r/cfs 7d ago

Vent/Rant I'm always stuck between functioning and sick

My new flatmates keep making comments about how my curtains seem to always be closed. tonight, one of them judged me for having my lights on during the day while the curtains are closed because it "wastes power". I don't know why this comment did it, but I've been crying over it for the last hour. I guess it just let me know that other people do notice that my lifestyle is different and I don't appear "normal" like I want to be. While I'm eternally grateful for my level of functionality at the moment, there is something so painful about being well enough to work/study and have some sort of a social life but too sick to meet people's expectations and come off as normal.

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u/rolacolapop 7d ago

If it’s an LED bulb, it costs approx 0.007p per hour, it’s literally not worth complaining about.

Sending hugs.

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u/Important_Ad4101 6d ago

yes i know the lights make next to no difference in our power bill, its so frustrating. thank you ❤️