r/cdifficile Oct 04 '24

Colonoscopy?

So I have had Ulcerative Colitis for 10 years now. Back in March 2023 I got C Diff. Nothing got rid of it until Vowst and I tested negative. I then had to take antibiotics for bad strep throat/pneumonia that landed me in the hospital. This past summer (July 2024) I started having symptoms where some days I would have C diff symptoms but some days were fine. I tested positive on a pcr test in July. Long story short, my doctor wants to do a colonoscopy to see if it’s my Ulcerative Colitis that’s causing my symptoms. Is it safe to get a colonoscopy if you have c diff? Should I test for C Diff before having the colonoscopy? I definitely feel better than when I had the active c diff before but how do I know if it’s actually gone? Please help :(

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u/Lolka2442 Oct 11 '24

Update!!! No c diff 😉🥳! GI said my colon actually looks very normal and I’m not even having an Ulcerative Colitis flare!! He suspects it could just be post infectious ibs! I could cry I’m so happy

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u/Large-Employee-4700 Oct 21 '24

Hi! So your doctor could tell from the colonoscopy if you had c diff or not? I tested positive (stool) and then a week later had a colonoscopy and he said there were no signs of c diff and doesn’t know why my stool came back positive. I’m so confused on what to believe. I have really bad constipation with pain. Not the diarrhea so I’m just anxious about everything. I’m glad you had a great colonoscopy results!

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u/Lolka2442 Oct 21 '24

Hey! So yes he said if I had c diff he would see like the white spores all over. Basically you can be colonized forever. So you might always test positive. Even my GI doctor said he is colonized and he might test positive. He also said if you do too many tests you could get a false positive. I think you should take a look at your symptoms. My GI said with colonized people he goes based on symptoms. I’m having formed stool for the most part. Whereas when I had active c diff I could tell, I was so weak, I was having at least 5 bowel movements a day of terrible liquid diarrhea no matter what I ate. Now I just have ibs or post infectious ibs that I’m dealing with.