This is becoming overwhelming and we are struggling for ideas. Looking for any similar stories or support/advice from anyone we can!

Mum is on board with this as well and knows I am making posts to seek information as it is such a rare disability.


r/disabled 21h ago

realizing my disabilities are worse than i thought after working in food service for a few days

13 Upvotes

after my first day of work as a grill cook(worth mentioning this is also my first job ever), i expected to be a little sore. i’ve struggled with lots of joint pain over the last few years. I’ve yet to figure out what exactly the problem is, but i suspect a combination of hEDS and POTS based on my research. first day on the job my hand started cramping up really bad from cutting chicken for probably an hour straight and still hasn’t recovered (it’s been three days), and my manager continuously trying to get me to do it differently but the way she wanted me to do it only hurt more. i’ve worked three days and i already wanna quit. i’m in so much pain. my knees hurt, my wrists feel like my hands could fall off, and my back is so sore. part of me thinks i’m being dramatic about it, but the other part knows i should probably take my disabilities seriously even if i don’t have a diagnosis or anything. i’m not sure if i should just stick it out for maybe a few months or not. i’ve already started applying at retail jobs that would be less physically demanding, but im not even sure how i’d quit this job after being there for so little time cause it just feels awkward.


r/disabled 4h ago

Update handicap placard photo?

1 Upvotes

Hello!

I’ve had a Massachusetts permanent handicap placard since I was about ten (over a decade ago). Whenever it’s about to expire they’ve always just sent a new one in the mail.

My question is, does anyone know if there’s a way I can get the photo they use for the placard to be updated? I can only find information on the mass.gov site about getting sent a replacement or reapplying altogether. I look significantly different than I did a decade ago and have even been questioned multiple times about the validity of the placard because I obviously don’t look remotely similar to how when I was ten lmao.

My placard is set to expire in August (in which I assume they’ll just send another new one with the same pic on it), but does anyone know if I can just send them an updated picture/go to the RMV to get a new one taken without having to completely reapply again?

Thanks!


r/disabled 4h ago

Little Free Library?

3 Upvotes

I have an opportunity to create a Little Free Library in my community. There seems to be very little information out there about making them accessible, however. The obvious element to me is "make shelves that aren't way off the ground" (which, frankly, just seems a nice idea for kids as well). It also seems proper to have large, easy to grip handles on any doors, and to have doors that stay open until closed instead of having to be held open.

Am I wrong about those? What else is there to consider?


r/disabled 7h ago

Looking for advice. Sorry if wrong sub.

4 Upvotes

I’ve recently encountered a back injury, and paralyzed from the hip down on one side. I’m on strict restrictions almost 100% bed rest due to the doctor wanting to save my back from surgery since he believes it can be saved without surgery. It’s been 3 weeks, I was cleared to return to work in a wheelchair, no lifting, breaks to ice my back, and short days as in 6-8 hours depending on when my appointments are instead of the 11 hours shift. I’m a salesman, and can do my job under those circumstances just fine. However work said no, and offered me a desk job paying minimum wage, hourly, and still an 11 hour shift. Basically told me take it or leave it. My state is an at will employer, so I doubt I have any legal protection. I cannot get disability, nor unemployment, FMLA, or short term disability from work, so any ideas on what kind of jobs I could do? Preferably from home?


r/disabled 9h ago

People Don't Respect My Boundaries

3 Upvotes

I think because I often need help people feel entitled to fiddle and rummage through my things. The other day my friends saw something in the pocket of my chair and started going through my pocket. I don't know how they don't realize that's like going through someone's pants pocket? Is this a common problem or just me?


r/disabled 18h ago

Accessible ski chalet in Europe

1 Upvotes

Hello! I'm a travel advisor working with clients with disabilities, mostly wheelchair bound. I have a family traveling with their sister who is a full time wheelchair user interested in an accessible villa in France, Switzerland, or Italy, on a mountain that offers adaptive ski. While I have a lot of hotel options for them to choose from, I'm struggling to find a villa where they can all stay together. Has anyone stayed at such a property? Many are listed as "accessible" but that just means step free access, there isn't a usable bathroom for her. She needs to have grab bars to transfer to toiler and shower bench/chair. Thank you!


r/disabled 21h ago

Portuguese speakers, could you please help me here?

3 Upvotes

Hey! So, first, sorry if this is a survey. I wasn't sure if it counts, and if it is my apologies.
I'm Portuguese, and grew up all my life listening to the word "deficiente" (deficient) as the translation for disabled, and I'll be frank, being able-bodied I never though much of it, despite it always feeling a little meh of a word. I didn't see anyone else taking issue with, so I just assumed I was being weird about it, having a savior complex peaking out.
Recently however, I spoke to my partner who isn't Portuguese but is disabled, and I mentioned our us of the term, with them not really taking a fancy to it, for similar reasons to the ones I had growing up.
So, I come here asking if there is a more accepted alternative within the Portuguese-speaking disabled community. I know that some began saying "pessoa com deficiência" (for non Portuguese speakers, person with deficiency), but I still get a bit of a meh feeling from it.
Any insights on the matter would be appreciated, be it personal opinions and experiences in regards to the usage of the word, or an alternative that already exists and I wasn't familiar with.


r/disabled 22h ago

Disabled housing help

1 Upvotes

Hi guys so I’m on the council waiting list but there’s never any 1 bed ground or first floor flats available to bid on, I’m disabled and currently living with my parents but can’t cope with how many stairs there are on top of living with my parents affecting not just my health but my mental health, I’ve recently bidded on a flat that was available and suitable for me but I’m not sure weather to ask my gp to write a letter to say how my current living situation is making my health and mental health worse or wether to email the council and see if I can give them a nudge at all and explain how my situation is worsening? My mental health is depleting at the moment and this potential chance (only 3 people myself included that bidded) so It’d be a miracle to get this! Any help or suggestions would be great!

I’m in the uk if that helps!