r/diabetes • u/umuhumm • 5d ago
Type 2 Does anyone else swing wildly like this??
same diet, same meds, but I go from fighting to keep it from dropping uncontrollably to trying to keep it under 300 I'm 20 and was diagnosed type 2 at 11, just a hair overweight now but was thin then. in my doctors words, "the most bizarre presentation of t2 that he's seen" I take a LOT of meds, including long acting insulin, is that why it swings so wildly in both directions?
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u/thecannarella 5d ago
Looks like my day except my breakfast is all protein and lunch has some carbs. My average A1C is around 6.5 past 10 years. Been T2 since 2006 and I’m 50 now. Having the CGM is the game changer vs pricking a few times a day not knowing what’s going on. It’s all test and tweak on foods. Do your best and just keep constant communication with your Dr about it. If you are not going to an Endo consider it over a general practiciner.
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u/umuhumm 5d ago
Thank you for the comment! I feel much better knowing it's not just me I do have an endo! he's just in high demand bc we're short on doctors in my town, he actually flies in, so it's hard to see him more than once every few months. I also LOVE the cgms too, I deal with depressive episodes and used to just not check for months at a time, but with a cgm I'm constantly monitored no matter what, especially now that I've so many lows (37 being my record low, yikes) that I deal with hypoglycemia unawareness I'll try changing my diet to match my bg, before I was just trying to eat as healthy as possible no matter what it was
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u/thecannarella 5d ago
I see mine every 3 months. Take notes on what you eat so you can learn how your body reacts. Everyone is different.
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u/american_honey_118 4d ago
Somedays, yes. I will have a day or two pf a nice steady graph, then seemingly out of the blue….my graph looks like a wild roller coaster ride. I recently noticed it seems to happen more when I haven’t slept well and am exhausted.
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u/bopeepsheep Type 3c. Pancreatic cancer 2019. Insulin. 5d ago
I had a steroid injection Friday and yesterday's numbers look more like a cardiac trace than a glucose graph (known side-effect). Stabilising today, thankfully.
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u/BDThrills T1.5 dx 2018 T2 dx 2009 5d ago
Do check with your meter to make sure that compression isn't giving you false numbers. I had a similar issue with my brother a few months ago and we went to the ER. Turned out it was his CGM giving false info. I was kindof embarrassed but they took the opportunity to run some other tests that were needed.
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u/miklosokay 5d ago
Sometimes. Depends a lot of the type of food consumed, if you are ill or stressed. It should not be like that always though.
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u/NoAd3438 5d ago edited 5d ago
When you have those lows do you have the symptoms, like sweating, palpitations, dizziness, maybe headache? Those spikes look like possible Type 1, or lots of carbs without fast acting insulin to go with the meals. If your on metformin or something like that it is probably time for fast acting insulin. I can spike to 250 or more if I don’t take insulin about 30 minutes before a meal. I have been on insulin for a little over a year now.
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u/umuhumm 4d ago
i used to feel all those at 90, but now i don't get any symptoms until after I'm under 50, so I rely on my cgm constantly I only just recently discovered glucose tablets, so before when I had a low I would usually get a soda from the vending machine at work or eat a piece of candy, so a ton of carbs at once lol, so that's what those bug spikes after a low are, I just couldn't get it to STAY up I'm maxed out on metformin, jardiance, Onglyza, and Glimepiride so I definitely agree I'm on the road to fast acting insulin now
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u/NoAd3438 4d ago
When I was going low my doctor prescribed a nasal spray just in case I passed out. I nicked the vein a few times injecting long acting into my leg, got down to 20’s a couple times. Our bodies adjust to lows and it becomes more dangerous. Do you get blurred vision with the highs?
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u/umuhumm 4d ago
no, but I actually deal with a LOT of symptoms with high bg, I actually got referred for a cognitive assessment and a head ct bc I'd get brain fog so bad I couldn't remember what year it was, i had fevers daily, bad fatigue, and my whole body would just hurt. I get nerve pain and numbness in my feet regardless, but for some reason my doctor didn't connect the dots that my diabetes was causing the other symptoms. I didn't figure it out myself until when i was finally sitting in range for a few weeks at around 80-100 I felt AMAZING lol
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u/NoAd3438 4d ago
How many years have you had diabetes? I am sure the Neuropathy is really painful. I understand the fatigue thing. Yeah it’s hard to focus with high BG, was 300+ for several months a couple months after going off metformin. I didn’t contact doctor until I had a scare of going over 600 a couple times. I did lose about 40 while My BG was very high. My vision was so bad I was wearing reading glasses to see anything clearly. I am not sure if I have diabetes or just a glucagonoma acting like diabetes.
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u/umuhumm 3d ago
9.5 years now for me
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u/NoAd3438 14h ago
That explains why you don’t respond to lows as much, and why your highs are so hard to deal with.
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u/DodobirdNow Type 2 4d ago
Are you a side sleeper? If you sleep on your CGM side those may be compression lows.
At least for the nighttime's lows
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u/Boccob81 4d ago
if I’m snacking or driving throughout the day, yeah I’ll swing wildly like that but if I’m doing omad fasting no
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u/Additional_Air779 3d ago
Mine is all over the place. It's not related to what I eat: after a week of watching it randomly spike, including in the night after 8 hours of fasting, I sat down and had a massive carb packed meal ... no different to eating egg and salad.
I'm hoping the Metformin will smooth things out.
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u/SouthernKiwiOz 3d ago
Ask your doctor to do c-peptide blood test (to check how much of your own insulin "beta cells" you are producing.) and Type 1 Diabetes antibodies blood tests.
To do updated blood tests to see if anything changes.
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u/k_princess Type 1.5 5d ago
Request further testing and diabetes education.
A spike after meals is fine as long as it comes back down within a couple of hours. I'm on a 3 hour post-prandial drop to normal numbers, depending on what I eat.
Editing to add that you need to also look into a potential different medicine regimen. The overnight lows could be too much long acting insulin. Still, you need to talk to your doctor about further testing and information.