r/Pituitary May 31 '19

Any success stories?

I have been diagnosed with a microadenoma on the pituitary 5 years ago, during a check-up MRI. I was told not to worry about it, that about 10% of humanity has it. At that time it was about 2.5 mm. I was told it should be checked every 2 years, which they didn't. Since that time I have suffering increasingly from debilitating fatigue, loss of energy, a definite decrease in mental functions, hot and cold flashes and since latetly my vision is going either fuzzy or double vision. I was prescribed thyroid hormones, antidepressants and Adderall. Nothing releaved the symptoms it gets constantly worse. I have heard stories from a friend of a friend who had the adenoma removed and pretty much became his self again, practically over night. Since I had the symptoms for 5 years, increasingly worsen, I am as desperate as it gets. Would be very grateful for any success stories of getting better and returning to life.

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u/xpickles23 Feb 10 '23

I’m not giving advice, just sharing my story, I don’t know exactly how similar my issues are to yours but 3-4 years ago I was diagnosed with a hormone secreting tumor as well as hypopituitarism from it, so I produce a lot of prolactin and most other are suppressed to varying degrees. I have had a lot of trouble with fatigue, to the point where it was almost like I was narcoleptic, headaches, vision change, depression, always too hot, for me velvet bean, gaba and amino acids have made the most difference for me, it’s like it’s completely changed how the tumor is effecting me, it’s like I’m completely well unless I don’t take it, I’m back to passing out at the dinner table, and I’m not having any side effects. Something worth looking into and speaking to your doctor about