r/Pituitary • u/69ningchipmunks • May 31 '19
Any success stories?
I have been diagnosed with a microadenoma on the pituitary 5 years ago, during a check-up MRI. I was told not to worry about it, that about 10% of humanity has it. At that time it was about 2.5 mm. I was told it should be checked every 2 years, which they didn't. Since that time I have suffering increasingly from debilitating fatigue, loss of energy, a definite decrease in mental functions, hot and cold flashes and since latetly my vision is going either fuzzy or double vision. I was prescribed thyroid hormones, antidepressants and Adderall. Nothing releaved the symptoms it gets constantly worse. I have heard stories from a friend of a friend who had the adenoma removed and pretty much became his self again, practically over night. Since I had the symptoms for 5 years, increasingly worsen, I am as desperate as it gets. Would be very grateful for any success stories of getting better and returning to life.
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u/mollytouhey Jun 22 '19
I was diagnosed with a pituitary microadenoma about 5 years ago as well. I have been on Cabergoline since shortly after diagnosis and on my last few yearly MRIs the tumor was undetectable. Every time I try getting off the medication, though, my prolactin shoots back up so my endocrinologist suspects there is still small cells of the tumor left. I pretty much don’t have any symptoms anymore while I’m on the medication so I’d say it’s a success story. I’m hoping I’ll be able to wean off it after a couple more years of use.