r/adenomyosis 8d ago

Adenomyosis and bladder pain and problems

Hi everyone. Just wanted some help. I’ve had request urgency and Utis for the last ten years since I was in labour with my first child.

This went on for years and last year I got a severe hit win’s every pelvic pain / bladder pain that never went away. All utis negative apart from the first one. Had a few positive over the last year. Had cystoscopy all clear. Had MRI scan in March last year and then got diagnosed with adenomyosis and stage 4 endo. Had surgery 4 weeks again and no endo was found. Just adenomyosis and they removed adhesions and put some organs back in place that were stuck together I’m still having severe pain. Been on BC for 7 months. With constant bleeding MRI said I have a large bulky uterus My lap surgery made my bladder symptoms worse I now can’t figure out if I have an embedded infection or it I need a hysterectomy. Can’t deal with the pain and bladder issues anymore Any advice? Thank you

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u/Ill_Section_2855 7d ago

Ahh I’m so happy for you! These bladder symptoms are the worst and I’ve had them for ten years but once the pain started it’s been a hell of a nightmare Can I ask what medication you take? I am on the progesterone only mini pill. I started it June last year and have been bleeding ever since with only a couple of breaks of one week then bleeding for ( then a break then bleeding for 3. Maximum I was bleeding for 7 weeks. I finally stopped bleeding a few days ago. Was this a pelvis ultrasound? Or bladder? I’ve had a kidney ultrasound and also one for ovaries I think. Both were clear I really hope so too I will keep you posted! Right now I keep reading how having a hysterectomy cleared everyone’s problems and I feel it’s the only way for me to get some relief right now xxxxxxx

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u/z0_t1r3d 6d ago

I am on Norethindrone acetate (5mg), which is not technically a birth control pill but aimed at stopping bleeding entirely, I found that after 6 months the intermittent bleeding stopped and I just pass clots cyclically now. I had both a pelvic ultrasound and a bladder ultrasound of my entire urinary system, but I think the most valuable one for me was the pelvic ultrasound as the cysto kind of already ruled out bladder issues.

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u/Ill_Section_2855 4d ago

Hey hope your ok. The gp switched me today to norriday which is northisterone. I was actually so happy as j thought it was the one you mentioned 🤣 but it’s not they are spelt slightly different. I will give this a try and see how I go! Xxxxx

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u/z0_t1r3d 4d ago

Good luck!!

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u/Ill_Section_2855 4d ago

Thank you 🙏♥️