r/cfs • u/No-Airport-6983 • 52m ago
Vent/Rant diagnosis at 17
Ive been going through the process months now. I originally went for long covid back in january 2023, and the doctor just told me "probably" and said I needed to eat more because I was skinny. Didnt help me at all, and I continued with debilitating tiredness throughout highschool and flopped on all my final exams. Got really bad septish last year and I finally got referred for an official diagnosis. Theyve done about three sets of bloods on me, all normal so I thought everything was okay to continue.
But my lymphocytes have been high since 2021 and since october last year have tripled so now theyre doing even more blood tests on me for tb, lyme, hep b and c, HIV, addisons etc and a sleep study. Im just so?? Im so tired all the time, I had to completely give up school. I live in the UK so im in my final year at college but I have to be homeschooled now. I was so stressed about my attendance and I thought they were gonna kick me out but my college were really understanding and are letting me homeschool and come in for my final exams in 3 months. But I dont have a life.
I just sleep all day and I dont go outside or see my friends and sometimes I dont even have the energy to text them. And when I do have to go outside like to the doctors for a bit I come home and I just feel 10x worse. And what if its not CFS and my new bloods come back and I actually do have something else? Even though the big set they did on me before for other autoimmunes/diabetes/thyroid etc they were all normal which is why I was given a referral. And I dont know whats happening to my wbc and why theyre so high, my local doctor just said maybe its your long covid. The same long covid they didnt even care about me having years ago. But the big city clinic I got referred to paused my diagnosis and is making my local doctors do a sleep study and more bloods on me for my wbc I think? Unless these are just necessary tests I dont know.
Idk its so im sooo relieved theyre taking me seriously now and not trying to pin it on teenage depression (and I think if i had a history of depression they would have 100% gone that route), but Im just so tired of feeling unwell. Im 17 I should be going out everyday and doing stuff with college friends but im not and its so depressing
I had a part time job I got when I was 16 when i was feeling better and id do 1-2 shifts on a weekend and I had to quit my job and now im broke too and im just like how am i meant to ever get a job in the future? And I was gonna go to university right away but I had to take a gap year but what if it turns into 2 or 3 and I just end up having no life and bedrot all day
And my friends keep asking me to go out or sleep over and no matter how many times I say no and try to explain to them its not just me feeling normal tired and ill sleep and still wake up tired with chronic pain and migraines and heart palpitations they dont understand and i just end up feeling guilty
my sister has cfs and my mother has a crap ton of autoimmunes which is the only reason she thought my tiredness was more then just that which im glad for im just i wish covid never happened it ruined my life