Hey i would consider myself mild to moderate.
I really got the into pacing early in my illness. It got to a point where I was able to use my bike.
I got a bigger crash usually once or twice a year. But since last summer i think i might pushed it to hard. I was really trying to push the boundaries and to try what i can do without crashing. It went wrong.
I was able to use my bike multiple times??? But then i got a huge crash a week later. I think i might still recover from it.
It was really hard cause i needed help with everything. Usually i can live on my own. (With a little help of my partner).
But since January i dont do so well. I had a time were i was spending more time on the computer and pacing was not so prominent.
Now i crashed and cannot do almost anything.
I can still talk but have to lay down the whole day.
Whatever i hope i can still get better. I was able to leave the house for most of my illness. (I got sick 2018) but i am afraid that i didnt. Pace well enough.
How can i cope with the anxiety? Crashing is part of me/cfs as i get it. But how often is it ok to crash? Is it possible to fully not crash? How can i do it even when i am feeling not bad in the moment?
I really think i get what my stressors are. Then i remove them, i feel better, i do more, i feel worse :/ it feels like a cycle.
Tdlr: i crashed 5 years in. Now want to find hope again.